lawsuit filed Gynecare TVT bladder su...
Helen

UK

#222 Jul 4, 2008
tildy wrote:
Oh dear, I had the TVT done at the end of April, and was searching to see if others had problems, and came across this excellent discussion. I am 57 and, like so many, wish I'd known that it really was NOT going to be a breeze as I'd been led to believe. I have the constant feeling of having to go, I feel like my urethra is sticking out and my underwear just irritates it terribly (I'm mostly wearing skirts with no underwear now, unless I need to go out) and am just awfully uncomfortable and regret ever having this done. It sounds like I need to find a urogynecologist. I live in N.W. Ohio. Anyone have a recommendation>
I dont have a recommendations, just wish you all the best finding someone. Isnt it funny how we all were told it was only a small thing to be done. Maybe it was but its a long recovery if ever we are able to get over it. I definaetly think it must have been a man invented the torture TVT
XXXX

****** doctors
xx
Robin

Jericho, NY

#223 Jul 4, 2008
I had Gynecare mesh for uterine prolapse in Apr 2006 and have had nothing but problems. Don't do it. Can anyone take it out? I have seen 4 surgeons and no one wants to try.
Robin

Jericho, NY

#224 Jul 4, 2008
Can anyone recommend a Dr. to remove the TVT tape. I am desperate to get it out. I have so many problems that have started since I had this done.
kathleen

Birmingham, AL

#225 Jul 5, 2008
Jan. of 2008 I had the tvt,results-disrupted my life,no sex,large blood clot across my abdomen,diaper for 3 months and still alot of trouble with my bladder and lots of pain. Never had this before the surgery. It is now July,I go to mayo in August for removal,a complicated surgery,The Gynecare Tvt has destroyed my life and my families not to mention the expense,frustration,many tears and pain. Thanks Gynecare!!!! Also had my first blood transfusion,due to the tvt causing a very large hematoma.
kathleen

Birmingham, AL

#226 Jul 5, 2008
Mayo Clinic in Rochester,Minnesota-Dr. Kris Klingle,also been seeing an awesome dr. at a healing arts center for cold laser therapy-hematoma is almost gone,4 months the surgeon did nothing,my new dr.-4 weeks and maybe 1 more week and my hematoma will be gone,trying to heal my body from the traumatic tvt surgery I had.
mom1965

Halifax, Canada

#227 Jul 5, 2008
Hi Hellen,The injections are quiet painful but I am really wondering what else to do because where I live there is a shortage of any Drs ,but I never experienced any pain like this before and like you said its quiet depressing.I have small kids and now that they are out of school for the summer its even harder.Thank God for my wonderful husband.I have to see my surgen again on the 16 of july and try to convince him remove it ,but it almost makes you feel like you are making things up..like get real..they try to cover there tracks because like i said once before my so called day surgery was a 10 day stay in hospital with a damaged bladder ,blood clots, infections which still persists when i am not on antibiotics and pain..I just feel so rotten all the time..but please find out why they want to do injections mine are for nerve damage that the dr also done to me..oh the fun xxx mom1965
Helen

UK

#228 Jul 5, 2008
Hi Mom
Thank god my children are grown up, I dont think I could have coped. I fortunatly have a wonderful consultant . The inections are placed around the bladder apparently to stop the leaking/incontinence. The whole of my inside is very tight and Im in no doubt I will never be able to return to having a sexual relationship. Im glad I have a good husband. Where the tape was removed the stitch that was on the outside has left scaring around the entrance to my vagina, if I wipe myself too hard it rips. I currently am again on a course of antibiotics.......whoopy arent we all so lucky to get all these free treats with a TVT .

I have been also offered to have the tape redone either one of them. The one that the tape goes in the groin again or the one where the tape ends come out of your pelvis. I wonder what my answer is.......anyone guess!!?

