Comments
401 - 420 of 4,550 Comments Last updated Jun 28, 2014
mom1965

Halifax, Canada

|
Report Abuse
|
Judge it!
|
#402
Aug 15, 2008
 
bobbie wrote:
<quoted text>
I too would be willing to provide my personal information. My email is breezy95@aol.com. Feel free to send a personal email to me, and from there I will gladly give you my phone number, and name, and even my work number, as well. I don't mind. I know who and what I am, you all don't. I wish I had the education to be a pharmaceutical rep, though, they make some good money from what I hear. Feel free to email me personally for any information, as well as my doctor's name address & phone number. I really wish you would, for once and for all I can prove that I am an honest, Christian person, and I wouldn't harm anyone intentionally. I just get tired of Lana jumping on anybody who has had success, and you others follow right along like it's a cult or something. So go ahead, if you reallythink I'm fake, email me. I'll give you whatever info you want. Just place in the subject line TVT so I will know it isn't spam or junk email.
Bobbie
Do you really think that I would like to talk to you personally ,thats rediclious I have found some very sincere people here,not you. Do you think me chating privately would change my mind about you? Sorry...and reguards to me following anyone around like a cult...well you seem to be a very sorry assed lady with nothing better to do with your time for even suggesting that and if you are such a christian person act like it ,I went on this blog for advice,and I have gotten lots of it from true victoms.I also agree with Helen...well you know what she has said in her last post...or an I acting like someone in a cult to feel like that as well....mom1965
bobbie

AOL

|
Report Abuse
|
Judge it!
|
#403
Aug 15, 2008
 
mom1965 wrote:
<quoted text>Do you really think that I would like to talk to you personally ,thats rediclious I have found some very sincere people here,not you. Do you think me chating privately would change my mind about you? Sorry...and reguards to me following anyone around like a cult...well you seem to be a very sorry assed lady with nothing better to do with your time for even suggesting that and if you are such a christian person act like it ,I went on this blog for advice,and I have gotten lots of it from true victoms.I also agree with Helen...well you know what she has said in her last post...or an I acting like someone in a cult to feel like that as well....mom1965
First off, I am a Christian. I don't go goofy & crazy on people who say they are successful with their surgery. I pray that everybody that has had good results from this surgery continues to do so, as well as pray for those of you that have been unfortunate, even though I don't judge and say you aren't being honest, as you all have said about me. As far as being "sorry", you don't know me, you judge, of course, but you don't know me at all. I am a Christian, 43 year old lady, who had surgery and is making it fine so far, and who prays daily to continue to do so. That is who I am. I am not rich, I am not snobby, I am not two faced, I am just ME. And I am very proud of who and what I am, whether you seem to "approve" of me or not, because, after all, it doesn't matter what others think of me, only what I think of myself. You are all calm, until Lana starts accusing, then you all fall into place with her. It is silly. That is all it is. I am genuine, honest, and sincere. Again, not that it is any concern of anybody's, as I have always said, what other's think of me is none of my business. If you don't want to talk to me and my sorry self, don't. Truth hurts sometimes, and all you would be discovering is that I am telling the truth. That's about all I have to say for now, other than one small piece of advice, you should start using your spell check.

mom1965

Halifax, Canada

|
Report Abuse
|
Judge it!
|
#404
Aug 15, 2008
 
Bobbie,my final post hear... and my advice to you GROW UP ...and ACT YOUR AGE ..quiet childlike actions from you ...tissy ,tissy..spelling good enough now?????????
bobbie

AOL

|
Report Abuse
|
Judge it!
|
#405
Aug 15, 2008
 
mom1965 wrote:
Bobbie,my final post hear... and my advice to you GROW UP ...and ACT YOUR AGE ..quiet childlike actions from you ...tissy ,tissy..spelling good enough now?????????
That would be "here", not "hear"...can you hear me now?
Laura

United States

|
Report Abuse
|
Judge it!
|
#406
Aug 15, 2008
 
Why are all you guys making this post a big argument? Obviously, there are people who luckily have had no problems and those who have had varying degrees of difficulties.
Let's get back to what's important, offering support to those who have had problems and continue to need support from a compassionate ear.
I would hate to think that women would shy away from this site because they don't get the support they need.
Let's educate responsibly.
Laura
MySpace TVT Sling Surgery

