Bob

Fosston, MN

#23 Jan 25, 2013
who="Linda"]<quot ed text>
I am so sorry to hear of your story. I too have a similar case. I have had the SCS in since 2007. It worked great in the beginning. Over the last 2 years not so good. In fact, I do not use it. It causes burning pain and wakes me up in the middle of the night even now that it is off. I just received approval for removal from the insurance company. My MD wants to do a revision. He has another thing coming. I want it out! I am concerned because the unit itself is imbedded near my left hip on my back side. The leads go all the way up my spinal column/cord to my C2, C3, C4 area. When they removed yours, did they leave the leads in or did they come out? I'm very nervous about all of the scar tissue that must be built up after 5 years on those leads. Being that they go so far and so high up on my spine, I am even more frightened. My MD is rather vague when I ask the questions, as he would just prefer to do the revision or leave the leads in, just "in case I change my mind" and want another unit implanted. As if. I feel bad speaking poorly about the device because it did work wonders for me about the first year. I could have been the poster child for SCS's! They should really do better research about the long term use and possible damages the unit itself can cause. From reading all of the above, it sounds like many people have had poor experiences. I do hope you are feeling better and that your pain is better. I don't know your whole story, but I just looked into having laser surgery performed at the laser spinal institute in Philadelphia. I went to a seminar in Scranton. The laser surgery looks extremely promising for many people. You should check out the website : www.laserspinalinstitute.com . There are 4 facilities in the US. You may have nothing to lose. Looking forward to hearing a response regarding the leads. Take care.
I am having mine taken out this coming Monday & if they don't get the leads out then they tell me I cannot still get a MRI. I have chronic pain in my neck now & also bad head aches @I was going to get a nerve denigration but as long as I have this in they will not do the block. I have had the SCS in my lower back for chronic pain for the last 12 years @have not used it for 10 years
Bob

Fosston, MN

#24 Jan 25, 2013
I am having mine taken out this coming Monday & if they don't get the leads out then they tell me I cannot still get a MRI. I have chronic pain in my neck now & also bad head aches @I was going to get a nerve denigration but as long as I have this in they will not do the block. I have had the SCS in my lower back for chronic pain for the last 12 years @have not used it for 10 years
heidi

Plaistow, NH

#25 Jan 27, 2013
I had my scs put in July 2011 and ended up leaving a stressful abusive marriage and got happy lost a lot of weight and my scs started to stick out of my back and hurt me more then helping me so I had it removed.So on Jan 23rd 2013 four days ago I had it removed. my back is doing good with no pain but my neck is killing me even with the pain meds. But getting better and I went from 2 pills every 4 hours faithfully to 1 pill every 6 hours and its been only four days so all in all I'm glad I had it removed.
ChasityLea

Little Elm, TX

#26 Jan 27, 2013
I had the SCS put in July 2010.. After only two months it stopped working because it would flip inside my side and the battery would not charge. The dr manually flipped it a few times in the office but as soon as I would go home and sleep through the night it would flip again. I was so frustrated. I finally found a dr to remove it last tues jan 22 2013. I was in surgery for two hours longer than the estimated 30 minutes because of scar tissue. I came out with staples (27) a lot of bruising, swelling, and Severe pain. Worse surgery I have been through to date. I am happy to be free of the machine so I can get an MRI and get my problem fixed but I advise anyone getting this done to prepare for a long recovery. I just got up today and walked without support. After a C section with my third daughter I went back to work 3 days later and still had staples in. This surgery really kicked my butt.
Ray

Hackensack, NJ

#27 Jan 28, 2013
Bob, sorry to hear about all your problems....I had my SCS relocated deeped in my back and it looks like something is growing now. Had two cat scans and was told I had 2 seromas and then had a procedure to drain then.....the radiologist said there were no seromas and the lump in my back is getting bigger. I got taken off Nucynta in two days and went thru 10 days of Withdrawal. I was put on Elavil and my blood presure dropped 10 to 20 points and I am already on blood pressure medication. Now I am on nothing but I Lidocaine patch 12 hrs on, 12 hrs off. The thing is I do need the stimulator and it works but not where it is implanted. I am looking to have it relocated to my left abdomen and two more leads have to go in because 9 foot and leg surgeries have screwed up my nerves in my feet and nothing seems to help and the pain management dcotor wants to use my SCS to block the pain. I was told that if they ever remove the SCS they leave the leads in because it can be dangerous to try and remove them. Trust me, I am at my wits end! Now I know why they call it a practice! The doctors practice on us till they get it right. Let us know what happens. You can also try calling the rep of the company who makes your SCS but there's no guarantee they will tell you the truth. After all it's their product. Good Luck
Dave

