When a disease is donated -- Diseases...

When a disease is donated -- Diseases, Virginia, Illinois Insti...

There are 25 comments on the Chicago Tribune story from Mar 26, 2008, titled When a disease is donated -- Diseases, Virginia, Illinois Insti.... In it, Chicago Tribune reports that:

Dr. Jennifer Schneider pleaded to be allowed to contact the families whose children were conceived through her daughter's donated eggs.

Join the discussion below, or Read more at Chicago Tribune.

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quite a can of worms

Chicago, IL

#1 Mar 26, 2008
Couples who can't conceive a baby become so desperate and go thru these channels and finally have their baby.

I would demand to know a lot of background information just to have the path cleared so that I would know what to expect for my child.

If a man or woman is being generous enough to actually donate part of their anatomy to be used for reproduction of another human, they, too, should be very concerned with whom they are dealing with.

I understand the privacy issue because somewhere along the line someone will try to blackmail a donor for child support, some crazy judge would rule for it.
Anne

United States

#3 Mar 27, 2008
I have to agree with Moos to some extent. It bothers me to no end the lengths to which some couples (or single women) will go to have a "biological" child when there are thousands of children out there, in the US and overseas, who are in desperate need of a good home.

At the same time, I know several couples who, once they learned they could not have their own cildren, tried to adopt and found the process extremely difficult, expensive and time-consuming. I feel like something needs to be done to make that process easier so more would-be parents would consider going down that road.
be Logical

Cary, IL

#5 Mar 27, 2008
Such nastiness from secure people.

The article was about notifying parents of potential problems of their offspring. YES, it should be done.

“<insert witty comment here>”

Since: Jul 07

United States

#6 Mar 27, 2008
Noble intentions, but you should open up adoption records before you worry about future children. I am 44 years old and I know nothing about my medical history because the state of Illinois feels that my birth parents' anonymity trumps my right to know my own medical history. In turn, my own children only know half of their medical history. Good thing my wife wasn't adopted too, or they wouldn't know anything either.
kara

Elk Grove Village, IL

#7 Mar 27, 2008
It is inhumane for a person to not know or not be allowed to know exactly who they are and where they came from. It's ludicrous. We are SO in the dark ages on these issues in this country. Although I agree with another post that says the practice should be stopped all together, if it is to continue, donors who demand absolute privacy should not have their donations accepted, period. And yes ... people have to learn to accept what God has given or not given them.
u gotta be kidding

Melrose Park, IL

#8 Mar 27, 2008
just eliminate these banks. just because we can do it, doesn't mean we should do it.

i smell lawyers circling for the kill.
Be More

Aurora, IL

#9 Mar 27, 2008
God gives us challenges - not to merely accept them and live with them, but sometimes overcome them. Bless those who strive to be more, have more, and achieve more then what was “given to them” due to health, medical or other limitations.
Those who can have children easily and naturally are not always the ones that should be parents (Britney anyone?). We should strive to find as many ways as possible for loving couples who wish to be parents – to become parents.
There are more couples willing to adopt than available children in the country. Waiting lists are years – and costly. Look at all the add in papers for people desperate to adopt - and pay for it. Overseas adoption is getting more difficult and risky. The health and genetic legacy of an adopted child (particularly overseas) can be more of a risk and more unknown than from a donor who has provide background information and received testing.
How many natural parents have had a kid only to find out they carried a hidden genetic defect? This is not just a donor issue! You takes your chances in having a kid - via natural or donor.
Medical and genetic testing is progressing a rapid rate, and soon I imagine, these kinds of issues (unknown inherited health defects) will be a thing of the past regardless of where the sperm or egg came from – whether the donor is known or not.
anonymous

Chicago, IL

#10 Mar 27, 2008
I'm a little confused. A child that they so desperately wanted has a disease. What were they expecting, a perfect child? If they themselves had been able to conceive and found that they carried the same disease and could pass it on to their natural child, would they still procreate? Most likely. I am not trying to make light of the situations, but NO ONE is without flaws. I don't think sperm donations have a money back guarantee.
cosmo kramer

Jersey City, NJ

#11 Mar 27, 2008
u gotta be kidding wrote:
just eliminate these banks. just because we can do it, doesn't mean we should do it.
i smell lawyers circling for the kill.
i agree.
An egg donor recipient

Elmhurst, IL

#12 Mar 27, 2008
I am currently going through having a baby via an egg donor, and I thank God everyday that there are people in this world who are willing to do that for people like me. I WANT the experience of carrying a child, my body has though prevented me from doing that. I am also an adopoted child who has ZERO medical information on my parents and I wish I did.
My husband and I have met my donor, we have a very specific legal agreement that lays out everything for the rest of the child's life. We will stay in contact with one another to alert the other of any and all serious medical issues that arise.
It is much more than "selling babies". As for adopotion these days, there are too many unknown and scary variables that go into it. Let's face it, most people cannot get a baby in the states and go out of the country. Often times to less developed countries, you don't know what you will get, you have NO control over the pregnancy, you don't know ANY of the medical history.
I on the other hand will be able to know EXACTLY what happens during my pregnancy and have medical history to give my child.
All of you need to do some research and educate yourself on matters that you obviously know nothing about and are simply reacting without facts.
That is the biggest problem in this country. Learn - think and THEN speak...not the other way around!
An egg donor recipient

