Mirapex and fibromyalgia...

Mirapex and fibromyalgia...

There are 71 comments on the News8austin.com story from Dec 7, 2005, titled Mirapex and fibromyalgia.... In it, News8austin.com reports that:

Fibromyalgia affects 6 million Americans, 90 percent are women. Fibromyalgia is a chronic pain illness characterized by widespread musculoskeletal aches, pain and stiffness, soft tissue tenderness, general ...

Join the discussion below, or Read more at News8austin.com.

ann

Renton, WA

#21 May 5, 2007
Has anyone heard of any lawsuits (current) regarding Mirapex?

My doctor didn't tell me about the possibility of compulsive behaviors. I couldn't make myself go to bed--when I asked my Dr. if it could be the Mirapex, he flat out said no.

I finally stopped taking it on my own and almost immediately could sleep again. Unfortunately, it was too late. I have lost my marriage due to it, as well as my whole way of life. I've spent a lot of money on medical expenses, therapy and antidepressants because of it.

They're still prescribing it to others, and I just can't believe it. How many more lives will be ruined by this drug before they take it off the market?
Louise

Lagrange, GA

#22 Jun 3, 2007
Cheryl wrote:
Hi,
I found this site while researching Mirapex. My life is a living hell and has been so with RLS for a long time now. I have virtually confined myself to the house, don't like to go out, don't sleep properly, am a different person personality wise, and fear that I am not going to make it through this if it doesn't stop. I thought perhaps Mirapex even though I read the warning. I don't like any of the drugs. But I have recently questioned that if I have considered death as an option, perhaps I should consider this.
Often, I run around the house crazed to try to get it out of my system. I just can't stand it anymore. I never got relief from Sinemet. I think all the drugs are problematic. There has to be a way to live again. It has been too long.
Any advice?
My husband has been taking Mirapex for about 3 years and it has been a definite Godsend....He is finally able to have a good night's sleep again and has completer relief from his severe case of RLS. By all means try the Mirapex and you should be getting a good night's sleep again in no time!
Louise

Lagrange, GA

#23 Jun 3, 2007
Mr husband has been taking Mirapex for about 3 years and it has been a definite Godsend...he is able to have a good nights sleep again and has complete relief
from his severe case of RLS! By all means try the Mirapex and you should be getting a good nights sleep in no time! Also avoid eating alot of salt at night and taking extra iron and magnesium might help also!
Jill

Phoenix, AZ

#24 Jun 3, 2007
I was on Mirapex for awhile had some serious twitching issues as well as cramping issues. It was strange. My doc tried to play it off as if he did not want to hear it from me. It was ridiculous and really made me angry. I got so sick of dealing with meds for my Fibro.

Lately I have gotten away from prescribed meds. I do some accupuncture occasionally; get massages monthly; do light yoga and stretching exercises; have changed my diet substantially -- here is an outline of what I do ( http://www.jigsawhealth.com/articles/fibromya... )

I have had good success thus far and my mind feels clear for the first time in a long while.

Also, supplements and fish oil are also suggested for Fibro.

Here are some supplements worth looking at -- http://www.jigsawhealth.com/articles/fibromya...

If meds do not seem to do the trick, then why oh why do we keep on USING THEM!!!

Try something new, take on changes!!!

Good luck
Jenny Picaso

Seattle, WA

#25 Jun 6, 2007
I am reading your posts with concern over what the doctors have not told you about Requip and Mirapex. Yes it is true even us young folks get Parkinson's. Mine started when I was about 20 years old. I was misdiagnosed with a number of illnesses Fibromyalgia being one of them. I was also diagnosed with RLS. It's only been 3 years since my proper diagnosis of Parkinson's disease. I have been on Sinemet(Leva Cardopa)and agonists. The first agonist I was on was Mirapex, I did very poorly on this but gave it a good six month try. Next we tried Requip, gave it almost a year but after being so sick and loosing 85 pounds we decided to get off it. As of now I am still struggling without an agonist but I would rather suffer than be on these two medications. What the doctors don't tell you about these two drugs is they both cause severe behavorial changes. The most common I have heard about both of them is excessive compulsive behaviors. Gambling, spending, drinking, sex addictions. I am with a large group of People Living With Parkinson's group. If you knew some of the horror stories these people tell you might think twice about what you are putting in your body.

