spinal fusion complications
Veronica

Hempstead, NY

#496 Feb 12, 2011
To all. I had two spinal fusions done last year, one in sept but the pins came out and were laying on my nerves which caused me to have no use of my right leg so they rushed me back in for another fusion. So now I am fused from T2-L5. If that doesn't suck I have a lump in my spine that is very painful it takes my breath away. Also if I sit or lay or do anything dealing with my right side for more than 30 minutes my right arm and hand go numb and it takes about 20 to 25 minutes to get circulation back. Pain meds do not help the pain I am in so I spend the majority of my life in tears. Please tell me if this is normal or if anyone is having similiar problems.
I feel your pain

Annandale, NJ

#497 Feb 12, 2011
Veronica, so sorry to hear about your continued problems. I wish I could give you advice on what to do but I too am having some what similar lingering problems after my L5-S1 fusion in Mar 09 and clean up surgery in May 10. I continue to have moderate neuropathy issues in my right leg/foot and continued pain in my low back and hip areas with any period of sitting, driving, working out, etc.
The neuropathy and neuralgia symptoms in my right leg are so bad that I had to go on Cymbalta which helped for about a month but now seems to no longer help the nerve pain/sensations in my leg/foot anymore. My neurologist is upping the dose but now I'm starting to have other side effects. I still take Percoet and Zanaflex for the back pain and muscle spasms I get in my leg from the nerve damage. I was hoping by this time things would be much improved but nothing seems to change almost 2 years post fusion. By now I should have seen improved results, especially with my leg. I have a great Neurologist but all he can offer me is anti-seizure or anti-depressants for the neuralgia stuff in my leg and Percoet for the back pain. I am so frustrated and disgusted with my outcome and life its unbelieveable. I wanted to go to med school and that dream is quickly eroding away. I am suppose to start a full-time job at the end of the month and now Cymbalta picked a perfect time to stop working effectively. I wish I knew what to do. I can't believe all this time and energy we all have spent on surgeries a great deal of us are continuing to have major problems that affect our lives severely. What was the point I'm left asking myself?
Not sure what to do, see more neurologists, pain management, etc but what are they going to do differently? nothing. I'm done having needles put in my back and surgeries that do nothing. Best of luck finding answers to help you. I hopefully will get the same!
Summer

Rochester, MN

#498 Feb 12, 2011
I am 24 and have been dealing with lower back pain for over 12 years now. I have tried all other methods of treatment and my dr finally decided that a disk replacement and fusion surgery is needed. I have a condition called Spondylolysis. Basically my L5 vertibre is broken into 2 pieces I also have a ruptured disk on the L5 level as well. I am going in for a discogram proceedure on tuesday (2/15/11) and then a bone proceedure after that to determine if the fusion will release my pain. I am very scared to go through with the surgery and I was hoping that someone with a similar condition who went through the surgery could share their experience to maybe put me at ease. I just really want to make sure that this is the right decision and I jus tdont want to be scared about it. I would also like to know how long the recovery time is. and how long can I expect to be out of work. I recently graduated from college and I am working 2 jobs to start saving up for a house and such. However, i am pretty much livi ng paycheck to paycheck at this point so I need to return to work asap. Please help. Anything that you could say or advice you could give me would be very appreciated. I'm really scared...
Summer

San Antonio, TX

#499 Feb 14, 2011
Hello,
My husband is currently 1 year post op from a l4/l5 double spinal fusion. I guess the best way to validate the procedure is by accessing your pain level and how much if any can you work out on your own. My husband had burning and numbness in his leg for years before getting the surgery and walking was getting more and more painful. I would get different opinons if you can, because once it is fused, that is it.

I firmly believe that the medical community has yet to embrace alternative care, however if you are living paycheck to paycheck, then that might not be an option. I read a book.. something like, "self-trigger point therapy" book and started to learn it and it has seriously helped my husband in his recovery, because it helps relax the surrounding muscles. It has been a long and painful recovery and he was and still is to a small degree taking percocet and gabapentin (to help w leg spasms b/c now he has permanment nerve damage from waiting so long to get a surgery)

I must say, though as hard as the recovery was, he does not regret it. He said that he is still in pain, but it has shifted, and he doesn't have the bone on bone feeling. He is feeling better. It is a very slow recovery! The whole no pain no gain theory doesn't apply in this situation.

