lawsuit filed Gynecare TVT bladder su...
Trish

Halifax, Canada

#728 Mar 27, 2009
Hi all, Just an update since my last list of complaints..lol
I see yet another gyno today who went thru my history and did a examination only to find the infection is worse and has spread to my womb which is now enlarged and what parts I thought were actually falling out are really being pushed out by the womb.I am now being sent to yet another specialist, this making number 4 in two years to perform a hystorectomy and hopefully figure the rest out when he gets in there concerning the TvT.Thanks For Listening!
Morag

Colchester, UK

#729 Mar 28, 2009
I have a referal to a consultant in glasgow next month so fingers crossed. So im not the only one to have problems with tvt!!
millie

UK

#730 Mar 28, 2009
Morag I have also been referred to a consultant in glasgow. Im having repeat urodynamics in 2 wks time. My original op was done elsewhere in the west of scotland , so heres hoping the glasgow cons can help us. tho I realise it might not be the same hosp.
Ali, things might improve for you, but if it doesnt soon, make a pest of yourself and get them to listen to you.
hope things improve for you both soon.

Since: Nov 08

Nanaimo, Canada

#731 Mar 29, 2009
Has anyone had a burch repair or something similar after the TVT removal? I am getting mine removed Apr 14th and want to get a burch repair after. It can be done 4 weeks after. I would be very interseted to know. Ty.
Tammy Blythe

Hendersonville, NC

#732 Mar 29, 2009
Tammy in Gastonia hope you are doing well and they made you more comfortable. Tammy in Hendersonville
Lyndsy

Greer, SC

#733 Mar 29, 2009
Hi - I am interested in Doctors in the Southeast USA that have experience with excision of the Prolene mesh and TVT. I had a complete vaginal pro-lift and have been in pain ever since. The only specialist that I have found willing and apparently experienced in removal of prolene mesh are unaffiliated with my medical insurance. Please let me know if you have any recommendations or if you can advise me on what to expect with removal.
Lyndsy

Greer, SC

#734 Mar 29, 2009
Suzanne wrote:
One last thing, for those of you considering revision/extraction surgery, tell both the hospital and your doctor by letter that you want any and all pieces from your surgery, and store these pieces in your freezer, until we are able to secure a law firm to fight for us. This evidence, in a court of law can be priceless.
I hope you find this information helpful, and I hope we all find relief soon, and in so many ways!
Suzanne
Suzanne - I am scared to death to have another surgery but am relatively young and the thought of living with my current pain and other issues is unacceptable. I am horrified that I trusted my surgeons advise a year ago, and uncertain who to trust again. I am very interested in any recommendations that you could provide for hospitals, surgeons, and techniques used and if you have filed a law suit. Thanks, Lyndsy
Tammy Blythe

Hendersonville, NC

#735 Mar 29, 2009
Hi Lyndsy, you asked about an experienced Dr in the Southeast removing transvaginal mesh. I'm in NC and non of my DRs including (Duke) could remove all the mesh and even went to a urol-gyn in SC. None of my Drs even knew of an experienced surgeon to refer me to. So I did my own research, and I'm 11 weeks post-op from having 3 mesh implants removed at the Mayo Clinic in Rochester MN and my Dr was Christopher Klingele. He is a very skilled surgeon. Its not a easy surgery, of course I had 3 kinds of mesh, which means 8 arms going into the obturator. You can get on line and google mayo and or Dr Klingele. Good Luck!
Lyndsy

