lawsuit filed Gynecare TVT bladder su...
Mari

Bryanston, South Africa

#1048 Sep 17, 2009
lyndsey wrote:
<quoted text>
Mari - I felt like I was reading my own post when I read yours. My doctor did the same thing to me. Same "I have done hundreds of these operations with no complaint" and the same "everything looks wonderful, nurse doesn't she look wonderful"? The first six months after surgery I was convinced that the pain was my fault somehow.
Please seek the opinion of several surgeons. Although they cannot remove all of the graphs they can remove a large portion of it; as I just had done. Also, please ask your doctor to treat you for the pain, if he has not. In my case, I was able to manage it well enough to maintain my job. There is more than ANSAIDS and narcotics. There are nerve blocks and some types of antidepressents that may help.
As far as the endemetriosis - I would think very much that the surgery could have contributed since the adhesions of endometriosis are often associated with or found in scar tissue.
Please do not let this "monster" damage you more than it has already. Do not let the feeling of being hurt every day make you believe that you are not a strong, beautiful and sexy woman. I know that my husband has suffered with me and I have wondered why he has stayed, but I also know that I still have much to offer him. God Bless you! I pray for your relief and healing.
Hi Lyndsey I have just read you reply to my "moaning and groaning" again...I just want to that you for your reply ..you gave me hope and a light at the end of the tunnel...I had the operation 4 weeks ago, I am back at work and I feel better although I still have a lot of pain on the left side. I am going for my post op check up on the 25th and should know then if it was a sucess ...once again thank you for being there for me and for understanding...Mari
Suzanne McClain

Starkville, MS

#1050 Sep 17, 2009
Becky,

I am so happy for you. I too have heard wonderful things about this doctor. Did Dr. Zimmern say if he could get all the mesh out at once? My end pieces are left, and my doctor said it is too risky to remove.

Good luck with your pending surgery.

Best,

Suzanne
Becky wrote:
Just came from my appointment with Dr.Zimmern at Southwest Medical Center. He is WONDERFUL. He spent so much time with me going over everything he thought should be done. He also told me that after the removal and after my healing time we would get together again to make a plan on how to fix the leakage problem and he said he does the prolapse lift with my own tissue. Why did'nt I know about this before I got in this mess with the mesh? Anyway, I felt very comfortable with DR Zimmern and feel he is the BEST doctor for me. He even gave me a big hug when I was leaving. I have never had a doctor be so nice and caring as he is. I also saw him hugging the other patients too as they were leaving. My surgery is scheduled for Oct 20th.
Mari

Bryanston, South Africa

#1051 Sep 17, 2009
Becky wrote:
Just came from my appointment with Dr.Zimmern at Southwest Medical Center. He is WONDERFUL. He spent so much time with me going over everything he thought should be done. He also told me that after the removal and after my healing time we would get together again to make a plan on how to fix the leakage problem and he said he does the prolapse lift with my own tissue. Why did'nt I know about this before I got in this mess with the mesh? Anyway, I felt very comfortable with DR Zimmern and feel he is the BEST doctor for me. He even gave me a big hug when I was leaving. I have never had a doctor be so nice and caring as he is. I also saw him hugging the other patients too as they were leaving. My surgery is scheduled for Oct 20th.
Oh what fantastic news...good luck..keep us informed...God bless...Mari
Becky

Denton, TX

#1052 Sep 17, 2009
Thank you for your well wishes! Suzanne, he said he could remove it all except what was behind the pelvic bone with doing the vaginal approach. He said in the case where he gets in there and sees it is embedded in my bladder or organs at that time he would then approach it thru the belly with an incision and he would then be able to remove what is left behind the bone. He also said when I go back in to have the prolapse lifted with my tissue he could remove what was left at that time if he could not get it all on the first attempt. I am super thankful for finding him, and it would have not happened without this forum and all the wonderful help I have gotten from everyone! I can't thank you enough! God Bless, Becky

“God Loves You!”