Sorry this is so lengthy but I believe this is a serious side effect of both of these drugs. It has literally devistated families and relationships. Please be sure to check both of these medications out carefully before beginning to take them.
pasha

Northfield, MN

#26 Jun 10, 2007
pasha
1886
William Louis wrote:
Since using Mirapex, I have had progressive muscle pain and weakness in both legs. Can there be a connection?
April

Reno, NV

#27 Jul 9, 2007
William Louis wrote:
Since using Mirapex, I have had progressive muscle pain and weakness in both legs. Can there be a connection?
Thanks goodness I found this website. I, too, suffer from severe RLS and began treatment with mirapex about 6 weeks ago. I thought the drug was a miracle until a week ago. At first, I started feeling like but buttocks and hamstrings were badly bruised. It hurt to even sit down. Then, my feet and ankles started throbbing at night so that I could not sleep at all. Unlike the RLS, this new sympton was excrutiatingly painful. After a week, I finally put 2 and 2 together and figured out that the only "pain free" time I had was late in the evening (right before my nightly dose). I've stopped taking the Mirapex but need another solution for my RLS. Any suggestions?
Tracey

Lexington, KY

#28 Jul 19, 2007
Cheryl,

I too suffer daily with pain. I don't know if anyone really understands and it's so very hard to find the right words to describe pain to a doctor. Is it burning, tingling etc etc. I've been fighting this for over 2 years now, have 3 little children and a full time job. I'm exhausted and ready to give up. I don't think the medical community has a clue what to do with me.
Annabelle

United States

#29 Jul 19, 2007
I haven't taken Mirapex but I was taking Lyrica which initial helped but it seems to be effecting my vision and the doctor is lowering my dose till I am on nothing. I have an appointment with a Rhumetoid doctor within the next two months. If it isn't soon, I may have to try another drug. Any suggestions aside from Mirapex? It's gotten so with all this rain, even my clothes hurt against my skin, the bottom of my feet to almost too tender to walk on but on I go. Somebody had to pay the bills and there is no one else. Thanks for listen. RSVP with any suggestions.
mark

Stillwater, MN

#30 Jul 27, 2007
loulou wrote:
<quoted text>
FINALLY! Finally I find someone who is having same problems. I kept telling this to my doctor...but he said never heard about that. There are many things the drug companies do not tell us. It took me a long time before it started but I know it is Mirapex.
LOUISE
I was glad when I read all of your posts-I started Mirapex for what might possibly be RLS (I had a sleep study done for apnea and the sleep Dr thought I might have it)and I have never felt worse in my life. Normally 2-4 times per month my legs will bother me and after starting the drug, I experienced leg aches every night along with headaches, exhaustion and extreme tiredness during the day. No thanks!!!
Susan

AOL

#31 Sep 1, 2007
Cheryl wrote:
Hi,
I found this site while researching Mirapex. My life is a living hell and has been so with RLS for a long time now. I have virtually confined myself to the house, don't like to go out, don't sleep properly, am a different person personality wise, and fear that I am not going to make it through this if it doesn't stop. I thought perhaps Mirapex even though I read the warning. I don't like any of the drugs. But I have recently questioned that if I have considered death as an option, perhaps I should consider this.
Often, I run around the house crazed to try to get it out of my system. I just can't stand it anymore. I never got relief from Sinemet. I think all the drugs are problematic. There has to be a way to live again. It has been too long.
Any advice?
I am on requip and have been since May 06 and I am addicted to the drug and it has made my life a misery. Here, is what has helped me. I go swimming and that exercise helps a lot. I find white sound, the sound of a fan running or a recording of waves on the shore helpful. I have gotten a back massager which also helps but all of these only help to a limited degree. I can empathize with your problems because I have had restless legs for years. Oh, exercising to soft rock music also helps me. Oh, and I have an electric scooter and going riding on that also is helpful. Have you found anything to help you?
I am angry that no one advised me of the drug, its side effects and that I would become an addict and have terrible withdrawl sympthoms. Anyway, do take care and I wish you the best.
Genevieve from Georgia

Phenix City, AL

#32 Sep 11, 2007
Death is NOT the answer...

Jesus is the answer! Read John 10:10

I suffer too and have had all of the side effects of medicine, but I am finding health and healing -physically and spiritually.

Ask God to give you wisdom and knowledge in finding the "best doctors and medicines."

Please, NEVER GIVE UP! There are people now and in the future who need what only you have to give...sick or not. You have value and worth!

KEEP FIGHTING...EVERY NAME MUST BOW UNDER THE NAME OF JESUS including death, sickeness,and pain.

