Is Lyme Disease Really Chronic?

Full story: Fox4KC

As they always do in the spring, ticks are hiding in the lush greenery. But a disease spread by the blood-sucking insects has reignited a controversy in the medical community.

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Lee Ann Davis

Olathe, KS

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#1
Apr 28, 2010
 

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You need to watch the documentary Under Our Skin and show both
sides of this controversy. Hopefully you, Dr. McKenzie, or his panel won't ever get Chronic Lyme or you will know its affects.
It IS real and it will change your life forever.
Peninah

Lawrence, KS

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#2
Apr 28, 2010
 

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What is Chronic Lyme Disease? It is a persistent bacterial infection caused by the bacteria, borrelia burgdorferi. It is a spiral shaped bacteria much like syphilis, a sexually transmitted disease. "The best science" is being suppressed and ignored. Just listen to the June 30, 2009 IDSA hearings and listen to the International Lyme and Associated Diseases Society's physicians give testimony of new research and proof that long term antibiotics are effective in treating Lyme disease (which normally persists past 30 days). The doctors saying that Lyme bacteria does not persist is a myth; it is against science, and common sense. The standards of care in infectious diseases are not being applied in this disease because of political reasons. The result is an unchecked epidemic, even in Kansas. Why is a bacterial infection that results in complete disability and death, but is highly treatable with antibiotics,(when treated long enough)being ignored and denied? Why are Americans denied antibiotics for this bacterial infection? The only thing that makes any sense is that there are too many people sick in this nation and no one wants to pay the cost of getting them well. That's it. Why are doctors who treat lyme disease in Kansas past 30 days with an antibiotic being threatened with losing their medical license, fines, and losing their business? We need a physicians protection act in our state!

The people have to fight for their care. It is so sad to see children lose their ability to learn, walk, talk, go blind and deaf, have psychiatric illness, all because no one will give them an antibiotic long enough to kill the bacteria. How very sad, indeed.

Peninah

Watch the award winning movie, http://www.underourskin.com
Read science writer, Pamela Weintraub at http://www.cureunknown.com
Ask your doctors to gain education at http://www.ILADS.org
Learn about new tests at http://www.gingersavely.com
Stay on top of news at http://www.publichealthalert.org and http://www.lymeproject.com
REVIEW the two page symptom list! www.ILADS.org

Local support/education:
http://www.lymefight.org
http://www.kansaslymefighters.com