Since: Sep 08

Miami Beach, Florida

#1053 Sep 19, 2009
FOR IMMEDIATE RELEASE
September 18, 2009
Contact: Lana Keeton, Founder & President
Truth in Medicine Incorporated
email - truthinmedicine@ bellsouth. net
Website - www. truthinmedicine. us. com

FIRST ANNUAL TRUTH IN MEDICINE CONFERENCE

“SURVIVING THE COMPLICATIONS OF SYNTHETIC SURGICAL MESH”

Conference to Address Synthetic Meshes impact on more than 13 million Baby Boomers causing increased health care costs with 30-40% Complication Rate

FORT LAUDERDALE, Fla., Sept 18, 2009 –For the first time, a group of injured patients representing millions who have received synthetic surgical mesh for the common problems of hernia repair and urinary incontinence, will meet, one-on-one with patient advocates and surgeons to address the high complication rates of synthetic meshes at the first annual Truth in Medicine, conference at the Renaissance Ft Lauderdale Renaissance Fort Lauderdale Hotel, September 25-26, 2009.

“While medical device makers and some doctors advertise a 1-2% complication rate, thousands of injured patients have contacted Truth in Medicine, to tell their stories of ruined lives from irreversible complications indicating a rate of closer to 30 to 40 %,” says patient advocate and founder of Truth in Medicine, Lana Keeton.
Keeton, herself a synthetic mesh survivor, helps to educate and support injured patients through Truth in Medicine showing them how to find medical treatment and making them realize they are not suffering alone.“These are very serious complications,” says Keeton.

“Millions of people may have synthetic surgical mesh of one kind or another implanted in their bodies which can shrink, migrate, perforate bowels, the vaginal wall, the urethra and/or the bladder and in some cases lead to death.”
Truth in Medicine patient advocates were the driving force behind the FDA issuing its first Public Health Notification in October 2008, on “Serious complications associated with Trans-vaginal Placement of Surgical Mesh…”

(here is link - http :// www. fda. gov/ MedicalDevices/ Safety/ AlertsandNotices/ PublicHealthNotifications/ ucm061976. htm)

and FDA's Information on Surgical Mesh for Hernia Repairs.
(here is link - http :// www. fda. gov/ MedicalDevices/ Safety/ AlertsandNotices/ ucm142636. htm)

Their focus now is to have the same Public Health Notification warning of complications of placement of synthetic hernia mesh.

MORE ON NEXT POST....
Shona

Christchurch, New Zealand

#1056 Sep 20, 2009
I had a tvt 8 yrs ago .... it has been absolutely brilliant and completely cured my stress incontinence. I am wondering though if the groin pain I have started experiencing over the last year; sometimes associated with a 'pinging' which causes tear-inducing pain momentarily .... may be in some way caused by the attachment of the tapes. Has anyone else experienced this?
chefmom7

United States

#1057 Sep 20, 2009
That's great, Becky! Good luck with everything. By the way, where is Dr. Zimmerman located? I hope he is close to the Ohio Valley area.
canada in pain

Fredericton, Canada

#1058 Sep 20, 2009
I was wondering if anyone has had epadural blocks(a week long hospital stay for nerve pain from tvt)i have had botox before but not in a in stay hospital,i also had partical removal of the mesh,iys been 2 yaear,advice would be appreacieated,
Suzanne McClain

Starkville, MS

#1059 Sep 20, 2009
Chefmom 7,

Dr. Zimmern is at the University of Texas. I have heard great things about him.
chefmom7 wrote:
That's great, Becky! Good luck with everything. By the way, where is Dr. Zimmerman located? I hope he is close to the Ohio Valley area.
Becky Conners

Denton, TX

#1060 Sep 20, 2009
chefmom7 wrote:
That's great, Becky! Good luck with everything. By the way, where is Dr. Zimmerman located? I hope he is close to the Ohio Valley area.
Hi Chefmom, Dr Zimmern is at Southwestern Medical Center in Dallas.
chefmom7

