Damage changes lives of victims
Join the discussion below, or Read more at Chicago Tribune.
#1 Dec 4, 2007
I had a brain tumor called acoustic neuroma and Dr. Marzo was my doctor. This article hits everything right on and is a much needed facility around here...sign me up!!
#2 Dec 9, 2007
interesting... I had surgery for congenital facial paralysis at Loyola in 1972 - I allegedly had "Chicago's Finest" surgeon (forget his name - it was too long ago!)- surgery was an utter, complete disaster. The surgery's complete failure really hurt ... but I had already graduated from college and was becoming a teacher. I ultimately had a second 'smile surgery' in NYC, via NYU's "facial Paralysis Clinic" (I had 'done my homework' this time!)... Thoughts...1- Yes, a facial paralysis is hard to deal with (I *still* HATE to return to IL - I call it "HELLinois" because of what it felt like to grow up in ignorance and discrimination - truly "the only one")... but, like every other disability - you have to deal with it to move on. It may not change, so you have to! 2- No - there still is a life to lead - new folks w/ facial paralysis MUST learn to "talk about it" ... a facial paralysis is a disability, like spinal cord injury, visual impairments .... yes, it hinders communication - but if the person w/ facial paralysis learns to use voice tone, body language, etc., I personally believe others see thru the paralysis to the person within. My "smile" is most assuredly not 'normal'... but I can't recall any instances where strangers recoiled in horror, made snide remarks, etc. The GREATEST pain is in the ALONENESS - when you are convinced that no one else on earth has it and no one else knows or understands how you feel. I only with this clinic was available 35 years ago!
#3 Jan 8, 2008
AND then you have Alcon Labs. of Ft. Worth that makes medicine that BLINDS you and they don't give a c---
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