Problems Hamper Sickle Cell Treatment

Problems Hamper Sickle Cell Treatment

There are 19 comments on the WUSA Washington, DC story from Mar 4, 2008, titled Problems Hamper Sickle Cell Treatment. In it, WUSA Washington, DC reports that:

The news is grim: Ten years after government approval of the first sickle cell treatment, only a tiny fraction of patients use the drug - despite new research showing the disease is far more painful than ...

Join the discussion below, or Read more at WUSA Washington, DC.

Mom of 8 yr old with hbSS

Fairfax, VA

#1 Mar 5, 2008
My child was recently given this medication in the hopes of cutting back on her acute chest crisis (3 times in 2007). It has not been long enough to know if it is a benefit yet but the possibility of an improvement is good enough for me to try. So many people, including those in the medical field, have no idea of the complications associated with sickle cell and I URGE EVERY PARENT TO BE THE VOICE OF YOUR CHILD WHEN IN NEED OF MEDICAL ATTENTION! ONLY YOU CAN BE A TRUE ADVOCATE FOR YOUR CHILD. IF IT DOESN'T FEEL RIGHT TO YOU/YOUR CHILD, QUESTION IT EACH AND EVERY TIME. ONLY YOU KNOW YOUR CHILD WELL ENOUGH TO KNOW WHAT WORKS FOR THEM.
Jalen

Anonymous Proxy

#10 Jan 26, 2013
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Chapman

France

#11 Feb 14, 2013
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Since: Aug 10

Hollis Center, ME

#13 Feb 16, 2013
DocHoliday wrote:
Sickle Cell is not a disease, it's a cure.
So youre a conservative?
Jeff

UK

#14 Apr 11, 2013
i wrote:
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I'm thinking of doing the same thing with my medication. The meds is expensive, but there is a generic version available overseas.
I love the idea of taking responsibility for my own health (or lack of health) and skipping the bureaucracy... to say nothing of having to drive to the doctor, wait in line, yet again, to get a prescription refilled.
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Jarrod

Germany

#20 Aug 3, 2013
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Clark

France

#29 Sep 5, 2013
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William Joyce KVK1

Burnsville, NC

#30 Sep 6, 2013
DocHoliday wrote:
Sickle Cell is not a disease, it's a cure.
It is evolutions way of trying to eradicate a failed ape species. The Negro was an evolutionary blind alley sort of like the wooly mammouth.

Since: Aug 10

Collinsville, IL

#31 Sep 7, 2013
William Joyce KVK1 wrote:
<quoted text>It is evolutions way of trying to eradicate a failed ape species. The Negro was an evolutionary blind alley sort of like the wooly mammouth.
So you're a tea party guy?
mike

Cookeville, TN

#33 Sep 7, 2013
William Joyce KVK1 wrote:
<quoted text>It is evolutions way of trying to eradicate a failed ape species. The Negro was an evolutionary blind alley sort of like the wooly mammouth.
They said the same thing about neanderthals but your still here..
William Joyce KVK1

Burnsville, NC

#34 Sep 7, 2013
mike wrote:
<quoted text>They said the same thing about neanderthals but your still here..
Professor Shockley absolutely proved the Negro is a jungle beast. Let it rest.
mike

United States

#35 Sep 8, 2013
William Joyce KVK1 wrote:
<quoted text>Professor Shockley absolutely proved the Negro is a jungle beast. Let it rest.
PROFFESOR SHOCKLEY WAS A QUACK who never bothered doing research he just wrote a book espousing his bigotry and called it scientific research...
Cinnamon

UAE

#37 Sep 14, 2013
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Herve

Germany

#38 Sep 15, 2013
i wrote:
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Tokyo, Japan

#39 Oct 19, 2013
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London, UK

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slenderman

Dallas, TX

#41 Jun 24, 2014
Erectile dysfunction, sickle cell anemia and racism go together well.

Since: Oct 15

Santo Domingo, Dominican Republic

#42 Oct 19, 2015
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Frankfurt, Germany

#43 Jan 29, 2016
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