Nottingham, UK

|
Report Abuse
|
Judge it!
|
#407
Aug 16, 2008
 
Hi Everyone,
I have just started my group on myspace, the link is http://groups.myspace.com/tvtsurgery
I have been reading many horror stories on the TVT Sling Surgery especially from the USA and it is heartbreaking reading, I would like to hear from all woman in the UK on their experiences.
About 3 weeks ago I have got mesh erosion, I do not know the full extent of the damage until I see the Gyny! still waiting for an appointment, it is a disgrace. I have had nothing but problems with my health since having this operation in 2005, Pulmonary Embolis day after the op, severe bleeding for months, 2 months later diabetes type 2 then diagnosed with Myasthenia Gravis (severe muscle weakness) and now mesh erosion! No wonder I am angry and upset, it was only until recently I started reading about the risks of TVT that I realised how dangerous this surgery is. I was told it is a simple procedure, a day in hospital and was not told of any risks or complications which may arise.
I would like all woman to join the group please, I am currently also doing alot of research on this surgery including finding an article where there was conterfeit polypropylene mesh being used in 2005 and had to be recalled!
Speak to you soon, email tvt-surgery@hotmail.co.uk
Helen

UK

|
Report Abuse
|
Judge it!
|
#408
Aug 16, 2008
 
For Lana as things seem to be going adrift of what this forum was all about.
god bless Lana
x
WOMEN UNITE!
Now is your chance to stand up and shine like a star!
Has your life and body been irrevocably changed (and not in a good way) by the Gynecare TVT System?
Tell it to the judge!
Stand up in a court of law and tell it like it is. I'm calling on all women who have been injured by this product and procedure to speak their piece.
Stand up and be counted! Let's unite to make certain no other innocent person has to suffer in pain for the rest of their lives because of a product and procedure that should not even be in the marketplace.
My lawsuit is the ideal platform from which to strike a blow at the company that manufactures and distributes the Gynecare TVT System.
I have filed a product liability lawsuit against Ethicon, Inc, Gynecare and Johnson & Johnson in the United States District Court for the Southern District of Florida.
Lana C. Keeton, Plaintiff Pro Se vs. Ethicon, Inc.(d/b/a Gynecare Worldwide) and Johnson & Johnson, Case #06-21116-Civ-Ungaro-Benages.
I do not have an attorney. I am doing this by myself. I really need your support.
It is set for trial for October 1, 2007.
Will you, and anyone else reading this with problems from the Gynecare TVT tape, please testify at trial? We have to help each other to stop this from happening to other women.
Please send me your contact info: name, e-mail address and phone number to:
Lana Keeton
Miami, Florida
e-mail: miamiblog@bellsouth.net
blog: http://www.theladyisachamp.blogspot.com
August 17, 2007 is the deadline for my witness list, so please contact me now, or I will not be able to put you on the witness stand to tell your story.
A huge issue for all women, this procedure, if done at all, should only be done by an experienced urogynecologist. The procedure is blind. The doctor sticks a needle into your vagina and brings it out through the abdominal skin. They then look through a cystoscopy to make sure it is not in your bladder. The only thing they know from this, is that it is (problably) not in your bladder. No one knows where that tape is once it is inside of you.
That is, unless you have problems from it, of course. Problems that includes cutting into your bladder, your vagina, your urethra. Then, believe me, you definitely know where it is. You can feel it hurting you. At the same time, however, your doctor still does not know where the tape is for sure.
The Gynecare TVT System and its TVT Device (Prolene mesh tape) are inherently defective for more than one reason.
1. The tape itself has abrasive edges that cut human tissue. Sensitive, living tissue in organs like the bladder, the vagina, the urethra. It is a process that will not stop unless your doctor surgically intervenes in some manner.
I have reports from an expert witness that the edges of the tape are defective. Please contact me at miamiblog@bellsouth.net if you would like me to send you the information.
2. The plastic sheaths that cover the tape for the purpose of implanting it in your body have to be pulled out after the tape is put inside you. Any movement of that tape after implantation is undesirable based on a patent that Ethicon filed in 2004.
3. There is much more....
There is a way to conservatively manage the complications so as not to further damage your healthy tissue. Dr. G. Willy Davila of the Cleveland Clinic Florida in Weston, Florida has been treating me now for almost 5 years removing parts of the sling. He will be able to refer you to a competent urogynecologist if you do not live in Florida.
This has been a long arduous painful process for me. I hope I will be able to help other women not to suffer as I have. Please contact me.
Peace and Blessings,
Lana
50sgirl