So, like I said, you need to access what you can live with. Things that might happen from surgery: scar tissue, rubbing and irritating the nerves and 2 , the upper and lower disks are now vulnerable due to the fusion, and 3 your range of motion.

you do need to put effort in for a good after care.. especially if you want to be drug free. I see that money is an issue and you need to get back to work, however, this surgery, could keep you out of work for a year. Not trying to scare you, but my husband is still not ready to work 8 hr/days yet. I guess it depends on what you do for work, but the sitting in an office chair all day drives him crazy right now.

Things working? I bought him shape up sneakers, which he has said has taken some pressure off of his lower back

trigger point therapy from that book and trigger point massage.

there is a product called sciatigon (a homeopathic product.. I am also working on making him a peppermint tincture for the leg spasms)

we invested in a temperpedic bed

peppermint oil steam facicals for headaches caused by his back pain

hot tub hot tub hot tub!!! sometimes, we will do 20 minutes heating pad, 20 minutes ice.

But... all these items cost money and the medical community don't support it. If your recovery is on your own and you don't have family support, I would really think about it. It is hard to recover with no one to help you, because simple things are going to be difficult for a little, even going to the bathroom or taking a shower.

Good news? You are young! My husband was 44 when he had his surgery. If your abs are strong, that will be very helpful during the recover.

If you could possibly scale down working to one job and focus on your health first, I would recommend that, because what fun is having a house, if you can't enjoy owning one?

Keep health your priority and try to circle yourself with good friends and family.

I wish you the best and if you have any other questions, please ask!
Anonymous

Gloucester, MA

#500 Feb 15, 2011
Hello,
I had L5,S1 fusion in Oct. 2010. I am in more pain now than I was before. Before that I had C6,C7 fusion a year earlier. The first surgery went great and my neck felt almost new(slight pains here and there) but nothing that slowed me down. I took that thinking,plus that I've always seemed to heal well, into the L5,S1 surgery. At this point I realize I was way to over confident in this treatment. I have a follow appointment today,so maybe I will have more info after,but I highly doubt it. I have tried Ice,yoga,swimming,walking,and anything else I had heard that might help and so far nothing is slowing the pain much. I have a 3YO son that I can hardly play with for more than a 15 minutes at a time(unless I want to take more pills). The only thing that shows relief is heat,elevated legs,and pain meds. This is not how I want to live my life, but it seems to be the way it's going to be. I have what I believe to be a good Surgeon, but he has no real answers for me. They just try and shrug you off like they are to important to deal with you. I told my Doc about my freezing foot and he just felt my calf and said it's fine. FINE, I have to wear 2 socks on that foot and it sweats and freezes at the same time. I have a really positive attitude and so does my girlfriend,but this is taking a toll on me. I didn't have the same surgeon who did my neck,do my back,and I'm thinking I made a mistake. I wish anybody with these problems luck,and would warn them that I know the pain hurts now, but surgery might not fix it and could in fact make it worse. At least before I had the surgery I had hope of the surgery working, now I don't know how I'm going to feel better.
michelle

Lake Havasu City, AZ

#501 Feb 15, 2011
I am a 31yr old female have ddd for over 10yrs. woke op 2 wks ago with no sensation from waist to knees, went to dr. sent me to E.R next thing I know I am being medflighted to Las Vegas! Diagnosed with ruptured disks l5-s1 also Cauda Equine Sydrome! Anyone Have it or know anyone who does! Post surgury 2 wks now! total sensation loss fromm waiste to feet, severe pain in feet while I try to walk also severe leg cramping and burning! can not feel groin area at all, dr. says will not know if nerves will ever regrow! can take from a yr or more! this syndrome is very rare i guess!
Allen Gibb

