Title 19 Waiver Program 4 The Handica...

Title 19 Waiver Program 4 The Handicapped Children and Adults

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Waiver Wondering

United States

#1 Oct 12, 2009
Does anyone on here have a special needs child/adult with disabilites that are in the Title 19 Waiver? If so what do you think of the new changes and about the ones who need it that have been on it for YEARS,and then all of a sudden they get turned down after their yearly Evaluation.??? What about the availabilites that have been taken away from the parent or provider of that Special Needs person.? sad that they wanna take away from the Handicapped that need it,instead of helping more...does anyone else have any views on this Topix? I don't wanna be the only one seeing all the changes.
Questionable

United States

#2 Dec 3, 2009
Well reading through the topics and seen this one, and wondered Is there gonna be changes happening? If so anyone know what kind?
Waiver Wondering wrote:
Does anyone on here have a special needs child/adult with disabilites that are in the Title 19 Waiver? If so what do you think of the new changes and about the ones who need it that have been on it for YEARS,and then all of a sudden they get turned down after their yearly Evaluation.??? What about the availabilites that have been taken away from the parent or provider of that Special Needs person.? sad that they wanna take away from the Handicapped that need it,instead of helping more...does anyone else have any views on this Topix? I don't wanna be the only one seeing all the changes.
WV parents

United States

#3 Dec 8, 2009
Questionable wrote:
Well reading through the topics and seen this one, and wondered Is there gonna be changes happening? If so anyone know what kind?<quoted text>
..well yeah, I had heard the parents are going to eventually stopped gettin paid to take care of the handicapped child, or they will get their hrs cut back and milage for dr.appts only..Dont know how everyone gonna survive with all the cut backs MOST of us PARENTS depend on this income and their check. Maybe we could sign a Petition,? anyone have any ideas? which their were more of a support group in Nicholas co. for parents with children/adults with handicapped disability
still wondering

United States

#4 Dec 11, 2009
I was kinda hoping someone would no somethin on ths as well,so noon heerd anythin yet either??
Waiver Wondering wrote:
Does anyone on here have a special needs child/adult with disabilites that are in the Title 19 Waiver? If so what do you think of the new changes and about the ones who need it that have been on it for YEARS,and then all of a sudden they get turned down after their yearly Evaluation.??? What about the availabilites that have been taken away from the parent or provider of that Special Needs person.? sad that they wanna take away from the Handicapped that need it,instead of helping more...does anyone else have any views on this Topix? I don't wanna be the only one seeing all the changes.
Disgusted Beyond Belief

Lyburn, WV

#5 Dec 23, 2009
My stepdaughter is Mentally Handicapped with the mentality of a 5-6 yr. old was denied after being on the program for years~What do you do?????
Title19

United States

#6 Dec 27, 2009
Disgusted Beyond Belief wrote:
My stepdaughter is Mentally Handicapped with the mentality of a 5-6 yr. old was denied after being on the program for years~What do you do?????
Was your step daughter on program before? if so then How can THEY deny SERVICES now? that don't make sence, and did you get the SERVICES that WERE deserved to her, Like the break that the parents are suppossed to have {RESPITE}, Milage, and Hab Spec.{the Parent doing Goals}?? Cause I did'nt think they could just knock you off the program when it's needed, even if us parents don't get paid, then How can they DENY the other services allowed like that respite and Milage for their dr. appts and to and from places and all, Wonder if their is something we can do as parents to get some of the services out their, afterall We as Natural Parents NEED the Break once in a while, it's challenging...wonder what to do??? anyone have suggestions???
Disgusted Beyond Belief

United States

#7 Dec 27, 2009
My stepdaughter was on program before, we moved out of state, was on the waiver program there, moved back in state, reapplied and was turned down due to changes in the program she was denied :( We did have respite, milage Hab Spec...all that was available, I am still in shock that she was denied! Now the process has to start all over, but I doubt that the outcome will change!
Donna

United States

#8 Jan 8, 2010
Get an attorney and fight it. I did for five years and finally won.
waiver

