Botox now being used to treat illnesses

MINNEAPOLIS - On a lark, Dr. Andrea Boon decided to try some Botox a few years ago. Full Story
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Verna from Australia

Springwood, Australia

#23 Jul 16, 2012
16th July, 2012

I am going back to my Neuro to try the Botox in my toes once again. I have read an article that the Botox should be injected in the base of the spine and not the toes.

Has any one else heard of this. A reply would be appreciiated.

Kind regards


Since: Nov 11

Location hidden

#24 Aug 21, 2012
Are you that stupid???? It was used as a inter muscular injection long before it became known as Botox.

Amsterdam, Netherlands

#25 Oct 8, 2012
I have it to and also live in holland
botox made it worse in my condition
Angela_Holland _Europe wrote:
<quoted text>
Hi Monica,
I live in Holland and there is no information about moving toes at all on Dutch sites.
I have the syndrome since one and a half year and I have felt very lonely in this syndrome because I cannot find anybody in Holland who has this.
This is the first time I read things from others who have moving toes / painful legs syndrome.
I am very happy for you that you have been succesfully treated with Botox gives me hope. Thanks a mille for your information. Can you walk normally after you are injected? Does botox stop the pain plus the movement of the toes? Are there side effects from Botox injections? Or is Botox rally a miraculous treatment? It is as like I read a message from heaven.
Thanks again.
Smile, Angela
Verna from Australia

Auburn, Australia

#26 Oct 19, 2012
20th November 2012

Am trying to have Botox in the calves of my legs. Has any one had Botox in a large area. Please let me know I would be very grateful.

Thank you

Verna from Australia

Auburn, Australia

#27 Nov 9, 2012
10th October 2012

Hello again. Just came back from the Neuro who tried Botox in my calves. Unfortunately this did not work, but once again the Botx in my little toes did work.
My Neuro says I now have Neuropathy in both legs. There does not seem to be any treatment for this complaint. Any person with any ideas would be appreciated.

Thank you

Emily from West Virginia

Independence, WV

#28 Feb 16, 2013
I was diagnosed with PLMT in 2004. Of the many things I've used to alleviate my pain I think the Botox injections have helped the most. After 3 months my pain and toe movements return.. The pain (foot, calf) is more disturbing than the toe movements.

Lyrica & Cymbalta have also helped.

I've been wearing Vibram Five Finger shoes for 2 years. They really help me walk longer! I love them.

Verna, Hope your pain is better!
Verna from Australia

Auburn, Australia

#29 Apr 5, 2013
Off to the Neuro on Tuesday. having tests done to see how much the muscle and nerves in my legs have deterioted. Pain still as bad as ever and the only relief is Lyrica.
Verna from Australia

Auburn, Australia

#30 May 17, 2013
Pain in my calves and feet is becoming worse. There does not seem to be any drug that will help with Painful Legs and moving Toes Syndrome.


Fayetteville, NC

#31 Jun 23, 2013
I thought botox was already known to treat migranes?
David From Scotland

Falkirk, UK

#32 Aug 6, 2013
I was diagnosed with painful legs moving toe syndrome maybe 4 years ago (right foot/leg only). Originally I had no pain anywhere, just a twitch in my big toe which was stopped (excluding very occasional twitches) with Botox injections into a muscle on the inside of my foot. I decided against the injections (2011), as it was a hassle travelling. The twitch came back after 3-4 months, but with no other issues.
Since the turn of the year I had a sore foot upon waking up, for the first 5-10 mins of walking around, so I returned for further Botox injections. The twitch and sore foot are gone but recently I’ve noticed small twitches creeping up my from the inside of my ankle, to half way up my calf muscle. At present this is more annoying than painful. The Doctor who gives me the injections advised against Botox long term in my foot, and definitely against getting it injected into my calf.
My local GP’s have never heard of this let alone have any idea regarding long term issues/ treatment (except from Google…). It seems such a strange random problem, and judging by the locations and amount of people on this board it seems very uncommon.
Does anyone know the long term issues of Botox injections or just this syndrome in general? Any input from someone who’s had this for a long time, and knows the extent of the condition, would be appreciated

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