spinal cord stimulator removal

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Since: Apr 11

Mesa, AZ

#1 Apr 15, 2011
Hi, I had a Boston Scientific SCS implanted Jan 2010 and I hate it. Trial worked great, I don't know what the difference is, but this thing is awful. I've had it turned completely off for the last five months because I gave up on it.
My pain mgmt doc wants to remove it but I'd prefer to avoid yet another surgery. Has anyone had one of these removed? I've heard the recovery time is easier and shorter for the removal than the implant. Is that true? I'm starting a new job and won't be able to take much time off.
thanks much!!!
Phil2011

Bloomington, IN

#2 Jun 14, 2011
I am having sharp pains where the battery pack is implanted and have been told that if there is not an infection then they will have to remove it as well any thoughts?
almajoan1

Kapolei, HI

#3 Jul 10, 2011
I hate mine it doesnt even work keep asking doctor to remove he keeps saying no will find another to remove it
Nicolemarie

Sicklerville, NJ

#5 Oct 18, 2011
I had mine removed yesterday and I'm in a lot of pain. I think it depends on how much scaring there is around the leads. I didn't want another surgery but needed a MRI and wasn't using the stimm anyway it was making my pain worst. It's ashame I was hoping this was my answer
peggy

Brisbane, Australia

#6 Jun 5, 2012
i have a scs in for 10 years but havernt used it for 8 years as it didnt help me.i have now a tuma in my spine and my doc doesnt want to remove it because of the scs. he said the reason for that is a high risk of infection.other docs want the scs removed so i can have an mri and then remove the scs. i am not sure what to do as my pain in my neck and shoulder is getting worse,has anyone else been in the same boat as me.
debi boyer

United States

#7 Jul 2, 2012
I had the scs put in my back 1 year ago and I have had nothing but problems with. The lead wire has come loose and is causing head aches and a lot of pain where the battery pack is , it is sitting on a nerve.I am going to try to get the Dr. to remove it, wish me luck.
Debra Harris

Angola, IN

#8 Jul 18, 2012
chris101899 wrote:
Hi, I had a Boston Scientific SCS implanted Jan 2010 and I hate it. Trial worked great, I don't know what the difference is, but this thing is awful. I've had it turned completely off for the last five months because I gave up on it.
My pain mgmt doc wants to remove it but I'd prefer to avoid yet another surgery. Has anyone had one of these removed? I've heard the recovery time is easier and shorter for the removal than the implant. Is that true? I'm starting a new job and won't be able to take much time off.
thanks much!!!
Chris, I also had the same procedure done in November 2011. I have had nothing but problems with chronic pain since then. Most of the time, the device does not work, or gives me electrical impulses EVERYWHERE but where the device was programmed for the injury. I have also left the device off for this reason. I will have the hardware removed in early August 2012
jimbo56

Montgomery, IL

#9 Aug 12, 2012
Debra Harris wrote:
<quoted text>
Chris, I also had the same procedure done in November 2011. I have had nothing but problems with chronic pain since then. Most of the time, the device does not work, or gives me electrical impulses EVERYWHERE but where the device was programmed for the injury. I have also left the device off for this reason. I will have the hardware removed in early August 2012
please update how it went and did yougetit done in chicago?
Gt390fe

El Dorado Hills, CA

#10 Aug 27, 2012
I've had my scs in for over a year now and the pain is the worst up in the shoulder upper back where the leads are attached to my nerve. I have nerve damage in my right hand, well my right finger, and thought this would the the king daddy to end all my pain systems,per my surgeon. Yeah right. More problems accrued while in surgery room; three trips out the of the operating room for the Medtronic's rep. to find a working set of equipment (battery and leads). What was supposed to be an hour to an hour and a half to over 3hours to complete. I am now looking for another surgeon to remove this implant before I lose my job. I'm tired of taking 5 pain pills a day just to make it through my work day. Should I try a back specialist, neuroliogist, another pain management surgeon? I'm tired of this pain....
freddy

Elmont, NY

#11 Sep 3, 2012
i had my scs put in in 2011. i had to have surgery 6 months into it to reattach the leads. now the pain is so bad where the battery pack is and the place here lead is its worse than ever!! i have never had pain on my right side of back. i have had 7 surgeries on l3-s1 on my left side. i am have the scs removed tomorrow 9/4 2012. i can't take pain anymore. these drs. and manufacturers should be held accountable. now i will have chronic pain on my right side as well!!!! WTF?
no more please