Dr Robert Bransfield

Lawrence, KS

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#3
Apr 28, 2010
 
(Bethesda, Md)—Despite years of controversy, an antitrust lawsuit by the Connecticut Attorney General, and nine months of review, the Infectious Diseases Society of America (IDSA) double downed on its own controversial Lyme disease treatment guidelines with a status quo decision critics call “ highly suspect”.
“It’s a sad day for the health care system and for everyone who suffers from the Lyme disease epidemic,” says Dr. Robert Bransfield, President of the International Lyme and Associated Diseases Society (ILADS).“The IDSA’s flawed positions means patients will continue to suffer with incorrect diagnosis and improper treatment.” Treatment guidelines are crucial when it comes to healthcare because they may dictate whether patients can get diagnosed and treated for illnesses and whether or not insurance companies will pay for it.
Connecticut Attorney General Richard Blumenthal launched an investigation against the IDSA citing evidence that the authors of 2006 Lyme disease guidelines had undisclosed conflicts of interest that may have influenced their conclusions. He also charged that they failed to consider differing medical opinions. This landmark event represented the first ever lawsuit against a professional medical society for guidelines abuse.
The much anticipated verdict just released by a special review panel effectively rubber stamped the association’s earlier, contested guidelines. It limits treatment to three to four weeks of antibiotics. Physicians, Lyme patients and advocacy groups weren’t surprised but are dismayed that the panel decided to turn its back on the science - backed by 1300 pages of peer-reviewed articles, that proves Lyme disease can become chronic, debilitating and can be missed due to unreliable testing (as acknowledged by the CDC and FDA). Hundreds of thousands of patients and their families suffer from chronic Lyme disease.“By and large, the people on the IDSA panel who made this decision are ivory tower researchers”, says Bransfield.“They’re not the doctors on the front lines looking into the eyes and faces of these very sick patients, performing exams and then assuming long term responsibility for dealing with patients suffering from chronic Lyme.
Bransfield and ILADS point to a number of discrepancies and other concerns about the vote, including:
• 68 out of 69 of the original 2006 recommendation under review were OK’d with unanimous votes.“How can there be such a total consensus with any scientific issue?” asked Bransfield.“It’s highly suspect and beyond comprehension.”• If Lyme cannot be chronic, then why did the guideline’s authors acquire 200 Lyme disease patents and receive $76 million in Federal funds to study it?• The original guidelines are not only controversial, but written in 2006, are considered old and out of date.• The CDC has also advised for many years that the disease should be diagnosed on clinical grounds and not by unreliable laboratory tests. The Lyme disease tests are inaccurate 50% of the time.• The IDSA’s decision reinforces that doctors have little control when it comes to treating diseases such as Lyme. Researchers and insurance companies remain in the driver’s seat of diagnosis and treatment. Lyme disease has reached epidemic levels across the United States. While the CDC reports 30,000 new cases a year, it recognizes that number could be as high as 300,000, making it a larger epidemic than AIDS.
Dr. Bransfield says ensuring the integrity of guideline development processes as they were intended to be used is critical to quality health care in the United States.“Conflicts of interest on guidelines panels are now a crisis,” Bransfield says,“It is time for Americans to realize how important the issue of guideline development is. Patient lives are at stake and no one is being held accountable when guidelines abuse place financial interests above patient care.”
http://www.ilads.org
Dr Robert Bransfield

Lawrence, KS

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#5
Apr 28, 2010
 
(Bethesda, Md)—Despite years of controversy, an antitrust lawsuit by the Connecticut Attorney General, and nine months of review, the Infectious Diseases Society of America (IDSA) double downed on its own controversial Lyme disease treatment guidelines with a status quo decision critics call “ highly suspect”.
“It’s a sad day for the health care system and for everyone who suffers from the Lyme disease epidemic,” says Dr. Robert Bransfield, President of the International Lyme and Associated Diseases Society (ILADS).“The IDSA’s flawed positions means patients will continue to suffer with incorrect diagnosis and improper treatment.” Treatment guidelines are crucial when it comes to healthcare because they may dictate whether patients can get diagnosed and treated for illnesses and whether or not insurance companies will pay for it.
Connecticut Attorney General Richard Blumenthal launched an investigation against the IDSA citing evidence that the authors of 2006 Lyme disease guidelines had undisclosed conflicts of interest that may have influenced their conclusions. He also charged that they failed to consider differing medical opinions. This landmark event represented the first ever lawsuit against a professional medical society for guidelines abuse.
The much anticipated verdict just released by a special review panel effectively rubber stamped the association’s earlier, contested guidelines. It limits treatment to three to four weeks of antibiotics. Physicians, Lyme patients and advocacy groups weren’t surprised but are dismayed that the panel decided to turn its back on the science - backed by 1300 pages of peer-reviewed articles, that proves Lyme disease can become chronic, debilitating and can be missed due to unreliable testing (as acknowledged by the CDC and FDA). Hundreds of thousands of patients and their families suffer from chronic Lyme disease.“By and large, the people on the IDSA panel who made this decision are ivory tower researchers”, says Bransfield.“They’re not the doctors on the front lines looking into the eyes and faces of these very sick patients, performing exams and then assuming long term responsibility for dealing with patients suffering from chronic Lyme.
Bransfield and ILADS point to a number of discrepancies and other concerns about the vote, including:
• 68 out of 69 of the original 2006 recommendation under review were OK’d with unanimous votes.“How can there be such a total consensus with any scientific issue?” asked Bransfield.“It’s highly suspect and beyond comprehension.”• If Lyme cannot be chronic, then why did the guideline’s authors acquire 200 Lyme disease patents and receive $76 million in Federal funds to study it?• The original guidelines are not only controversial, but written in 2006, are considered old and out of date.• The CDC has also advised for many years that the disease should be diagnosed on clinical grounds and not by unreliable laboratory tests. The Lyme disease tests are inaccurate 50% of the time.• The IDSA’s decision reinforces that doctors have little control when it comes to treating diseases such as Lyme. Researchers and insurance companies remain in the driver’s seat of diagnosis and treatment. Lyme disease has reached epidemic levels across the United States. While the CDC reports 30,000 new cases a year, it recognizes that number could be as high as 300,000, making it a larger epidemic than AIDS.
Dr. Bransfield says ensuring the integrity of guideline development processes as they were intended to be used is critical to quality health care in the United States.“Conflicts of interest on guidelines panels are now a crisis,” Bransfield says,“It is time for Americans to realize how important the issue of guideline development is. Patient lives are at stake and no one is being held accountable when guidelines abuse place financial interests above patient care.”
Jordan Fisher Smith

