Polypropylene TransVaginalMesh and au...

Polypropylene TransVaginalMesh and auto immune disorders

Posted in the Mayfield Forum

First Prev
of 2
Next Last

Since: Dec 12

Madisonville, KY

#1 Dec 19, 2012
My name is Pat. Just under three years ago I had a "simple" surgical procedure to correct urinary incontinence. Since the surgery, I have experienced several complications and have lost my quality of life. Besides the constant pain and erosion of the mesh, I suffer from auto immune disorders that were not there before the surgery, nor was I ever warned about the possibility of it occurring. In the past two and a half years, I have been diagnosed with fibromyalgia and my thyroid is slow. I have just started the tests for lupus because I have many signs of it.
I was so afraid of all these health problems and did not know what was going on. I came in contact with other women that had the same problems and have received so much valuable information and support. There is more and more medical information becoming available to connect TVM to auto immune disorders/diseases.
If you have surgical mesh and have symptoms of or are suffering from auto immune disorders, I urge you to share your story. If you know someone with surgical mesh that suffers from auto immune complications, please ask them to share their story. There are many forums that discuss the issues of mesh but I feel we need one based solely on the auto immune connection. Thank you for reading and God Bless.

Since: Jun 12

Edmonton, Canada

#2 Dec 20, 2012
Autoimmune disease post surgical mesh implantation!!Thank you Pat for starting this post .. I agree, we need a focus on the poorly recognized often irreversible complication post mesh implantation. Autoimmune disease is being diagnosed at a high rate among victims of transvaginal mesh complications, and hernia mesh victims. The common denominators are degraded polypropylene mesh implants, Foreign Body Reaction in "high responders" (those chemically sensitive allergy prone people)and chronic inflammation........many ladies have developed Lupus, which is irreversible,Rheumatoid Arthritis, Diabetes type 1 and a host of other diseases including but not limited to fibromyalgia and chronic fatigue syndrome......I hope this post takes off and gets running as lawyers need to connect the dots too, as autoimmune disease is not on their lists of injuries that need to be addressed when compensation is being sought...nor is autoimmune disease being looked for in mesh recipients when they are chronically ill......doctors and lawyers need to pick up on this fact in order to better help the chemically sensitive people who should never ever have been implanted with synthetic mesh without some kind of patch test to identify those high responders and avoid the complications being suffered.....
Teresa

United States

#3 Dec 30, 2012
I too am a victim of mesh erosion post surgical auto immune disease. I did not have the auto immune disease until after my mesh extraction. I am so glad you ladies started this site. Hope we all can help each other here. It has certainly degraded my quality of life.
Dewey Cheatam and Howe

Paducah, KY

#4 Dec 31, 2012
It's like lawyers gone fishing in here. You get the injury, the "free" lawyer gets the money.
mesh experience

Madisonville, KY

#5 Jan 3, 2013
Dewey Cheatam and Howe wrote:
It's like lawyers gone fishing in here. You get the injury, the "free" lawyer gets the money.
Please be aware that I have just left the doctor's office so I am not in the best of moods. I am not sure which attorney you refer to? I, like so many others feel as if we have no attorney since they never want to talk to us or return our calls. The fellow victims of topix knew about my condition before the attorney did! She finally took my call when I was so upset the assistant could not make heads nor tales out of my words.
This thread was started because so many of us are being diagnosed with auto immune disorders and want to support each other. Do you
have a better suggestion? Do you have any wordly advice to give us? It says that you are in Paducah, is that true? Why do you not give your actual firm name, or are you even a lawyer? If you are, give me your information and when I return to Mayfield, I will come and see you so you can give your "expert" opinion on the mesh situation. I would love to hear what one more lawyer has to say about these MDLs and see how much you care.
Tell me, do you know anyone that has an auto immune disorder? If not, go away please and let us have a break from trouble makers.
Thank you very much.
mesh experience

Madisonville, KY

#6 Jan 3, 2013
To all the ladies that have posted on here: I would just like to say thank you and I am sorry for all you are going through. I am on the road, somewhere in Kentucky. I had to see the doctor this morning. My husband is a truck driver and I am with him on a delivery before he can take me home. I will write more later today. I am just upset and even though I have great family/friend support, I have been without internet service and just needed to touch base with fellow victims who "know" what I am going through. May The Lord bless us in this New Year!
mesh experience