United States

#1061 Sep 20, 2009
I was afraid of that....he sounds like a great doctor. I'm going Tuesday to Howard Goldman at the Cleveland Clinic. I was told that he speaks out against the mesh and is very compassionate. You can find him on Youtube discussing the TVT surgery. my husband says that he has a clip on there that is surgery of him removing the mesh. I'm not going to watch it, though.
Becky Conners

Denton, TX

#1062 Sep 20, 2009
chefmom7 wrote:
I was afraid of that....he sounds like a great doctor. I'm going Tuesday to Howard Goldman at the Cleveland Clinic. I was told that he speaks out against the mesh and is very compassionate. You can find him on Youtube discussing the TVT surgery. my husband says that he has a clip on there that is surgery of him removing the mesh. I'm not going to watch it, though.
I am going to watch that video! Please keep us posted on your appointment on Tuesday!
Becky Conners

Denton, TX

#1063 Sep 20, 2009
okay I watched it. That was awful! Makes me sick at my stomach to even think having to go thru that because of this MESH!!!

Here is the link

www.youtube.com/watch...
Cindy

Huntingtown, MD

#1064 Sep 22, 2009
I am a 40 year old mom of two in Maryland. My surgery was Aug. 21st of '08. I had cystocele, rectocele, and uterine prolapse. And I have had IBS for many many years (which doesn't help things any). Went to see a doctor of Gynecological Oncology, Obstetrics & Gynecology. He said he could fix it and would use this great stuff called "mesh", meaning a quick recovery and it would hold up better, although he did state that the cystocele could return years down the road. He was ready to do surgery the next week, but I scheduled it for a few weeks away to give my mom time to get to town. I had to stay overnight in the hospital and they put me back out because I have a small brain aneurysm and I was throwing up when I came to.
I was never right afterwards. I have had constant pain, the rectocele seemed to never go away and now the cystocele is back. I also think I have some mild rectal prolapse as well. I was supposed to keep the cervix and ovaries, but he took the cervix because it was precancerous (which is the only good thing to come from this surgery - it was on the top side and wasn't being picked up by the pap tests). I still have both ovaries.
I told the other doctor at one of my follow ups that I still hurt and don't feel right - she said wait 2 more weeks (8 weeks total) before intercourse and everything should be fine. We waited even longer - but it was painful. My poor husband is lucky to get any at all - I have no desire anymore because of the pain.
I went to the family doctor and she referred me to a urogyn in Balt. I saw him last Friday - he says the prolapse isn't bad (dude, that's a matter of opinion I feel), that he needs to remove the mesh and can fix the leaking at that time, but that if the prolapse still is there I would have to have another surgery.
I just want to cry...
I have been searching the internet to find others like me - and here you all are. Thank you for making me feel like I am not crazy.
My husband doesn't understand, even though he tries hard. I am afraid of what further surgery will do - things don't feel the same already - and I don't want to lose my desires completely. We have gotten the IBS a little more under control, but worrying about all this is not helping it any.
The other day it hit me... he (the doctor) said that the mesh becomes part of my body... so how are they going to remove it?? It's been over a year. I am considering a second opinion (the new doc says he has removed lots of these) because I hate surgery and would love to have the mesh removed and the prolapses fixed at the same time not requiring another surgery.
I just needed to vent some, and would love to know if anyone else in my area has/is dealt/dealing with this.
Lyndsey