Havertown, PA

|
Report Abuse
|
Judge it!
|
#409
Aug 16, 2008
 
Please look here and listen carefully. Never in a million years did I think I would be in this situation. My regular OBgyn did a posterior and anterior prolift and TVT-O taping on me in 11-06. I have had severe problems ever since and just had my 5th surgery in July under the care of University physicans who know what they are doing. The mesh got inected right away and the doctor did not recognize it. I developed an abscess, which developed into a fistula. The doctor told me to soak, following the surgery, which is just really bad advise, because sopaking invites infection. I had 3 fistula repair attempts. I am hoping this last one worked as now all of the mesh is out. They had to go in this past winter and attempt to remove all of the mesh. What a mess. DO NOT HAVE THIS PROCEDURE- EVER!
Renee wrote:
<quoted text>
Amanda,
Do you mean the 31st of August?
I understand your nervousness... it is a legitimate concern that you have.
Did the doctor explain to you why the mesh could only be trimmed, not removed? Do you feel comfortable with his rationale? I hope so...and I do believe that there comes a point where we just have to trust our physician, and hope for the best.
We will be rooting for you... please keep us posted.
(BTW, excellent idea to TAKE IT EASY afterwards... I think most of us are too quick to overdo things.)
Pachild

Philadelphia, PA

|
Report Abuse
|
Judge it!
|
#410
Aug 17, 2008
 
Hi

I would like to know if this bladder suspension tape is the same thing that is used for the uthera sling. I had a appt with a uro-gyn earlier this week as I have a urine leakage problem.

After filling out an extensive questionnaire and a lengthy exam and Urodynamic's testing, he mentioned that i would be a good candidate for a sling. He explained that the sling would go around the uthera,
As we were talking about this and other options the nurse knocked on the door and told us we had to leave the office as there was a problem in the medical office building we were escorted from the office by police officers as was the entire bldg. I have an appt for later this week to finish the visit and decide which treatment option to use. I'm really leaning towards this sling idea.
mom1965

Halifax, Canada

|
Report Abuse
|
Judge it!
|
#411
Aug 18, 2008
 
Pachild, my one bit of advice,read all the stories on this post and see what 99% have gone through.Then run away from any Dr why even suggests this procedure.mom1965
njmomof3

Lititz, PA

|
Report Abuse
|
Judge it!
|
#412
Aug 18, 2008
 
I was told today about the sling surgery by my urologist. Have to say I was hesitant about a foreign object being placed inside my bidy - now I'm worried after reading this site. What other options are there? I would be open to trying other things b4 doing the surgery.

Since: Aug 08

Stoke-on-trent, UK

|
Report Abuse
|
Judge it!
|
#413
Aug 18, 2008
 
MySpace TVT Sling Surgery wrote:
Hi Everyone,
I have just started my group on myspace, the link is http://groups.myspace.com/tvtsurgery
I have been reading many horror stories on the TVT Sling Surgery especially from the USA and it is heartbreaking reading, I would like to hear from all woman in the UK on their experiences.
About 3 weeks ago I discovered I have got mesh erosion, I do not know the full extent of the damage until I see the Gyny! still waiting for an appointment, it is a disgrace. I have had nothing but problems with my health since having this operation in 2005, Pulmonary Embolis day after the op, severe bleeding for months, 2 months later diabetes type 2 then diagnosed with Myasthenia Gravis (severe muscle weakness) and now mesh erosion! No wonder I am angry and upset, it was only until recently I started reading about the risks of TVT that I realised how dangerous this surgery is. I was told it is a simple procedure, a day in hospital and was not told of any risks or complications which may arise.
I would like all woman to join the group please, I am currently also doing alot of research on this surgery including finding an article where there was conterfeit polypropylene mesh being used in 2005 and had to be recalled!
SORRY HAD WRONG EMAIL ADDRESS TO CONTACT ME. IT SHOULD BE tvt-surgery@hotmail.com
Speak to you soon,
Love, Peace and Blessings to you all
I missed this text out on my previous posting.......