I'm so glad I have kept on fighting, because I am beginning to win and have become a better person in the process!

JESUS MAKES THE DIFFERENCE...Talk to him...He WILL LISTEN!:o)
LLucas

Streetsboro, OH

#33 Oct 16, 2007
I have FM and Mirapex, in combination with Skelaxin, has enabled me to function. Before I found it, I rolled into work at 11 am because I couldn't physcially get up (and felt physically horrible). I was lucky then. I'd be fired now.

I can't tolerate any of the sleep meds due to their sedating/hangover effects. So, for me, this is really the best treatment my doctor and I have found, and I am grateful every day to have it.

But, we're all different and meds affect us differently-- or combinations of meds. That might even be the key for me.

Anyway, I'm sorry for those who aren't having a good experience. Please tell your doctor. Great idea to call the company. They do have a stake in knowing. Just document the details of your call, also.

Thanks for posting. This is a great way to share real-life experience that our doctors can't tell us.
Tanya MN

AOL

#34 Nov 5, 2007
Kristine wrote:
I couldn't believe it when I heard a few months back that Docs were giving Fibromyalgia patients Mirapex! This drug has caused my life to change in the most horrible ways. I have Fibro, but Mirapex was given to me for restless leg syndrome. I also was given Requip several years ago for Fibro, and it made me so much worse I wasn't walking much. I was looking into a motorized chair when I discovered that Requip was the problem! Not knowing about behavioral-type side effects in those days, I started taking Mirapex under the advice of my doc at Mayo Clinic,the very place in which the first big study came out on compulsive gambling. During all of this time, I was going through these awful behaviors and I didn't know why. I gained a ton of weight (I'm still gaining even though I'm off of the drugs), I began shopping compulsively every day (I used my Mom's credit card until I wasn't able to pay her back anymore). I was gambling and drinking to excess. To make a huge story shorter, I went through treatment (and have not had a drink since), I have gambled everything I have and have been bailed out by family twice (I'll never be able to pay my mom back!), I tried to commit suicide. My children (grown) found me on my deck after I had taken large amounts of RX controlled sub. pills. I was taken away by ambulance and spent some time in the hospital. I have not been able to quit gambling and eating. The only reason I am not shopping is because I don't have any money. But if I do go into a store, I can't leave. I just look around and get "stuck" there. I need to try and remember so much for my attorney, so excuse my running on... Has anyone else out there had all of these behaviors???
I have had the same problem with excessive spending constantly on the internet I used my dads credit cards and tried kill myself. for the last year my life has been goin down hill I have had anger outburst with my family and I am usually a very calm and passive person.I also gained a ton of weight. Nothing I did could stop me I knew in my brain and heart it was wrong but I couldnt stop myself. I became very obsesive with things I got very obsesed with sex also.
JoJo

Doylestown, PA

#35 Jan 13, 2008
Got off Mirapex mainly due to edema. I was on it for six years at a very high dose, 1.5 3x per day. Problem is, I still have edema and am not sure why. When I take Lasix, my legs and face are much less swollen, but am not sure why I continue to have this problem...is this edema a lasting effect of the drug?
Pragan

Charlotte, NC

#36 Jan 30, 2008
Been on mirapex 0.5mg now for 5 years. Yes, the restless leg syndrome stops completely unless I skip 1 or 2 doses. However, i have been addmited to a pscy unit for major depression. Weight gain was about 150lbs at first and now 240 without any attempts to lose it to work. I binge eat constantly, weak and sleepy during the day and almost never leave the hourse due to fatigue. I am now wondering if all this time if Mirapex was the problem.
exposem

Hartford, CT

#37 Feb 1, 2008
The expectorant guiafenisen works for me for fibromyalgia. Also, eating tart cherries helps.
exposem

Hartford, CT

#38 Feb 1, 2008
The expectorant guiafenisen helps me with fibromyalgia and it is available over the counter. Also, eating tart cherries helps.
try this

Hartford, CT

#39 Feb 5, 2008
Try using some epsom salts in your bath. Also, please switch from white sugar to brown or demerara sugar. These things will help increase your magnesium.

If you happened to have copd also, this will help too.
Gave up Mirapex

Miami Beach, FL

#41 Jun 26, 2008
I started to take mirapex and after 3 weeks I gave it up because it made my sleep worst and restless. I have fibro but can control it with relaxation techniques, but I don't have the energy I wished I had even if I can contro lthe pain. Mirapex is very strong and I would ve careful in using it for a long time. It has a lot of side effects.
Selva

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