spinal cord stimulator removal
KristineP

Bayville, NJ

#43 Apr 4, 2013
SCgirl wrote:
<quoted text>
PLEASE post what the dr. says. More of my contacts/leads have pulled away from the spine, and I also want to have it out. I often take pain meds just to relieve the pain where the battery is.
You got it! I am so anxious for my appt. I have the leads with the paddle at the end and it's screwed to my vertebrae. I'm really hoping it won't be a situation where it can't be taken out.
Scott

Cleveland, OH

#44 Apr 19, 2013
Phil2011 wrote:
I am having sharp pains where the battery pack is implanted and have been told that if there is not an infection then they will have to remove it as well any thoughts?
I've had it removed in 2010. I've since had severe back problems that are rapidly getting worse. I'm not sure whats causing the pain, but I fear it's scar tissue.
MLB

Santa Ana, CA

#45 May 2, 2013
My wife has SCS trial on yesterday, machine does not work correctly , make her pain get worse, doctor wants us make decision to implant he think the lead inside is moving, any recommend
KristineP

Bayville, NJ

#46 May 26, 2013
I am having my SCS removed this coming Tuesday the 28th. My neurosurgeon will be removing it due to it being the one with the paddle attached to my spine. Can't wait to have it gone.
KristineP

Bayville, NJ

#47 May 26, 2013
SCgirl wrote:
<quoted text>
PLEASE post what the dr. says. More of my contacts/leads have pulled away from the spine, and I also want to have it out. I often take pain meds just to relieve the pain where the battery is.
My neurosurgeon agreed to remove the SCS. Getting it out this Tuesday the 28th. I'm so relieved.
KristineP

Bayville, NJ

#48 May 31, 2013
KristineP wrote:
<quoted text>
My neurosurgeon agreed to remove the SCS. Getting it out this Tuesday the 28th. I'm so relieved.
You got yours out too? That's great. I don't know about you but I've been having lots of pain. Worse than when it was put in. It's all worth it though. So glad it's gone.

Since: May 13

Location hidden

#49 May 31, 2013
I ran across this site while debating to have an SCS implanted. Boy am I ever glad I found this information! My decision is no to the SCS. After reading all the nightmares people have had I just don't see it being worth the risk. The trial itself was like having 2 hot poker rods in my back and burned constantly...I was told that the "discomfort" was normal, I felt like I was on fire those 5 days!

I also found this that some of you may find some interest in: http://www.meyersonfirm.com/news/...
SCgirl

Hilton Head Island, SC

#50 May 31, 2013
I met with my surgeon yesterday. He agreed to take it out or replace it, whichever I choose. He said although the wires do sometimes break, it is not very common. Out of the 400 or so he has put in, he's had about 40 break. I told him to now make that 41. Then he told me about one of his patients who gardens a lot. Her main wire has snapped "at least 3 or 4 times". I guaranteed him that I wouldn't be having the surgery that many times! He looked at the incision sites after I told him how much they ache, and all he would say is that I don't have a lot of fat to provide padding and that he wouldn't be able to put the battery or wire on the spine any deeper. He said the recovery should be a little quicker since he wouldn't be putting anything in. I know now that I want this out. I just don't want to have the miserable surgery and recovery. I really don't have the time or money for it.:(
Steve

Santa Ana, CA

#51 May 31, 2013
I had my Boston SCS installed in Nov 2012 it seemed to work up until month 6 and then I started having problems. The pain in my spine is now worse than before the surgery. I had major stomach and bladder issues and now it is affecting my heart. I am having the device removed as soon as I can. I wish I could have found all the information posted before I started down this road. I think like most of us I wanted to be out of pain so bad I only looked at the positive side of the SCS. I would like to hear more about the removal I am a little worried but staying in is not an option.
KristineP

Bayville, NJ

#52 Jun 6, 2013
My SCS is out!! So relieved that my neurosurgeon was able to get everything out. There was a chance he wouldn't be able to get the paddle that was attached to my spine out. It's all gone! First 3 days were painful but after that felt so much better. This is a choice I won't regret. Pre-surgery pain is gone. Good riddens SCS!!
KristineP

Bayville, NJ

#53 Jun 6, 2013
Steve wrote:
I had my Boston SCS installed in Nov 2012 it seemed to work up until month 6 and then I started having problems. The pain in my spine is now worse than before the surgery. I had major stomach and bladder issues and now it is affecting my heart. I am having the device removed as soon as I can. I wish I could have found all the information posted before I started down this road. I think like most of us I wanted to be out of pain so bad I only looked at the positive side of the SCS. I would like to hear more about the removal I am a little worried but staying in is not an option.
Hi Steve. I just had my SCS taken out last week. Best decision I made. It was more trouble than it's worth. I had the one where there was a paddle at the end of the leads and was attached to my spine. It was a 3hr surgery to take everything out. The first 3 days I was very sore. After that good as new. Today I feel great. Get my staples out on Wednesday next week.
SCgirl