SORRY HAD WRONG EMAIL ADDRESS TO CONTACT ME. IT SHOULD BE tvt-surgery@hotmail.com
Speak to you soon,
Love, Peace and Blessings to you all
Janie

AOL

|
Report Abuse
|
Judge it!
|
#414
Aug 18, 2008
 
I had this surgery in 2005 and have suffer from stinging,burning,pain when empting my bladder,even if its a small amount of urine.Been to several doctors and given me differnt kind of antiboitics. My Doctor that did the surgery says its the mesh that moved from its place,but I see particals when i uriate. I am living in pain. Can someone help? Thanks,
pugmom

Lennon, MI

|
Report Abuse
|
Judge it!
|
#415
Aug 19, 2008
 
I am having the same problems you are.
I am 41 and for 4 years my husband and I have hard a rough sex life, it hurts so much after intercourse, that we have sustained from doing so.
I just had surgery last week to remove the netting because it has ruined my life, my urologist couldn't remove it, it has inbedded into my tissue, he said it would require extensive surgery. He pushed up as much as he could. Still no results, why do they let this stuff on the market if they know it is bad for you.
Have heard may have been recalled, I am checking on that.
Sorry to hear that you are having problems too, but nice to know I m not alone, for 4 years I have been told "it is fine, there is no problem"
but I knew there was.
Thanks for posting.
Rhonda Brown

Carrollton, GA

|
Report Abuse
|
Judge it!
|
#416
Aug 20, 2008
 
Help on up on my 5th surgery found out today
to remove the mesh has some one had this done what
is the procedure. E - mail me at brow708@yahoo.com
PLEASE

Since: Aug 08

Derby, UK

|
Report Abuse
|
Judge it!
|
#417
Aug 20, 2008
 
Hi Everyone,

I have stated a new topic

TVT bladder suspension tape (Prolene mesh) the RISKS!

http://www.topix.com/forum/health/TIA9G68LN77...

Janie, Pugmom and Rhonda thank you for your replies..........

Please add your comments to this new topic and I will reply to you asap, in the meantime I am waiting to be seen by a gyny so may not be here for long to answer soon, I still do not know the full extent of damage done to me as yet.

Peace, love and blessings to all
Loreva
Lana Keeton

Los Angeles, CA

|
Report Abuse
|
Judge it!
|
#418
Aug 22, 2008
 
PUBLISHED STUDY SHOWS MORE THAN 20% COMPLICATION RATE OF GYNECARE TVT SECUR....PROLENE POLYPROPYLENE MESH IS DANGEROUS!
AND THIS WAS ONLY TESTED IN SHEEP FOR 3 MONTHS BEFORE THEY STARTED PUTTING IT IN HUMANS WITH NO CLINICAL TRIALS...
THE PUBLIC = THE GUINEA PIGS FOR CLINICAL TRIALS.
TVT SECUR...Beyond the Abstract - Perioperative Complications and Early Follow-up with 100 TVT-SECUR Procedures Tuesday, 29 July 2008
BERKELEY, CA ( UroToday.com )- The TVT procedure has become very popular ever since it was first described by Ulmsten in 1996. Common complications in previously performed surgeries for the treatment of stress urinary incontinence, such as intra-operative blood loss, pelvic and abdominal organ injury, post-operative de novo detrusor instability, dyspareunia and urethral erosion, are rare in the TVT era.
Prospective randomized multi-center studies, comparing TVT to the former gold standard,Burch colposuspension, demonstrated similar therapeutic impact for both. However, TVT was associated with a higher intra-operative complication rate while colposuspension was associated with a higher post-operative complication rate and a longer recovery period. The previously reported TVT-related complications included bladder penetration, intra-operative bleeding, post-operative infection and vessel and bowel injuries.
Since surgical procedures are more likely to cure stress urinary incontinence rather than non-surgical procedures, Delorme first and then de Leval adapted the TVT-Obturator procedure to avoid the aforementioned complications with the bladder, the femoral blood vessels and the bowel. This is achieved by exploiting the Obturator fossa as a route for the Prolene tape, replacing the retropubic space.
Lana Keeton

Los Angeles, CA

|
Report Abuse
|
Judge it!
|
#419
Aug 22, 2008
 
PART TWO OF POST #413...MORE THAN 20% COMPLICATION RATE WITH GYNECARE TVT SECUR....DON'T BE A GUINEA PIG!

