mycobacterium fortuitum

mycobacterium fortuitum

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LEA

Rescue, VA

#1 Apr 1, 2006
Has anyone out there ever developed a post-pedicure infection? Multiple lesions on legs below calf - worsens almost daily. I had a pedicure for Valentine's Day and this has resulted. I have researched and am certain it is "mycobacterium fortuitum" - according to research, it may take multiple antibiotics to resolve. Any similar experiences?
Dominick

Addison, TX

#2 May 24, 2006
You should contact an attorney - there is growing litigation in this area. Also check with the Department of health re: the specific salon.
Dominick

Addison, TX

#3 May 24, 2006
LEA wrote:
Has anyone out there ever developed a post-pedicure infection? Multiple lesions on legs below calf - worsens almost daily. I had a pedicure for Valentine's Day and this has resulted. I have researched and am certain it is "mycobacterium fortuitum" - according to research, it may take multiple antibiotics to resolve. Any similar experiences?
You should contact an attorney - there is growing litigation in this field.
Bohn

San Jose, CA

#4 Jun 8, 2006
LEA wrote:
Has anyone out there ever developed a post-pedicure infection? Multiple lesions on legs below calf - worsens almost daily. I had a pedicure for Valentine's Day and this has resulted. I have researched and am certain it is "mycobacterium fortuitum" - according to research, it may take multiple antibiotics to resolve. Any similar experiences?
I have represented more than 100 women who have been infected as you have described. I have been consulting with women around the nation as to what to do and whether I or another attorney might help them. See us at www.bohnlaw.com .
Karen

Lancaster, PA

#5 Sep 1, 2006
LEA wrote:
Has anyone out there ever developed a post-pedicure infection? Multiple lesions on legs below calf - worsens almost daily. I had a pedicure for Valentine's Day and this has resulted. I have researched and am certain it is "mycobacterium fortuitum" - according to research, it may take multiple antibiotics to resolve. Any similar experiences?
Lea, my daughter and I both have the infection and believe it is from a nail salon in chesapeake. We know of 2 possible other cases. I have scars on my legs and my daughter 9 months later is still having a break out.
Jill

Elm Hall, MI

#6 Sep 14, 2006
I had an abdominalplasty in Nov. 2005 and after 10 months am still fighting a positive myobacterium fortuitum infection. Numerous surgeries and procedures, multiple antibiotics. I was fine until after my surgery and came home with a rash which led to skin like ulcers and seeping , it has gotten worse from that time on. I am positive I got it during the procedure in the hospital. Am continuing to see surgeon and infection disease specialist. Any thoughts as to if I need a lawyer?
Andrew Verity

Barcelona, Spain

#7 Sep 16, 2006
Have any of you thought of checking with a homeopath for the antidote to the mycobacterium fortuitum. It is possible to strengthen your immune system to the bug using homeopathics.
Elizabeth

Irvington, NJ

#8 Sep 25, 2006
I also have this infection and got it from a nail salon in Hollywood, FL. I have been fighting the infection for 5 months. I am on two antibiotics and there isn't much sign of improvement. If anyone else was infected in Hollywood, FL, please post a response.
Ann

Owasso, OK

#9 Feb 4, 2007
LEA wrote:
Has anyone out there ever developed a post-pedicure infection? Multiple lesions on legs below calf - worsens almost daily. I had a pedicure for Valentine's Day and this has resulted. I have researched and am certain it is "mycobacterium fortuitum" - according to research, it may take multiple antibiotics to resolve. Any similar experiences?
I have this organism myself, I have had it since i was 11 ( now 37 )not from a pedicure though. But not all these years, just off and on. I am not sure where on earth I got this from either. When I was a kid, the Drs didnt know what it was, nor did they really look into it for me either. I had lesions on the front and back of my calves.. usually 3 at a time. With no treatment, they would stay for about 2 years on my leg and eventually heal, SLOWLY, and leave a pit in my skin. Then I got a few more, again 2 years or so to heal, left scars. After about 4 years of lesions ( again, not ever seeking treatment for them, the Pediatrician was puzzled, and kinda just blew us off, said its nothing ) I guess age 11-14 was the prime time the organism was active. They finally went away, and didnt come back until I was 25. Just one day as an adult, I woke up and had 6 on the back of my calves AGAIN. Drs were again puzzled, but for work, I had to get a TB skin test. I thought nothing of it, until it came back Pos. I mentioned it to my Dr, and that was what finally got us looking in the right direction. Within 2 weeks, I had a diagnosis of mycobacteria fortuitum. I began oral antibiotics, which did not phase the lesions at all, so I had to get some surgically cut out. Even after cut out though, new ones appeared, so we tried unsuccessfully differnt combo. of antibiotics.. again had many removed surgically. By the time I was 29, though they disappeared again for years. Now at 37, just within this month I have had 2 small ones appear on the side of my calf. I pick them myself and drain them, they are smallernow, but I know it is coming back. I understand that this organism is NOT curable, you always will have it, just that it will go dormant for years, and then become active. The IV drugs I have read about ( havent tried yet, but may have to this time around ) only help it while its active, might make the lesions heal for a while, but you'll always have to battle it until it goes dormant again. Each active period was on going though for about 4 years. As soon as my stitches were removed from previous excisions, Id get 3 new ones that I had to deal with. I am not looking forward to it coming back, but its been dormant in me now for 9 years. If the Dr is right, then sure enough,, its about time for it to return.. dormancy is about 8-12 years a Dr once told me. I do not have aids, I am otherwise a healthy lady. If you have seen your Dr recently, and he told you interesting info, please pass it along to me as well. I find that my Dr.s really dont know anything about this.. I hate to even bother going to them.
Ann

