Lithotripsy helps with agony of kidney stones

Full story: Monterey County Herald

Dear Dr. Gott: I was recently diagnosed with kidney stones. The pain was some of the worst I have ever experienced.

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Estella

Independence, KY

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#1
Feb 2, 2008
 

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I had a kidney stone on Oct. 23, the worst pain ever. They put in a stent, then did lithotripsy the following week. I was told I had many more stones, but they wouldn't do anything until the stones broke loose and started to cause pain. Said they could stay 'silent' for years.

I took Chinese herbs Dissolve k-s, plus the herbs Marshmallow and Hydrangea, had reflexology treatments, and drank lemon juice in water every morning half an hour before eating or drinking, plus lots of water all day. Xray after 6 weeks showed no more stones. My Docs both say there must have been a mistake reading the first xray.

I'm willing to do just about anything to keep that pain from ever happening again. Any thoughts?
Lisa Bueno

United States

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#2
Feb 10, 2008
 

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My daughter is 17 years old and was hospitalized for a kidney stone. The surgeon decided to put in a stent. A week later she had lithotripsy to break up the kidney stone which was approximately 1/2 in in length over a week ago. The stones have not passed (she urinates into a strainer) and she is still in pain with bleeding during urination (due to the stent?). What would be the next procedure to consider? She remains at home on Vicadin every four hours. Please write back!
thad

Monterey, CA

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#3
Feb 10, 2008
 

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I've had several kidney stones. Yes it hurts like a son of a b*****. The first time is the worst because you don't know what's happening. Just take the pain killers. If the stones are too big, you break them with the lithrotripsy. If they're small, they will pass no problem. It's the intermediate sized ones that really really hurt. Women that I've talked to that have had stones say it's worse than pregnancy. Just one of those things in life that you have to deal with, sorry there is no easy answer, but I would say that now that I know what's going on during a kidney stone attack, it's easier to deal with. It won't kill you. Make sure you have a good urologist.
Natasha

AOL

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#4
Feb 11, 2008
 

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Hello
I was recently pregnant and delivered in mid July. Soon after childbirth I had alot of female problems, resulting in a hysterectomy. While recovering from the hysterectomy, I was still in horrible pain. My Doctor ordered a catscan, which is when he discovered I had HUGE kidney stones and said they had to have been in there for at least 2 years. I went in for surgery that night that to have a stent put in my left kidney (which was completely blocked) I was a hair away from losing the left kindey. I also had stones on the right as well, but until they were sure that the left kidney was going to be ok, they would not mess with the right one.(Okay - this all started in December) It is now February and I am still working on getting the stones out of the right kidney and fragments out of the left uretur (which are stuck) I have stents in both kidneys and they hurt so bad - very bothersome. I take lortab everyday for the pain, otherwise I am unbearable. The thing that gets me is that I was on short term disability from childbirth then the hysterectomy. But my urologist insisted that I was fine to return to work. Fine? I was shocked... who could possibly be fine with 2 stents, huge kidney stones, having surgery every 2 weeks, xays every 2 weeks, I can't stay out of the bathroom becuase I always feel the urge to have to go (even though I can't) I am passing blood and straining my urine. Now you tell me how I am supposed to be in an office environment with a smile on doing my job!!!??? So, no disability for me because they said "You have kidney stones - you are not disabled" I am so angry about that. I have two children to take care of and I am not working. I was fired after I had the baby. I went back to work after my 3 months was up, I lasted one week and I had to go back in the hospital. It has been a really rough past 7 months for me and my family. But I can certainly sympathize and relate to the kidney stones, that is for sure. They are not fun! Passing a stone is worst than childbirth! The stent pain is just flat out bothersome and annoying. I have to take my pain medicine just to stay out of the bathroom and be able to move around without that urge all the time.
Sue

AOL

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#5
Feb 12, 2008
 

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How I sympathize with you all. Have had 4 bouts of stones. First stone was so large
they had to surgically remove it. Then I had
the lithotripsy, which was HORRIBLE. Took 3
months to pass all the fragments, AND the stents
are just as bad. The surgery was actually easier.
They inserted a ballon type instrument into the
urethea and pulled it out with a basket like
tool. It has been 9 years since last stone, and
I drink tons of lemon water every day, stay away
from coffe, chocolate, soft drinks and tea. Anything with oxalates can cause stones. The
bad news is once you get one, you have a 50% chance of reoccurence. Exercising also helps,
being sedentary promotes stones. Keep the kidneys
clean of all toxins, and lemon water or lemonade
really does help. The pain is worse then childbirth and I pray I will never have to experience this pain again.
Jen Renee

