mycobacterium fortuitum
Michelle Louisiana

New Orleans, LA

#21 Apr 18, 2007
Jill wrote:
Thank you Ann, very informative info, much more than I have even gotten from the specialists. I recently had a rash appear on my lower leg but the specialist said it was a dermatitis and not anything to do with MF but I still wonder, the medicine did take care of the rash AFTER almost 2 months. I am just beginning to go off 3 strong antibiotics that I have been on since July 06, Cipro, Biaxin and Doxcylcine. IF this horrible rash should come back on the abdomen with the seeping sores I will chose to go IV 2 times a day for 4-6 weeks. All the pills are strong and really bothered my stomach. I have been scarred on the abdomen area and it is a reminder everyday what has happened to me, I know I got it at the hospital, trying to prove it is a very tough thing. Thanks again for all the info.
Jill are your getting better?
Jill

Crystal, MI

#22 May 1, 2007
I have been off antibiotics for a few months, no more outbreaks in the abdomen and I feel good. Sometimes I do have a very fine rash over the abdomen. I have a fairly large, hard area about the size of the palm of my hand on the rt side of my abdomen where the biggest of the open wounds were and drained surgically,that tends to remain a little puffy, sort of sticks out if I wear somthing form fitting,sometimes tender, doctor said it is built up scar tissue, I see him again in July, would like have it taken out or somehow removed, I look lopsided!! I have been fighting with this since Nov. 2005 and finally am starting to get back to normal but always looking for an outbreak. The Infection control specialist told me my type does not lay dormant and I should be over it, but I wonder. From what I am told it is kind of rare, I find it interesting reading this forum from other people. Good luck to all.
Michelle Louisiana

New Orleans, LA

#23 May 8, 2007
Jill wrote:
I have been off antibiotics for a few months, no more outbreaks in the abdomen and I feel good. Sometimes I do have a very fine rash over the abdomen. I have a fairly large, hard area about the size of the palm of my hand on the rt side of my abdomen where the biggest of the open wounds were and drained surgically,that tends to remain a little puffy, sort of sticks out if I wear somthing form fitting,sometimes tender, doctor said it is built up scar tissue, I see him again in July, would like have it taken out or somehow removed, I look lopsided!! I have been fighting with this since Nov. 2005 and finally am starting to get back to normal but always looking for an outbreak. The Infection control specialist told me my type does not lay dormant and I should be over it, but I wonder. From what I am told it is kind of rare, I find it interesting reading this forum from other people. Good luck to all.
Jill, I have spoke to several attornies and there were recalls on some sutures at the time of our surgeries. Have you check into the types of sutures used on you and that fact that they could have been contaminted? If not call Susanne @877-775-6337 and she can tell help you find out if the sutures used in your surgery were contaminted or in a contaminated batch.
red925394

Lytle Creek, CA

#24 May 15, 2007
This is fairly scry stuff. Took many months of Doxycycline to get rid of mine; so, now I learn I'll be worrying about this for as long as I live? I am seriously considering filing suit (if it isn't too late). Any idesa on that aspect, anyone?
Jill

Crystal, MI

#25 May 17, 2007
Michelle, are you doing better? Has your infection reoccurred? When I looked into a law suit I was told it would be very hard to prove that I got it at the hospital at the time of surgery UNLESS there were other reports from someone else that also came down with it. The hospital person that I talk to wanted to blame me for not taking adequate care of my drains, not being clean, etc, etc. I was offended and told them I came home with the rash and once I got home my dressings were changed in a very clean and sterile technique AND I did not go home and roll around in the dirt!!! I get sad when I look at all the scars on my abdomen and think about what i have gone thru the last 2 1/2 years and for the most part I really was innocent. This infection is nasty stuff and I have had many surgeries in my life time and have never been prone to infections or have had any complications so I am baffled. Keep posting everyone and let us know what you learn as to help us all. Thank you in advance.
Sandi

Carrollton, TX

#26 May 21, 2007
Hello All,
I had surgery in 2003 (c-section)and to this day still deal with constant infections. My last horrendous infection was in July of 2006 where a small infected area on my scar grew and grew until it finally exploded. Yes I know gross!! Since then the infections have been rarely small. I have been treated with oral and topical antibiotics over and over again. I was also given a cat scan. Me and the dr's were thinking maybe it had something to do with sutures, perhaps not absorbing. Has anyone heard this? I found the words Mycobacteria fortuitum off a lawyer giving an interview regarding bad vicryl sutures. Does anyone who had surgey know the type of suture used? So many questions. Now that I read up on this infection it seems that I can relate. Oh and my dr. has done many cultures BUT I always am on topical antibiotics when he does the cultures. I would think that would hamper the results. I'd like to know some more symptoms everyone has dealt with, also how soon after would you say the first infection took place. I really need to get to the bottom of this and I feel I might be getting close.
Jill