Owasso, OK

#10 Feb 4, 2007
Jill wrote:
I had an abdominalplasty in Nov. 2005 and after 10 months am still fighting a positive myobacterium fortuitum infection. Numerous surgeries and procedures, multiple antibiotics. I was fine until after my surgery and came home with a rash which led to skin like ulcers and seeping , it has gotten worse from that time on. I am positive I got it during the procedure in the hospital. Am continuing to see surgeon and infection disease specialist. Any thoughts as to if I need a lawyer?
I would look into it, if the Drs you are seeing now can prove thats where this organisim came from, certainly Id think you can be compensated for it. It can be a very disfiguring disease. I am pretty sure its something you will always have to deal with off and on. I think its always in your body. I don't think it is life threatening, unless because of an inadequete immune system it could become dangerous maybe. I have this too, dont know where it came from . I get lesions on my lower legs from time to time. I have not seen a Dr for this in about 9 years, mine has been dormant. If you are seeing a Dr for this, Id be interested in hearing your experience, what you have taken for it, what works, what hasnt.. You can read what I posted to Lea..
Ann

Owasso, OK

#11 Feb 4, 2007
LEA wrote:
Has anyone out there ever developed a post-pedicure infection? Multiple lesions on legs below calf - worsens almost daily. I had a pedicure for Valentine's Day and this has resulted. I have researched and am certain it is "mycobacterium fortuitum" - according to research, it may take multiple antibiotics to resolve. Any similar experiences?
I posted a long paragraph earlier, and I dont see it.. so maybe it will post twice!! I have had this disease since I was 11 years old !! Now I am 37. I dont know where it came from, but I had lesions on my lower legs that healed SLOWLY, leaving pits in my skin. Back then, the Drs really were no help, said its nothing. So I just lived with them best I could. Finally at 14, the last one healed, and it never came back until age 25. I just woke up and had 6 on my leg. Around that time, I also had to get a TB skin test for work, thought nothing of it until it came back postive. This is what led the Drs in the right direction and within 2 weeks I had a diagnosis of Mycobacteria fortuitum. I took oral antibiotics which did nothing for the sores, had them surgically excised. Once the stitches were removed from the excisions, Id get a few more lesions to deal with. Tried a combo of oral antibiotics, no results. I had better luck just having them cut out of me as needed. Its very disfiguring though. I have not tried the IV meds, but may have to this go around. Now at age 37, I see that I have a couple small ones on my calf again. I am certain that its coming back. I have heard that you will always have it, just have to deal with itas its active. It goes Dormant then becomes active differnet times in your life, but it is never cured.. The IV meds will maybe make the sores heal, once your'e off the meds, it can return only to re do the meds again nand or have them cut out. after about 4 years of being active, it should go dormant for 8-12 years, It will return again. It sucks. All my young woman years I spent self concious of all the scars, pits, and sores on my legs. In my circle of people, I was the only one who had this. For me, the active times lasted 4 years or so, then in active about 9 years, then active again..
Jill

Crystal, MI

#12 Feb 10, 2007
Thank you Ann, very informative info, much more than I have even gotten from the specialists. I recently had a rash appear on my lower leg but the specialist said it was a dermatitis and not anything to do with MF but I still wonder, the medicine did take care of the rash AFTER almost 2 months. I am just beginning to go off 3 strong antibiotics that I have been on since July 06, Cipro, Biaxin and Doxcylcine. IF this horrible rash should come back on the abdomen with the seeping sores I will chose to go IV 2 times a day for 4-6 weeks. All the pills are strong and really bothered my stomach. I have been scarred on the abdomen area and it is a reminder everyday what has happened to me, I know I got it at the hospital, trying to prove it is a very tough thing. Thanks again for all the info.
Ann

Owasso, OK

#13 Mar 2, 2007
I went to my dermatologist for something different, and he remembered me from 10 years ago, he said " you had the atypical mycobacteria fortuitum " I asked if it comes and goes, and he said " if its in the skin, yes it will come and go all your life" He also said rarely, it can go to your lungs but that is unusual.
Ann

