spinal cord stimulator removal
frustrated and in pain

East Palestine, OH

#124 Apr 14, 2014
Steven wrote:
<quoted text>
I still have pain at the battery site and it has been over 6 months since the removal. My battery pack was located in the same area.
Six months grrr... does it at least get easier to sit up BC my ass is killing me so much I won't leave my bed. And meds are starting to fail me again.
frustrated and in pain

East Palestine, OH

#125 Apr 14, 2014
And what type of trauma is going to happen when they remove the leads? Have had an epidural headache aka six weeks of another hell I'm so afraid that on top of everything I'll get one. I have the thin leads not the paddle leads.
frustrated and in pain

East Palestine, OH

#126 Apr 14, 2014
bugs wrote:
I've had the suns for 1 1/2 years nothing but regrets. I hate the pain I was already experiencing then to have more pain with the suns just unbearable.
Ready to have it removed just scared of another surgery & not to mention the pain, the worries of having a dr so close to the spine
Anyone have thoughts on removing this ??????

Why is the sun unbearable?
Tara

Avondale, AZ

#127 Apr 15, 2014
After repeated requests, I finally got a referral from my pain doctor back to the neurosurgeon who installed the SCS and he agreed to remove the device. The surgery was yesterday and although I had a lot of scar tissue around the paddle leads, he was able to dig it out and clean up the area. No surprise, I am in pain, but not nearly as much as when I had the revision wherein the doctor had to pull my trapezius muscle off my ribs to clean up the scar tissue from the lead shifting. I had to drive 100 miles to see the doctor since he moved his office, but it has been well worth it. I already feel a difference in the left sided numbness symptoms and although that could be a coincidence, but I don't think so.

The doctor confirmed that my battery had flipped in my body and that was why I had issues charging the unit and keeping in charged. This overall has been a very positive experience. It may be the drugs talking, but I highly recommend anyone who feels they are having issues with their unit to get it removed.

Good luck everyone and I wish you all wellness!
Tara

Avondale, AZ

#128 Apr 15, 2014
frustrated and in pain wrote:
And what type of trauma is going to happen when they remove the leads? Have had an epidural headache aka six weeks of another hell I'm so afraid that on top of everything I'll get one. I have the thin leads not the paddle leads.
I just got my Boston Scientific SCS unit, with paddle leads removed yesterday and am not having any ill effects from the removal. On the contrary, although there is pain from the removal/incision and a bit of digging, I feel much better than I did when I had the unit installed.
Tara

Avondale, AZ

#129 Apr 15, 2014
Stan wrote:
When they removed the SPS did anyone have the plastic drainage balls to drain out the extra fluid or did they just sew you up?
They just sewed and glued me up... no plastic drainage bulbs. I am not noticing any fluid build up.
frustrated and in pain

East Palestine, OH

#130 Apr 15, 2014
Tara wrote:
<quoted text>
I just got my Boston Scientific SCS unit, with paddle leads removed yesterday and am not having any ill effects from the removal. On the contrary, although there is pain from the removal/incision and a bit of digging, I feel much better than I did when I had the unit installed.
Thank you so much for the reply. I hope you are doing well :-) let me know how it all heals up.
2Risky4Me

Webb City, MO

#131 Apr 16, 2014
Guys please know there is a legal firm who is handling all the cases of bad results from these SCS implants. I strongly urge anyone who has had problems to seek legal help. We are all in enough pain without having more added to our lives.
I feel lucky that I refused to have one put in and it was all due to reading about all of the sad results posted on this site. I feel glad for those few who got the great relief that this unit is intended to give but the trial hurt me so bad that there was no way I could go further with an implant. Find my earlier posts and you will see the link to the legal firm that is handling cases like so many of you have experienced. These SCS companies need to be exposed and forced to give all results to patients not just the glowing ones from the successful implants.
Amanda

Knoxville, TN

#132 May 7, 2014
I had my Boston Scientific Stimulator put in 3-19-13. It's been nothing but extra pain on top of what I already was experiencing. I've had an l4-l5 fusion and 2 revisions after. The battery is right above my hip and I swear I can feel the wire running up my back. The pain from the battery pack site is excruciating. I'm getting mine out on 5-16-14. Thank God! I'm just so disappointed, my dr made this thing out to be the end of my pain. My battery is so very close to the metal from the fusion. What should I expect as far as pain and recovery? Thanks alot. Amy
Steven

