been there and done that

Beckley, WV

#21 Dec 24, 2010
they are going to tax the income, and when you claim milage, you pay taxes at the gas station, when you fill out your taxes, your milage is in on your income, so you are paying taxes twice for the milage once at the pump and then when its tax time you have to pay it again.
been there and done that

Beckley, WV

#22 Dec 26, 2010
they are going to take out taxes. when you claim milage you pay taxes at the gas pump, when you get your yearly income and fill out your taxes you will notice they added the milage in with your income so you pay taxes on the milage income and you pay it at the gas pump to. you really have to pay taxes twice.
swampie dawg

Danville, WV

#23 Jan 10, 2011
just me wrote:
I just found out that now we are considered employees and have to do even more training that only employees had to do in the past. I have to take a blood pathagens class. How is this going to help me. I dont recieve respite care so I have to take my son who is on a ventalator out in the cold. Also we now have to turn our income on our taxes.
There will be a meeting about all of the changes with WAIVER held at the REM OPTIONS office January 13,2010 @ 1pm. The office is located in St. Albans, Wv. APS will be there to dish out the bad news to all of us who bust our asses everyday- and get paid less than minimum wage!!!!!
Tina

Cameron, WV

#24 Feb 23, 2011
In 2009 the agency I go through for the Waiver Program decided to "err on the side of caution" and issued 1099s when they found out that natural parents of a special needs child didn't fall under Difficulty of Care. I took my paperwork to my accountant who advised me that this is not taxable income. I also called the IRS....which was a joke. I spoke to several different people and no one had the same answer when I asked if this is considered taxable income or not. One man told me that I had to file it as babysitting, another as "other" income, and the last person I spoke to told me that these 1099s were done erroneously.
What no one seems to be addressing is the fact that yes, it does not fall under Difficulty of Care, but that does not make it taxable income.
(1)Every written correspondence I have received from the agency I go through calls it a reimbursement.
(2)This is a federally funded program through Medicaid and we have to sign a paper every year for them to be able to bill Medicaid for the TOC's, caseworks,etc., and the money we receive for doing programs with our children.
(3)There are stipulations and requirements for even being on this program. The diagnosis or diagnoses, the child's income, how many hours a day we can do these programs...the list goes on.

Keep in mind...if your agency files this on a 1099 then the IRS automatically views it as taxable income. They have no idea what this money is for or where it comes from.
I'm making copies of all of my paperwork and taking it to my nearest IRS. I would suggest all of you to do the same. Maybe if enough people do so, they will look into this and get it straightened out.
Kari

Saint Albans, WV

#25 Feb 25, 2011
I want all parent to please start calling your goverment officals to get this law changed or a lot of people are going to suffer. I could understand if the program was out of funds and no longer able to help but this is not the case the case is parents can not bill for their childrens services. So I have to hire a nurse to come in and care for my children so I can go to work by the way I am a nurse. I am unable to even find repite providers that can care for my children so I just wonder how long it will take me to find a full time staff to care for them.

Guardianship - H.B. 2885 Talking points
Posted: February 4, 2011
A very important issue that should be of concern to anyone who relies on MR/DD Title XIX Waiver Home and Community Based services has arisen in recent months. WV has a law that does not allow guardians to derive profit or benefit from serving the person for whom they are guardian. This has become a problem for family members, particularly parents, who are guardians living in the same household as the person on MR/DD Waiver and provide Community Res-Hab services. In order to continue to be allowed to provide those services the law must be changed. About one third of families receiving Waiver services are affected. If the law is not changed they will no longer be able to do this and the consumer using the services will probably not be able to obtain enough additional agency service hours to replace what the family member has been providing, especially in very rural areas. We strongly recommend that you contact your legislators to discuss your concerns. The Developmental Disabilities Council has provided the talking points below for you to use to help you talk with your legislators.
The issue:
Since the beginning of the MR/DD Waiver program in WV, family members have been able to be the provider of Residential Habilitation services to their family member receiving MR/DD Waiver services. Agencies have typically not been able to hire other staff in most areas of the state to meet the need. This was not a problem when agencies contracted with family members to be the service provider. However, agencies have now determined that the Department of Labor regulations prohibit them from contracting for services and are in the process of making family members employees of the agency, rather than contractors.
The guardianship statute, as written, prohibits guardians/conservators being paid to provide services to the individual for whom they are the guardian/conservator.
Approximately 4,482 people are currently served by the MR/DD Waiver program
Of those, at least 1,375 families will be affected by the Guardianship issue because they are a guardian/conservator of the individual for whom they have been providing service
Agencies have always had trouble hiring enough direct care staff to serve Waiver recipients, and do not have enough staff to fill the need that will exist if the language in the statute is not changed
H.B. 2885 would make two exceptions to this prohibition: When a family member seeks to be appointed guardian/conservator they could make written disclosure of the employment arrangement to the court and get the courtís approval; or
If the family member has already been appointed guardian/conservator of the Waiver recipient, the court would be made aware of the employment in writing
Parent in WV who cares

