Anonymous

Anniston, AL

#103 Feb 19, 2014
I have been reading all these post and I am also looking for a doctor to remove mine but I am curious as to the location of the battery pack for most people. Mine is about 6 in. Up from my bohunkus and less than 1/2 in to right of dead center in my back and it sticks out so far you can actually see the size of the battery. Any one else have one this way and what complications if any? Thanks
Stan

Kansas City, MO

#105 Feb 21, 2014
When they removed the SPS did anyone have the plastic drainage balls to drain out the extra fluid or did they just sew you up?
Steven

Concord, CA

#106 Feb 22, 2014
Stan wrote:
When they removed the SPS did anyone have the plastic drainage balls to drain out the extra fluid or did they just sew you up?
There was no drainage they just removed everything and stitched up the openings
Steven

Concord, CA

#107 Feb 22, 2014
frustrated and in pain wrote:
Help ... I had the boston scientific implanted in July 2013 and had some relief but now I'm. Having terrible pain at the battery site for three weeks now. The battery is in my bum cheek and the pain goes down to my lower leg nothing relieves the pain. My Dr check the position and it is find he said it was bruised . I'm sure something is very wrong. Does anyone know what battery leaking feels like?
I still have pain at the battery site and it has been over 6 months since the removal. My battery pack was located in the same area.
Tara

Avondale, AZ

#108 Mar 7, 2014
I had my first SCS installed in 2007 and then a revision, since the leads migrated in early 2008. Just as others indicated... although the trial worked well, the implanted version has never worked. Gradually, I started having pain in my ribs and middle back, and so they recently diagnosed me with arthritis and fibromyalgia. Just today I was told that since the steroid injections in my thoracic facet joint injections aren't working, and since my pain radiates around my torso, from my back to my ribs, that it is more than just arthritis, that I also have radiculopathy. I am seriously considering consulting an attorney. I had 12 needle pokes today with the steroid injections in my mid back and I am not looking forward to the radiofrequency ablation treatments that they want to do next. My original issues were at L3-5 and S-1, far south of the area where I am now having issues. I have also been having neck and shoulder issues and headaches since I had the SCS installed. I am just so over this. I want this out and able to go back to a Chiropractor who may be able to help the core issues and not just treat the pain. I did finally get the referral today to go back to the surgeon to get the SCS removed. Unfortunately, it has taken a lot more pain and stroke like symptoms, which the ER doctor associated with the SCS, but my pain doctor didn't want to listen to that. It seems that the issues keep adding up.

Best of luck to you all!
Michael7

Plainview, TX

#109 Mar 11, 2014
My surgeon was out as he had surgery. My case was sent across the hall to another Dr. He wanted it removed next day as it infection was too close to spine. Next moning another Dr did surgery. I still have not met the man 2 years later. He did not take all of stimulator and leads out. I had just gone through 2 months getting ride of MSSA.
Two year later after much pain a Neurosurgeion was going to take out remaining hstimulaor as it was binded the nerves. Also add hardware to L$ and L5. When taking out upper stimulator that was left by other Dr. he had to stop surgery to get rid of another Staph infection from hardware that was left. I can balance issues and can not walk straight or as Neurosurgeion stated in was restricted for too long of a time. Blance could improve maybe not. Lower back still hurts.

I love my Lord and pray thank him he has allowed me to walk and live. My job was lost after 21 surgeries in 3 years. Most of them were moving the stimulator to different places during the first staph infection.

May God Bless those with pain and my prayers are with.
Steven

Concord, CA

#110 Mar 12, 2014
Tara wrote:
I had my first SCS installed in 2007 and then a revision, since the leads migrated in early 2008. Just as others indicated... although the trial worked well, the implanted version has never worked. Gradually, I started having pain in my ribs and middle back, and so they recently diagnosed me with arthritis and fibromyalgia. Just today I was told that since the steroid injections in my thoracic facet joint injections aren't working, and since my pain radiates around my torso, from my back to my ribs, that it is more than just arthritis, that I also have radiculopathy. I am seriously considering consulting an attorney. I had 12 needle pokes today with the steroid injections in my mid back and I am not looking forward to the radiofrequency ablation treatments that they want to do next. My original issues were at L3-5 and S-1, far south of the area where I am now having issues. I have also been having neck and shoulder issues and headaches since I had the SCS installed. I am just so over this. I want this out and able to go back to a Chiropractor who may be able to help the core issues and not just treat the pain. I did finally get the referral today to go back to the surgeon to get the SCS removed. Unfortunately, it has taken a lot more pain and stroke like symptoms, which the ER doctor associated with the SCS, but my pain doctor didn't want to listen to that. It seems that the issues keep adding up.
Best of luck to you all!
I had heart issues with my SCS the doctors think it was hitting the vagus nerve and stopping my heart but like you the SCS doctor didn't want to hear it.
frustrated and in pain