Greer, SC

#736 Mar 29, 2009
Tammy Blythe wrote:
Hi Lyndsy, you asked about an experienced Dr in the Southeast removing transvaginal mesh. I'm in NC and non of my DRs including (Duke) could remove all the mesh and even went to a urol-gyn in SC. None of my Drs even knew of an experienced surgeon to refer me to. So I did my own research, and I'm 11 weeks post-op from having 3 mesh implants removed at the Mayo Clinic in Rochester MN and my Dr was Christopher Klingele. He is a very skilled surgeon. Its not a easy surgery, of course I had 3 kinds of mesh, which means 8 arms going into the obturator. You can get on line and google mayo and or Dr Klingele. Good Luck!
Thank you so much, I can not tell you how much searching I have done; running into the same problem that you did. They will all put it in, but none want to take it out. I greatly appreciate the reference. Did you research or speak to anyone in Atlanta? I have been consulting with Dr. Miklos, who seems very confident and advise seems solid. I am also curious if the Dr. that you consulted with in Greenville is the one that did my surgery. How is your recovery. Was it worth it? Thanks again!
Tammy Blythe

Hendersonville, NC

#737 Mar 29, 2009
Lyndsy, you can e-mail me at [email protected]
Suzanne

Pinola, MS

#738 Mar 29, 2009
Lyndsy,

I found a very good Urogynecologist/surgeon in Jackson, MS. His name is Steven Speights, and you can find information about him at www.seug.com

He has done a partial extraction for me, but we have not yet had to go in to do more extensive mesh removal. He has told me that this is possible in my future, and that mesh removal may take several surgeries.

I have been talking to lawyers, but have not decided which one to go with yet. It is all so complicated. I am angry that my doctor did not feel the need to share with me that there were 600+ adverse events on file with the FDA when he did my surgery. Nor did he tell me of these serious complications.

Good luck to you in whatever you decide to do.

Suzanne
Lana Miami

United States

#739 Mar 29, 2009
Lyndsy wrote:
<quoted text>
Thank you so much, I can not tell you how much searching I have done; running into the same problem that you did. They will all put it in, but none want to take it out. I greatly appreciate the reference. Did you research or speak to anyone in Atlanta? I have been consulting with Dr. Miklos, who seems very confident and advise seems solid. I am also curious if the Dr. that you consulted with in Greenville is the one that did my surgery. How is your recovery. Was it worth it? Thanks again!
Dr. Miklos?? Did he spend hours on the phone with you? Did he tell you how many he has "successfully" removed? Did you contact him through his website? 29 countries and 46 states? 20 book chapters? Please contact me for the truth. blessings, Lana [email protected]
Lyndsy

Greer, SC

#740 Mar 30, 2009
Suzanne wrote:
Lyndsy,
I found a very good Urogynecologist/surgeon in Jackson, MS. His name is Steven Speights, and you can find information about him at www.seug.com
He has done a partial extraction for me, but we have not yet had to go in to do more extensive mesh removal. He has told me that this is possible in my future, and that mesh removal may take several surgeries.
I have been talking to lawyers, but have not decided which one to go with yet. It is all so complicated. I am angry that my doctor did not feel the need to share with me that there were 600+ adverse events on file with the FDA when he did my surgery. Nor did he tell me of these serious complications.
Good luck to you in whatever you decide to do.
Suzanne
Thanks Suzanne! Yes, my Doctor was less than forthright with me, as well. I was really angry when I requested my records from him and there were notes in there that made it sound like he had really gone over the potential negatives, but yet nothing regarding my complaints. "If you were my wife, this is what I would recommend". I am not interested in legal action personally, but I may be forced to try something for financial reasons. Thanks again and I wish you the best.
Tammy

Shelby, NC

#742 Mar 31, 2009
Hi Tammy, I am doing better, but still very angry and scared. I am having my surgery for sling removal at Northeast by a urologist. He feels that he can remove a good deal of mesh, I just want to have the hole in my vagina healed, and no more bacterial infections. I will be contacting you soon as I go for my pre-op next week. I know that Northeast is affiliated with Duke, did you look at them before you went to the mayo clinic? Just curious, if I should loo at the mayo clinic too.

I am very upset at the number of women that are having problems with this mesh, and that information is not given by Doctors about complications with the sling. I have been given all/most of what I know through this site, and then research on the computer.

I am very thankful for this site, and the support and information given. I am also thankful to suzanne who has given me much info on her replys to other women.

