Problems Hamper Sickle Cell Treatment

The news is grim: Ten years after government approval of the first sickle cell treatment, only a tiny fraction of patients use the drug - despite new research showing the disease is far more painful than ... Full Story
Mom of 8 yr old with hbSS

Fairfax, VA

#1 Mar 5, 2008
My child was recently given this medication in the hopes of cutting back on her acute chest crisis (3 times in 2007). It has not been long enough to know if it is a benefit yet but the possibility of an improvement is good enough for me to try. So many people, including those in the medical field, have no idea of the complications associated with sickle cell and I URGE EVERY PARENT TO BE THE VOICE OF YOUR CHILD WHEN IN NEED OF MEDICAL ATTENTION! ONLY YOU CAN BE A TRUE ADVOCATE FOR YOUR CHILD. IF IT DOESN'T FEEL RIGHT TO YOU/YOUR CHILD, QUESTION IT EACH AND EVERY TIME. ONLY YOU KNOW YOUR CHILD WELL ENOUGH TO KNOW WHAT WORKS FOR THEM.
Jalen

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#10 Jan 26, 2013
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France

#11 Feb 14, 2013
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Since: Aug 10

Buffalo, NY

#13 Feb 16, 2013
DocHoliday wrote:
Sickle Cell is not a disease, it's a cure.
So youre a conservative?
Jeff

UK

#14 Apr 11, 2013
i wrote:
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Jarrod

Germany

#20 Aug 3, 2013
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Clark

France

#29 Sep 5, 2013
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William Joyce KVK1

Marion, NC

#30 Sep 6, 2013
DocHoliday wrote:
Sickle Cell is not a disease, it's a cure.
It is evolutions way of trying to eradicate a failed ape species. The Negro was an evolutionary blind alley sort of like the wooly mammouth.

Since: Aug 10

Holts Summit, MO

#31 Sep 7, 2013
William Joyce KVK1 wrote:
<quoted text>It is evolutions way of trying to eradicate a failed ape species. The Negro was an evolutionary blind alley sort of like the wooly mammouth.
So you're a tea party guy?
mike

Crossville, TN

#33 Sep 7, 2013
William Joyce KVK1 wrote:
<quoted text>It is evolutions way of trying to eradicate a failed ape species. The Negro was an evolutionary blind alley sort of like the wooly mammouth.
They said the same thing about neanderthals but your still here..
William Joyce KVK1

Marion, NC

#34 Sep 7, 2013
mike wrote:
<quoted text>They said the same thing about neanderthals but your still here..
Professor Shockley absolutely proved the Negro is a jungle beast. Let it rest.
mike

United States

#35 Sep 8, 2013
William Joyce KVK1 wrote:
<quoted text>Professor Shockley absolutely proved the Negro is a jungle beast. Let it rest.
PROFFESOR SHOCKLEY WAS A QUACK who never bothered doing research he just wrote a book espousing his bigotry and called it scientific research...
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Romania

#37 Sep 14, 2013
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Germany

#38 Sep 15, 2013
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Tokyo, Japan

#39 Oct 19, 2013
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slenderman

Dallas, TX

#41 Jun 24, 2014
Erectile dysfunction, sickle cell anemia and racism go together well.

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