Lawrence, KS

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#6
Apr 28, 2010
 

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Jordan Fisher Smith, the eloquent park ranger featured in UNDER OUR SKIN and the author of the acclaimed naturalist book “Nature Noir,” has written this open letter to the Infectious Diseases Society of America (IDSA), in response to the society’s decision to make no changes to their controversial 2006 IDSA Lyme Disease guidelines.
To the Infectious Diseases Society of America:

Almost twelve years ago, I was bitten by a tick at work, and contracted Lyme Disease and Babesiosis. Because of the job you’ve done at diminishing the perception of danger about tick-borne disease and pressuring doctors who treat it aggressively out of business, it took a year and a half and a nationwide search to find a doctor who would treat me.

By then I was dreadfully ill, and as a result I lost my job and my 21-year career. In my first year of antibiotic treatment I got worse. I pursued aggressive treatment for another six years, during which time I got steadily, if slowly better. During this time one of my two doctors was forced out of practice as a result of your work. Thanks to my heroic physicians, I am recovered after a nine-year battle with tick-borne disease. And I am now contributing to society, working, and raising my kids.

Your ineffectiveness and the extent of your compromise with the insurance and HMO businesses are noted. You and your work will be forgotten eventually, as we have forgotten the names of the opponents of Copernicus. Shame on you for the suffering you are causing on the way to your eventual obscurity as prideful scientists who called it tragically wrong. The monument to your life’s work is an unchecked epidemic.

—Jordan Fisher Smith, recovered victim of tick-borne disease
Posted by: Kris Newby
Kathryn

Osawatomie, KS

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#7
Apr 28, 2010
 

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I too have chronic lyme disease. I know I have lyme because I was tested and the results were very clear. I think the problem is the doctors and IDSA won't look outside the box. I was misdiagnosed for 9 years and when I asked, a Dr refused to give me a lyme test. Years later I found a Dr who would order the test and I finally got my diagnosis. Had any of the original gammit of doctors I was referred to looked for lyme I would have been diagnosed sooner and would not be in the terrible physical condition that I am in today. I too am still on antibiotics. When you get lyme disease you also get other infections that need to be killed by antibiotics. These other infection that come with lyme are well known enough that they have medical names.There are many like me. Doctors please talk to other doctors and to IDSA and do not blame the doctors that are helping us. I could not function and lost my job. If not for my current doctor and my diagnosis and treatment I would be bedridden.
Ila Utley

Shawnee, KS

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#8
Apr 29, 2010
 

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The special pannel was also formed by the doctors group ISDA. The ISDA signed an Antitrust agreement with the CT Attorney General in 2008 because the AG found the ISDA pannalists had violated their own organizational standards and many of those panalists had monatary conflicts of interest. The ISDA was reported to disregard stand scientific procedures for forming these guidelines.

Lyme is chronic and those of us who have Lyme or family members with Lyme are being eaten alive by this bacteria.

After 30+ years CDC is still only doing survalance on this disease. THAT'S LIKE SAYING CONDITIONS ARE RIGHT FOR A TORNADO BUT NOT SOUNDING THE Warning ALARM AND then NOT TRACKING THE ACTUAL TOUCHDOWNS AND DISTRUCTION.

