Mirapex and fibromyalgia...

[Eileen Thomas]

bob wrote:

has mirapex been CAUSING facial twitching for anyone?

EILEEN not so you would notice but I have terrible pain and stiffnes in my legs and back.I was diagnosed with parkinsons nearly 3 years ago,although Iknew I had it 5 yrs before that.I feel drowsy and keep falling asleep without realisng it.It would be nice to hear some positive feedback aBout anything to do with PD.

[Kuchismo]

Mirapex can be deadly!!!Several weeks ago I fell asleep while driving, suddenly and w/o warning.
My car was totalled.Luckily I was OK.
I also had beeen suddenly falling asleep at the dinner table. I have been taking Mirapex plus Sinemet for several yrs.My Dr explained that this problem is a known side-effect of Mirapex.
I am now slowly weaning myself off of it.
Please be cautious with this drug!

[larry]

Perhaps every one is taking too large of a dose of mirapex if you read more aboit mirapex and rls plmd,fibro.cfs...etc 0.75 mg is the max dosage any more than that and you have sever personality disorders,mood swings, gambling,suiside,ocd,muscle twitching and pain.
If that dosage is not working perhaps other health problems are causing your symptoms if you do not have parkinsons lower your dose talk to your doctor get a second opinion.take a family member or close friend to doctor with you to tell about your mood disorders.

[larry]

Mirapex for parkinsons disease if it is causing mood disorders and falling asleep at inconvenient times like driving,cooking,private time with your spouse etc perhaps a slightly lower dose would also help.
Mirapex is not a cure only a drug designed to help make symptoms more tolerable and improve daily quality of life.
Perhaps lowering your dosage as little as 0.12 mg will help with daytime sleepiness and mood disorders sometimes you can be over medicated.

[jen]

I take Mirapex for Parkinsons disease I am 50 - diagnosed about 3 years ago. I am taking 1 mg Mirapex 3 X day. I have been having sleep problems for about a year. The physicians want me to take anti-depression meds for sleep but they really mess with me. Recently muscle and joint pain, which has been getting worse. Any other PD patients in the same boat?

[Kuchismo]

Jen,
Now that I am off Mirapex my insomnia seems to be getting much better and I have had several full night sleeps I had'nt enjoyed in yrs.Im only off
the drug for about a week.Am now only taking Sinemet 50/200 4x day.

[lella]

My sister has to take Mirapex for Parkinson's and I would never dream of taking that stuff for Fibromyalgia. She has had so many problems with Mirapex and she HAS to take it. She now takes no more than 1.5 mg whereas she was taking 3.5mg. She would space out while driving, for instance and could never get more than 3 or 4 hours sleep a night. She is still employed full time. It's awful for her. I came here thinking to ask about how to help her deal with her Parkinsons.

I have fibromyalgia and have taken something called InflammaRest for several years now to combat symptoms. It's been good for me but I'm not recommending anything for anyone. It's so individualized, these supplements and drugs that you really need your rheumatologist to recommend things. Are some of them really giving people mirapex for fibro??!! Yikes!

[Beth]

I was diagnosed with Fibromyalgia 3 years ago (age 48) about 8 weeks after a total hysterectomy. Tried everything from natural to synthetic to help the pain and stiffness. Prior to my diagnosis, I was healthy and extremely active - loved skiing, biking, etc. After bouncing from one doctor to another, I finally found a rheumatologist that prescribed Mirapex (.125) two months ago. I feel FANTASTIC! The severe pain and stiffness I felt is finally gone. I think the key to this medication is not to take large doses on a daily basis. I am sorry for the people who have not had a good experience with this drug and hope that you find something that will work for you. God bless!

[Nicole]

Lillian, do you have fibromyalgia? If you do than you know that sufferers are willing to try anything to relieve the pain. Preliminary studies are promising for Mirapex and I for one am willing to try it. Since there are no drugs used to specifically treat fibromyalgia we often depend on drugs used to treat other conditions.

lillian wrote:

how could you possibly consider using a dopamine agonist for RLS or fibromyalgia??? people with parkinson's frequently MUST take this drug--owing to inability to take one of the other agonists or sinemet--but do not consider it a miracle drug by any means--what are you all thinking???????just look up one of the web sites devoted to parkinson's disease and search the name of the drug.....