Madisonville, KY

#7 Jan 3, 2013
Nonie Wideman wrote:
Autoimmune disease post surgical mesh implantation!!Thank you Pat for starting this post .. I agree, we need a focus on the poorly recognized often irreversible complication post mesh implantation. Autoimmune disease is being diagnosed at a high rate among victims of transvaginal mesh complications, and hernia mesh victims. The common denominators are degraded polypropylene mesh implants, Foreign Body Reaction in "high responders" (those chemically sensitive allergy prone people)and chronic inflammation........many ladies have developed Lupus, which is irreversible,Rheumatoid Arthritis, Diabetes type 1 and a host of other diseases including but not limited to fibromyalgia and chronic fatigue syndrome......I hope this post takes off and gets running as lawyers need to connect the dots too, as autoimmune disease is not on their lists of injuries that need to be addressed when compensation is being sought...nor is autoimmune disease being looked for in mesh recipients when they are chronically ill......doctors and lawyers need to pick up on this fact in order to better help the chemically sensitive people who should never ever have been implanted with synthetic mesh without some kind of patch test to identify those high responders and avoid the complications being suffered.....
Thank you for posting! I have read all of your indepth information on the other page and want to say how much it has helped me and I know it has helped others also. I now see that I have not even begun to touch on all the auto immune responses affiliated with mesh. Maybe together with Hope, you and many others, we can start bringing awareness to ALL of the complications to mesh.
mesh experience

Madisonville, KY

#8 Jan 3, 2013
Teresa wrote:
I too am a victim of mesh erosion post surgical auto immune disease. I did not have the auto immune disease until after my mesh extraction. I am so glad you ladies started this site. Hope we all can help each other here. It has certainly degraded my quality of life.
I am so sorry for your suffering. I think the more outlets there are to discuss the affects of mesh, the more people we can reach!
I keep thinking that if we reach just one more person before they become a victim then we have done good. It is more like another statistic because that is all we are seen as. If you have not seen Hope's page, you should go there and post your comments. Prolene Mesh = Auto-Immune Disease. It is also on topix.
My prayers are with you and everyone else who suffers mesh.
christine

United States

#9 Jan 31, 2013
I am sitting here reading all of this and I am in tears! I have been sick since 2006 after I had the lynx bladder sling surgery I developed pain and high fevers after being busy working during the day. My fingers and toes would turn ice cold and blue and I would shake with chills uncontrollably. The fevers would get very high and the only way to rid them was to sleep them off. I started getting many infections and not able to respond to antibiotics. I was diagnosed with a gentic tissue disease in 2007 as well as two of my three daughters so I assumed the illness was from the ehlers danlos syndrome. I started seeing specialists and even going to the mayo clinic because I had elevated ACE enzyme and CRP. The mayo clinic doctors ruled out cancers and suspected an autoimmune deficiency disorder. No one ever mentioned the bladder sling. In 2010 I began having cystocele rectocele problems and my gynecologist said I should have the elevate mesh put in because of the tissue disease it is stronger. Mesh eroded and I started having many kidney and bladder infections as well as diverticulitis. I have had fevers with activity since 2006. I can function like normal now while running 100 degree fever. I feel like my insides are on fire and I have pain that runs deep in my spine. I can tell a fever is coming by the pain in my spine before it arrives. I was a very active woman who loved life and now I am 38 years old and single with three young daughters and I am unable to care for them and provide. I went to school to be a police officer when I was thirty years old and I had to quit my job as an officer because of illness. I have been in and out of the hospital with infections and doctors never put it all together. I am so very angry and I have lost everything in my life because of this. I never knew that a bladder sling was mesh. You would think that doctors would be looking into all of the sickness that we have. I feel for every woman who is having this pain and I would not wish this for anyone. Please keep telling everyone that will listen because my doctor is still implanting this in women.
Ambulance Chaser

Paducah, KY

#10 Feb 2, 2013
Help me please, your misfortune is my fortune. Don't wait, my mercedes payment is due.
Hazel

Phoenix, AZ

#11 Feb 3, 2013
It is daunting to know that in addition to complications that surgical mesh slings have been reported cause, women may also be held susceptible to other health conditions as serious as auto immune disorders. One can only imagine the havoc such condition may wreak to a patient's physical and psychological health. It helps to know more about these medical devices, visit http://www.bladderslingrecall.us for further information.
Staph Infection

Paducah, KY

#12 Feb 4, 2013
Wow, the ambulance chasers are out in spamming force aren't they? They will take all the money from your settlement. That's the only reason they are on here pretending to be real people.
Ruby

United States

#13 Feb 20, 2013
I need to know one thing does the bladder sling cause auto immune disorder? I have all the signs. I also have a lawyer on my case, they are very helpful to me. They retun my calls, the number is 1 800 226 9880, if you need help, call this number and speak with them. I also am in a lot of pain, can even walk without help, can speak well anymore, my muscel are deturating rapidly.I hope someone can answer my ?
Sandra Bloom