Adelaide, Australia

#502 Feb 18, 2011
Michelle, Feeling so bad about your condition, I can only wish you heaps of good wishes. I fell over almost on four years ago and my spinal fusion moved at lumbar L4 and I know that I have pinched nerves at this spot, and feel that as time goes on I may have bladder problems? It is hard finding the right Drs to understand what I need to get the best outcome (I hate Hospitals)! I also have a problem at C7 and thinking about having this operation is not easy, and so I sit at home with wondering what next. All this puts a great deal of mental strain onto how to cope with all this. So all I can say is I wish you tons of luck and wishes and that you find the best Drs to help you. Regard Allen in Australia.
kim

Jeffersonville, IN

#503 Feb 23, 2011
kev-jan wrote:
My name is Kevin and I had spinal fusion on my L5-S1 last January and my symptoms are 10x worse now. The pressure in my back is unbelievable, and my legs and feet twitch 24/7, it feels that there is electricity in my legs..Help does anyone else have these symptoms?
I just had spinal fusion and disc decompression surgery this october. It was a rough road, 2weeks in hospital and 1 month in rehab. Besides a rash at the site, I'm doing ok. I have had those symptoms off and on but have been told by doc they do go away. good luck
I feel your pain

Annandale, NJ

#504 Feb 24, 2011
Anonymous wrote:
Hello,
I had L5,S1 fusion in Oct. 2010. I am in more pain now than I was before. Before that I had C6,C7 fusion a year earlier. The first surgery went great and my neck felt almost new(slight pains here and there) but nothing that slowed me down. I took that thinking,plus that I've always seemed to heal well, into the L5,S1 surgery. At this point I realize I was way to over confident in this treatment. I have a follow appointment today,so maybe I will have more info after,but I highly doubt it. I have tried Ice,yoga,swimming,walking,and anything else I had heard that might help and so far nothing is slowing the pain much. I have a 3YO son that I can hardly play with for more than a 15 minutes at a time(unless I want to take more pills). The only thing that shows relief is heat,elevated legs,and pain meds. This is not how I want to live my life, but it seems to be the way it's going to be. I have what I believe to be a good Surgeon, but he has no real answers for me. They just try and shrug you off like they are to important to deal with you. I told my Doc about my freezing foot and he just felt my calf and said it's fine. FINE, I have to wear 2 socks on that foot and it sweats and freezes at the same time. I have a really positive attitude and so does my girlfriend,but this is taking a toll on me. I didn't have the same surgeon who did my neck,do my back,and I'm thinking I made a mistake. I wish anybody with these problems luck,and would warn them that I know the pain hurts now, but surgery might not fix it and could in fact make it worse. At least before I had the surgery I had hope of the surgery working, now I don't know how I'm going to feel better.
Not surprised actually to hear this. According to my neurosurgeon, cervical fusions have a much higher success rate then do lumbar/low back fusions do. Told me it has to do a lot with the physics and mechanics of the spine in the low back compared to the upper and how, unless your in a pool, the low back constantly has pressure on it, whether your standing, sitting, laying, etc. Its very hard to rest it completely like you can do your neck area.
carolann

Whitinsville, MA

#505 Feb 28, 2011
Hi, I had an anterior posterior fusion of L3-S1 in 2004. With pretty good results, until last year. I had heart surgery and was on the table for 14 hours, then another 6 in recovery and in bed for 2 days. Had CPR 3 times on the table. It was down hill after that. When I work up my heart felt wonderful my lower back, legs, and feet killed. Now my back hurts all the time. It feels like it is popping where the first set of screws are. I can't get up out a recliner, I don't have the strength in my back to let me shift my weight. When I am driving my car I usually don't have any pain, but when I go to get out I can't lift my right leg on its own to get out. MRI's and xray show no real change, but I can't help but think that my rods are bent from the CPR. Doctors, know the pain is real cause my blood pressure goes up as the pain goes up. So they give me big time pain meds, but they don't help they just mask the pain. Any suggestions??
2 fusions later

Raiford, FL

#506 Feb 28, 2011
I had a 3 level cervical in 2004 and a 2 level lumbar in 2009. The cervical went great till this last year the disc above the fusion is starting to compress from the fusion but not bad enough to try anything with. The lumbar was L5-S1 it has been a total suck fest recovery was hell in it self but started with numbness kind of like electricity and ice cold feet. Went through all the stuff injections, blocks, ect. Also have a allergy to opaits. So no pain pills for me. I just had a mylogram done and it found that the fusion did not take there is only a tiny bit of bone and the pins holding the discs toghther. Lucky for me no nerve encroachment. Most MRI's are crap the only showed 1 disc at time of cervical incident and ended up being 3. I would push for a mylogram but not a very comfortable test to have its like a discogram or spinal tap. But it finally showed the fusion did not take . Hope this helps.
One day at a time