United States

#9 Jan 9, 2010
Donna wrote:
Get an attorney and fight it. I did for five years and finally won.
gosh I could'nt afford an attorney for five yrs and then by then, heck he or she would either day for the disability, or be too late to get anything at all or even placed somewhere...
Telletubbies

United States

#10 Jan 25, 2010
waiver wrote:
<quoted text>gosh I could'nt afford an attorney for five yrs and then by then, heck he or she would either day for the disability, or be too late to get anything at all or even placed somewhere...
...well I just heard they are making a bunch of NEW changes to the Waiver Program. Possibly even cut Out paying us parents...ff that happens then WOW what a slap in the face that would be frustrating, cause yeah alot of us arent able to work and have to survinve on a fixed income...anyone know know yet,
Parent

Washington, WV

#11 May 25, 2010
Has any one heard any thing specific about the changes to title xix Waiver program?
gshh

Hurricane, WV

#12 Sep 13, 2010
Telletubbies wrote:
<quoted text>...well I just heard they are making a bunch of NEW changes to the Waiver Program. Possibly even cut Out paying us parents...ff that happens then WOW what a slap in the face that would be frustrating, cause yeah alot of us arent able to work and have to survinve on a fixed income...anyone know know yet,
tell me about it!! I got my time cut Alot. Not to mentin my service. is it me or the company or the whole program?? anyone else haveing this as well??
its not right

Beckley, WV

#13 Nov 1, 2010
i have been with the waiver program for 20 years my pay is 7.16 an hour. that is not even min wage, no holiday pay, no vacation pay, no sick time, no insurance, no 4o1k, my son was born with c p. he doesnt walk, sit, i carry him to the bathroom, he depends on me 24-7. and i will always be there for him. my sister takes care of my elderly mother and gets paid 8.50 a hour. my mom walks, sits, feds herself, goes to the bathroom by herself. the waiver program has never paid right, but they make sure that they get paid correctly. the ones who are taking care of the handicap get the less pay, the social workers and the ones who set behind the desk get paid real good. you never get a pay raise. get my check, go to the store, then im broke again. the social worker gets her pay raise twice a year, i have been with them 20 years never got a raise. if you work with the elderly you get raises, holiday pay ect. the government is not right
Waiver Cut Backs

Summersville, WV

#14 Dec 3, 2010
its not right wrote:
i have been with the waiver program for 20 years my pay is 7.16 an hour. that is not even min wage, no holiday pay, no vacation pay, no sick time, no insurance, no 4o1k, my son was born with c p. he doesnt walk, sit, i carry him to the bathroom, he depends on me 24-7. and i will always be there for him. my sister takes care of my elderly mother and gets paid 8.50 a hour. my mom walks, sits, feds herself, goes to the bathroom by herself. the waiver program has never paid right, but they make sure that they get paid correctly. the ones who are taking care of the handicap get the less pay, the social workers and the ones who set behind the desk get paid real good. you never get a pay raise. get my check, go to the store, then im broke again. the social worker gets her pay raise twice a year, i have been with them 20 years never got a raise. if you work with the elderly you get raises, holiday pay ect. the government is not right
well i do feel for u and im not saying this to be mean or sound rude, but you have to think about the situation.. YOU are getting PAID to take care of your OWN child for what?, To have a Handicapped disability? No the child did'nt ask for it, nor did u. But what would you have done if they did'nt pay the parent to work with their own child? Would you Abandoned your child? Put him/her in a nursing home Type'' setting? or just gave the child up for adoption? No i dont think that you would. but you make it sound like like its owed to you when infact their is only two states in the US that pay the parents. That is why their is Paid Workers out there that are trained {like the parent} to be that Caretaker, and they get a regular pay with the options of pay raises and taxes held out and etc..but paying the parent is crazy when infact you got to work with your child in realistic daily life in order for that child to remain a daily living routine and its not like your going to ignore a child because ur not getting money. if so that'd be CRAZY!! so what would you do QUIT taking care of ur child if you stop getting a check? and not to mention it's taking money from our State of Wv and causing Cuts on Everyone else that does have or work for the state... you should be thankful about the fact your child is still with you and can wake up everyday, instead of thinking about the Money v/s ur child. but you can always have a worker come into your home to work with ur child to do ur routine that u feel is money worth and let an actual woker get pad to work with ur child who is not going to complain. or you could consider other services in the waiver propram like the Respite,Hab Spec, etc.... aides..
adult companion