Wilkesboro, NC

#1065 Sep 23, 2009
Dear Cindy - Your story could be my story. I am 42 with two small boys. I had a rectocele, cystocele, and uterine prolapse. I had the complete "pelvic prolift" in April of 2008, complete with the added bonus of a transvanginal tape - obturator (TVT-O), even though I was never incontinent. 9 months later of telling myself "you are just a slow healer" and hearing "I have never had anyone have pain from this surgery". I thought that I was losing my mind. Finally, I started searching. This forum was the first step for me.
Even with all of the mesh, I too still had some rectocele left because they only take the graph down so far. With the graph in place it leaves a natural weak spot. This past June I had the anterior and posterior mesh removed after seeing 4 different doctors and trusting the recommendation of several on this forum for Dr. Trabuco at the Mayo Clinic in Rochester, MN. It was tough, really tough, but my vaginal pain and IBS symptoms disappeared and they repaired the remaining rectocele. The good news is that lovemaking and daily waste removal are no longer painful experiences.
Unfortunately, we left the TVT-O in place. Immediately after the surgery it was better, but now just like after the original surgery instead of getting better it seems to be getting worse. I go to see another specialist soon. I am hoping he can provide me with some straight answers to questions like is the TVT-O going to continue to shrink like the other graphs did. Can this “fibrotic banding” be causing the pain that I am having?
My recommendations are to read as many of the posts as you can and to familiarize yourself and your husband with the truthinmedicine.us.com website. Then get a second and a third opinion. Try to find a doctor that is not “in the club” of doctors that get all expense paid vacations and bonuses for promoting and using synthetic mesh products/kits. These doctors are rare but are sometimes affiliated with the universities. Dr. Trabuco is a name you will se on this forum and there is another doctor in Texas that has a lot of recommendations for helping women recover from mesh. Dr. Zimmerman in Dallas. It is a journey, a lot of hard work to be well – but I am not giving up and I hope that you don’t either.
Cindy wrote:
I am a 40 year old mom of two in Maryland. My surgery was Aug. 21st of '08. I had cystocele, rectocele, and uterine prolapse. I just needed to vent some, and would love to know if anyone else in my area has/is dealt/dealing with this.
Cindy

Washington, DC

#1066 Sep 24, 2009
Lyndsey - Thank you so much for responding to me and making me feel "not alone". I am glad that you are doing so much better and hopefully the rest of it goes well too. I am waiting for the original doc to give the surgery notes to the urogyn., and of course his office is taking it's sweet time. I am considering a second opinion (this doc is with the University of Maryland) but want to see what his approach would be first to have something to compare it to.
I think right now one of my biggest fears is how do they remove mesh that has been in me for over a year? Hasn't it become part of me?
So glad to hear the lovemaking and potty going have gotten better - that has concerned me as well.
I want it done right this time - and would like to have only one last operation. So they fixed the remaining rectocele - this urogyn. says he would have to go back in and fix anything that was prolapsed at a later date - I am assuming the rectocele - I think I need to find another doc to talk to - like I said, I want it all done at one time if at all possible. I can't afford to keep taking off from work for weeks at a time - no one can.
Again, I thank you and will heed your advice and research and seek more opinions. And you keep moving forward.
*If anyone in the Maryland area has found a wonderful doctor - please, please, please tell me.
barbara6956

Milford, MI

#1067 Sep 24, 2009
My mom who is now 83 & bedridden has constant UTI's from what we now suspect is from the mesh. As I type this I am waiting from a call from the hospital to tell me when they will have a bed available. I brought her home from a nursing home to live with me after a 3 month stint in July. I had no idea how hard it would be to take care of her but I can tell you this...the fact that she is bedridden with a colostomy would be a breeze if it were not for her having constant uti's.She has one uti after another and I don't know how much more her body can take. Can anyone tell me the extent & danger of the mesh removal surgery? Thank you!
lyndsey

Wilkesboro, NC

#1068 Sep 24, 2009
I am so sorry to hear of your situation. I am not a doctor, but based on my own personal experience I think that it would be very difficult to find a Dr. to perform a full mesh removal on your mother. But I really don't know, so find some good doctors in your area and go hear what they do say. They may be able to revise the graph to allow for less urine retention. Mesh removal was a difficult surgery and I am only 42 without any medical complications. However, I have to think that there has got to be a better solution than the chronic UTI. Good Luck!
barbara6956 wrote:
My mom who is now 83 & bedridden has constant UTI's from what we now suspect is from the mesh. As I type this I am waiting from a call from the hospital to tell me when they will have a bed available. I brought her home from a nursing home to live with me after a 3 month stint in July. I had no idea how hard it would be to take care of her but I can tell you this...the fact that she is bedridden with a colostomy would be a breeze if it were not for her having constant uti's.She has one uti after another and I don't know how much more her body can take. Can anyone tell me the extent & danger of the mesh removal surgery? Thank you!
lyndsey