Johnstown, PA

#507 Mar 2, 2011
HI, Ive never posted anything before, so I hope I am doing this right. I have been reading all of the posts, and just felt I needed to tell my story. I began my journey about 5 years ago with a cervical diskectomy and fusion with hardware. 3 levels. I had instances of my neck , "going out" for a few years prior, that became more frequent, and finally, this day I ended up in the er with severe pain and the inability to move my neck, arm or hand on the left. A fine surgeon came in that night, and told me I needed surgery , now, that the disks had ruptured and were crushing the nerves in my neck. I had the surgery, and felt so much better. My neck has not gone out since, I still get the occasional neck pain, and tightness, but Ill take it! Last year, 12 months ago exactly, I went to the er with severe back pain, spasms and leg pain. My bladder and bowels would not release. I was told I needed emergency surgery, to release the pressure on a nerve from a herniated disk. L5 S1. The surgery was to be about a 2 inch. incision, and I would be home 2 days later to be with my 4 kids. When I woke up from surgery, I was groggy, but all I could remember screaming was, " I cant feel my legs" Apparently , once they got in there , they found the back was unstable? My 2 inch incision ended up being 14 inches long with 40 staples. Interior cage, plates and screws. They had me so doped up the next thing I remember it was a week later, and I was being transfered to a rehab hospital, where I remained for a month. It has been a year, my left leg is completely paralyzed, and I have about 30 percent in the right leg. I developed arachnoiditis, which causes severe pain, Im on 3 different antispasmatics, 2 muscle relaxers, Im demerol, oxycontin, and neurontin. 6 hour stem, and phenergan to keep me from throwing it all up. I am 36 and completely wheelchair bound, and cant function most of the time because of the meds. They severed the nerves during the surgery. If it wasn't for my kids, I may have given up. But one day at a time, I learn to do things a different way.
Research your doctors. I found out mine was 72, and came back out of retirement. I found out he has many suits against him.
Get second opinions, and dont be afraid to leave your area to find a skilled surgeon. I know travel 4 hours to hershey medical center.
take care and God Bless!
Jennifer

Oswego, IL

#508 Mar 2, 2011
Hello everyone, it has been awhile since I have been on this site, it will be 1 year on 5Apr that I had a 5 leval fusion L2-S1 - I can feel all of your pain - my legs are still numb and I have more pain now than I did before the surgery - I did have an excellent surgeon - rated no 1 in my area. I have learned however that lumbar surgery is the worse ever and quite often you will never be the same - I have to think of the alternative, and that would not be good - my spine was so unstable he could move my vertabre - one bad move I would have been paralized for life - I will take what I have now and learn to live with it! I have found walking every day helps I use a treadmil since my right leg is still not sturdy that way I can hold on without falling - it does indeed help not just with mobility but with frame of mind. Don't loose hope, I have been advised this could be as good as it gets! So I have decided to keep smiling and be greatfull for the small things in life.
Richard

Henderson, NV

#510 Mar 9, 2011
I can relate to every ones fears about lumbar / spinal fusion. Back in the early 80's I was struck by a car that was doing (estimated) 70 mph while walking down the street, never seen it coming. After waking up a week later my doc told me that as I get older (now 49) i would have trouble with my back. He was right, starting in 04 I had electro thermal therapy (known as IDET = kills the nerves around the disk) which helped for roughly a year, 05 the same thing. Starting early 07 I started a series of injections twice a week up until June 2010 when my legs just stopped working, would not support my weight 6'3", 225. So for six years I could not be as active as I once was. Then in July 2010 I was taken to emergency and within two days I was being cut open to fuse L4, L5, & S-1. My pain level before the surgery was between 6 and 9. After the surgery my pain level went up to 10+ and my life went to hell, could not even get in and out of the shower without help. After working all my life and not depending on a sole it was very hard for me even think of living like this. Start with your CORE and work hard at it, before surgery, trust me you will need it. It supports your back, if you have a gut, your back supports your gut and you will start to fall apart. If your young and you NEED SURGARY, get it before you get up in the age. I was also told that my hardware needs to come out, reason is when then put the new generically grown disk in to replace my old ones they didn't give the hardware slack for the disk to grow, talk about pain. My figure prints are on the bathroom wall from going #2. Now, if you have a job and insurance, weigh your options, because after you get out of surgery and back to work, they will take your insurance away and possibly your job.“Think all things out first”.
Robyn