Hellertown, PA

#28 Jan 30, 2013
Debra Harris wrote:
<quoted text>
Chris, I also had the same procedure done in November 2011. I have had nothing but problems with chronic pain since then. Most of the time, the device does not work, or gives me electrical impulses EVERYWHERE but where the device was programmed for the injury. I have also left the device off for this reason. I will have the hardware removed in early August 2012
Chris I had a Medtronics stimulator removed i had developed a staph infection 2 weeks after implant had very much pain,the day it was removed my pain level dropped from a 9 to 2-3 and it was sore for a few day do yourself a favor get it out as fast as you can good luck
Teresa

Commiskey, IN

#29 Feb 5, 2013
Had a SCS removed in 08 due to not helping pain BUT dr left leads in Had an xray 10/12 to find out the leads were still in , dr is removing leads 2/13 . Any one know of a reason for that?
Ray

Hackensack, NJ

#30 Feb 5, 2013
Normally if the doctor removes an SCS he leaves the leads in because
of the dangers of pulling them out and the possibility of having a new SCS inserted later on in life. You can't have an MRI with the leads in so that may be why they are removing them. The leads may slide out easily. Check with your doctor why he is removing them and how many procedures he has done like that. also find out if there was a problem with the type of leads you had implanted.
Hope that helps....
Good luck and feel better
Kaizmomz

Danielson, CT

#31 Feb 12, 2013
Phil2011 wrote:
I am having sharp pains where the battery pack is implanted and have been told that if there is not an infection then they will have to remove it as well any thoughts?
I have the same problem plus more I hate this thing I want it out ASAP
barbara

West Babylon, NY

#32 Feb 25, 2013
I too had the scs implanted and felt like I had a infection in my hip right after surgery. Dr's were saying no nothings wrong ,didnt have it in but 3 months and it was out ! and Noe I still feel like something is wrong like it infected my skin or and bones ~~ I dont know what to do the pain is crazy
unbearable at times . and tender to the touch from my hip down my thigh ..
SCgirl

Sumter, SC

#33 Mar 3, 2013
Rrvillanueva wrote:
<quoted text>
I agree!!! Get it out of there!! That's what I did and I'm so much better without it!!
I had my St. Jude SCS implanted in June 2011. Almost all of my leads/contacts are not working, and the battery causes me so much pain. It really took me a long time to recover from the surgery. I tell people that I took the whole 8 weeks and more. Was the recovery from the removal easier? Did they leave the leads on the spine for you?
Rrvillanueva

Orange, TX

#34 Mar 3, 2013
No, they removed the leads too. I had a CT scan to check for scar tissue before the removal and even though it had been 2 years, apparently their wasn't a lot of scar tissue so that worked out good. The recovery wasn't too bad. In under 2 weeks (11 days) from the removal I made a 16 hour car trip. It wasn't easy but it wasn't as hard as you would think either considering.(We had a daughter-in-law having an emergency c-section, to explain the reason for a trip like that).
Upon returning home approximately 2 weeks later, I did get with my pain management physician and had them change my pain medication. I am now on something better, Nucynta, and it is now working quite well for me.
Richard Churchill

Painesville, OH

#35 Mar 17, 2013
My stimulator was working.Not anymore sends signals all over the place.Thought it was the cure to my chronic pain after suffering 20 yrs.Had 2 spinal fusions that have failed.Sick of living in PAIN!!!! now its coming out 3/18/2013 wish me luck.Only option now is back to meds.At least i may get some relief.Glad i found this sight & know now i am not alone in this fight to have a chance of being pain free. want to talk rickc@2856gmail.com. Thanx
Kristi