Alexandria, VA

#26 Mar 4, 2011
Definitely...these people complaining about us getting paid should walk in our shoes!!! When you have a special needs child your day and entire life is totally different. You can't devote the time to your household, spouse and other children as you would like to do. You research new therapies, augmentative devices, legislation, special need magazines....anything to make your life a little better. Look at a special needs catalog and you will see...educational toys for these children are 4 and 5 times more expensive. Sometimes you go through way more shoes due to the wear a standing frame can do only wishing it was because your child was running around wearing them out. Clothes that are torn because of a repetitive behavior not because they fall and skin their knee. You do as much as you can do and still feel guilty that you are not doing enough...life has a totally different perspective when you know that your child will not have the prominent future as it does for his typical peers. We need this money to help us with all the needs that people will never understand that we have. I'm saddened by such repsonses as above but I am thankful you do not have my life....although I would not change my child because I love her with all of my heart and soul. We must stick together to try to not make this happen when it is needed by parents so desparately!!! Keep up the communication special needs parents!!!
waiver changes

Summersville, WV

#27 Mar 13, 2011
Parent in WV who cares wrote:
Definitely...these people complaining about us getting paid should walk in our shoes!!! When you have a special needs child your day and entire life is totally different. You can't devote the time to your household, spouse and other children as you would like to do. You research new therapies, augmentative devices, legislation, special need magazines....anything to make your life a little better. Look at a special needs catalog and you will see...educational toys for these children are 4 and 5 times more expensive. Sometimes you go through way more shoes due to the wear a standing frame can do only wishing it was because your child was running around wearing them out. Clothes that are torn because of a repetitive behavior not because they fall and skin their knee. You do as much as you can do and still feel guilty that you are not doing enough...life has a totally different perspective when you know that your child will not have the prominent future as it does for his typical peers. We need this money to help us with all the needs that people will never understand that we have. I'm saddened by such repsonses as above but I am thankful you do not have my life....although I would not change my child because I love her with all of my heart and soul. We must stick together to try to not make this happen when it is needed by parents so desparately!!! Keep up the communication special needs parents!!!
.... well still does not make it right for the parents to get paid!! its as simple as that. There is only two states that pay the parents, and Wv is one of them. it may cost alot to take care of the Child but that child was born to you for a reason.. most of the items needed to take care of that child are funded through the state and paid for with that medical card. It seems like thats all the parents do is complain and want more money and more hours to get paid for!! there is so many parents that do nothing but Abuse the profram! and lots of the parents dont even use the money for the child, they already get social security,medical card,a check to work with the child,a milage check from the agency, and some get another milage check from dhhr because lots of parents double bill, and bill the agency and the medical card!! which is wrong and if they would quit taking money so freely then their might be money to pay the providers! it was a great profram in the start then it just got abused. but most importantly you can always count that the child will be taken care of cause those hours if they do get taken away which is only 4-6 hrs a day anyhow.. and the agency will and can replance them hrs with there workers then in turn will take a Load of work off the parents who do nothing but complain anyway, even while they are on the program about taken care of them, so consider it a relief for some parents.
parent

Belfry, KY

#28 Mar 24, 2011
nd caregivers
No Pay for your own child

Bluefield, WV

#29 Mar 26, 2011
I do not think parents should be paid to take care of their own children. I know a parent who keeps her child in diapers just so she can be on the waiver program. I have a handicapped son and I pay for all of his care.

