Any advice for newly on iv iron

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Sue

Binghamton, NY

#1 Oct 18, 2006
I have been anemic for many years now but recently my feritine tested at a -1, in otherwords I have absolutly no storage of iron left in my body. I got my firs iv therapy a week ago and go again tomorrow. Does anyone else out there have this and does it help at all? I am so weak and tired all the time, my heart papiltations are getting much worse and my breathing is becoming very difficult. Any advice or help would be GREATLY appreciated.
Thanks,
Sue
Alexis

Holbrook, NY

#2 Mar 29, 2007
Hello
I hope your IV therapy worked.
Please post a reply.
My Dr. just suggested this, as the iron shots that I have been taking, so far- 5 of a series of 8 are not working.
Is the IV therapy painful? Any reactions? Did it work?
My ferritin level is a 2 I believe.

Any info. would be helpful!
Thank you and good luck!
Kim

Apex, NC

#3 Jun 24, 2007
IV iron dextran infusions are not painful (beyond insertion of an IV). They can take several hours, though, because the iron dextran is very thick and has to be dripped in slowly. They usually give you Benadryl to repress allergic reactions, and that makes you drowsy during the infusion. There are some risks, which is why these infusions are usually administered by chemo personnel who can keep an eye on you during the infusion process.

It takes about three weeks to see real change in blood counts and rebounded energy levels. A one- or two-month follow-up is recommended to make sure the iron dextran was adequately integrated.
Summer

AOL

#4 Apr 4, 2008
I've been doing I.V. Iron treatments about once a year for the past 3...Although they are easy enough and "needed"...i am concerned about side effects to my body using it...Although, i guess the alternative isn't good either not having it :( I get tested several times a year but only seem to need the boost on a yearly cycle...At that time its about 10 treatments to get my levels back up...I still worry about long term effects...Any knowledge?
Court

Vernon, Canada

#5 Jun 13, 2008
I have been anemic for 4 years, I don't absorb iron from anything and my iron count is at 2. Other than the pain of taking the IM shots is there any advantage to taking the IV shots?
Tammy

Florham Park, NJ

#6 Jan 12, 2010
I recently started getting the iron treatments, I've had 3 so far. I was told I should start feeling better after the 2nd or 3rd but I feel worse. I am more tired than I was before and am having a hard time functioning throughout the day. However my white blood cell count is extremely low too and we haven't looked into why that is yet. Has anyone else had this problem and do you know what causes it?
moonbeam

Cherryville, NC

#7 Jan 15, 2010
I just started getting these treatments also, I have just did my second one in two weeks and go back next week for another one. I also feel worse. I am so tired it is hard to make it through a day. I have blurr vision, and headaches, stomach cramps. This is by far the worse thing I have done. I also don't know if it has helped my blood cell count, I had them checked for the first time today.
Donna Vendetta

Plymouth, UK

#8 Jan 27, 2010
Does everyone know what the causes of their anemia is? I'm am still slightly confused as to what caused my iron deficiency count of 4. I wasn't offered any IV treatments, though it's interesting to read that they are available and how they are affecting people, and that they make you feel worse? I have been on iron syrup for 2 weeks and feel worse on that as well, tired and dizzy, and fed up of being freezing. Has anyone else noticed cold sweats? I was able to work out and exercise a couple of weeks ago, now I just get a fuzzy head and have to stop myself passing out if I even attempt sit ups or anything similiar.
My white blood cell count was also slightly low, not sure exactly how it's connected to anemia but it seems to be. Anyone else know?
Sandra

New York, NY

#9 Jun 9, 2010
I just had my first Iron IV last week and I have been sick ever since!!! I was wondering if the headaches and nausea was normal.
Angela

Chicago, IL

#10 Jun 20, 2010
I had my first iron iv last week will have one a week for a month. Levels were at 2 not sure what they are now. They gave me a test iv that lasted about 45 mins then waited to see how I woild react for a hour then had last dose.

Didn't feel too bad the first day but the second and third day I thought I was dying! I was almost at the point of going back to hospital.
Yesterday was my fourth day out and although I felt better I had terrule head aches.

Could some one tell me if the ivs just get worst..I read the first treatment is the easiest.