Cicero, IL

#36 Mar 18, 2013
Richard Churchill wrote:
My stimulator was working.Not anymore sends signals all over the place.Thought it was the cure to my chronic pain after suffering 20 yrs.Had 2 spinal fusions that have failed.Sick of living in PAIN!!!! now its coming out 3/18/2013 wish me luck.Only option now is back to meds.At least i may get some relief.Glad i found this sight & know now i am not alone in this fight to have a chance of being pain free. want to talk rickc@2856gmail.com. Thanx
good luck I want mine out went to the doc and was talked into to maybe revision when we get inthere
James L

San Antonio, TX

#37 Mar 18, 2013
I had my Boston scs installed just 3 mos ago. The pain is almost unbearable even after different reprogramming. I am on more pain meds now than I was before the surgery. Suffering from insomnia and depression due to lack of sleep. Luckily I work in a hospital and see the neurosurgeon who put it in at least once a week. He has noticed my marked deterioration and has agreed to remove it within the next 2-3 weeks. I'll keep you all posted with the post op pain issue and recovery we are all worried about.
khoward

Sylacauga, AL

#38 Mar 20, 2013
I'm having my scs removed on 3/22. It was put in August 2011. The trial went great but when they implanted the scs they also had to decompress some vertebrae. My pm doc thinks this is why it didn't worl well afterward. Now I have horrible pain at battery site. Neurosurgeon doesn't want to take the paddle leads out due to the location they're in. Do I need them removed? The main area of pain is battery pack. Any comments are appreciated.
Rrvillanueva

Orange, TX

#39 Mar 22, 2013
Since the area of the battery pack is where your pain is I guess that would be the priority. If the doc is worried about the location of the paddle leads, then I guess leave them in until they start causing problems, that is if they start.
The priority to to get you out of pain and kept safe.
Kristie North

Marietta, GA

#40 Mar 25, 2013
I had a Boston Scientific Stimulator placed in my upper spine before Christmas.
Since then I have enjoyed any of the relief promised during the initial pitch. Pain has been appearing in places that I did not have pain before the SCS.
It hurts where the stimulator is placed next to my spine. It hurts around the battery. My feet are numb. I am so over medicated now. My whole body nervous system is so electrified. I cannot sleep. I am not able to have an MRI.
I want it out.
Has anyone experienced negative reactions after the removal of the SCS?
KristineP

Bayville, NJ

#41 Apr 4, 2013
I am so glad I'm not alone in this. I have had my SCS for a little over a year now. I've been having pain where the battery is and I'm so tired of it. It's also causing pressure on my sciatic nerve. I want it out! I have an appt with my neurosurgeon in a few weeks to tell him to please remove it. If he doesn't I will find someone who will.
SCgirl

Sumter, SC

#42 Apr 4, 2013
KristineP wrote:
I am so glad I'm not alone in this. I have had my SCS for a little over a year now. I've been having pain where the battery is and I'm so tired of it. It's also causing pressure on my sciatic nerve. I want it out! I have an appt with my neurosurgeon in a few weeks to tell him to please remove it. If he doesn't I will find someone who will.
PLEASE post what the dr. says. More of my contacts/leads have pulled away from the spine, and I also want to have it out. I often take pain meds just to relieve the pain where the battery is.

Tell me when this thread is updated:

Subscribe Now Add to my Tracker

Add your comments below

Characters left: 4000

Please note by submitting this form you acknowledge that you have read the Terms of Service and the comment you are posting is in compliance with such terms. Be polite. Inappropriate posts may be removed by the moderator. Send us your feedback.

Back Pain Discussions

Title Updated Last By Comments
The benefits of chiropractic care for children (May '12) 14 hr Chiropractor from... 35
5 Pain-Relieving Gadgets That May Actually Work Mon Chiropractor from... 2
loose screws after spinal fusion (Jul '10) Sep 28 Anonymous 143
Can exercise improve back pain (Aug '13) Sep 26 Linna001 35
Chiropractic care resolves GERD Sep 25 Chiropractor from... 12
Chiropractic and Physical Therapy Work Best Tog... Sep 22 Chiropractor from... 3
dhc for sale (Apr '12) Sep 17 pete 3

Back Pain People Search

Addresses and phone numbers for FREE