Danville, VA

#12 Sep 25, 2012
My first SCS (Boston Scientific, Medtronic) was nothing but a headache. The SCS worked just fine it was keeping it in place and keeping "working leads" lead to many revisions. In late 2009 my leads were replaced as well as the generator. Boston Scientific was replaced with Medtronic (or vice versa) and the leads pulled out of my spine and coiled just beneath the skin (OUCH). The leads are now anchored into my spine since january 2010. I have secizers. My scs needs to coe out so I can have some MRIs and test done. I have read some horrific stories about removal of scs systems that are "routine". My spine was shaved, snapped in half, place incerted and anchored, and leads anchored to the plate. Little more than two years of "more" scare tissue has formed from numerous revisions over the years. This is not a routine removal. I meet the surgeon that is going to remove it on Octber 15th, 2012. I am scared, this thing had forwared me a relief to thepoint I went and got my degree and am back at work. I am walking again and not in the wheelchair taking handfulls of Methadone, Oxys, Perc....however, not half as scared of haveing the scs removed and complications that may follow as I am in thinking what may happen if I do not have it romoved and have a secizer while driving that kills YOU
Rrvillanueva

Beaumont, TX

#13 Sep 26, 2012
I've had a Boston Scientific scs since August of 2010. I too had fairly good coverage with the trial but then again, I only had the trial less than 24 hours. I don't understand why the doctors only let you do a trial for such a short period of time.
Anyway, I was having pain around the battery and up where the leads were it felt like I was being poked by wires. I was only getting coverage on my right side practically since I got the permanent implant. My worse pain was is on my left side so I was still taking multiple pain pills all day long.
I finally had the device removed last friday 9/21/12. So far recovery is going ok but I am in alot of pain. Especially my upper left side. When I see the surgeon again I'm going to ask him about the quantity of scar tissue that I must of had up there. Today is post op day 5 and I can barely get up and around. Nevermind an allergy to the bandage tape used.:(
Linda

Ilion, NY

#14 Oct 8, 2012
Rrvillanueva wrote:
I've had a Boston Scientific scs since August of 2010. I too had fairly good coverage with the trial but then again, I only had the trial less than 24 hours. I don't understand why the doctors only let you do a trial for such a short period of time.
Anyway, I was having pain around the battery and up where the leads were it felt like I was being poked by wires. I was only getting coverage on my right side practically since I got the permanent implant. My worse pain was is on my left side so I was still taking multiple pain pills all day long.
I finally had the device removed last friday 9/21/12. So far recovery is going ok but I am in alot of pain. Especially my upper left side. When I see the surgeon again I'm going to ask him about the quantity of scar tissue that I must of had up there. Today is post op day 5 and I can barely get up and around. Nevermind an allergy to the bandage tape used.:(
I am so sorry to hear of your story. I too have a similar case. I have had the SCS in since 2007. It worked great in the beginning. Over the last 2 years not so good. In fact, I do not use it. It causes burning pain and wakes me up in the middle of the night even now that it is off. I just received approval for removal from the insurance company. My MD wants to do a revision. He has another thing coming. I want it out! I am concerned because the unit itself is imbedded near my left hip on my back side. The leads go all the way up my spinal column/cord to my C2, C3, C4 area. When they removed yours, did they leave the leads in or did they come out? I'm very nervous about all of the scar tissue that must be built up after 5 years on those leads. Being that they go so far and so high up on my spine, I am even more frightened. My MD is rather vague when I ask the questions, as he would just prefer to do the revision or leave the leads in, just "in case I change my mind" and want another unit implanted. As if. I feel bad speaking poorly about the device because it did work wonders for me about the first year. I could have been the poster child for SCS's! They should really do better research about the long term use and possible damages the unit itself can cause. From reading all of the above, it sounds like many people have had poor experiences. I do hope you are feeling better and that your pain is better. I don't know your whole story, but I just looked into having laser surgery performed at the laser spinal institute in Philadelphia. I went to a seminar in Scranton. The laser surgery looks extremely promising for many people. You should check out the website : www.laserspinalinstitute.com . There are 4 facilities in the US. You may have nothing to lose. Looking forward to hearing a response regarding the leads. Take care.
Ann

Cape Coral, FL

#16 Jan 1, 2013
I had the Boston Scientific Spinal Stimulator put in twice in 2010 and now it doesn't work. I hate it, I have more pain where the battery is than before I had it on.