Any thoughts
pam

Jacksonville, NC

#11 Jul 1, 2010
I had a reaction to the first IV iron....the test dose was fine...then about 30 min into the reg dose my throat, mouth swelled....had severe itching....the staff went crazy...it was an anaphylactic reaction.....they waited 2 weeks and started me on a different IV iron.....took that weekly for about 8 weeks...I feel SOMEWHAT better but not enough to do it again.....my main concern is that I have since developed allergies to other things....cashews and shrimp .....and my skin itches severely most of the time....now this could not be related at all to the IV iron....but then again it could be....not gonna chance it though since it didn't make that much difference anyway
IV Iron Therapy

Houma, LA

#12 Jul 9, 2010
I am going to have my IV iron therapy on Wednesday next week. a bit nervous but kinda looking forward to it. The nurse at the clinic does it once a year and says she felt so much better.
They told me it would take aprox 6 hours to be all finished. And i should only need one a year.
they stated that there are different kinds and some you do have to take more often and it is harder to tweak the dosage. Not sure about this sime i have not had mine as of yet.
Cross your fingers that I have no side effects.
Will let you know
Michele
IV Therapy

Crosby, TX

#13 Sep 10, 2010
I've been having the therapy for over a year. I am extremely tired right after the treatment. But that is the only side effect that I have had. It probably has more to do with the Benadryl and the Heparin then anything else.
iv therapy

Brentwood, NY

#14 Sep 16, 2010
i get iv infusions every other week,i am still tired but it has helped my restless legs so much/and i am worse if i don't get them.it does take a few days to notice the difference.but they do help,good 4582luck
Edna Brown Mouthcard KY

Pikeville, KY

#16 Feb 24, 2011
I take the iron iv treatments. I have been taking these treatments for about six years now. The only side effects I have is after I take the iv iron, I get really tired and have body aches. I start feeling better and not so tired after the third treatment. I am satisfied with the treatments cause they make me feel so much better after I take them.
Carrie

Vandergrift, PA

#17 Mar 5, 2011
Tammy wrote:
I recently started getting the iron treatments, I've had 3 so far. I was told I should start feeling better after the 2nd or 3rd but I feel worse. I am more tired than I was before and am having a hard time functioning throughout the day. However my white blood cell count is extremely low too and we haven't looked into why that is yet. Has anyone else had this problem and do you know what causes it?
i am not sure what causes it either....I am in the samw boat...I have had three therapy sessions so far, and I feel so much more tired than I ever did without the iron. I know I need it, but the iron is making me feel terrible. My doctor changed the therapy from INfed to something else...dont know if it will work yet. Maybe this is what you need.
Mimi

United States

#18 May 5, 2011
I'm on 2 week of 8 week treatments. My iron level was 8, ferretin was at 4. My WBC count was also slightly low. I saw a hematologist, who said this was normal for anemics. First week I felt nothing, this time I'm more exhausted than I've ever been. Nurses told me it takes 3-4 treatments to feel better. Once I'm done with the 8 treatments I'll go once a month for maintenance for rest of my life. :-(
ildi

Brookline, MA

#19 May 14, 2011
Donna Vendetta wrote:
Does everyone know what the causes of their anemia is? I'm am still slightly confused as to what caused my iron deficiency count of 4. I wasn't offered any IV treatments, though it's interesting to read that they are available and how they are affecting people, and that they make you feel worse? I have been on iron syrup for 2 weeks and feel worse on that as well, tired and dizzy, and fed up of being freezing. Has anyone else noticed cold sweats? I was able to work out and exercise a couple of weeks ago, now I just get a fuzzy head and have to stop myself passing out if I even attempt sit ups or anything similiar.
My white blood cell count was also slightly low, not sure exactly how it's connected to anemia but it seems to be. Anyone else know?
Hi Cold sweat could indicate that you are in shock. I had that with an ectopic pregnancy. I was bleeding internally and was almost passing out but not quite. And then my body was covered in a cold sweat.
Elizabeth

Middleboro, MA

#20 Jun 3, 2011
I have had 3 iv iron treatments and they have worked very well. After the first 2, both within 1 week, my ferratin went way up, and I was allowed to run a marathon. After a month, it went down again and I had another iv treatment. I've had no side effects at all. They have helped a lot, but I don't know why I became anemic and can't hold onto iron. I have a low hematocrit and my white blood cell count varies. The doctor is questioning sprue, some sort of celiac disease. Does anyone have experience with that connection?
Just me

Oceana, WV

#21 Jun 3, 2011
My Dad had an Iron IV treatment with his chemo treatment last wednesday. He had a severe reaction and is still on a ventilator. He also has advanced cancer so his body is weak, which may or may not have contributed to the reaction. I dont know if Iron IV is safe or not. Looking at my dad right now, I have my doubts.

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