Atlanta, GA

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#6
Feb 25, 2008
 

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I feel for each and every one of you. I have a very rare disease called Psuedoxanthoma Elasticum or PXE for short. It makes my body produce extra calcium, which is just the right kinda land perfect for growin stones. I have had 11 stints, 29 stones, 17 removal surgeries and three lithotripsies. I am only 33 yrs. old and mother to a 13 yr. old daughter, a 6 yr. old daughter who has a rare brain disease and a 2 yr. old son, who just entered the "terrible twos". I am also step mother to two and grandmother to a baby boy!! I fully agree with you Natasha, I believe that stones are a very disableing thing. The last litho that I had a couple of weeks ago, they had to go through my stomach. Ever since them I have had severe stomach cramps. Going to the bathroom "#2" is out of the question. It just won't happen, which makes things much worse. My kidney is swelling and my bladder feels like it is being ripped out of my body when I have to pee, when that is possible. When I can pee, I am passing fragments of the stone which was 11mm x 8mm, but I am aslo passing really big chunks of white tissue?? I don't know why this is. Hopefully I can get this stint out next week and it will get better. But it is a very painful thing. There is just no good about it at all. May God be with you all that suffer.
Jedi Knight

Nottingham, UK

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#7
Mar 28, 2008
 

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Use the force. Sh*t happens. Just be happy and let the medics do their work. They DO know what they are doing.

BE HAPPY
Lisa H

United States

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#8
Apr 8, 2008
 

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Jen Renee wrote:
I feel for each and every one of you. I have a very rare disease called Psuedoxanthoma Elasticum or PXE for short. It makes my body produce extra calcium, which is just the right kinda land perfect for growin stones. I have had 11 stints, 29 stones, 17 removal surgeries and three lithotripsies. I am only 33 yrs. old and mother to a 13 yr. old daughter, a 6 yr. old daughter who has a rare brain disease and a 2 yr. old son, who just entered the "terrible twos". I am also step mother to two and grandmother to a baby boy!! I fully agree with you Natasha, I believe that stones are a very disableing thing. The last litho that I had a couple of weeks ago, they had to go through my stomach. Ever since them I have had severe stomach cramps. Going to the bathroom "#2" is out of the question. It just won't happen, which makes things much worse. My kidney is swelling and my bladder feels like it is being ripped out of my body when I have to pee, when that is possible. When I can pee, I am passing fragments of the stone which was 11mm x 8mm, but I am aslo passing really big chunks of white tissue?? I don't know why this is. Hopefully I can get this stint out next week and it will get better. But it is a very painful thing. There is just no good about it at all. May God be with you all that suffer.
Jen, I have PXE, too, and just recently I have started having awful stomach pain and back pain especially after eating. I'm incredibly bloated, too. At first I thought it was related to a recent stomach virus I had, but it has persisted.
Is this similar to the symptoms you have had with kidney stones? It has occured to me that it might be kidney stones do to my PXE.

Thanks, Lisa
Megan

Pomona, CA

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#9
Apr 23, 2008
 

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[I have PXE and kindey stones also and I just turned 24. Did you ever find out if its connected?
mark

Duluth, GA

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#10
May 2, 2008
 

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what do they do if lithotripsy dont work ?
Sue

AOL

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#11
May 2, 2008
 

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surgery, called uretoscopy. enter the urethea
with a long scope with a basket on it, and pull out the stone, have had both and the surgery was much easier. with lithotripsy, had to pass the granules for 3 long months and it was agony
Linda

UK

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#12
May 27, 2008
 

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Good luck to everyone with their stones.
Just have a question,
Im 18 and have had some operations to remove 4cm staghorn stones but they left some little friends in upper and lower parts of my kidney :S
Allegedly, theyre just borderline small enough to be lithotripsied, however the upper ones are likely to move but the lower ones arent.
Im a bit scared and just wanted to know from someone who has not previously referred to bloody painful procedures as 'unfomfortable'
Does it hurt?
thank you xx
jEN

AOL

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#13
Sep 10, 2008
 

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Well, it all started july when i was in vacation in Puertorico. I had a really bad pain which i went into the e.r. They gave me pain medicine and the xrays revealed i had 2 kidney stones. I then later came back to the U.S. Where my Urologist told me to let time pass to see if my stones left. weeks later i had a severe sharp pain in my right kidney. My doctor did a lithro surgery and removed 2 kidneystones and broke the rest. Later the xrays revieled i was stone free. I had my stent removed but i still had severe sharp pains. i came back to the er and the cat scan revealed that my right kidney was swollen with a stone. The stone was composed of the little stones that were broken up during my first surgery. I had an emergency operation and had my second stent put in. For some reason my doctor said to wait and see wut happens in a week. I was thinking how could i? iam missing so many days of my senior year in highschool and iam not going to work. Iam only 17 yrs old and iam going through these bad pains. Tomorrow i have an appointment with another urologist b/c supposely my first urologist is no good.. I hope they can remove this stone b/c the first urologist told me its hard cause when he tried to remove it it goes back up into my kidneys.:( wish me good luck
Cheri M