Of course you have to "turn our income on our taxes". I pay taxes on my income.
judy

Belfry, KY

#30 May 15, 2011
does any one know why we now have to pay taxes on the waiver now they say if you are a parent,it is not considered difficult of care.
Natasha Jett

United States

#31 May 27, 2011
Waiver Cut Backs wrote:
<quoted text>well i do feel for u and im not saying this to be mean or sound rude, but you have to think about the situation.. YOU are getting PAID to take care of your OWN child for what?, To have a Handicapped disability? No the child did'nt ask for it, nor did u. But what would you have done if they did'nt pay the parent to work with their own child? Would you Abandoned your child? Put him/her in a nursing home Type'' setting? or just gave the child up for adoption? No i dont think that you would. but you make it sound like like its owed to you when infact their is only two states in the US that pay the parents. That is why their is Paid Workers out there that are trained {like the parent} to be that Caretaker, and they get a regular pay with the options of pay raises and taxes held out and etc..but paying the parent is crazy when infact you got to work with your child in realistic daily life in order for that child to remain a daily living routine and its not like your going to ignore a child because ur not getting money. if so that'd be CRAZY!! so what would you do QUIT taking care of ur child if you stop getting a check? and not to mention it's taking money from our State of Wv and causing Cuts on Everyone else that does have or work for the state... you should be thankful about the fact your child is still with you and can wake up everyday, instead of thinking about the Money v/s ur child. but you can always have a worker come into your home to work with ur child to do ur routine that u feel is money worth and let an actual woker get pad to work with ur child who is not going to complain. or you could consider other services in the waiver propram like the Respite,Hab Spec, etc.... aides..
I think what you said is very rude and apparently you do NOT have a special need child.When you are a parent of a special need child you are almost incapable of working!I WOULD MUCH RATHER SEE MONEY BEING SPENT TO HELP SPECIAL NEED FAMILY'S THAN TO BE SPENT ON LAZY ASS PEOPLE WHO ARE CAPABLE OF WORKING AND JUST DON'T TRY!No one is saying that there owed money for having a special need child that child deserves that money and actually if you seen how much special need people go through you would understand it!!!!!!
duh

Summersville, WV

#32 Jun 2, 2011
Natasha Jett wrote:
<quoted text>
I think what you said is very rude and apparently you do NOT have a special need child.When you are a parent of a special need child you are almost incapable of working!I WOULD MUCH RATHER SEE MONEY BEING SPENT TO HELP SPECIAL NEED FAMILY'S THAN TO BE SPENT ON LAZY ASS PEOPLE WHO ARE CAPABLE OF WORKING AND JUST DON'T TRY!No one is saying that there owed money for having a special need child that child deserves that money and actually if you seen how much special need people go through you would understand it!!!!!!
it would be different if the money went to the child and you parents have to show proof, so many of you stay at home and lay around and do nothing but depend on the monthly check, you already get a SSI check for them how much more do you want>?? i believe all of them need to be drug tested as well!
george

Danville, WV

#33 Jun 14, 2011
I agree the Title 19 Waiver program use to be a good thing and now some get services and some that need it don't get nothing. People are being dropped from the waiver program. People don't care about nothing or the kids with special needs. They want them all in a residential program and put in a group home or a four bedroom apartment and kept away from everyone. Plus be mistreated and don't give a darn about. Most of the politician dont even know what the Title 19 Waiver program is and they don't want to know. People who work the program don't care either. They worry about the money and its not coming out of there pockdets.
no fool

Charleston, WV

#34 Jul 16, 2011
parent wrote:
nd caregivers
you have no ideal what you are talking about>
be careful what you ask 4

Andover, MA

#35 Aug 29, 2011
So to speak anyway...be careful what you ask for. One parent complained that they got paid less than a worker,$7.19 to $8.50 per hour...now they will get paid the same as a worker, but that same parent is still not happy because just like that worker, they now will pay taxes, but they will get the same raises when raises are given...which is a lot less than twice a year.

