spinal fusion complications
Geoff NSW Australia

Albion Park, Australia

#580 Mar 23, 2012
Hi everyone. Interesting reading. I was hurt in freak accident 16 years ago. Underwent brachial plexus decompressions twice on left side and C5-C6 fusion. Pain continued to increase incredibly through my whole back all the time. I was being given large amounts of MS Contin (slow release) and Oxynorm (Instant release) plus injections to control pain as required.I was able to maintain my employment for a while, but as things got worse had to stop. In 2003 an artificial disc replacement was done at L4-L5. this helped for a while before lower pain returned even fiercer combined with the upper extremeties pain. In 2007 I had a intercathecal pump installed delivering a mixture of hydromorphone, pethidine, baclofen & clonidine into my spinal canal for pain relief. This has helped a lot but has had it's ups and downs whereby some oral opiate medication is needed frequently to help control severe pain attacks. If this fails I am given pethidine injections to help. I have been to various pain management classes and specialists which helped in ways but still unable to control the debilitating pain I am suffering and have suffered for so long.In 2011 I had another brachial plexus decompression (right side) and 4 days later a L4-L5 spinal fusion with full instrumentation. This has helped with the pain a little, but I am having a spinal cord stimulator installed very shortly after promising trial results. Overall, pain is very difficult to live with all the time, but my wife and kids have been so great. Chins up and try to smile to all of you that are suffering. Cheers.
US Spine Surgeons Stink

Candler, NC

#581 Mar 23, 2012
jordan wrote:
I had l3 l4 l5 fusion surgery,and suddenly I'm in hell.my pain before surgery was not evan close to what I feel now It has been exactly one year today. My anger at what I have become is strong.the day before surgery I ran 5 miles, now I can't walk a half hour to get groceries. I got the surgery so I would not have to take drugs, i have taken so many drugs to control the pain,what happened to oct. nov. dec.? the only releif I get now is laying in bed ,heating pad 10 mg. percocet,promothezine to keep from throwing up from the percocet,ambien so i can sleep because percocet keeps you awake allllll night.Oh yah how about the incredible constipation ,nothing like putting pressure on the lower back.Did I mention I have no feeling in right leg you could stick a knife in me I wouldnt notice,the left leg stays nice and hot and swollen cracked and red. I have seen every doctor they say I'm doing greeaattt.I am going to see him today my surgeon that is he has not spoken to me once since my surgery his PA handles me every month I think I shall address him as Dr. Frankenstein.I so regret getting this surgery. be afraid bevery afraid
Jordan, this was not by accident. They maimed you on purpose because they make triple the money that way. Google the names Nick Boeree or Karsten Ritter-Lang. They are in Europe and they fix the butchering caused by US back surgery charlatans.

Google Medical Holocaust.
Tom M

Bronx, NY

#582 Mar 25, 2012
Kim wrote:
Oh man you just really scared me! I am 23 years old, and my neurosurgeon is suggesting that I get a 3 level spinal fusion this summer. I have already had 2 operations on my back for herniated disks but I have gotten no relief. Besides having 2 herniated disks, I have 1 ruptured disk and a fractured vertabre. I am very worried about getting the surgery because of the recovery time, and the fact that if it doesn't work, there will be no reversing this procedure. I am going for my Masters degree and will have to take a semester off for recovery. I am assuming you would not suggust getting this surgery?
My life is essentially ruined from a failed artificial disc surgery. The problem with fusions is they lead to problems that affect other segments. If I could do it all over again I would run for the hills before allowing a surgeon to perform surgery on my spine. Find a physical therapist who specializes in the spine and no matter the cost, let the body heal itself over time. The only time I believe surgery should be an option is when the nerves that are affected serve vital functions. i.e. bladder, bowl etc. This is an injury you will need to learn about and treat with patience and time. There is no quick fix and there is no good reason for jeopardizing your future. The lessor surgeries such as laminectomies, involve undermining the spine to correct the problem.
Lori

Jersey City, NJ

#583 Apr 15, 2012
I had spinal surgery on 10/13/12 everything was going ok but now having almost the same problems. Tingling in leg, trying to workout like doctor say but having problems after. In pain, toes twitching, going numb when sit in certain chairs. Feel burning in my back where my fusion is. Don't think that is normal.
ALLEN GIBB

Adelaide, Australia

#584 Apr 20, 2012
Geoff NSW I will contact you latter, we all have big spinal problems and hell I feel for all and yes! I will keep my chin up, Allen South Australia.
jgm

Antigua, Guatemala

#585 Apr 20, 2012
Hey guys over 8 years I have had 13 operations on my spine with full instrumentation done twice! L 1 to S1. yes, I have a bit of tingling, but most of the pain has gone out of my back. The greatest problem that has arisen is scarring tissue returning after a year or so causing compressions of the nerves, but I must say at the moment i feel good and am very grateful for the surgeons.
Babygirl Knows Pain well

