UNM clinical trials target breast can...

UNM clinical trials target breast cancer treatments

There are 4 comments on the Las Cruces Sun-News story from Jun 8, 2008, titled UNM clinical trials target breast cancer treatments. In it, Las Cruces Sun-News reports that:

Doctors could offer Judy Madril little hope in July 2005 when the Placitas woman was diagnosed with inflammatory breast cancer, a rare and highly aggressive form of the disease.

Join the discussion below, or Read more at Las Cruces Sun-News.

Ginny Mason

United States

#1 Jun 9, 2008
Congratulations to Ms. Madril! A diagnosis of inflammatory breast cancer can be daunting but more and more of us are surviving. I was diagnosed in 1994 when very few survived and now work with the Inflammatory Breast Cancer Research Foundation a non-profit group dedicated to furthering understanding of this disease by the public and medical community and facilitating research to improve diagosis and treatment. Clinical trials that include IBC patients are important and it is equally important that their results be documented independently since this is a unique disease, unlike most other breast cancer. Thanks for sharing Ms. Madril's success. We wish her many, many years of NED (no evidence of disease).
Ginny Mason RN, BSN
Executive Director
IBC Research Foundation
www.ibcresearch.org
Pam

Crown Point, IN

#2 Jun 9, 2008
Thank you so much for offering this story of hope related to Inflammatory Breast Cancer. We appreciate your presenting information on this disease, and the information that you don't have to have a lump to have cancer. In addition, that it is a survivable disease! Congratulations Madril on your beating the beast!
Lil Bush

Albuquerque, NM

#3 Jun 9, 2008
Ginny Mason wrote:
Congratulations to Ms. Madril! A diagnosis of inflammatory breast cancer can be daunting but more and more of us are surviving. I was diagnosed in 1994 when very few survived and now work with the Inflammatory Breast Cancer Research Foundation a non-profit group dedicated to furthering understanding of this disease by the public and medical community and facilitating research to improve diagosis and treatment. Clinical trials that include IBC patients are important and it is equally important that their results be documented independently since this is a unique disease, unlike most other breast cancer. Thanks for sharing Ms. Madril's success. We wish her many, many years of NED (no evidence of disease).
Ginny Mason RN, BSN
Executive Director
IBC Research Foundation
www.ibcresearch.org
We went to the UNM Cancer Treatment Center last winter. Initially we were impressed. They done test tosee if she had a "Gene" which she did. They were very aggressive and scared the crap out of her.
She has no signs of cancer but wanted to give her a full hysterectomy and mastectomy on a crap shoot.(seriously) They wanted to gut her like a fish with nothing to go on other than her ancestory (Jewish).

I got into it with the doctors. My logic can get annoying and I know it but I said to them. Would you say the same thing to a healthy 25 year old girl with a whole futre of family and everythng and to ruin whatever plans she had and the chances of it manifesting into something is low? They said yes so we bailed.

Went to another reputable Dr not associated with UNM. Removed only the ovaries and will closely monitor the brests in the years to come.
Aangelnxtc

Chillicothe, OH

#4 Jun 15, 2008
Congrats on ur NED. Wish I knew ur test results. I also have IBC her/2 neu +++ overexpressed and ER/PR-. If U are her/2+ keep in mind that herceptin does not break the blood brain barrier, Tykerb does. This is the drug that was approved in March of 07 I was DXed April 07. I found this info out when the IBC moved to my brain. Damn FDA, My thoughts if FDA would approved the drug to be administered for people in my status at onset, My days wouldnt be numbered. Guess they are to busy fast tracking ear infection antibotics. Dont we have enough of that.

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