Beckley, WV

#15 Dec 5, 2010
Anyone that says parents should not get paid for taking care of their handicap child is a true idiot. West Virginia pays every fat ass lazy alcoholic and pill head cause they can not work because of their addiction. It is not these parents faults their child is handicap you damn right the state should step up and take care of its true people in need of help!!!
adult companion

Beckley, WV

#16 Dec 5, 2010
Waiver Cut Backs wrote:
<quoted text>well i do feel for u and im not saying this to be mean or sound rude, but you have to think about the situation.. YOU are getting PAID to take care of your OWN child for what?, To have a Handicapped disability? No the child did'nt ask for it, nor did u. But what would you have done if they did'nt pay the parent to work with their own child? Would you Abandoned your child? Put him/her in a nursing home Type'' setting? or just gave the child up for adoption? No i dont think that you would. but you make it sound like like its owed to you when infact their is only two states in the US that pay the parents. That is why their is Paid Workers out there that are trained {like the parent} to be that Caretaker, and they get a regular pay with the options of pay raises and taxes held out and etc..but paying the parent is crazy when infact you got to work with your child in realistic daily life in order for that child to remain a daily living routine and its not like your going to ignore a child because ur not getting money. if so that'd be CRAZY!! so what would you do QUIT taking care of ur child if you stop getting a check? and not to mention it's taking money from our State of Wv and causing Cuts on Everyone else that does have or work for the state... you should be thankful about the fact your child is still with you and can wake up everyday, instead of thinking about the Money v/s ur child. but you can always have a worker come into your home to work with ur child to do ur routine that u feel is money worth and let an actual woker get pad to work with ur child who is not going to complain. or you could consider other services in the waiver propram like the Respite,Hab Spec, etc.... aides..
I disagree with you the state gets enouph money that they should use it a little wiser, like taking care of families who cannot work because their child is handicap.My opinion it is very expensive to take care of someone with special needs, the state should at least give the parent minimum wage for 6 hours a day.The state of west virginia has an obligation to its people in need.
yea

Beckley, WV

#17 Dec 5, 2010
i agree the state does get plenty of money out of each of our paychecks, our money goes for aboration clinics, drug addics, welfare, and the jail birds. TO THE ONE WHO SAID THE PARENT SHOULDNT GET PAID, maybe you should walk in her shoes before you can say something like that.
shutup

Beckley, WV

#18 Dec 6, 2010
also to the person who wrote that, your probably one of the people who do sit behind the desk. thats probably why your so against it. we're not saying we're all about the money. you try having a kid with cp and see how hard it is before you get on here and start running your mouth just because you do sit behind a desk. you dont say something to someone else when you dont exactly know their situation okay? a kid with cp, we live in a trailer, he cant get around, hes almost bigger than me, you dont know what people go thru so dont start crap okay. he needs a new wheel chair, he has dr appointments, and the state should pay me because the fact that he needs me 24/7 im not able to go and get a job to provide for him or i would! k so thanks.
Ryan

Beckley, WV

#19 Dec 6, 2010
A child who is disabled may depend upon your help for the rest of their life. Families raising disabled children often have challenges and need services that help them in the care and development of the child. For many of us everyday life is full of difficulties. For someone caring for a handicapped child or adult you have my upmost respect. The government should have programs for families that have a handicapped child. The government should pay the parent and pay someone to come into the home and help the parent. No one has the ability to analyze and come to the conclusion that that parent should not be paid. As the old saying goes try walking a mile in their shoes!!!!!!!!
just me

Poca, WV

#20 Dec 14, 2010
I just found out that now we are considered employees and have to do even more training that only employees had to do in the past. I have to take a blood pathagens class. How is this going to help me. I dont recieve respite care so I have to take my son who is on a ventalator out in the cold. Also we now have to turn our income on our taxes.

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