Houston, TX

#586 Apr 20, 2012
mikey wrote:
would like to know more about the juice solution. thxs mike
Hi,my name is Ashley im 24 yrs old i was diagnosed with scoliosis when i was 11 ,wore a full back brace for a yr(which did nothing) found out on my 12th birthday that the surgery was my only option.i had what i guess you would call normal problems other then the fact that immediatly i noticed s pinching and some pertrusion did some X-rays about 2 months after finding a one of the two hooks was not connected as the other side was. The doctor told me if it was bothering me to let them know and they could go back in and fix it so tramitized as a child i declined and it didnt bother me too much until i was thrown against a wall at age 19.Ever since ive had alot of trouble and i feel so very alone. Its affecting everything in my life...Sry to go on and on can anyone help me
Shannon

United States

#587 Apr 21, 2012
I was diagnosed with degeneration and arthritis of my spine and discs in lower back at age 13, I started getting epidural shots from 13 to 17. I had a laminectomy at 17. It worked very well. My back started hurting again at age 27, so at age 36 they decided to do a spinal fusion. I have never been in so much pain in my entire life or on so many pills. My surgeon keeps pushing me off on other doctors (I have 6 now) and they all say something different. I have no feeling in my right leg or foot and my leg gives out whenever it wants to. I would never advise anyone to get a spinal fusion ever!!!!
ALLEN GIBB

Fullarton, Australia

#588 Apr 21, 2012
Shannon this is what sort of thing that happened in my situation, the last Dr I seen he fobbed me off and just told me (my son was with me so he heard what was said)to go home and do the my best. Suggested to go home and write up my lifes stories. So I'm sort of stuck at home and don't know what to do next. I never was a pill person and my health was always good, but now told take this or that and even now have Norspan Patch stuck on my back (Buprenorpnine)have taken Panadeine Forte for ages and these will slowly ruin Kidneys,Liver ETC. I wish of something better,but what? My life style is now totaly upturned, and I now use a BLOODY wheelchair much of the time. I will sit and post more info later, but I'm off for a rest LOVE to all Spinal Fusion people CHINS UP.
Mark

Pinckney, MI

#589 May 2, 2012
Kim wrote:
I understand what you are going through! The thing that scares me the most is my pain is so bad, I am popping pain pills like candy on top of wearing a 75 mcg fentenal patch. I have pain every minute of everyday. I just can't imagine living with this pain the rest of my life. I try to stay as active as possible with walking, but I can't get that far with having to sit down and take a break. And what drives me even more crazy is the fact that the pain pills don't make me sleepy, they make me stay WIDE awake, so I never can take them after 7pm if I want to sleep that night. My DR just gives me prescriptions for sleeping pills on top of that. After reading the things I have read, I am really not looking forward to making the decsion of having the fusion or not.
Ok Kim,
I live in Michigan as well and just had S1-L4 fused. I just fought my way off that patch. That was the worst thing ever. Made me feel like a junkie getting off it. 5 years later, what did you do?
cindy

Garden City, MI

#590 May 2, 2012
I had all the rods and srews removed march 20th now im worse my legs kill my and i have my doctors telling me to cut back on pain pills ok if im worse how do i do that this is my 5th surgery has anyone felt better after a fusion then having everything removed?? This sucks so bad im tired of being in pain
Jay-Red

Kirksville, MO

#591 May 7, 2012
kev-jan wrote:
My name is Kevin and I had spinal fusion on my L5-S1 last January and my symptoms are 10x worse now. The pressure in my back is unbelievable, and my legs and feet twitch 24/7, it feels that there is electricity in my legs..Help does anyone else have these symptoms?
I have the same problems i had a fusion on L-4 &L-5 in 2008 and still have extreme pain in back, hips, and legs. Some times my left leg gives out and i fall and afterwards i cant hardly walk for a couple of days. I have not found a solution for the twitching and tensing up in my leg and foot and toes. If you found anything that helps please let me know thanks
jgm

Guatemala City, Guatemala

#592 May 7, 2012
Friends, I have had 13 surgeries on my back with rods put in , taken out put back in, flown to a specialist in Mexico and so on. I still get pain in my feet, twitching and backache. But just think, soon Jesus Christ is coming back and then we the Christians will be taken to heaven where there will be no more pain. Knowing this I can put up with my pain as there is no other solution.
Robyn