Jacksonville, NC

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#14
Sep 15, 2008
 

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Hi Lisa,

I also have PXE. I know this is suppose to be about kidney stones. My brother was also just diagnosed with PXE and has kidney stones so I was doing research. I hope your pain has resolved. I am by no means a medical professional, but the pain you were describing struck a note with me. For a while I had a great deal of pain within 15 -30 minutes after eating. It could be anything. Yogurt, spicy foods, it did not matter. Because of my new diagnosis, my physician tested me for artery stenosis and/or occlusion. He ordered an ultra sound to test the Superior Mesenteric Artery (SMA)and Celiac artery. Both were affected by the pxe. I had stents placed and the pain went away for a while. Eventually the stents failed, and I underwent bypass surgery to the two arteries. That was two years ago. Without the surgery I was told this could lead to a very serious problem called bowl infarction. If you are still having the pain after eating and they've ruled out other causes such as GI problems, you may want to ask your Doctor about your arteries. Keep me posted. Are you going to either PXE conventions this year? I'll be at both.
Lisa H wrote:
<quoted text>
Jen, I have PXE, too, and just recently I have started having awful stomach pain and back pain especially after eating. I'm incredibly bloated, too. At first I thought it was related to a recent stomach virus I had, but it has persisted.
Is this similar to the symptoms you have had with kidney stones? It has occured to me that it might be kidney stones do to my PXE.
Thanks, Lisa
Paloma

San Antonio, TX

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#15
Oct 21, 2008
 
I was hopistilized for three days! I had a stent put in me and waiting for the litrotrispys to get done! The stent is very irritating me and unconfortable
Rhiannon

Germany

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#16
Oct 23, 2008
 
I also have PXE and just recently passed my first kidney stone. I am 26. I had a ct scan done and found that i have atleast 3 more stones to pass, possibly 5.. 1 of them is too large to pass without the shock surgery. My twin sister also has PXE and is having some problems like blood in the urine.. which is how mine started. She has to be seen still by Urology. I mentioned the PXE to my doctor but he didn't know much about it.. does anyone know, is PXE and the kidney stones linked together? or am I just lucky enough to have both? lol..I also wake up 3-4 times a night to urinate. Does anyone else have this problem?
Lynn

Duluth, GA

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#17
Oct 29, 2008
 
Natasha your story totally hit home with me. I am 32 weeks pregnant and am suffering with several kidney stones. I also suffer from Migraine headaches of which I cannot take my normal meds for because I am pregnant. My employer had forced me to file FMLA which runs out in 3 weeks and my doctors office will not approve paperwork to put me on short term disability that my company is offering me. I too get the same BS of its just kidney stones, you can work. I cant stand up let alone drive from the Percocet and Lortab I have to take for the pain. It truly is rediculous the BS that not only employers put you through when your pregnant but the doctors dont really seem to be on your side either. Its definitly been a learning process and extremely frustrating to say the least. The only advice I can give anyone is listen to your body, you know better than the doctors what you are and are not capable of doing, including working. Im done letting my employer and my group of doctors dictate my livlihood and tell me how I should feel and what I should be doing. The stress is not worth it. Im probably going to be fired within the next 3 weeks. Nice huh? But the most important thing is that I take care of myself and this baby and stop letting all of these people make me feel stressed out all the time.
gina

UK

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#18
Nov 3, 2008
 
Hi there I am due to have lithotripsy next week and am quite concerned about it anyone had the experience and is it realy painful
tigger-mom

United States

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#19
Nov 3, 2008
 
Does anyone know anything about the lazer surgery they do for kidney stones? I am getting ready to have that done tomorrow. I have had all surgeries except this one, so I need to know what to expect. They are going to put in a stint after that. Hopefully it doesn't stay there long. I have had a stent before, too. If you know anything about the lazer surgery, please reply back. I want to know what to expect.
tigger-mom

United States

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#20
Nov 3, 2008
 
gina wrote:
Hi there I am due to have lithotripsy next week and am quite concerned about it anyone had the experience and is it realy painful
Gina, I have all the surgeries. The lithotripsy is the easiest one to have. They will sedate you and lay you on a table of sorts. This pad will be put against the kidney that needs the lithotripsy. If you are sedated enough, it is not bad at all. I would much rather have that any other procedure. You might be a little sore on that side the next day, but take Tylenol and you will do fine. I am having the lazer surgery tomorrow. Do you know anything about that? That is the only surgery I have not had. You will do fine. Just do what they ask you to do and relax as much as you can. It will be over before you know it. They do not knock you out. They relax you and that makes it better. Hope I helped.

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