[Karen]

Hello Joni:

I can't seem to be able to open this web site.
I have had fibromyalgia for 5 years and just recently the pain got so much worse. I am on prednisone, not getting much relief though. I would like to try this supplement however the web site is available.

Karen

Joni wrote:

There is a wonderful supplement made with organic Aloe Vera as the main ingredient that has had very good results with Fibromyalgia sufferers. The web site that you can order a free bottle of this supplement is https://lifeforcefamily.com/flash7.html
The free bottle will last 15 days, long enough for you to see the results. Enter Referral ID #20564977 for your free bottle. I have had really good results taking this supplement for the past year.

[Mirapex and Requip]

Parkinson's drugs like Mirapex and Requip have been linked to compulsive disorders like gambling addictions. For more information visit:http://www.yourlawyer.co m/topics/overview/requip

[Lisa in Huntsville]

I have been on Mirapex for several years. About 6 months ago I had to increase my dosage. Almost immediately I started having upper arm pain. It felt like my muscles were being ripped from my bones. I could hardly walk when I got up. I couldn't hold a coffee cup with one hand or turn a doorknob. My cousin mentioned to me that it could be related to the Mirapex. I am getting ready to take myself off the Mirapex and see what happens. I have asked 3 doctors and none of them told me that it could be causing this pain. I have been tested for rheum. arthritis. My hands are swollen and discolored. My right wrist is twice the size and there are no physical reasons. Stay posted for my results.

[sue]

My husband has fibro, he's had it for more than 8 years he has horrible pain everywhere all the time..legs,arms,back, abdomin,jaw,throat,head,eyes.. I can't even begin to mention the things we've tried. We live in Canada and here medical care is useless for such a disease. He hasn't tried Mirapex yet, but the fight or flight theory sounds right to him, he had traumatic experience at age 17 and the pain persisted in a a specific area after surgery, But after around 10 years started to appear everywhere else. What I would like to know is how many people out there have used Mirapex for a post traumatic fibromyalgia success or not.

[Kelly]

I have just been diagnosed with Parkinsons 5 weeks ago and have been on a very low dosage of Mirapex for 4 weeks. Started out .25 mg 3x day the first 2 weeks and now am on the full dosage (that the doctor prescribed me) of .5 mg 3x day the last 2 weeks. When I started the full dosage, I had bad side effects (mainly throwing up), so they put me on Tigan. I take one of these before I take the Mirapex. That helps the nausea. Before I got diagnosed with PD my main symptoms were a tremor in my right hand, not being able to use my right fingers at all and excruciating pain in my right shoulder/arm. Since I have started the Mirapex, all of those symptoms have diminished a little. At least now I can type with my right hand and my pain is much better. However, I now have new symptoms that I think are worse than what I originally had. The main ones being spasms (internal pulsing) on the insides of my feet. It is severe and painful. Also, I am having facial muscle problems. I don't know how to exactly describe it except it feels like things are moving around in my face and it hurts. In addition, my head feels like it is in a vice. Sorry this is long, but I would appreciate anyone's feedback if indeed they think it is Mirapex that is causing this. Could it be b/c I have just started taking it, it is being introduced in my body and these symptoms will go away like my original ones? Please help as I am about to go crazy. By the way, I am a healthy (well maybe not anymore) 41 year old female. The chances of me getting PD were so rare. I wish I had listened to my gut feeling over a year ago when the onset of symptoms started and got diagnosed sooner. You never know when your life is about to change.

[Cindi]

Hi, I just found this site, i was looking for a place that has free or at least half off medications, I recently have been out of work, no insurance to speak of and as you all know Meripex is very costly!! I was lucky my Doc had some samples for me, but only enough for about 20 days. I have RLS, LUPUS and i think FIBROMYALGIA,HYPOTHYRIOD as well, yes im a mess, any ideas on how to get meds ceaper??

[Terri Urbandale]

Mirapex may be a godsend for RLS but what is it doing to the whole body. I've been on it for several years. Recently doubled by dose,(1 yr ago) now have pain in feet, hands, legs. Hoping that it is just the Mirapex. I am seeing a Rheumatologist in a couple days to rule out other disease. However, have had blood test, RH, ANA, ASO, Sed rate and all test return ok. Hoping the Mirapex is the problem but then what do you do for RLS? Scary because the legs thing really sucks.