East Liverpool, OH

#111 Mar 17, 2014
Finally having this unit moved In a few days. I have only been having issues with it since Jan 3rd , three doctors later. They won't take it out but they will move it up higher or tummy area I'm so worried I'm going to pick the wrong area. I need to get back to working fast my house depends on it. Please give me some input fast surgery is this weds. Thank you ... hopefully my life can get better soon
bugs

Las Vegas, NV

#112 Mar 17, 2014
I've had the suns for 1 1/2 years nothing but regrets. I hate the pain I was already experiencing then to have more pain with the suns just unbearable.
Ready to have it removed just scared of another surgery & not to mention the pain, the worries of having a dr so close to the spine
Anyone have thoughts on removing this ??????
Tracie

United States

#113 Mar 19, 2014
My grandmother had the scs put her back 2002. She had it taken out in 2009. She has always had a knot in her back ever since (scar tissue probably) but she is in constant pain. She has a lot of other health problems such as diabetes and neurotrophy. In the last year her back is gettin worse and the doctors around here don't know what is causing the pain. If anyone else has experienced the same thing please let me know...
Steven

Concord, CA

#114 Mar 19, 2014
bugs wrote:
I've had the suns for 1 1/2 years nothing but regrets. I hate the pain I was already experiencing then to have more pain with the suns just unbearable.
Ready to have it removed just scared of another surgery & not to mention the pain, the worries of having a dr so close to the spine
Anyone have thoughts on removing this ??????
The pain from having it removed was minor I had taken out on Friday and was back to work on Monday. The pain in my spine caused by the cables started to improve in about 2 months. I am back to the pain and loss of feeling in my left leg but it is still better than having the SCS implanted. I still take a few pain meds but I will not go back to the level they had me on before the stimulator. On the really bad days I use a TENS unit and ice. The nerve damage in my leg is not going to get better and I have lived with it for 20 years the back pain worries me but I would tell anyone I ran into do not get this spinal cord stimulator it was the worst mistake and I paid for it.
MIchael7

Plainview, TX

#115 Mar 28, 2014
Steven,

Sorry to hear of the continued pain. I remember one side of the bed the doctor for Infectious Diesease Control would argue and curse with the Ortho Doctor who wanted to move it to a different place and save it. ID Doctor would state the Staph would not go away from the wires and crevices of the device. He was correct.
Blessing to you!
M
Stan

Kansas City, MO

#116 Mar 30, 2014
I went to have my SPS removed and the dr tooled the battery pack out. When he went to remove the leads he could not get them out. He said they are embedded in scar tissue and this will take a special Nuerosurgeon to remove them. He also called them "paddle leads". I'm scared to death of what my outcome could be.
Has anyone ever had similiar situations on their removal?
Steven

Concord, CA

#117 Mar 31, 2014
I didn't have the paddle leads I had the percutaneous leads and while they had been installed for about a year they came out without any issues. I did review the paddle leads prior to my first surgery and it appears they have to make space for the paddle and it is used so the lead won't move. When they inserted and removed my leads I was awake it was a quick pull and the leads were removed. The pain the leads had caused went away fast the pain from the battery pack is still there almost a year after the removal. I still can't keep a wallet in my back pocket. In any case I would strongly suggest you have the leads removed and it sounds like the Neurosurgeon is a good suggestion as well you don't want to risk any nerve damage. You need to make sure your doctor and Insurance understands you are in pain from the leads so they don't question coverage.
Stan wrote:
I went to have my SPS removed and the dr tooled the battery pack out. When he went to remove the leads he could not get them out. He said they are embedded in scar tissue and this will take a special Nuerosurgeon to remove them. He also called them "paddle leads". I'm scared to death of what my outcome could be.
Has anyone ever had similiar situations on their removal?
claire578

Los Angeles, CA

#118 Apr 4, 2014
Ive had one in since 1/2013. Getting it out tomorrow. I am already disabled with Adhesive Arachnoiditis, RSD, peripheral neuropathy, pretty much whole back is diseased with DDD. Any long-term pain with removal of SCS? I need 2 Mri's done after this is removed. Like alot of people, the trial was great. Never got more than 10-20% relief after installation though.
Steven