Crystal, MI

#27 May 25, 2007
Sandi - I also had many, many cultures BUT it was not diagnosed until they opened me back up and did cultures from inside. The surgeon told me the infection had "tunneled" all through my abdominal area. Mine first started out on my rt side with a fine rash and then as it progressed it did tunnel over to the lt side. I endured many openings of the small lesions and my abdomon is really scarred however after the infection was identified and I was put on the antibiotics I have not had another break out. I was on 3 antibiotics x 9 months and have been off them x 2 months and so far everything seems okay. I keep close eye on everything. When it first started we also thought I might be allergic to the type of sutures but then that was ruled out. Very complicated stuff but I feel the infection control specialist really got me on the right track. good luck to all and hopefully together we can help each other through this.
Josie

AOL

#28 May 27, 2007
LEA wrote:
Has anyone out there ever developed a post-pedicure infection? Multiple lesions on legs below calf - worsens almost daily. I had a pedicure for Valentine's Day and this has resulted. I have researched and am certain it is "mycobacterium fortuitum" - according to research, it may take multiple antibiotics to resolve. Any similar experiences?
I have the same problem. I took medication for months and now i have to deal with scars that are so mortifying. I really dont no a way to treat the scars mederma is not helping and neither did the laser. My legs are ruined!!
red925394

Lytle Creek, CA

#29 May 28, 2007
I, too, got mycobacterium fortuitum from a hospital. Whether from a communal shower drain (memorable for its being so gross!), or during an invasive procedure, I care not--but I DO think I've been wronged, and I WOULD like to join a class of other victims in recovering for damage$. You betcha...
Jill wrote:
When I looked into a law suit I was told it would be very hard to prove that I got it at the hospital at the time of surgery UNLESS there were other reports from someone else that also came down with it. The hospital person that I talk to wanted to blame me for not taking adequate care of my drains, not being clean, etc, etc. I was offended and told them I came home with the rash and once I got home my dressings were changed in a very clean and sterile technique AND I did not go home and roll around in the dirt!!!
Ann

Owasso, OK

#30 May 30, 2007
Michelle Louisiana wrote:
I am off my antibiotics 6 weeks and I am sick again. Will see the doctor today. My stomach has being to swell and is very painful. I guess Ann is right, I will have to fight this the rest of my life.
Mine is so different. Mine is in my skin, but mainly shows up on my calves. UGLY
Michelle Louisiana

New Orleans, LA

#31 Jul 10, 2007
Jill, I have not been able to find an attorny now willing to help me. I have filed an extenstion with the patient's compensation fund of Louisiana so I will get my day before a panel of doctors, but that is probably as far as it will go. I too have been told it is next to impossible to prove the hospital is at fault for my serious and everlasting infection. I am doing better; just taking one day at a time.
Michelle Louisiana

New Orleans, LA

#32 Jul 10, 2007
Sandi,
The cultures have to be done from tissue inside the abdomen. It took and acid fast test to show mine. I too have had several surgeries because of this bacteria and I have searched for help and no one wants to do anything about, legally that is!
Sandi wrote:
Hello All,
I had surgery in 2003 (c-section)and to this day still deal with constant infections. My last horrendous infection was in July of 2006 where a small infected area on my scar grew and grew until it finally exploded. Yes I know gross!! Since then the infections have been rarely small. I have been treated with oral and topical antibiotics over and over again. I was also given a cat scan. Me and the dr's were thinking maybe it had something to do with sutures, perhaps not absorbing. Has anyone heard this? I found the words Mycobacteria fortuitum off a lawyer giving an interview regarding bad vicryl sutures. Does anyone who had surgey know the type of suture used? So many questions. Now that I read up on this infection it seems that I can relate. Oh and my dr. has done many cultures BUT I always am on topical antibiotics when he does the cultures. I would think that would hamper the results. I'd like to know some more symptoms everyone has dealt with, also how soon after would you say the first infection took place. I really need to get to the bottom of this and I feel I might be getting close.
Jill

Crystal, MI

#33 Jul 16, 2007
Michelle - I agree about no one wanting legally to help, I have been told it would be VERY hard to prove that I got this infection from the hospital. I went back to see my plastic surgeon regarding all the scarring on my abdomen and to see about maybe a revision of my incison (which is now a large clevage down the front of my abdomen from having to be opened up 4 different times), removal of a lopsided scar tissue buildup due to all of the infection sites having to be opened and drained and was told insurance would not cover it because it would be considered "cosmetic", it would have to be self pay. Wow I did not go into the hospital looking like this but now somehow it is my fault and my financial responsibility to get my abdomen looking somewhat normal again? I really do not understand this at all but on the other hand I am glad the infection has not returned since being off the antibiotics since April, so I guess I can be thankful for this. Good luck to all who are fighting this dreadful infection.
Lisa