Helen
Helen

UK

#229 Jul 5, 2008
Robin wrote:
Can anyone recommend a Dr. to remove the TVT tape. I am desperate to get it out. I have so many problems that have started since I had this done.
Try asking on this site. They seem a really helpful bunch of ladies

http://www.hystersisters.com . They have articles regarding TVT
Good luck finding someone

XX
Not sure what is going on

Elkton, MD

#230 Jul 5, 2008
I had the tvt operation on June 24th. No problem, was sent home same day. I have begun to notice, though, as the days have passed, that I have this very strong pressure as if my uterus was going to fall out of my body! In addition, I am experiencing a discharge (not spotting), which is not painful but uncomfortable. It does not have the odor that others have described here. I can't seem to find anyone who has described this really uncomfortable pressure. I don't know if it's just because it's early or if the sling is actually falling out. Because it's so early, I haven't exercised or had sex, etc. Again, I'm not in pain, just kind of achy and tender inside. And I hate this discharge and pressure.
Any thoughts?
helen

UK

#231 Jul 6, 2008
Not sure what is going on wrote:
I had the tvt operation on June 24th. No problem, was sent home same day. I have begun to notice, though, as the days have passed, that I have this very strong pressure as if my uterus was going to fall out of my body! In addition, I am experiencing a discharge (not spotting), which is not painful but uncomfortable. It does not have the odor that others have described here. I can't seem to find anyone who has described this really

uncomfortable pressure. I don't know if it's just because it's early or if the sling is actually falling out. Because it's so early, I haven't exercised or had sex, etc. Again, I'm not in pain, just kind of achy and tender inside. And I hate this discharge and pressure.
Any thoughts?
Hi
when are you due back to see your consultant. I would make an appt as soon as you can to make sure it isnt eroding. The discharge and aching is normal, well I say normal its what we all have felt. I feel like my inside is going to fall out some days and I have had mine removed. Can you feel the tape inside yourself. Mine actually cut into me. I had to have it removed under general anaesthetic it was so painful to even walk in the end.

I wish you all the best
xx
Renee

Oil City, PA

#232 Jul 6, 2008
To those looking for recommendations for a qualified surgeon to successfully remove the mesh... I would totally, unreservedly recommend my wonderful urogynecologist: Dr. Jerry Lowder at Magee Women's Hospital in Pittsburgh, PA. He is awesome. So kind and caring, and VERY skilled. I live a two hour's drive from Pittsburgh, but he would be worth traveling much farther, IMO.

I had total vaginal mesh erosion (from the TVT-O procedure done by my local gynecologist) and Dr. Lowder removed ALL the mesh (except the very ends, which are deeply imbedded in my upper legs, and NO doctor ANYWHERE will attempt to remove those).

I am almost 4 weeks (mesh-removal) post-op now. Still off work, though... planning to return in a couple more weeks. I still feel exhausted and worn out. I think the last few months (the TVT procedure, the complications from it, then the mesh removal surgery and recuperation from that) has depleted all my "reserves"... and I need a little more time before returning to work to be able to start replenishing those reserves.

Helen, I am feeling much better, though -- thank you for asking! I saw the doctor on Wednesday, and he suggested pelvic rehab. I had one visit so far, and another next week. I am doing some stretching exercises at home which I think are helping already. I am happy about that.

I am so sorry to hear about the return of your incontinence.:o( I know nothing about any injections, so I have nothing to add about that. I just wish you all the best. Keep us posted!

xoxoxo



Joan

Devils Lake, ND

#233 Jul 8, 2008
Researching the bladder suspension as a remedy for a prolapsed bladder. Is there something better?
Renee

Oil City, PA

#234 Jul 8, 2008
Oh, Joan... I dunno. My bladder wasn't prolapsed so I have no experience with that. Have you seen a urogynecologist?

But the one thing I do know is that the TVT mesh procedure would be my absolute LAST CHOICE for ANY problem!!!
Gaye

Bogart, GA

#235 Jul 8, 2008
I had a tvt procedure for uterine wall prolapse, also some posterior repair, on June 24. The operation was a little more involved than originally anticipated and took 3 hours instead 1. My doctor used bovine material instead of the mesh. Has anyone had experience with this material? It is supposed to dissolve as tissue grows over it. I was able to urinate immediately when I left the recovery room and was released to go home shortly after that. I have some feeling of pressure and a little achiness so I'm still taking Motrin but I think that is normal. I'm just relieved that I didn't have mesh.
Meg

Pelham, AL

#236 Jul 8, 2008
Well hello and god bless you women. I am a mother of three young sons ages 5,3, and 2 and found out at the beginning of April that I had a prolapsed uterus and bladder, I tried to live in misery but with three sons and active schedule I went with the doctors advice and had a TVT and Hysterectomy. Honestly recovery did'nt seem that bad for myself but now after a seemingly perfect procedure and healing time I decided I was capable of taking the trash cans to the road now I'm experience back and abdominal pain and pelvic pressure again also with an urgency to urinate. Still I have to sit there for a few minutes before I can urinate.We have had intercourse maybe three times and there is some discomfort but not as bad as before surgery. Please if anyone has any suggestions HELP.....
Helen