Owasso, OK

#14 Mar 2, 2007
Karen wrote:
<quoted text>
Lea, my daughter and I both have the infection and believe it is from a nail salon in chesapeake. We know of 2 possible other cases. I have scars on my legs and my daughter 9 months later is still having a break out.
Mycobacteria fortuitum is a disfiguring, annoying disease. It rarely affects other organs, but I read in rare instances it can. I had no luck with oral meds. Better just to have them surgically excised if they are big,( nickel -quarter size ) If smaller, they can sometimes be drained and that helps some. Some days they look almost navy bluish/ purple, other times they are red. They are Horrid !! If you leave them alone, they will heal in about 1 1/2 years leaving a pit in your skin. Eventually they will stop, the disease goes dormant, but in 10 years or so it will return. You just have to deal with each sore as it comes. I have mainly had them on my legs. I would love to hear others experiences, I'll keep checking back.
Becki

Peoria, AZ

#15 Mar 10, 2007
I'm just realizing that the sore I have on my upper calf is mycobacteria fortuitum. I only have one that is about half an inch in diameter, and I think I got it from pedicures, which I have enjoyed as recently as yesterday. No more pedicures for me! I've had it for about a year, and since there's only one and it doesn't really bother me, I haven't been concerned. The doctor said maybe it was a mosquito bite that got infected. Like Ann says, it changes in appearance--sometimes looking purplish, sometimes puffy like a fever blister, and other times like an infected mosquito bite. I've even cut it when shaving a couple of times. From what people above say, I think I'll just leave it alone. Maybe it will go away.
Michelle

New Orleans, LA

#16 Mar 13, 2007
I have been fighting this bacteria since May 15, 2006 after having a hysterectomy and abdominalplasty. I have had two abdominoplasty's to remove infection and was cut in the stomach area next to my belly button to relieve swelling and allow to drain. One stay in hospital was for 9 days due to blood clot that broke loose and went into my heart and lung from surgeries. I was told I am the only case of mycobaterium fortuitum in the abdominal area. Anyone else out there? I have had home health and P.I.C.C. lines for months and oral antibiotics along with 10 other meds since May 06 till current time.
Michelle

New Orleans, LA

#17 Mar 13, 2007
Jill wrote:
I had an abdominalplasty in Nov. 2005 and after 10 months am still fighting a positive myobacterium fortuitum infection. Numerous surgeries and procedures, multiple antibiotics. I was fine until after my surgery and came home with a rash which led to skin like ulcers and seeping , it has gotten worse from that time on. I am positive I got it during the procedure in the hospital. Am continuing to see surgeon and infection disease specialist. Any thoughts as to if I need a lawyer?
Jill, I have a lawyer and he is trying to see if it is possible the bacteria came from the sutures or betadine used in my surgery maybe we need to talk since our surgeries were only 6 months apart.
Ann

Owasso, OK

#18 Mar 27, 2007
I always felt like I was the only person in my town who had this disease ! My regular doc really didn't know anything about it. It was only because I had a routine TB skin test for work, that was positive, that led the docs in the right direction. I went to an infectious disease doc for more info. He wasnt on my insurance, so I had to pay in full for my visit. I couldnt let him treat me, but got info from him. He was rather arrogant, didnt care much for him. He assured me that there were others in his practice with it, and that you never get rid of it, goes dormant.. comes and goes all your life. It is a bacteria thats like a cousin to TB. Others cannot catch it from you, but you catch it from the environment.. its in many places. Even if your immune system is in check, you CAN get it.. doesnt mean we have aids. But in Aids patients, they can have it spread to the lungs, eyes, other organs, and it can be fatal.. maybe ( in aids patients, or others with compromised immune systems ) In healthy people, we get it in our skin.. and thats what Id like more info on , why is that? Theres got to be something about my immune system that makes me suceptible to it. I am healthy, but possibly something not right in my immune system, something I am unaware of maybe ? The doc recommends surgically removing them AND I.V medicines.. what a hassle. Im glad I found this site. As I learn more, I will post more . Ann
Ann

Owasso, OK

#19 Apr 1, 2007
Becki wrote:
I'm just realizing that the sore I have on my upper calf is mycobacteria fortuitum. I only have one that is about half an inch in diameter, and I think I got it from pedicures, which I have enjoyed as recently as yesterday. No more pedicures for me! I've had it for about a year, and since there's only one and it doesn't really bother me, I haven't been concerned. The doctor said maybe it was a mosquito bite that got infected. Like Ann says, it changes in appearance--sometimes looking purplish, sometimes puffy like a fever blister, and other times like an infected mosquito bite. I've even cut it when shaving a couple of times. From what people above say, I think I'll just leave it alone. Maybe it will go away.
Becki, you should go to your Dr. and have him numb the area and take a sample, if it can be drained at all, or a " skin plug " sample of the sore itself. Tell him to have it cultured for mycobacteria. It will take a couple weeks. They can run drug sensetivity tests, and hopefully find a good medicine. If it is Mycobacteruia, you should have it cut out, or drained ( will make it smaller ) and take medicine as well. If it is mycobacteria, your doc may refer you to an infectious disease Dr. I find that the regular Drs know very little on this.
Michelle Louisiana

New Orleans, LA

#20 Apr 18, 2007
I am off my antibiotics 6 weeks and I am sick again. Will see the doctor today. My stomach has being to swell and is very painful. I guess Ann is right, I will have to fight this the rest of my life.

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