Botox now being used to treat illnesses

MINNEAPOLIS - On a lark, Dr. Andrea Boon decided to try some Botox a few years ago.

[verna]

Cam Botox relieve pain in the calves amd fee.
Thank you

[verna]

I have a condition called painful legs and moving toes syndrome. Can injections of Botox help this condition.

I am desparate, please let me know.

[Monica]

verna wrote:

I have a condition called painful legs and moving toes syndrome. Can injections of Botox help this condition.
I am desparate, please let me know.

I have Moving Toe Painful Leg Syndrome and have been successful been treated with Botox injections since 1992.

[Verna]

Hi Monica, thank you for your comments of Botox for Painful legs and moving toes sydrome. I have
written to my Neuro and received a negative reply as he says it does not work. How can I get this Neuro to give it a try. I am in so much pain.

[Vera]

I have been getting Boxtox injections for 16 years and have been treated successful. It has allowed me to have a great life and be able to work. I been treated at Lankenau Hospital, Philadelphia, PA by Dr. Gollomp, a movement disorder neurologist. You must been seen by a movement disorder Neurologist. I hope that I have been helpful.

[Verna]

Have to go to another pain specalist on 12th May
Hope I get some sense out of the the Neruo re Botox to at least stop the movement. Then I can have the pain treated. Monica I hope this works

[Alexis barber]

that did nothing can because dont please wait upend!!!!!!!!!!

[Angela_Holland _Europe]

Monica wrote:

<quoted text>
I have Moving Toe Painful Leg Syndrome and have been successful been treated with Botox injections since 1992.

Hi Monica,
I live in Holland and there is no information about moving toes at all on Dutch sites.
I have the syndrome since one and a half year and I have felt very lonely in this syndrome because I cannot find anybody in Holland who has this.
This is the first time I read things from others who have moving toes / painful legs syndrome.
I am very happy for you that you have been succesfully treated with Botox and..........it gives me hope. Thanks a mille for your information. Can you walk normally after you are injected? Does botox stop the pain plus the movement of the toes? Are there side effects from Botox injections? Or is Botox rally a miraculous treatment? It is as like I read a message from heaven.
Thanks again.
Smile, Angela

[Verna from Australia]

22nd August, 2009

Am going to my Neurologist in September and will take the posts re Botox for Painful legs and moving toes syndrome with me.

Something has to work for this terrible pain in my calves and feet.

Thank you.

[Verna from Australia]

12th September, 2009

Hi there!
Went to see my neuro yesterday and he is going to try Botox in my "Painful legs and moving toes Syndrome. At least he is going to try for me.
The lyrica and clonazapam and the pain patch which is Norspan do not seem to give me any relief.

will let you know what the outcome is.

Cheers,

Verna from Australia

[Verna]

Had Botox injections in my feet and it definately stopped the movement of the toes and also the pain.

However the injection in my left calve did not improve the pain or movement.

Going to Neuro next week for normal consultation.

Has anyone else tried the Botox Injections

Cheers
Verna from Australia

[LES]

I was diagnosed with prostrate cancer which had gone to the bone, in 2007 in 2008 my cancer treatment stop working and was given radio therapy which caused my spine to collapse which has left me parapalgic I have no movement from the waist down but my legs go into spasms which are so painful. I had an appointment at the hospital yesterday to see if they could give me a botex injection to relieve the pain but could not have it because Im on such a high dose of claxane to thin the blood. but i was wonderering if it would have work

[verna]

Have now had three attempts with Botox for my painful legs and moving toes syndrome. Only the first injections worked. I do not know why?

Thank you

Verna

[Verna from Australia]

Botox worked for my painful legs and moving toes the first time but not any more.

[Verna from Australia]

Has any one any more ideas how to treat these painful moving feet and calves. Please send ideas
as the movement and pain is worsening.
Thank you.

Verna

[Julie from Wisconsin]

I also tried Botox injections, at the Mayo Clinic, on two occasions. It did not work for me, either. i have had the syndrome two years. Have tried Gabapentin and acupuncture. Those did not work, either.

[Verna from Australia]

4th April, 2011
Hello once again. I have had several injections for my Painful legs and moving toes syndrome.
By now I can say the movement has stabalised two toes and stopped the pain.
However, the pain and movement in my calves and under my feet is still as bad as ever. My Neuro has my taking Lyrica, Rivotril, Panadeine Forte, and Emla Cream.
The problem being, as I understand there are not many Drs know much about this complaint, so we are all on "trial and error".
Cheers
Verna

[Verna]

10th October, 2011

Had some small results from Botox in the little toes.
I did notice that when I had to walk some distance after the injections, I did not get any relief from the Botox. But when we drove to the Dr for the Botox, then the injections lasted approximately two months. I do not understand this. Perhaps one has to rest after the injections. To see my Neurologist is a 1080 Kilometer round trip.

Cheers

Verna

[Verna]

Still more pain from my calves and feet. Missed my tests due to hubby being in hospital. Walking is becomming more difficult, the pain is dreadful. Any vore ideas about this treatment for the Painful leg syndrome. I sure woud appreciate it.

Thank you

Verna Harford
GUNNEDAH NSW AUSTRALIA

[VERNA FROM AUSTRLIA]

i HAVE NOT HAD ANY BOTOX FOR THE PAST FEW MONTHS. THERE IS NO DOUBT THAT THAT THE BOTOX EELIEINATEW THE PAIN AND MOVEMENT IN MY LEFT TOE AND LEG.