Brockton, MA

#511 Mar 9, 2011
michelle wrote:
I am a 31yr old female have ddd for over 10yrs. woke op 2 wks ago with no sensation from waist to knees, went to dr. sent me to E.R next thing I know I am being medflighted to Las Vegas! Diagnosed with ruptured disks l5-s1 also Cauda Equine Sydrome! Anyone Have it or know anyone who does! Post surgury 2 wks now! total sensation loss fromm waiste to feet, severe pain in feet while I try to walk also severe leg cramping and burning! can not feel groin area at all, dr. says will not know if nerves will ever regrow! can take from a yr or more! this syndrome is very rare i guess!
Michelle, I'm sorry to hear of your problems but, believe it or not I had fusion at my L5S1 area a year ago January 22nd. My legs, bum, groin and feet are still numb unfortunately I also am plagued with bladder and bowel dysfunction. Cauda Equina Syndrome just plain sucks. You can e-mail me at pookadoris@gmail.com if you would like to compare notes. If not I wish you all the Best....
Debbie

Fair Lawn, NJ

#512 Mar 23, 2011
Hi! I have never posted anything to anyone. But, I need some help and answers.
I too had a L5, S1 fusion lower back(lumbar) in March 2010. Wow, what an operation! By June I was walking two miles a day and swimming every day. I really felt like I was getting better and better.
Then, one day, late August 2010 I woke up with this burning between my legs and neropothy down my right leg like you wouldn't believe. At first I thought to call my gyn and get an exam. Nothing. Then I called my regular md and went to see her. I also had a patch of redness, rash type on my right buttocks. I thought it was some kind of bite or bites ( summer stuff). Well, my md said it was Shingles. I am 60 years old by the way.
She gave me the Antibiotic and of course it didn't work because apparently you have to get treated immediatelly for shingles otherwise you can get post herpatic neropothy. Needless to say, I am a mess. I went to a dematologist too and she said I had shingles. Went to my pain management doctor who had worked with surgeon on spinal and he said, "Why didn't you come to me earlier?"
Now he is treating me with shots to my back which of course helps me to feel better for 3 days or so. Then, back to incredible burning and numbing...this is beyond ridiculous!! I really don't know what the hell I have. Oh, went back to gyn and she says, you don't have anything that she can see and all tests are negative. So, is this coming from my nervs in my spine? If anyone has an answer I would truly appreciate it! Thanks for listening to an old woman complain!:(
I feel your pain

Annandale, NJ

#513 Mar 23, 2011
Debbie wrote:
Hi! I have never posted anything to anyone. But, I need some help and answers.
I too had a L5, S1 fusion lower back(lumbar) in March 2010. Wow, what an operation! By June I was walking two miles a day and swimming every day. I really felt like I was getting better and better.
Then, one day, late August 2010 I woke up with this burning between my legs and neropothy down my right leg like you wouldn't believe. At first I thought to call my gyn and get an exam. Nothing. Then I called my regular md and went to see her. I also had a patch of redness, rash type on my right buttocks. I thought it was some kind of bite or bites ( summer stuff). Well, my md said it was Shingles. I am 60 years old by the way.
She gave me the Antibiotic and of course it didn't work because apparently you have to get treated immediatelly for shingles otherwise you can get post herpatic neropothy. Needless to say, I am a mess. I went to a dematologist too and she said I had shingles. Went to my pain management doctor who had worked with surgeon on spinal and he said, "Why didn't you come to me earlier?"
Now he is treating me with shots to my back which of course helps me to feel better for 3 days or so. Then, back to incredible burning and numbing...this is beyond ridiculous!! I really don't know what the hell I have. Oh, went back to gyn and she says, you don't have anything that she can see and all tests are negative. So, is this coming from my nervs in my spine? If anyone has an answer I would truly appreciate it! Thanks for listening to an old woman complain!:(
Debbie, so sorry to hear about your problems. While your pain management doctor is only trying to make you feel better, the best thing I can recommend is to stop having injections put into your back. From my personal experience with them, they did not do much to relieve the pain, and as you pointed out, they don't last very long. In fact, the last two injections I ever had done several years ago made my neuralgia symptoms worse in my right leg.