Concord, CA

#133 May 8, 2014
Hi Amanda I could feel the leads in my spine and at one point my family doctor could no longer tell where I was injured since the pain now hit every vertebrae. Once everything was removed the pain along my spine started to go away and I was just back to the pain in my lower back down my left leg. No matter what the pain I have today is no where near the level it was with the Spinal Cord Stimulator. Having it removed was the best thing I did and the recovery time was not bad just a couple of days and I was back to work. The only real pain after the removal was the battery site and it has been almost a year and it still feels like I have the battery pack in my hip.
Good luck you will be fine and much happier.
Amanda wrote:
I had my Boston Scientific Stimulator put in 3-19-13. It's been nothing but extra pain on top of what I already was experiencing. I've had an l4-l5 fusion and 2 revisions after. The battery is right above my hip and I swear I can feel the wire running up my back. The pain from the battery pack site is excruciating. I'm getting mine out on 5-16-14. Thank God! I'm just so disappointed, my dr made this thing out to be the end of my pain. My battery is so very close to the metal from the fusion. What should I expect as far as pain and recovery? Thanks alot. Amy
Steven

Concord, CA

#134 May 8, 2014
It has been my experience the only one who benefits in a legal action like this is the legal firm the people who have suffered on this site will not receive anything from this firm. If your goal is to be paid hire your own attorney. Keep in mind it didn't work for me and most of you but there are people with no use of their legs who are starting to walk again because of this device. Even with all the negative things that happened to me for 9 months I had the feeling back in my left leg and foot after 15 years of having no feeling. Now that it has been removed I have lost the feeling again. There is a real use for this device and I always felt like my doctor was trying to help me. I am not happy it failed but I am not ready to jump into a legal action. I want them to continue to work on this device and perfect it so it will help me and others some day. All I want is for Boston Scientific and the other manufactures to post the real statistics on the failure and success rates so people like us can make an informed decision before trying this device.
2Risky4Me wrote:
Guys please know there is a legal firm who is handling all the cases of bad results from these SCS implants. I strongly urge anyone who has had problems to seek legal help. We are all in enough pain without having more added to our lives.
I feel lucky that I refused to have one put in and it was all due to reading about all of the sad results posted on this site. I feel glad for those few who got the great relief that this unit is intended to give but the trial hurt me so bad that there was no way I could go further with an implant. Find my earlier posts and you will see the link to the legal firm that is handling cases like so many of you have experienced. These SCS companies need to be exposed and forced to give all results to patients not just the glowing ones from the successful implants.
Jojo

Sicklerville, NJ

#135 May 9, 2014
Ann wrote:
I had the Boston Scientific Spinal Stimulator put in twice in 2010 and now it doesn't work. I hate it, I have more pain where the battery is than before I had it on.
My orthopedic tells me to remove it as soon as possible that it's not good to have it in specially since it's not working. I'm just scared of another back surgery.
im having mine removed just the battery there taking out on 05/12/14 I hope all goes well they say depending on how much scar tissue the paddle stays in
Jojo

Sicklerville, NJ

#136 May 9, 2014
I have so much pain wear battery is lost 40 pounds so now it protrudes out can't lay on it hurts having it removed on 05/12/14 just the battery leaving in paddle and leads scared anyone can tell me how the recovery is ? Trial worked permanent no relief ever back pain still there after fusion and everything I guess I will be on pain meds rest of life no more surgeries for me no way !!!
comostat

Belmar, NJ

#137 May 18, 2014
Nicolemarie wrote:
I had mine removed yesterday and I'm in a lot of pain. I think it depends on how much scaring there is around the leads. I didn't want another surgery but needed a MRI and wasn't using the stimm anyway it was making my pain worst. It's ashame I was hoping this was my answer
Nicolemarie how long was your`recovery time after getting simulator taken out. I hate mine it is coming out next week. So much pain from this device cannot walk bend sit without major pain please tell me do you feel better have any pain relief It is horrible living like this pain day and night thank you
Tara