My orthopedic tells me to remove it as soon as possible that it's not good to have it in specially since it's not working. I'm just scared of another back surgery.
Rrvillanueva

Beaumont, TX

#17 Jan 2, 2013
Ann wrote:
I had the Boston Scientific Spinal Stimulator put in twice in 2010 and now it doesn't work. I hate it, I have more pain where the battery is than before I had it on.
My orthopedic tells me to remove it as soon as possible that it's not good to have it in specially since it's not working. I'm just scared of another back surgery.
I understand you being scared of another surgery, I was a little anxious too but I just wanted it out. If your doctor feels you should get it out then perhaps you should look into it. I haven't had any major problems since the removal. I was started on Nucynta ER, a new pain medication that is extended release so I only have to take it every 12 hours. It's really helping a lot and I rarely have to take a Vicodin for break thru pain. Just look into what all is necessary and pray about it.
David Tittle

Orient, OH

#18 Jan 9, 2013
Debra Harris wrote:
<quoted text>
Chris, I also had the same procedure done in November 2011. I have had nothing but problems with chronic pain since then. Most of the time, the device does not work, or gives me electrical impulses EVERYWHERE but where the device was programmed for the injury. I have also left the device off for this reason. I will have the hardware removed in early August 2012
Debra, I had mine inplanted March 2011 and mine has helped. I did however misplace remote. Would you like to sell yours? My e mail is thetittleman@hotmail.com
Ray

Hackensack, NJ

#19 Jan 16, 2013
I had my SCS implanted in October of 2009 because of severe scar tissue from a lower spinal fusion. It relieved my pain for 2 3/4 years then it felt like it was being pushed out of my back. I was told that the recharging process produced a lot of heat and scarring. In July of 2012 I had my SCS relocated deeper in my back under a muscle. I had almost a liter of fluid come out of the drain for 18 days. Oct, 2012 I had the lower fusion hardware removed, also scar tissue and a lamenectomy. A month latter severe pain where the SCS is. I was told it was 2 seromas and had to do a wait and see. Yesterday, I had an Aspiration to drain the seromas. The radiologist said there were no seromas. I see Pain Management doctor tomorrow to discuss having the SCS removed. Can't wait to hear what he says. I feel the removal of the fusion hardware, scar tissue and lamenectomy have removed the pain that the SCS was inmplanted for. I feel the SCS has done it's job and is now responsible for the constant pain in the back as well as done the legs. Sorry for the long post....it's been a real saga. I will let everyone know what the Pain Management doctor says tomorrow.
Jingky E

Scranton, PA

#20 Jan 19, 2013
As with many new procedures and new treatments, these are always experimental and need to be tested before they can be considered effective or reliable. If it's bothering you or no longer effective then I vote to have it removed. http://www.fosamaxclassaction.us/femur-fractu...
Rrvillanueva

Beaumont, TX

#21 Jan 20, 2013
Jingky E wrote:
As with many new procedures and new treatments, these are always experimental and need to be tested before they can be considered effective or reliable. If it's bothering you or no longer effective then I vote to have it removed. http://www.fosamaxclassaction.us/femur-fractu...
I agree!!! Get it out of there!! That's what I did and I'm so much better without it!!
Ray

Hackensack, NJ

#22 Jan 21, 2013
I saw my Pain Management doctor and at first he agreed to remove my SCS. However, I have had nine foot surgeries to relieve chronic feet problems and
I am still in a lot of pain. My pain management doctor told me the pain is coming from the nerves in my feet that have migrated and grew after the surgeries. By adding a lead or two he said he can relieve my foot pain. I want the SCS out of my back and he said he could put it somewhere else. He suggested my butt and I said no way. The only place I would let him relocate the SCS is somewhere near my abdomen. He had me go almost cold turkey off Nucynta which was helping with the back pain but gave me terrible headaches and itching. Going through withdrawals as we speak....NO FUN!!! He put me on a low dose of Elavil to help me sleep and it works about 3 hours after I take it. However, before I fall asleep the Elavil acts like a Pain intensifier pushing the pain level to 9. I speak to my doctor this morning to see what he has in store for me.....Wish me luck!!! BTW: I had the SCS off for five days and had to turn it back on to get relief.

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