Beaverton, OR

#34 Jul 23, 2007
Hi All. I am scared to death. My legs are covered with lesions that started 2 months ago. The physicians assistance gave me some topical steroid cream which hasn't really helped. The look like a bite and then change and spread, flatten out and look purple. I know have them on my forearm! I am so scared they are going to spread everywhere. I thought this all started with a few bugs bites. Now, thinking back..I did get a pedicure about 8 weeks prior to this break out. My toe nail fell off from it and since it grew back I really didn't think much of it. My doctor wants to put me on oral steroids..but she hasn't even done any tests. Any suggestions would be appreciated. Hopefully, the more I understand about this the better I can push the doc to do something!!
Michelle Louisiana

New Orleans, LA

#35 Jul 27, 2007
Update: I have a lawyer now proceeding with a suit against the hospital for malpractice. He signed on after speaking with my surgeon about he fact that I had to have contracted this bacterium in the operating room at the time of my surgery. Need your help::::::: Anyone know of a site where I can get information on the reoccurance of this bateria? I need to know what the odds are that it will come back and what the average time frame is!!!! ANYONE WITH INFO PLEASE EMAIL ME @ METCHIE32@COX.NET, THANKS FOR EVERYTHING! HOPE ALL IS WELL!
laurie kansas

Wichita, KS

#36 Aug 18, 2007
hi,
just found this web site wow
i have this infection i got it from breast reduction
surgery. the infection ran through my breast for
8 mo. just now found out what it was. thought i would die i was sooo sick. i am now seeing an infectious disease dr. asked him where i got this bacteria he said your surgery because it is encapsulated in the breast. asked what chance i had of contracting not during my surgery he said less than 1% my breast has oozed for 23 days
and the surgeons and my primary care dr. ignored
me for 8 mo. until i had to go into the hospital
now i have found another woman that had same surgery, same dr. same hospital same bacteria
her surgery was in oct 2006 mine dec 2006 how many others are out there suffering and getting no help
so if any one out there knows of an attorney
with some teeth please let me know because all the drs. that should have helped me told me it was all in my head and tried to put me on antidepressants
i was a whinning woman and my pain did not exist
until i ended up in the hospital
thank for any help
Michelle Louisiana

New Orleans, LA

#37 Aug 20, 2007
Laurie, I'm glad you found an infectious disease doctor to help you. As far as the lawyer. It took me a year but I finally got one on board. Don't give up. Start with the phone book and tell your story to every lawyer under medical malpractice you can. One will listen!!! GOOD LUCK!
laurie kansas

Wichita, KS

#38 Aug 24, 2007
michelle
i found an attorney! Talked to his asst.
told her my story. She said i have more than a case
the attorney wants to see me asap so monday my husband and I will see him. finally I might see justice will keep you up dated. thanks for your encouragement. I hope both of us will see justice
have a wonderful day!!!!
Michelle Louisiana

New Orleans, LA

#39 Aug 24, 2007
Laurie, I am so glad to hear your great news! I also will keep all informed of my case against the hospital. Keep me posted on what the attorney tells you. You never know our attorneies may be able to help each other. Wouldn't that be something! Take care
cherry

Saint Matthews, SC

#40 Jan 10, 2008
Michelle wrote:
I have been fighting this bacteria since May 15, 2006 after having a hysterectomy and abdominalplasty. I have had two abdominoplasty's to remove infection and was cut in the stomach area next to my belly button to relieve swelling and allow to drain. One stay in hospital was for 9 days due to blood clot that broke loose and went into my heart and lung from surgeries. I was told I am the only case of mycobaterium fortuitum in the abdominal area. Anyone else out there? I have had home health and P.I.C.C. lines for months and oral antibiotics along with 10 other meds since May 06 till current time.
Michelle, YOUR CASE SOUNDS EXACTLY LIKE MINE!!!!!! i've just started with picc line and antibotics...but have had it drained 3 times and removed with surgery once ...my doctor surgeon(also one that did my lap band surgery) said he had never since this and its rare......please please let me hear from you mine was even inthe exact area of your's ......they wanted to take my belly button out thought that was the problem...tahnk god i didn't let them....after 4 months and NO antibotics ever from surgeon they called in a infectious diease Dr......let me know how you are doing

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