These changes are difficult and I'm not totally in agreement with all of them. Still, there is reality that we are not owed anything by the government. When we begin to rely on the government to take care of us, we are in real trouble.
income

Summersville, WV

#36 Sep 15, 2011
well that is what the childs SSI check is for.. to cover the expenses... its just like taking care of our eldery parents, they get ssi and then we dont get reimbursed a check to take care of them daily for so many hours.. they use their ssi check for their everyday needs and still have it hard, where as the parnts get the ssi check for the child, a milage check, and paid 4-6hrs a day to take care of their own child?? that should not happen.. i dont get paid to take care of my sick mom who gets ssi.. there is no difference.. and then i hear the parents are getting a raise as well for them hrs to take care of there child.. gonna get over 8.00 hr.. bullcrap!
income

Summersville, WV

#37 Sep 15, 2011
george wrote:
I agree the Title 19 Waiver program use to be a good thing and now some get services and some that need it don't get nothing. People are being dropped from the waiver program. People don't care about nothing or the kids with special needs. They want them all in a residential program and put in a group home or a four bedroom apartment and kept away from everyone. Plus be mistreated and don't give a darn about. Most of the politician dont even know what the Title 19 Waiver program is and they don't want to know. People who work the program don't care either. They worry about the money and its not coming out of there pockdets.
IF the state did not pay the parents to take care of their own child then more people who need it could stay on the program, but instead they give the parents a raise and cut people off the program who needs it!!
seriously

Summersville, WV

#38 Sep 15, 2011
Waiver Cut Backs wrote:
<quoted text>well i do feel for u and im not saying this to be mean or sound rude, but you have to think about the situation.. YOU are getting PAID to take care of your OWN child for what?, To have a Handicapped disability? No the child did'nt ask for it, nor did u. But what would you have done if they did'nt pay the parent to work with their own child? Would you Abandoned your child? Put him/her in a nursing home Type'' setting? or just gave the child up for adoption? No i dont think that you would. but you make it sound like like its owed to you when infact their is only two states in the US that pay the parents. That is why their is Paid Workers out there that are trained {like the parent} to be that Caretaker, and they get a regular pay with the options of pay raises and taxes held out and etc..but paying the parent is crazy when infact you got to work with your child in realistic daily life in order for that child to remain a daily living routine and its not like your going to ignore a child because ur not getting money. if so that'd be CRAZY!! so what would you do QUIT taking care of ur child if you stop getting a check? and not to mention it's taking money from our State of Wv and causing Cuts on Everyone else that does have or work for the state... you should be thankful about the fact your child is still with you and can wake up everyday, instead of thinking about the Money v/s ur child. but you can always have a worker come into your home to work with ur child to do ur routine that u feel is money worth and let an actual woker get pad to work with ur child who is not going to complain. or you could consider other services in the waiver propram like the Respite,Hab Spec, etc.... aides..
you say waiver cutbacks.. but seriously... from what I HEAR PARENTS GOT A RAISE like a little over 8 dollars. thats more than minium wage!!!
ha ha

Man, WV

#39 Oct 29, 2011
seriously wrote:
<quoted text>you say waiver cutbacks.. but seriously... from what I HEAR PARENTS GOT A RAISE like a little over 8 dollars. thats more than minium wage!!!
ha ha ha ha, PARENTS did get a raise and its alot more then 8 dollars a hr, just for taking care of our own kid, you think of that, SERIOUSLY i think its great.
Specialized Family Care

Saint Albans, WV

#40 Nov 18, 2011
ha ha wrote:
<quoted text> ha ha ha ha, PARENTS did get a raise and its alot more then 8 dollars a hr, just for taking care of our own kid, you think of that, SERIOUSLY i think its great.
Does ANYONE need anytype of Respite to give yourself a breatk..? I am contracted through agencies to do Respite for your child or adult. please leave a message with email if interested.. thank you so much. Have excellent references and certified and trained and experienced.....

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