San Jose, CA

#14 Apr 5, 2013
More and more people are accepting the fact that auto-immune disorders may result from the use of these mesh devices. In fact, some support groups are undertaking formal studies to validate this claim.This only goes to show that complications resulting from these devices may be far-reaching. It might interest you to know the other complications by checking http://www.vaginalmeshlawsuitcenter.us/
noone

Wingo, KY

#15 Apr 6, 2013
i have auto immune diease and fibro . but never had the surgery. i guess im just one of the lucky ones.but i know all about the pain. i have kidney problems from med for lupus. sorry for yalls pain.
Valerie Griner

Valdosta, GA

#16 May 7, 2013
I have been reading the posts about mesh bladder slings and auto immune disorders because I am getting more and more ill from Sjogren's Syndrome...kidney problems, skin lesions, chronic fatigue, etc., etc. I had this thing implanted in 2002. My two questions are: does one need to have it removed(like they used to remove silicone breast implants), in order to be able to heal from the chronic inflammation, and what is the statute of limitations regarding filing a claim against the manufacturer of these nasty things?
Any information would be greatly appreciated!
anne in pain

Live Oak, FL

#17 Dec 9, 2013
I had a mesh implant in 2006 to correct POP (bladder). Since then I have been diagnosed with lupus, fibromyalgia, angio edema, connective tissue disease, motor neuropathy and Multiple Sclerosis, yes you read that right, Multiple Sclerosis. The diseases have been diagnosed with definitive testing which include blood work, CAT scans, MRI, and spinal taps. I have 7 lesions in my brain. My feet are numb, my fingers are numb, my lower legs are numb. I have chronic headaches. I have been hospitalized 4 times for infections relating to boils on my private parts. The length of stay was from 5 days to 14 days, yes 14 days in the hospital. Isolation each time, no visitors. I spent and entire year with a respiratory infection, cough, pneumonia. Now I have asthma as well, I was a school psychologist for many years and my area of interest as well as expertise was 2 to 4 year old children with all disabilities you can think of. I worked with these babies to determine what special services they could qualify for within the public school system. I had to retire since I kept getting infections. my life was ended when I couldn't help the babies anymore. Now I am home, don't go anywhere except doctors. I am headed to the hospital next week for another revision to this sling. I thought I was suffering in silence until I started to do some research as to why a reasonably healthy woman with a wonderful job and family had to be sick all the time. I have cried a million tears over this since now I realize others are getting these autoimmune disorders as well. I pray for healing for all of us.
Anne in pain

Interlachen, FL

#18 Dec 15, 2013
Has anyone read any medical research studies that attempt to prove the connection between tvm and auto immune disorders? I would like to read them and provide copies to my doc. Thank you and I am still praying for relief for all of us.
Donna Harris

Pensacola, FL

#19 Mar 25, 2014
Have you found any research on mesh and auto immune diseases?
Tammy

Minneapolis, MN

#20 Apr 11, 2014
I had my POP corrected in December 2013 and 6 weeks later on January 24th had revision surgery to remove the sling due to the infections and pain. I asked the Dr could my body be rejecting the foreign mesh...of course they always say it's possible and never really answer your question. 2 weeks after the revision surgery to remove the mesh...I woke up from a deep sleep to my tongue swelling...few days later ended up in the hospital because, my throat swelled almost shut.. and since I have broke out in hives and angioedema swelling of the face, lips and throat. I'm sorry I didn't mention after the revision surgery the Dr stated because of all the scar tissue he couldn't remove all the mesh a 1-2" peice was left in and 2 weeks later...hives and angioedema swelling...and several visits to the ER. And all I hear is they don't know what's causing it. Does anyone have these symptoms or issues from the mesh....I had autoimmune issues before the surgery and now with any warning I break out in hives or the angioedema of the face, lips or throat and now carry a epi pen always. Could these allergic reactions be from the mesh piece still in my abdomen????

Tell me when this thread is updated:

Subscribe Now Add to my Tracker
First Prev
of 2
Next Last

Add your comments below

Characters left: 4000

Please note by submitting this form you acknowledge that you have read the Terms of Service and the comment you are posting is in compliance with such terms. Be polite. Inappropriate posts may be removed by the moderator. Send us your feedback.

Mayfield Discussions

Title Updated Last By Comments
Judy Morris 4 hr letthembe 14
car vandalism 5 hr ned 4
Shadacha bagshaw 13 hr Karma 1
KJV Bible 13 hr Tab 33
Mayra Bautista Riddle 14 hr beaner 3
Kevin 14 hr dare you 8
Beth Riley. What's her deal? 15 hr just saying 3
More from around the web

Mayfield People Search

Addresses and phone numbers for FREE

Personal Finance

Mortgages [ See current mortgage rates ]