Concord, CA

#119 Apr 4, 2014
Which type of leads did you have installed?
claire578 wrote:
Ive had one in since 1/2013. Getting it out tomorrow. I am already disabled with Adhesive Arachnoiditis, RSD, peripheral neuropathy, pretty much whole back is diseased with DDD. Any long-term pain with removal of SCS? I need 2 Mri's done after this is removed. Like alot of people, the trial was great. Never got more than 10-20% relief after installation though.
traci

Wylie, TX

#120 Apr 7, 2014
chris101899 wrote:
Hi, I had a Boston Scientific SCS implanted Jan 2010 and I hate it. Trial worked great, I don't know what the difference is, but this thing is awful. I've had it turned completely off for the last five months because I gave up on it.
My pain mgmt doc wants to remove it but I'd prefer to avoid yet another surgery. Has anyone had one of these removed? I've heard the recovery time is easier and shorter for the removal than the implant. Is that true? I'm starting a new job and won't be able to take much time off.
thanks much!!!
I had the Boston scientific scs and it shocked me after about a year of having it. I had it removed 5 weeks ago today. I am in SEVERE pain and it doesn't seem to be getting better. I will say this I told the Dr I wanted it when he removed it and so he gave it to me. My husband told me the next day when he really took a good look at it that it is burned all the way up the lead.
There is no way I would ever recommended having one put in
traci

Wylie, TX

#121 Apr 7, 2014
Anonymous wrote:
I have been reading all these post and I am also looking for a doctor to remove mine but I am curious as to the location of the battery pack for most people. Mine is about 6 in. Up from my bohunkus and less than 1/2 in to right of dead center in my back and it sticks out so far you can actually see the size of the battery. Any one else have one this way and what complications if any? Thanks
I had mine removed and it is extremely painful but very much worth it!
frustrated and in pain

East Liverpool, OH

#122 Apr 14, 2014
Well had the revision surgery and let me tell you my nightmares got worse... I'm still having terrible pain in my bottom and leg. it has been a. Month and the battery shifted so I can no longer charge it. So now they want to put it higher just below the belt line. I'm so scared and don't want anymore cuts in my but area . I fell like a lab rat and the drs don't care. I should have just had it removed. I'm so frustrated and upset. When will this pain away? the rep said these things hardly ever happen. But I don't know if I beileve him at all. now I have 4 incisions about to be 6. The battery is hitting my rib when I bend over.:(( and the pain the stem was helping is coming back full force. I'm in so much pain I don't see me working for a very long time and comp is pushing me to settle. Should I try a pain pump ... should I let this drs make a fool of me ... I'm so depressed suicide seems like a option. Sincerely trying to keep my head up :/
frustrated and in pain

East Liverpool, OH

#123 Apr 14, 2014
Tara wrote:
I had my first SCS installed in 2007 and then a revision, since the leads migrated in early 2008. Just as others indicated... although the trial worked well, the implanted version has never worked. Gradually, I started having pain in my ribs and middle back, and so they recently diagnosed me with arthritis and fibromyalgia. Just today I was told that since the steroid injections in my thoracic facet joint injections aren't working, and since my pain radiates around my torso, from my back to my ribs, that it is more than just arthritis, that I also have radiculopathy. I am seriously considering consulting an attorney. I had 12 needle pokes today with the steroid injections in my mid back and I am not looking forward to the radiofrequency ablation treatments that they want to do next. My original issues were at L3-5 and S-1, far south of the area where I am now having issues. I have also been having neck and shoulder issues and headaches since I had the SCS installed. I am just so over this. I want this out and able to go back to a Chiropractor who may be able to help the core issues and not just treat the pain. I did finally get the referral today to go back to the surgeon to get the SCS removed. Unfortunately, it has taken a lot more pain and stroke like symptoms, which the ER doctor associated with the SCS, but my pain doctor didn't want to listen to that. It seems that the issues keep adding up.
Best of luck to you all!
Tara I hope the RF treatments helped . I had them 6 years ago and they helped a lot. I was a nurse aide and after therapy I was able to return to full duty for two years. Amazing :-) I'm not going to tell you I was completely pain free. But much much more managable . The Dr told me to find a new job and I didnt listen BC I loved my job and my patients. Now the Dr won't give me the rf treatment before my stem he said he gave me one but he lied it was only my Routine injection. Please let me know if the treatment helped you.

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