This bacteria kills by dystroying people from the inside out.
Peggy

Lawrence, KS

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#9
Apr 29, 2010
 

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Lawrence, KS
The cluster of up to 100 bacterial, parasitic, and viral infections that attack a person's body after a tick attachment is real. There is over 80,000 medical journal articles and 35 yrs of proof that the bacteria persist past 30 days in the body.
The fact that the govt agencies like the IDSA, CDC, FDA, and NIH are denying the existence of persistent infection in the face of overwhelming evidence to the contrary is criminal injustice to those who suffer and die.
It is evident that refusing to give medicine like long term antibiotics to those in need, with money to pay, reflects an agenda that is outside of medicine, and outside of the normal standards of care. It is medical mutiny for a hidden purpose. Hidden from the public.
Lyme disease patients are being treated as outcasts in society and the medical community, much like lepers. Yet, if we received the treatment provided to people with the bacterial infection of leprosy, for 1-5 years, we would be well. Treatment with long term antibiotics is not new or unusual. It is common for many, many infections. Even HIV patients can have open-ended prescriptions for antibiotics. HIV patients die quickly when infected and not treated. Lyme patients wish they could die rather than suffer unrelenting pain and tortuous symptoms that destroy the brain, thyroid gland, hormonal system, heart, and every body organ and system. For most, except some children and adults, we die slowly, but we do die from this disease. People think it is frightening when I tell the truth, but believe me, the lie that everything is going to be okay is much worse. It is worse to have people in medicine pat you on the back, while your body is failing, and say, "There is nothing wrong with you." The saddest part of all, is that Lyme disease is treatable. People don't have to die if they receive proper medical treatment.
On a happier note, it is a beautiful and wonderful experience to see young children and teenagers able to get out of bed, stop hurting, be able to pay attention and learn again, to walk, talk, and experince life again. Being bedridden as a teenager is completely devastating. And why??? Why would any doctor look at his/her patient straight in the eye, knowing they could get well with an antibiotic, and let them walk out of their office to certain disability and death? How can communities stand by and watch doctors become terrified of treating a bacterial infection because they are afraid to lose their business and all that they have worked so hard for in life? Why is the govt ruling unjustly and oppressing people, and sick people?
If individuals and communities are unwilling to stand up for the patients of Lyme disease in this country NOW, they will find themselves in the same position later being denied antibiotics for a simple strep infection that can take their life in days. Why? Because the govt will forbid the production of antibiotics all together. So, when you think about the 1918 H1N1 flu, remember, they didn’t have penicillin, and the loss of life was enormous.
I hope that there will be a grassroots movement throughout the US as communities cry out against this horrific injustice and stop this disease that is killing millions upon millions of people. Some States have 75% of the population infected. Yes, there is Lyme in Kansas, even if there are Infectious Disease Doctors that have never been out in the park, or walked in a field, and state, "there are no ticks in Kansas." Even if there are no deer, there are mice and rodents in the plains of Kansas. This infection is real, it disables, and it kills. It is here. It is being misdiagnosed as up to 300 different diseases. Find out about it! Find an advocate and get your immune system checked today!
Take action now!
STOP THE PAIN!
Jim

Kansas City, MO

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#10
Apr 29, 2010
 

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what a pathetic one sided news cast. any amount of research would lead one to become aware that hundreds of thousands of people suffer from lyme disease. please stick to school pep rallies and how to make holiday casserole reports, they will suit your research and preparation skills better.
Olathe Mom with Lyme