United States

#593 May 8, 2012
Tom M wrote:
<quoted text> My life is essentially ruined from a failed artificial disc surgery. The problem with fusions is they lead to problems that affect other segments. If I could do it all over again I would run for the hills before allowing a surgeon to perform surgery on my spine. Find a physical therapist who specializes in the spine and no matter the cost, let the body heal itself over time. The only time I believe surgery should be an option is when the nerves that are affected serve vital functions. i.e. bladder, bowl etc. This is an injury you will need to learn about and treat with patience and time. There is no quick fix and there is no good reason for jeopardizing your future. The lessor surgeries such as laminectomies, involve undermining the spine to correct the problem.
I had cauda equina syndrome and had no choice other than fusion L5-S1. Bowels, bladder and numbness from the waist down to my toes even after the surgery 3 years ago!
ALLEN GIBB

Adelaide, Australia

#595 May 18, 2012
Thank you very, very much for posting this information, as always said we I felt as if we were at forefront for trail spinal fusions. I know mine is a failure as I now sit in a bloody wheelchair and by hell this has changed my life! Angry, yes because I was doing very well, and after a fall over I dislodged a Luque Rod and I now have bigger problems. PLUS MY FAMILY LIFE IS STUFFED, well sort of, it’s not the same, as we loved it. SHIT.
Mark 36 Fusion

Lansing, MI

#596 May 18, 2012
#1 Medical Holocaust, I totally agree. This procedure you describe is time tested, works, and does not limit flexibility. There is also another procedure on the horizon in the U.S. where the doctor injects a patented substance into the disk until it inflates and as it "dries" or has a chemical reaction it plugs the holes in the disk and keeps it inflated. This merical should be approved by the U.S. in 20 or 30 more years if we are lucky... Here is the problem...I do not have $40,000 for travel, an operation, and medical stay overseas that my insurance wont cover. I just added up the bills to the insurance company for my fusion (described below). Office visit x3=$175 each, custom clam shell orthodontic brace=$2200, Lab work=~$500, MRI=$2400, five days in hospital=$38,000, and I have not received the bill from the surgeon yet...
I am only 6 weeks out from my surgery. Fused L5,L4,S1, rods, screws, cages, and stem cell embedded bone graphs and in cages. This is surgery #2 for me. I was injured 2.5 years ago with a disc torn into my nerves. 2 disks have severely degenerated since the injury. I was at the end of my rope, literally, before this surgery. I did my homework and found one of the top ten orthopedic surgeons in the U.S., I am 36, have followed doctors orders very closely, and already see quite an improvement although my muscles in my lower back spasm every night horribly. The difference is the old pain is much better. Now, that being said, after my last surgery I also felt immensely better then it plateaued and began to go downhill. Has ANYONE here had a positive fusion procedure and what were the conditions. This thread should be a portrait called "Dante's' Back Problems".
ALLEN GIBB

Adelaide, Australia

#597 May 26, 2012
Hi to Geoff NSW Australia. I was 4years & 1month old when I contracted Poliomyelitis and my paralysis was worse than the average person struck down. I managed to overcome many problems, this was frustrating and tiring, but I had a good Education, never even believed that I would marry or even get a decent job. I married my wife Joan in1973 we both worked, saved our money & in 1980 we had a son Shea (Shay) tis Irish. I worked at Augusta Park High School in the Science Faculty being senior Laboratory Technician and also teaching and /or supervising students etc. I retired late 1998 and started renovations to our home, 2007 I fell over and did damage to my Polio Scoliosis Spinal fusion and since then am stuck in a wheelchair. Seems as if my back problems are mine to live with for the rest of my life.
The spinal fusion operation I had in 1985 to help support my polio back scoliosis and weakness was deemed as OK, but after a fall in April 2007 and little did I know it that one of the two stainless steel rods had moved about 1cm or almost ½ inch, up to C7 Cervical Neck Vertebrae. At first I didn’t think that this would give much of a problem but then over the months I did notice gradual neck pains and pinched nerve “tingling” and some numbness happening.
Forgot to say also that the same time I fell I dislocated my left shoulder tearing and damaged three tendons. A shoulder only has four main tendons so I have only one usable tendon left!
I kept asking or telling the Medical Fraternity/Hierarchy that something was seriously not right, so our new local doctor did as I requested and that was to have all x-rays compared from the 1985 and 2007 ones. The results came back and as I had predicted, that there was movement and some broken nichrome/stainless steel wire fixation, and that one stainless steel rod was now pressing or compressing onto C7 Cervical from T1 Thoracic Vertebrae. So hence the start of a new challenge, and really don’t think that medical intervention will help much!!!
The main problem that I now have or is happening is to my spinal neck vertebrae area, and some Lumbar restrictions.
Our family doctor said to operate in this problem cervical area is very delicate and one small slip nerves that control cardio/ respiratory functions would like a person that breaks their neck!
I could have some type of medical intervention, but the simple thought of a Surgeon operating with a scalpel at the base of ones skull and in all a concentrated area of nerve endings in this region of my neck vertebrae is not very inviting and if one small slip happens? I may need to be aspirated,(Meaning I would have to have my respiration done by a machine---no way). So do I toss the coin and do something that would or could make me better / worse and IF worse then I would have no quality of life at all? To make a rash decisions and if things go wrong, the only person to blame would be me myself, so it would be my personal choice and decision. YES OR NO!
So I have been sitting around not going much of substance and with pain 24/7 and try forgetting and driving over the pain barrier is so tiring mentally.
So now: maybe I shall just sit at home and type up a story all about what the insidious Polio Virus did to my muscles and nerve endings with atrophy and joint pains, and how it changed my life completely!
How did I do so much damage with one small fall and my mind going into overdrive and I was very loquacious and gave signs of preservation?
I now have another hurdle to jump over, as if trying to overcome Polio and all its paralysing connotations was not enough. So here I go again. I hate what polio has done to my life and all problems that it has placed onto me!
Hope this makes some sort of sense or a bit of a story of all that I’m going through. Regards to all Allen Gibb at Port Augusta SA 5700.
ALLEN GIBB