Avondale, AZ

#138 May 20, 2014
Okay, so I am just over a month post-op and I feel amazing. I wish everyone who had the removal felt this good. I went back to the surgeon for the follow up appointment one week ago today and he said that he wishes that everyone did as well as I have with the removal surgery. I did have a week about 2.5 weeks after the surgery, where I had pulled the muscle away from the rib, so I had extreme burning. I used ice for at least 30 minutes of every hour while I was awake and it went away in about a week. I am not sure if the ice made the difference or if it was that I was drinking very large amounts of water, knowing that both would help my body heal faster.

I have also noticed that any radicular pain that I had in my torso, while the SCS was installed, has gone away. I asked the surgeon if it was possible that the leads or the scar tissue had impinged a nerve, and he said that it was possible, but that he didn't see it.

My question to others is, did the surgeon who installed the SCS remove it for you?

Wishing you all wellness and improved health.
Tara

Avondale, AZ

#139 May 20, 2014
Jojo wrote:
I have so much pain wear battery is lost 40 pounds so now it protrudes out can't lay on it hurts having it removed on 05/12/14 just the battery leaving in paddle and leads scared anyone can tell me how the recovery is ? Trial worked permanent no relief ever back pain still there after fusion and everything I guess I will be on pain meds rest of life no more surgeries for me no way !!!
My recovery took just under a month. Be sure to drink lots of water, get plenty of rest and use ice if you can tolerate it. Best of luck!
Michelle

Defiance, OH

#140 Jun 11, 2014
Tara wrote:
<quoted text>
My recovery took just under a month. Be sure to drink lots of water, get plenty of rest and use ice if you can tolerate it. Best of luck!
Hi Tara, I know this is an old forum post, but I'm having my Medtronic Device taken out on June 23rd. Was your surgery inpatient or outpatient?

Since: Oct 13

Chicago, IL

#141 Jun 19, 2014
Nicolemarie wrote:
I had mine removed yesterday and I'm in a lot of pain. I think it depends on how much scaring there is around the leads. I didn't want another surgery but needed a MRI and wasn't using the stimm anyway it was making my pain worst. It's ashame I was hoping this was my answer
I've finally gotton my SCS surgery removal date for June 24, 2014. After 5yrs with this horrible foreign object implanted, I'm finally going to have my day. I had to be my own advocate to get a surgical appt with the surgeon. The personnel responsible gor sending my papers to medicare took a month & a half. After making a personal appearance at the hosp with my complaints it only took 3 days for approval & less than a week for my surgery date. This St. Jude device was nothing but trouble for years. Ill never get anything implanted ever again. The doctors benefit from being paid & some patients ( me) end up with the pain.
2Risky4Me

Webb City, MO

#142 Jun 20, 2014
tbc62 wrote:
<quoted text> I've finally gotton my SCS surgery removal date for June 24, 2014. After 5yrs with this horrible foreign object implanted, I'm finally going to have my day. I had to be my own advocate to get a surgical appt with the surgeon. The personnel responsible gor sending my papers to medicare took a month & a half. After making a personal appearance at the hosp with my complaints it only took 3 days for approval & less than a week for my surgery date. This St. Jude device was nothing but trouble for years. Ill never get anything implanted ever again. The doctors benefit from being paid & some patients ( me) end up with the pain.
There is a lawsuit against St. Jude and other SCS device companies, just search it online and you will find quite a bit of information about them.
kenny

Gulfport, MS

#143 Jul 10, 2014
I had the boston scientific precision put in sept 2008 after dealing with post laminectomy syndrome and was trying to let my brain convince me I was no longer in 7-10 pain constantly, ya right, what waste of money and time. after about 1 year when I turned it off it did not shut OFF! I went about another 6 months and was going to have my third revision on my L-4 - S-1 and had to have it taken out first. great I said. to make a long story here it is july 2014 and it is still running strong with no battery, no leads no nothing. doesn't this sound like so much fun!!! and can't even sue the bastard! tkz

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