Olathe, KS

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#11
Apr 30, 2010
 

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The way Fox 4 presented this story about Lyme is an outrage and very poor journalism! I mean no disrespect to Dr. David McKinsey and I highly respect that he is an infectious disease doctor, but why does Fox choose to interview a doctor who has not specialized in Lyme disease? Why not at least interview a Lyme specialist too? Can't the public hear both sides of the story? Why not share some studies showing the contrary as well? To Dr. Mckinsey, though I do not want my name publicized forever on the internet, I would love to meet you and share my case with you. I sincerely hope you never find yourself in my shoes, it would change your mind.
To those that believe in only four weeks of treatment please consider my story. I was diagnosed with Lyme disease in 2006 after two years of tremendous suffering and physicians unable to explain my symptoms or diagnose me correctly. When I was finally diagnosed by a well respected infectious disease doctor who SPECIALIZES in LYME, my left foot was numb, and I had so much "brain fog" that I often could not remember to pick my daughter up from kindergarten even after my husband called ten minutes before pick up time. Keep in mind that prior to my illness I have always been considered an intelligent person and I adore my daughter. I lost 40 pounds because I was too tired to eat. All I could do was read in bed. I had constant muscle fasciculations. I had to get daily massage to help with the stiffness in my back. I took NSAIDS around the clock.I endured this and much more for two+ years.
When I was finally diagnosed and started treatment, I immediately inproved but it took three months of treatment before I could feel my left foot again. After one year of treatment, I was able to function well enough to go back to school part time. This was a miracle to those that knew me. After two years of treatment, I was able to enter nursing school and graduated cum laude. I went from sleeping all the time to being able to be a 0645 clinicals. My symptoms improved greatly, but I still need treatment. I am terrified to go back to where I was.
I have lived in Kansas all my life and I am not sure where or when I picked up Lyme disease. But, keep in mind, ANYONE could be afflicted with this. If this was YOU, you would want long term treatment. Anyone who knew me before I was treated and knows me now believes in long term treatment.
I am 100% sure that the antibiotics, though expensive, saves my insurance company and society thousands of dollars in my case and countless others. Before I was correctly treated and diagnosed, I racked up tens of thousands in expenses with 3 neurologists, 3 rheumatologists. EEGs, EMGs, spinal taps, multiple MRIs, and ER visits. I fully believe that at the rate I was going I very well may have needed full time nursing care and been completely disabled, unable to work or care for my children. Think of the cost of that to society! Think of the cost to my children! I am talking about society needing to help me for the rest of my life, and I was only 33 when diagnosed.
I think doctors need to be allowed to use their clinical judgement and not be ruled and bound by what is supposedly "standard treatment guidelines." I don't want my insurance company to dictate my treatment. Let doctors practice the art of medicine. It is an art, it cannot always be standardized with insurance companies crawling down doctors or patients necks to confiscate treatments that help them to live. We have to allow doctors to determine what is working for their individual patients.
I have seen two lyme disease specialists locally and I feel I owe them my life. They brought me from so much pain that I could hardly handle it, unable to work, unable to care for my family, to working as nurse and volunteering in my childrens school.
The treatment guidelines that some groups and Dr. Mckinsey are pushing would have left me in a wheelchair. To those who are advocating this, think about the fact that at any t
Olathe Mom with Lyme