Elmhurst, IL

#13 Mar 27, 2008
cosmo kramer wrote:
<quoted text>
i agree.
you are an idiot too...
An egg donor recipient

Elmhurst, IL

#14 Mar 27, 2008
anonymous wrote:
I'm a little confused. A child that they so desperately wanted has a disease. What were they expecting, a perfect child? If they themselves had been able to conceive and found that they carried the same disease and could pass it on to their natural child, would they still procreate? Most likely. I am not trying to make light of the situations, but NO ONE is without flaws. I don't think sperm donations have a money back guarantee.
did you even read the article and actually comprehend it? it says that the parents haven't been informed and the parent of a woman who did donate wants to notify the parents of the child(ren) conceived from that donation. Only to make them aware of the possibility. She is trying to be nice and helpful.
A past egg donor

Burley, ID

#17 Mar 27, 2008
I do not have children of my own. I've always wanted them but my husband does not, so I somewhat understand the struggles that parents trying to conceive are enduring. I chose to be a donor because I know how hard it is to be told "No, you cannot have children".

The screening process that I went through was extensive. Also part of the legal agreement gave me the option of allowing contact with the parents/family if a medical situation occurred. I of course consented.

My decision to become a donor was made strictly out of love and understanding. I often think about the family and the child and wish I knew more about where/how they are.

If all agencies screened donors appropriately they would find donors like me, not "baby sellers". And if all recipients were honest with their children (in the right time and place) then there would be no stigma or secrecy in this. Secrecy can turn a beautiful gift into a "dirty" secret. Whether born naturally, adopted, or donor recipients there should be no shame in it.
Spammy

Surprise, AZ

#18 Mar 27, 2008
anonymous wrote:
I'm a little confused. A child that they so desperately wanted has a disease. What were they expecting, a perfect child? If they themselves had been able to conceive and found that they carried the same disease and could pass it on to their natural child, would they still procreate? Most likely. I am not trying to make light of the situations, but NO ONE is without flaws. I don't think sperm donations have a money back guarantee.
My thoughts exactly.
JMO

Melrose Park, IL

#19 Mar 27, 2008
The US should follow the lead of Iceland and establish a national DNA database.

The information in the database would be available, blind, to researchers, and the individual.

As more information becomes available regarding genetic defects and their appearance in the DNA string, that information would be linked to all records in the database to which it applies, without need for anyone to know any names. The individuals can do what they want with the information (or the parents or guardians).

So, if a new genetic disorder is discovered that affects a certain portion of DNA, a message could be placed in that person's DNA folder 'inbox' along with links or messages or other places to look for additional information about it.

Personally, reading this story. I think the mother of a dead daughter just wants to find her grandchildren. Detecting Colon Cancer is a noble goal, but that's sort of what regular medical checkups are for. Plus, there's no certainty that her daughter's colon cancer proclivity was actually passed on. So why disrupt all these children's lives for a maybe? If there is a genetic link, tell everyone about it, everyone with the relevant DNA that is. You don't need to involve some strange lady no one's met before.
Heil

Melrose Park, IL

#20 Mar 27, 2008
A past egg donor wrote:
...

The screening process that I went through was extensive. Also part of the legal agreement gave me the option of allowing contact with the parents/family if a medical situation occurred. I of course consented.
...
How is this not small-scale eugenics? You know, the goal of Hitler and the concentration camps? Why is there any testing or screening at all? I understand these screenings include information regarding height and athletic skills. How is this different from selecting for an Aryan race?

“<insert witty comment here>”

Since: Jul 07

United States

#21 Mar 27, 2008
A past egg donor wrote:
I do not have children of my own. I've always wanted them but my husband does not, so I somewhat understand the struggles that parents trying to conceive are enduring. I chose to be a donor because I know how hard it is to be told "No, you cannot have children".
Pardon my unsolicited opinion, but your husband sounds like a selfish, spoiled brat who deserves to grow old alone and unloved. You deserve to be with someone who shares your values and your desire to have children. I wish you all the best.
Pal

United States

#22 Mar 27, 2008
anonymous wrote:
I'm a little confused. A child that they so desperately wanted has a disease. What were they expecting, a perfect child? If they themselves had been able to conceive and found that they carried the same disease and could pass it on to their natural child, would they still procreate? Most likely. I am not trying to make light of the situations, but NO ONE is without flaws. I don't think sperm donations have a money back guarantee.
Yes you are confused. The PARENTS of the egg DONOR want to warn the children born from that donation that they might be at risk for the same disease that killed their daughter. They are trying to do the right thing and being snafu'd.
tiniet

Bryan, OH

#23 Mar 27, 2008
ohoh there goes the health care sytem tainted dna,should be a crime
tiniet

Bryan, OH

#24 Mar 27, 2008
it should be acrime donating sperm,for alot reason,a occult, of mans sperm can creat his race by this means of donations, let alone the seriousness if any of these chidlren come out needing bone morrow transplant etc etc, adaption sounds more safer

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