Wilkesboro, NC

#1069 Sep 24, 2009
Yes Cindy, the mesh is part of you - which is why I didn't mess around. I went to a Doctor that had several years of experience removing it.It may seem impossible to travel for surgery, but it can be done. This is very specialized surgery. Please be very careful who you trust. I don't want to be a real party crasher, but ... I also wanted one final surgery. Unfortunately, there are women with mesh that have had 10, 15, 20 surgeries. And my best guess is that although it makes me sick to think about, I probably will require more. I hope that you don't, but I do think you should be well informed. Oh and BTW - I did have a rectocele repair immediately following the mesh removal (same surgery).
Cindy wrote:
Lyndsey - Thank you so much for responding to me and making me feel "not alone". I am glad that you are doing so much better and hopefully the rest of it goes well too. I am waiting for the original doc to give the surgery notes to the urogyn., and of course his office is taking it's sweet time. I am considering a second opinion (this doc is with the University of Maryland) but want to see what his approach would be first to have something to compare it to.
I think right now one of my biggest fears is how do they remove mesh that has been in me for over a year? Hasn't it become part of me?
So glad to hear the lovemaking and potty going have gotten better - that has concerned me as well.
I want it done right this time - and would like to have only one last operation. So they fixed the remaining rectocele - this urogyn. says he would have to go back in and fix anything that was prolapsed at a later date - I am assuming the rectocele - I think I need to find another doc to talk to - like I said, I want it all done at one time if at all possible. I can't afford to keep taking off from work for weeks at a time - no one can.
Again, I thank you and will heed your advice and research and seek more opinions. And you keep moving forward.
*If anyone in the Maryland area has found a wonderful doctor - please, please, please tell me.
Diana

Ottawa, Canada

#1070 Sep 24, 2009
I had TVT-O done 2 weeks ago sept 9th 09 had pains in my legs most my left in the groin I am having alot of cramps not sure whats going had a uraine test done and I have not Idea whats going on how do you feel now??
Kim wrote:
I had tvt surgery 5 weeks ago. I'm having problems with cramping after walking or lifting things. Lifting nothing heavy.Feeling tired all the time.Sometimes it feels like someone is dripping cool water down my left leg. When my husband and I tried to have sex last night for the first time it was very painful. It felt very tight, bad cramping and shock feelings on the inside. I cramp bad for an hour after . Still feeling cramp now. Very worried that something is wrong.

Tell me when this thread is updated:

Subscribe Now Add to my Tracker

Add your comments below

Characters left: 4000

Please note by submitting this form you acknowledge that you have read the Terms of Service and the comment you are posting is in compliance with such terms. Be polite. Inappropriate posts may be removed by the moderator. Send us your feedback.

Johnson and Johnson Discussions

Title Updated Last By Comments
Successful removal of TVT (Apr '11) Sep '16 Fiona 88
shampoo for over 40s (Apr '07) Aug '16 Vcb 17
News Johnson & Johnson to cut about 3,000 jobs (Jan '16) Aug '16 Dirk 2
News DePuy ASR Hip Lawsuit Update: Federal ASR Hip L... (Jul '13) Aug '16 Dirk 2
News Report cites untapped solar power potential of ... (Feb '16) Feb '16 Solarman 1
News Premature Ejaculation Drug (Jul '06) Jan '16 Dr Wu 32
News Buffett grandchild can't afford cable (Dec '08) Dec '15 Don 7
More from around the web