Olathe, KS

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#12
Apr 30, 2010
 
The way Fox 4 presented this story about Lyme is an outrage! I mean no disrespect to Dr. David McKinsey and I highly respect that he is an infectious disease doctor, but why does Fox choose to interview a doctor who has not specialized in Lyme disease? Why not at least interview a Lyme specialist too? Can't the public hear both sides of the story? Why not share some studies showing the contrary as well? We have a worldwide respected infectious disease physician who specializes in Lyme locally. To Dr. Mckinsey, I would love to meet you and share my case with you. I sincerely hope you never find yourself in my shoes, it would change your mind.
To those that believe in only four weeks of treatment please consider my story. I was diagnosed with Lyme disease in 2006 after two years of tremendous suffering and physicians unable to explain my symptoms or diagnose me correctly. When I was finally diagnosed by a well respected infectious disease doctor who SPECIALIZES in LYME, my left foot was numb, and I had so much "brain fog" that I often could not remember to pick my daughter up from kindergarten even after my husband called ten minutes before pick up time. Keep in mind that prior to my illness I have always been considered an intelligent person and I adore my daughter. I lost 40 pounds because I was too tired to eat. All I could do was read in bed. I had constant muscle fasciculations. I had to get daily massage to help with the stiffness in my back. I took NSAIDS around the clock.I endured this and much more for two+ years.
When I was finally diagnosed and started treatment, I immediately inproved but it took three months of treatment before I could feel my left foot again. After one year of treatment, I was able to function well enough to go back to school part time. This was a miracle to those that knew me. After two years of treatment, I was able to enter nursing school and graduated cum laude. I went from sleeping all the time to being able to be a 0645 clinicals. My symptoms improved greatly, but I still need treatment. I am terrified to go back to where I was.
I have lived in Kansas all my life and I am not sure where or when I picked up Lyme disease. But, keep in mind, ANYONE could be afflicted with this. If this was YOU, you would want long term treatment. Anyone who knew me before I was treated and knows me now believes in long term treatment.
I am 100% sure that the antibiotics, though expensive, saves my insurance company and society thousands of dollars in my case and countless others. Before I was correctly treated and diagnosed, I racked up tens of thousands in expenses with 3 neurologists, 3 rheumatologists. EEGs, EMGs, spinal taps, multiple MRIs, and ER visits. I fully believe that at the rate I was going I very well may have needed full time nursing care and been completely disabled, unable to work or care for my children. Think of the cost of that to society! Think of the cost to my children! I am talking about society needing to help me for the rest of my life, and I was only 33 when diagnosed.
I think doctors need to be allowed to use their clinical judgement and not be ruled and bound by what is supposedly "standard treatment guidelines." I don't want my insurance company to dictate my treatment. Let doctors practice the art of medicine. It is an art, it cannot always be standardized with insurance companies crawling down doctors or patients necks to confiscate treatments that help them to live. We have to allow doctors to determine what is working for their individual patients.
I have seen two lyme disease specialists locally and I feel I owe them my life. They brought me from so much pain that I could hardly handle it, unable to work, unable to care for my family, to working as nurse and volunteering in my childrens school. The treatment guidelines that some groups and Dr. Mckinsey are pushing would have left me in a wheelchair.
christy

Ottawa, KS

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#13
Apr 30, 2010
 

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IM TOO ANGRY FOR WORDS RIGHT NOW. I'll try to reply when i calm down and lyme isn't effecting my communications skills.
Nancy Kupzyk

Mission, KS

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#14
Apr 30, 2010
 

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As someone who was first diagonised with Lyme disease in 1995 and has lived with the cronic form for the last 6 years I am saddened by the lack of understanding for this devistating disease. The people who do not believe in the cronic form of the disease certianly have not lived with it or watched a family member suffer. One of the worst aspects of the disease is the lack of belief from the medical community. Not only do you have to fight for your health but you also have to fight for the treatments that can help you be whole again. The only reason the powers that be in Washington insist on making this disease so politicaly incorrect would be for financial reasons. It seems to me that helping people overcome this disease so they can become functioning supportive members of society would be in everyones best interest. If the media continues to support the political side with out doing a full investigation of the facts than they are continuing to add to the mistreatment of people like me who just want to be healty.
Dottied in Texas

Keller, TX

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#15
May 1, 2010
 

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I have not even looked at the story as I am afraid it would bring up negativity and I need positivity. My story began in August 2008 when I woke up to what I thought was a bladder infection and fever. Prior to this day I was a energetic mom with two boys - at the gym 5 days a week always outside with them. Everyday brought a new sympton. Ear pain, crushing fatigue, migraine headaches, numbing in my feet, pain in my feet, knee pain, motion sickness and the list goes on. I was tested for lyme and came back with one band positive on IGM; thus negative CDC standards in September 2008.

In November 2008 I was tested Igenex positive of lyme disease and babesia. Treatment began. This is after thousands of dollars was spent from specialist to specialist - Tested for Lupus, MS, Rhemotoid Athritis, cancer of the blood, brain tumor and on and on. Northing. Then November 2009 after 1 year on antibiotics I get a phone call from my country health department calling me to talk to me about my CDC positive Western Blot. It took 1 year to drive the bacteria out to start showing positive on the insenstive western blot.