UK

#237 Jul 9, 2008
Meg wrote:
Well hello and god bless you women. I am a mother of three young sons ages 5,3, and 2 and found out at the beginning of April that I had a prolapsed uterus and bladder, I tried to live in misery but with three sons and active schedule I went with the doctors advice and had a TVT and Hysterectomy. Honestly recovery did'nt seem that bad for myself but now after a seemingly perfect procedure and healing time I decided I was capable of taking the trash cans to the road now I'm experience back and abdominal pain and pelvic pressure again also with an urgency to urinate. Still I have to sit there for a few minutes before I can urinate.We have had intercourse maybe three times and there is some discomfort but not as bad as before surgery. Please if anyone has any suggestions HELP.....
Hi

I hate too say it but I think the only suggestion we all would say is. Have it removed before it does as much damage as we all have......It sounds just like so many stories before you. The begining of a nightmare

Its far better to pee your pants than not too pee at all

good luck sweet

XXXXXXX
dph

Mount Kisco, NY

#238 Jul 10, 2008
Hello All
I just had the procedure done on 6/2/08. I was out of work for 3 days. My stress incontinence stopped immediately. I had a urodynamics test done before the procedure which tells how much pressure to put on the tape. It is my understanding that before this, they sort of guessed. Now they know exactly how much pressure to put on. Also, It is normal to have some inner thigh and even hip pain or a few days, since they go so close to a nerve. I did have frequency and urgency which appears to be resolving, I think I exercised too quickly. It also was gone immmediately after the proceure. I think I have a yeast infection and also swelling. I did have unrgency and frequncy before the prcocedure to begin with. Mine was done by a urologist who has done thousands of these with no problems. I am curious if many of you with all these issues, had the testing and who did you surgery, a urologist or your gyn?
I was told my sympoms should l go away in two weeks, I am negative for infection, but am being treated anyhow with bactrim and for the yeast which has helped alot. If this does not work they said I can try detrol for a few months but that al of this should resolve..
These stories are scary, I am not sure if it is the tape, or unqualifed MDs.
I have a friend who had it done a year ago by a female gyn-urologist specialist, she has had no isssues at all.
dph

Mount Kisco, NY

#239 Jul 10, 2008
Kevin wrote:
Well even after showing my wife this site she wants this surgery. Does anyone knoe the incidence of complications per 1000 surgerys done or any other statistical data. My opinion is this is horrible and hopefully something can be done to help all of you. I know I will not deal with complications well. This Dr has told my wife he has done over 600 of these with no complications. I hope he is not lying.
Kevin
My MD has also done thousands of these. I would be curious to see how she makes out, I do think there is a 20% risk of increased urgency in frequency. It also depend on if you had this issue and what caused it. If it is structural versus overactive-bladder issues.. My urologist also told me he can easily remove the tape...and there is no risk of adhesions due to where it is placed. I think there are several different typs or mesh and procedures being discussed here . I am not sure where all of these horror stories are are coming from or who did their procedures andif they asked what the MD qualifications were before they let him do it. I believe it should be donee by a urologist or a uro-gyn. My final vote is not in, but I think it is going to be fine. The sress incontinence was gone immedialty. I did not need cather, nor did I need to self cath. He did say I could exercise too quickly which caused some frequency and urgency due to swelling. I also am sensitve to yeast and the antibiotics at teh procedure gave me that,
We'll see...like I said I also had a girlfirnd who had no issues at all.
Lana Keeton

Los Angeles, CA

#240 Jul 13, 2008
Dear DPH,

Please do not give anyone advice. You have done no research and you are guessing at what you say.

You believe that your symptoms will resolve in two weeks. Wait until you are well before you recommend this to anyone.

I started this Topix subject and I know what I am talking about. Go to the beginning and you will find me there.

A few questions...
If your MD has done thousands of these, is there an epidemic of incontinence where you live? Is Connecticut known for incontinence? I find it strange that one doctor would have done so many.

It does not matter what kind of doctor does the procedure, what the method of implantation is or what tests were done, erosion is still a major irreversible complication.