Hilton Head Island, SC

#54 Jun 7, 2013
KristineP wrote:
<quoted text>
Hi Steve. I just had my SCS taken out last week. Best decision I made. It was more trouble than it's worth. I had the one where there was a paddle at the end of the leads and was attached to my spine. It was a 3hr surgery to take everything out. The first 3 days I was very sore. After that good as new. Today I feel great. Get my staples out on Wednesday next week.
KristineP: It sounds as if you are recovering well. Are you feeling better during this recovery than you did after you had it put in? I was just so miserable after it was implanted that I'm wondering if that's better. Thanks!
KristineP

Bayville, NJ

#55 Jun 8, 2013
SCgirl wrote:
<quoted text>
KristineP: It sounds as if you are recovering well. Are you feeling better during this recovery than you did after you had it put in? I was just so miserable after it was implanted that I'm wondering if that's better. Thanks!
SCGirl I definitely feel so much better during this recovery. Big difference. I was just sore for 2 or 3 days after having it out. When I had it put in I had pain for about a week. Such an easy recovery this time.
Carmen

Southwest Brevard Cnty, FL

#56 Jun 9, 2013
I had mine Spinal S back in 2007 and only work for a couple of months cause was not doing the job.in 2010 I move, and a went to see a different Dr and he examine me and told me the reason that was not helping me with the pain was because I needed 2 leads and I only had 1 lead ..so went for another surgery to add the lead that was missing, when I woke up the DR told me that he was not able to put the lead were I Needed because there was something in that part of my spine and he had to go around and over, what ever was there.I don't know why He put that extra lead if it was not going to work, so went for that surgery. and now I want to take it out!!!I'm scare, there is a lots of complains about this we should do something about it....Dr told me well I tough it was going to work, yet they are getting a lots of money for this surgery. St just don't work... if anybody have and idea about this removal, please respond to me...Carmen
Joe

Hazel Park, MI

#57 Jun 15, 2013
If you already had the dorsal column stimulator installed, it's too late. After Doc promised it would come right out, it didn't but rather got lodged and caused instantaneous never-ending pain worse than having your tooth drilled without Novocain. Pain worse than paralysis. The other guy in the room with me was paralyzed by the procedure. Two for two screw ups, good going Doc
Joe

Hazel Park, MI

#58 Jun 15, 2013
Lies for dollars, use an external tens unit or muscle stimulator to relieve the pain, tightness or whatever problem you are having. DO NOT GET A DORSAL COLUMN STIMULATOR as documented in my book, survivingthehospital.com Not only does it cause problems, you can no longer get safer MRIs for any purpose because of the implanted metal, but instead will have to get CAT scans forever.
KristineP

Bayville, NJ

#59 Jun 15, 2013
Joe wrote:
If you already had the dorsal column stimulator installed, it's too late. After Doc promised it would come right out, it didn't but rather got lodged and caused instantaneous never-ending pain worse than having your tooth drilled without Novocain. Pain worse than paralysis. The other guy in the room with me was paralyzed by the procedure. Two for two screw ups, good going Doc
Hi Joe. I had the dorsal column stim and just had it safely removed almost 3 weeks ago. It took 3 hours because my neurosurgeon was very careful and the best.:) I didn't end up with a spinal fluid leak due to him taking his time and being careful. I did have a lot of scar tissue he had to get thru. Sorry you had such a bad experience and couldn't have yours taken out. So sorry for all the pain you have to deal with.
Steve

Concord, CA

#60 Jun 16, 2013
I had my SCS removed on Tuesday so far it seems better not too much pain. I was told the damage to my bladder will repair itself back to normal in about 3 months, they still want to scope my stomach to see if it has done any damage. It is funny how the Doctor and the SCS manufacture never heard of any of these problems but yet I have found so many people with the same issues. What was strange is my vertebrae started hurting bad around the 6 month mark and they just increased my pain meds and now after the device has been removed the pain is gone. I know when we are in pain we are looking for anything to make it better and all of the research I did was provided by the doctors and manufacture. It wasn't until things started going bad that I found all the issues sites like this had posted. I wish I would have found this site before I had the Spinal Cord Stimulator installed.
roy

Southwest Brevard Cnty, FL

#61 Jul 1, 2013
had my in feb 2013 had more problems then its worth its not helping my low back.helps with leg pain but not my lower back.when I use it it makes the back of my neck hurt and stiff. had it reprogramed 2 times still with no luck.doc tells me to give it time.how much time before I tell them to take OUT.help
pam -- new jersey

Vineland, NJ

#62 Jul 12, 2013
had the scs implant in 2007. the only reason I agreed to the procedure was because after 8 yrs of chronic pain, numerous specialists and a lot of pain meds, I didn't know what else to do!i too did not get any relief from the device. it never stimulated the right areas of my neck and arm. the one thing I can say it did for me was help me kick a bad Percocet habit. 5 weeks post surgery, I put myself in rehab to withdrawal from that demon. I felt as though that was the only way to truly tell if the scs was working,(I was pretty drugged up every day for the last 6 mths pre-surgery) anyway, had it removed in 2011. I found a wonderful nero.surgeon in Neptune nj ( dr.simon a salerno). the procedure was painful, but not as bad as the implant procedure. I lucked out with the dr. being able to get all the leads out. did not know that there is a good chance some will be stuck because of scar tissue. I needed another mri and that could not be done without complete removal.. to me it was all worth it. I just wish I did not wait the 4 yrs. to have it removed. I hope this has helped someone with ? on getting their scs out. best wishes to all.

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