This is UNACCEPABLE IN AMERICA. What if I had listened to that first doctor and not been an advocate in my own health - THIS IS NOT ACCEPATBLE IN AMERICA. Dr. Wormser IDSa says these people are suffering from everyday aches and pains. I assure youd these are not everyday aches in pains. Its like having the flu. This is not standard. This disease is not going away. I believe th truth will prevail and as Dr. Jamsek once said it will be a matter of what you knew and when you knew it.
Jacqueline

United States

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#16
May 1, 2010
 

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It is shameful that the multitude of opposing Doctors were not interveiwed regarding chronic Lyme and the incredible amount of studies supporting chronic lyme were not cited .Including the International guidelines regarding Lyme.
Heidi

Ellensburg, WA

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#17
May 4, 2010
 

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What Olathe Mom said about saving her and many others insurance company a lot of money by being treated with long term antibiotics is so true!!
Sooo what is the real reason Lyme disease and all us poor souls are being ignored??
What is the answer to that??
Christina

Kansas City, MO

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#18
May 4, 2010
 

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I am very disappointed in the quality of this story. The reporter did not cover both sides of the story. I thought good journalism covered both sides of the story and allowed the readers/viewers to use their own critical thinking to determine what they believe. Why not interview TWO dr's who have opposing views? Instead, you chose to interview a patient pitted against the white coat, a symbol of knowledge and power.
Shame on Fox4 for presenting biased information that will dissuade people from getting treatment that could save their lives.
Dr Curtis R Kuhn

Pratt, KS

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#19
Oct 4, 2010
 
In 1985 I began metabolic therapy to combat liver cancer, diabetes, polycythemia and related metabolic disorders. Then, in the summer of 1990, I contracted Lyme Disease. Have kept it in check while living in Las Vegas Desert, but moved back to Kansas this year. The summer humidity was.......TERRIBLE, but kept it in check with detox and correct metabolic supplements. Now that fall is here, I feel great again.
Sincerely,
Curtis R. Kuhn
C.M.T.- E.L.A.
A.A., B.S., M.S., Ph.D.
An Upset Lyme Victim

Round Hill, VA

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#20
Oct 14, 2010
 
I am a 14 year old girl, and I can tell you that chronic Lyme disease is REAL. How, if I can tell you that, can't the "doctors"? They only way I got better was a year of high dosage oral antibiotics and a month of IV treatment (and I'm lucky that month was enough- I know it's usually not, even though that's all the insurance companies will cover) which finally allowed me to function properly again. This is so wrong and it makes me sick to think of all the misinformation people are getting, when they could be getting better.
Something Smells in Denm

Franklin Square, NY

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#21
Oct 24, 2010
 
I think there is a larger picture to all of this.
Unless the IDSA have lost their marbles there is more to this than meets the eye.
The statement by Dr. David Mckinsey raises an eyebrow.
"The Chronic form of lyme is not supported by the best scientific evidence" The key there is BEST, he obviously thought about that. He did not say there is no evidence. Then he goes on to say
"Its hard to understand why this belief persists"
This implies that this Dr. has really tried and tried to understand why so many people and Drs. have this religious like belief that their is a chronic form of lyme. He is not dumb enough to know that the IDSA likes to call this "Post lyme syndrome" He makes no mention of this. This syndrome is used as a tool to say its not active bacteria. They (IDSA) do not even attempt to say what it could be. Even if you were to find the live bacteria they would say that it is living in harmony with the body and is not the reason for the symptoms.
He is either a moron or something else.
Who is this Dr? Is he just a Dr. that blindly believes everything he is told? Does he have any thoughts of his own? Is he a lemming for someone else?
Someone with some guts name me the players in this shell game. This Dr. maybe just a pawn, I don't care about pawns but the people that have incentive to spread this dribble, those are the people I want the names of. Its not as many as you may think.
Anyone care to offer this information up? I do not care about the pawns, just the key players.
I know this makes many of you angry but do not get lost in the noise of this Dr. Moron McKinsey remarks. If you want this to change I think a different approach is needed. Something is slowing the science, the real science. This is nothing more than a front.
When you hit the source it will fall like a house of cards.
I would like the names.

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