The reported data regarding efficacy of the TVT-Obturator in terms of cure as well as intra-operative and early post-operative complication rates is encouraging. Therapeutic failure, intra-operative bleeding, post-operative infection and voiding difficulties also seem to occur less with the TVT-Obturator than previously reported for TVT.
However, the TVT-Obturator is not free of operative complications: thigh-pain is reported to interfere with patient satisfaction, operative infections and post-operative bladder outlet obstruction still occur as well as occasional operative hemorrhage. The TVT-SECUR was designed to minimize the operative procedure as much as possible in order to reduce those undesired complications. This new device is composed of an 8 cm long laser cut polypropylene mesh and is introduced to the internal Obturator muscle (Hammock position) by a metallic inserter, while no exit skin cuts are needed.
This approach imitates the sub-mid-urethral support provided with the TVT-Obturator, yet imitating the TVT is possible as well, by introducing the TVT-SECUR arms retropubically rather than to the Obturator area. This “U” position approach necessitates urethral catheterization as well as diagnostic cystoscopy for recognition of possible bladder penetration. As the main possible advantage of the TVT-SECUR is minimalisation of the procedure and its side-effects, the simpler “hammock” approach was elected for this patient’s series.
The 100 TVT-SECUR operations reported herein illuminates the primordial learning curve: given that the new laser cut tape and novel inserters are different than the former equipment, one could understand the early difficulties.
[note: This translates to thousands and thousands of injured women. L.Keeton]
The extra tension applied to the TVT and TVT-Obturator tapes during removal of the covering plastic sleeves, does not occur with the TVT-SECUR. Hence, some extra tension needs to be applied to the TVT-SECUR compared to the TVT in order to achieve the desired therapeutic result. Even doing so, no clinical signs for post-operative bladder outlet obstruction were observed.
1. To accommodate the flatter, wider tape under the urethra that laser cutting produced, further mucosal undermining was done in order to permit the tape to sink deeper, away from the vaginal mucosa.
2. The inserters, being more than twice as wide as TVT and TVT-Obturator needles, necessitates wider tunnels; 12 mm’ at least, in order to permit smooth passage of the tape and inserter and avoid gathering of vaginal skin which might lead to vaginal wall penetration.
3. The tunnel depth should not go beyond the bone edge to avoid damaging the tissue meant to hold the coated tape edge; otherwise the initial pull out force might be impaired.
4. The locking mechanism, attaching the tape to the inserter, should be unlocked properly and detached gently, to avoid unwanted tape removal with withdrawal of the inserter.
Doing these simple surgical steps the author was able to lead toward successful completion of the operation.
In summary, the TVT-SECUR procedure appears to be potentially easy to perform and relatively trouble-free for both surgeons and patients and might not require urethral catheterization or diagnostic cystoscopy during surgery. Paying respect to the above mentioned procedural specific surgical steps might shorten the TVT-SECUR learning curve.
The novel TVT-SECUR’s actual place among TVT and TVT-related procedures can only be determined with randomized prospective longitudinal comparisons.
Written by Menahem Neuman, MD, as part of Beyond the Abstract on UroToday.com .
This initiative offers a method of publishing for the professional urology community. Authors are given an opportunity to expand on the circumstances, limitations etc... of their research by referencing the published abstract.
Pachild

Philadelphia, PA

|
Report Abuse
|
Judge it!
|
#420
Aug 22, 2008
 
--all other treatments have failed with me, and I'm tied of always leaking and being wet and having that odor.
Lana Keeton

Los Angeles, CA

|
Report Abuse
|
Judge it!
|
#421
Aug 23, 2008
 
Pachild wrote:
--all other treatments have failed with me, and I'm tied of always leaking and being wet and having that odor.
At the moment you have a hygiene issue...not a life threatening condition. This "simple outpatient" procedure is life threatening.

Women die from this surgery.

The risks outweigh the benefits.

Please ask your doctor for other options...

peace and blessings, Lana

Tell me when this thread is updated: (Registration is not required)

Add to my Tracker Send me an email

Add your comments below

Characters left: 4000

Please note by submitting this form you acknowledge that you have read the Terms of Service and the comment you are posting is in compliance with such terms. Be polite. Inappropriate posts may be removed by the moderator. Send us your feedback.

Other Recent Johnson and Johnson Discussions

Title Updated Last By Comments
Successful removal of TVT (Apr '11) Jul 30 Audrey 76
Ethicon Suture Recall (Jun '09) Jun '14 lynn 46
Injured by Ethicon's Prolene Hernia/Bladder Mesh? (Jul '08) May '14 Jennifer 203
Voting is now open for the Champion of Care Joh... May '14 kzrrn 1
Weekly 52-Week Highs Highlight: MAR, JNJ, HAL, BHI Apr '14 stevebry56 4
Have you seen Andrew Jarzyk? Mar '14 Ashley 2
febreze Mar '14 Robert Sabo 1

Search the Johnson and Johnson Forum:
•••