I am going after my gyno for neglect, I still am researching lawyers in the area, and after this surgery, I'm going to file. I just can't believe that he did not discuss these sling problems with me on my numerous visits to him, and after my misscarraige last Sept. I think that is neglectful, especially after I told him that it is the mesh again that is causing my problems.
Tammy Blythe

Hendersonville, NC

#743 Mar 31, 2009
Tammy,
Please e-mail me or give me your e-mail address.
KRIS

Newburgh, IN

#746 Apr 2, 2009
I am having a hysterectomy on Monday. They suggested the TVT sling after a urodynamic test...which I might add COST A FORTUNE not covered by insurance. I have decided I would rather risk incontinence than the problems I have read about here. SO I told them NOT to put in the sling. HOPE I am making the right decision.
Tammy Blythe

Hendersonville, NC

#747 Apr 2, 2009
Kris, You know they can use bio-gragh material or your own tissue to support the urethralcele. That requires more skill for the surgeon. Or simply use the plication to reinforce the tissues. Its the way it use to be done. It mat not hold indefinitely but who cares. I much rather have to repeat it through the yrs and not have any of the complications with the mesh products.Good luck with your hysto Monday. Getting all my mesh out was actually allot worse than my hysto.
Suzanne

Pinola, MS

#748 Apr 2, 2009
Kris,

Your definitely making the right decision, and I can't agree with Tammy Blythe more.

I now know of a women had the biological sling done more than 40 years ago, and it is still holding up. Of course, more often than not the surgery does need to be repeated 10+ years down the road, but that would be so preferable than going through the nightmare that so many of us are now living.

Best of luck to you with the hysterectomy!

Best ~ Suzanne
Suzanne

Canal Winchester, OH

#749 Apr 2, 2009
I would appreciate honest feedback. I had a cystocele and rectocele with TVT tape in sept 08. I had one infection after another, the incontinence was worse and I asked for appts and exam and my dr kept telling me this was normal and would get better. It didn't. At my 3mo check-up, I asked who I could go to that would take me seriously and then the dr did an exam. The nurse told me before he even came back into the room that she could see the tape herself protruding from the vagina. He said it had eroded. He said he would see if he could locate a specialist. I was floored. I thought he WAS a specialist. I am now seeing a dr 4 hours away in another state that is recommending taking out the tvt tape as it is completely eroded and re-doing the anterior and posterior repair, cystocele, and rectocele over with mesh. Are the tvt and the mesh the same? I don't think I want to do anything except get the tape out. I'm scared. What do some of you think? Should I contact an attorney? thank-you
Suzanne

Pinola, MS

#750 Apr 2, 2009
Suzanne,

Yes, the TVT and Mesh are the same thing. Do not for any reason let them put more polypropylene mesh in you, and make certain they get it out and soon. The longer this mesh (Tape) stays in your body, the more chance it has to erode tissues, adhere to organs and nerve beds, and totally destroy your life. Mesh that has eroded into your vaginal vault has in effect mutilated your sexual organs.

Read my posts #680-690, on pages 34 and 35 of the blog. They will give you all the information you need to get the ball rolling. You first need to gather your medical records from the Quack that put this in you and the hospital, then, armed with the proper device name, model number and manufacturer, you need to file an adverse event on the FDA's Maude Database. The form number is 3500.

As far as a lawyer, you probably will want to consider contacting one in the future, but first the Medical Device Safety Act of 2009, introduced by U.S. Reps. Frank Pallone, Jr.(D-NJ) who chairs the Subcommittee on Health and Henry A. Waxman (D-CA) the Chairman of the Committee on Energy and Commerce, must be passed.

I sure wish Congress would get the budget fixed and move onto this, as it is crucial for those of us suffering at the hands of these manufacturers who are pumping out medical devices for approval by the FDA, and gaining this approval in 90 days under the 510K process, without clinical trials. We have all been used as GUINEA PIGS, and it is DISGRACEFUL!

If you need more information, post additional comments and I will help you, and anyone else to the very best of my ability.

Best ~ Suzanne

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