Adelaide, Australia

#598 May 26, 2012
Hi to Geoff NSW Australia. I was 4years & 1month old when I contracted Poliomyelitis and my paralysis was worse than the average person struck down. I managed to overcome many problems, this was frustrating and tiring, but I had a good Education, never even believed that I would marry or even get a decent job. I married my wife Joan in1973 we both worked, saved our money & in 1980 we had a son Shea (Shay) tis Irish. I worked at Augusta Park High School in the Science Faculty being senior Laboratory Technician and also teaching and /or supervising students etc. I retired late 1998 and started renovations to our home, 2007 I fell over and did damage to my Polio Scoliosis Spinal fusion and since then am stuck in a wheelchair. Seems as if my back problems are mine to live with for the rest of my life.
The spinal fusion operation I had in 1985 to help support my polio back scoliosis and weakness was deemed as OK, but after a fall in April 2007 and little did I know it that one of the two stainless steel rods had moved about 1cm or almost ½ inch, up to C7 Cervical Neck Vertebrae. At first I didn’t think that this would give much of a problem but then over the months I did notice gradual neck pains and pinched nerve “tingling” and some numbness happening.
Forgot to say also that the same time I fell I dislocated my left shoulder tearing and damaged three tendons. A shoulder only has four main tendons so I have only one usable tendon left!
I kept asking or telling the Medical Fraternity/Hierarchy that something was seriously not right, so our new local doctor did as I requested and that was to have all x-rays compared from the 1985 and 2007 ones. The results came back and as I had predicted, that there was movement and some broken nichrome/stainless steel wire fixation, and that one stainless steel rod was now pressing or compressing onto C7 Cervical from T1 Thoracic Vertebrae. So hence the start of a new challenge, and really don’t think that medical intervention will help much!!!
The main problem that I now have or is happening is to my spinal neck vertebrae area, and some Lumbar restrictions.
Our family doctor said to operate in this problem cervical area is very delicate and one small slip nerves that control cardio/ respiratory functions would like a person that breaks their neck!
I could have some type of medical intervention, but the simple thought of a Surgeon operating with a scalpel at the base of ones skull and in all a concentrated area of nerve endings in this region of my neck vertebrae is not very inviting and if one small slip happens? I may need to be aspirated,(Meaning I would have to have my respiration done by a machine---no way). So do I toss the coin and do something that would or could make me better / worse and IF worse then I would have no quality of life at all? To make a rash decisions and if things go wrong, the only person to blame would be me myself, so it would be my personal choice and decision. YES OR NO!
So I have been sitting around not going much of substance and with pain 24/7 and try forgetting and driving over the pain barrier is so tiring mentally.
So now: maybe I shall just sit at home and type up a story all about what the insidious Polio Virus did to my muscles and nerve endings with atrophy and joint pains, and how it changed my life completely!
How did I do so much damage with one small fall and my mind going into overdrive and I was very loquacious and gave signs of preservation?
I now have another hurdle to jump over, as if trying to overcome Polio and all its paralysing connotations was not enough. So here I go again. I hate what polio has done to my life and all problems that it has placed onto me!
Hope this makes some sort of sense or a bit of a story of all that I’m going through. Regards to all Allen Gibb at Port Augusta SA 5700. This is a note I sent to Geoff Australia.
ALLEN GIBB

Adelaide, Australia

#599 May 26, 2012
I did a double UP silly me???????
Robyn

Redmond, WA

#600 May 26, 2012
Is there anyone out there that has recovered or has been treated for post surgery cauda equina with good results? I had L5-S1 fusion almost three years ago and still deal with constant numbness from my ass to my toes. They told me it could take up to 5 years for the nerves to kick back in?

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