What I would recommend doing is seeing a neurologist about this problem. There are medications you can try to help with the neuralgia, I myself am on Cymbalta which has greatly reduced my symptoms for the time being. Other medicines, like Neurontin, are great for symptom relief as well.

Also, I would recommend a follow up with your surgeon and have some diagnostic tests done, X-Ray and MRI of your lower back to just make sure nothing structurally has happened since your surgery. It's odd that you were fine for a period of time and then one day out of the blue things went South.

Best of luck to you. My prayers are with you.
Sheila

Los Angeles, CA

#514 Apr 6, 2011
Hi everyone,

I'm a 24 year old female, and I had a T1-L2 fusion for scoliosis five years ago. The procedure didn't take because of infection and the hardware was removed two years later. Subsequently, since the vertebrae hadn't had enough time to fuse together properly, the procedure had to be done over again. I've had daily pain since recovering from the three surgeries, mainly emanating from the inflamed muscles surrounding the screw areas, and lately this has been getting worse. I experience sharp pains so severe that I find myself dropping to my knees 2-3 times a day. I guess I was just wondering if there's anyone who can relate to what I'm describing, or if anyone has any advice for me? Thanks for reading, and I'm sorry for everyone's troubles.

Sheila
Melissa

Cibolo, TX

#515 Apr 6, 2011
Hello, My husband is 1 yr post of from l4/l5 spinal fusion. It has been a long road to recovery and even after a year taking percocet has been part of his daily routine. He has a lot of nerve damage in his leg. Lately, he is making a turn for the better. I thought I'd share...
1. 1st and foremost it was recommended we watch the movie, "The Secret"... sounds weird, but him watching that movie and believing in it, has began to help in his healing process
2. I found a chiropractor in our area (of course out of pocket, but so worth it). He has a holistic approach and has training in quantum neurology. Sounds crazy and weird, but seeing is definitely believing. He does gentle manipulations, trigger point, and energy healing. It is costly, but my husband is beginning to see the light!
3. The chiropractor made 2 recommendations: start taking benfotiamine. Don't know if you have nerve damage, but this has some great reviews for neuropathy. It is also not too easy to find. Also, she recommended him taking MSM, like 2 tsp every morning. It is suppose to be a great anti inflammatory.
4. Ice- Great anti-inflammatory. I will put the ice on his back for like 15-20 minutes. Maybe cause your situation sounds pretty severe, maybe 20 minutes of heat, 20 minutes of ice for a couple of rotations.
5. Music CD's... Amazon has on their web site, great guided imagery meditation CD's. Some are actual catered towards pain. I got my husband a Reiki cd for lower extremeties and at the end, he said his legs were vibrating.
5. Accupuncture is good as well!

I think , if you can afford it find a chiropractor who focuses on healing at the energy level, like Quantum Neurology or maybe even Reiki.

Trust me, my husband is very skeptical about this stuff and is slowly becomming a believer.

Don't forget to keep good healthy foods in your diet as it will to help you not only heal, but give you energy!

You must see yourself healed and past this!

You are very young, my husband was 44 when he got it. It is much easier to heal when you are young! Don't dive to much into researching, for it maybe a little depressing.

If I can answer any more questions I will try.

Melissa
tony

Evansville, IN

#516 May 8, 2011
i had spinal fusion of c5 c6 diskectomy with donor bone was used..i have been going down hill ever since the surgery october of 2010. i have head to toe numbness and tingling..which no one can explain..i have high blood pressure, i have shortness of breath..i wear out real easy my back is in constant pain..i now have 2 ruptured disk in my lumbar region...

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