These synthetic surgical meshes erode (move and cut) into human tissue inside the body by themselves regardless of how well placed or by whom. Erosion can happen years after implantation. I know one woman who had hernia mesh erosion after 12 years.

All of these procedures are petroleum based synthetic surgical mesh. All of them are harmful.

The actual complication rate of synthetic mesh bladder suspension surgery is 30-40%. I have sworn deposition testimony from a doctor who is a paid consultant by Ethicon/Gynecare/Johnson & Johnson. Even the "successful' surgeries wind up with urge incontinence. You trade one kind of incontinence for another and now you have a foreign body implanted in you and have had surgery.

I hope you do have a good recovery. Just in case you do not...DON'T RECOMMEND SYNTHETIC MESH BLADDER SUSPENSION SURGERY for a year or so!

IT IS A LIFE-THREATENING PROCEDURE FOR A NON LIFE-THREATENING CONDITION!

All the best to everyone, a fellow mesh sufferer, peace and blessings, Lana

Lana Keeton
P.O. Box 491754
Los Angeles, CA 90049

[email protected]
www.theladyisachamp.blogspot.com

PLEASE GO TO THE LINK BELOW AND ASK TO JOIN MEDICAL MESH...THERE ARE ANSWERS THERE!

Medical Mesh Yahoo Group: http://health.groups.yahoo.com/group/medicalm...
Lana Keeton

Los Angeles, CA

#241 Jul 13, 2008
"TRUTH IN MEDICINE" a patient advocacy organization has been created by the members of Medical Mesh...Please join Medical Mesh and help us to stop this from happening to other people!

From Device Talk on Medical Device and Diagnostic Industry (MDDI):

"A group of patients who have been harmed by complications from surgical mesh have formed an advocacy group, "Truth in Medicine".

One of its aims is to move surgeons away from synthetic meshes, which it says cause more harm than doctors and device companies let on, and towards biocompatible ones.

According to Lana Keeton, one of the founders of the group, its goals are:

* To stop the implantation of all petroleum-based synthetic medical/surgical meshes in humans. To get Congress involved because it is unlikely the device industry would take the initiative on its own.

* To require changes in surgical consent forms regarding implantable foreign bodies to include: the name of the implantable; whether it was a PMA or 510(k) product; results of clinical trials, if any; and all known risks and complications.

* To provide patients, upon discharge, with adverse event reports that they could directly send to FDA if necessary. Information about the implantable would already be filled in by the hospital.

* To set up a Superfund to tax the Pharmaceutical Companies to help those harmed by surgical meshes, which would alleviate the need for some patients to sue."

“Every single day, there are new victims,” Keeton wrote.“This has to be stopped.”

JOIN MEDICAL MESH AND WORK WITH "TRUTH IN MEDICINE"

STOP OTHER PEOPLE FROM BECOMING VICTIMS!

peace and blessings, Lana

Lana Keeton
P.O. Box 491754
Los Angeles, CA 90049

e-mail: [email protected]
blog: www.theladyisachamp.blogspot.com

PLEASE GO TO THE LINK BELOW AND ASK TO JOIN MEDICAL MESH...THERE ARE ANSWERS THERE!

Medical Mesh Yahoo Group: http://health.groups.yahoo.com/group/medicalm ...

Tell me when this thread is updated:

Subscribe Now Add to my Tracker

Add your comments below

Characters left: 4000

Please note by submitting this form you acknowledge that you have read the Terms of Service and the comment you are posting is in compliance with such terms. Be polite. Inappropriate posts may be removed by the moderator. Send us your feedback.

Johnson and Johnson Discussions

Title Updated Last By Comments
Gynecare tvt settelment Sep '17 Cindy Riley 1
News Transgender teenager Jazz Jennings signed to be... (Mar '15) Aug '17 TipsyFromCentralC... 4
Ethicon Suture Recall (Jun '09) Apr '17 Lika123 50
Poll Injured by Ethicon's Prolene Hernia/Bladder Mesh? (Jul '08) Apr '17 Denise Schrader 203
News N/R: Lack of mental, epileptic drugs hit health... (Mar '17) Mar '17 Humanspirit 1
Successful removal of TVT (Apr '11) Jan '17 Jackiedee 89
shampoo for over 40s (Apr '07) Aug '16 Vcb 17
More from around the web