My friend had that same type of Lupus SLE and I do know that it is the WORST kind. She died from it at the age of 42. This particular kind of lupus really does affect every system in your body and does cause severe debilitating pain in most people who have it.
She had problems with cellulitis and recurring infections because of the lupus. It seems as though she was in the hospital all the time for pneumonia and infection. He family doctor had her shuttled all over Lexington with appointments to several different specialists, a rheumatologist, infectious disease control specialist, immunologist, kidney specialist, neurologist, and ONLY for the last few years she suffered, finally a pain management doctor---if he could honestly be called that without laughing.
As bad off as she was, she NEVER received medicine that would REMOTELY COME CLOSE to touching the PAIN. I think it was hydrocodone along with some type of muscle relaxer. Consequently, the clinic she was sent to was called KY Spine & Brain. Avoid this place at all costs because you WILL NOT receive ANY HELPFUL TREATMENT from them!
I went to these doctors appointments with her on several ocassions because she had become too sick to drive herself for quite some time and we live about an hour and a half from Lexington.
She told the doctors every time that the medicine wasnt helping and damn near did all but beg them to help her.
However, EVERY SINGLE time he gave the SAME SPEECH about how the DEA was "watching" all of the pain management doctors and WOULDN'T ALLOW them to prescribe ANYTHING stronger, regardless of the situation. Even though she followed all of their rules, passed the urine screenings, had well documented records including ct scans, mri's, bloodwork, several surgical procedures, and was in the hospital at least 3-4 times each year for the past 10 years due to her declining health.
Her medications remained the same until the day she died!!!!!!!
It SHOULD MAKE NO Difference HOW MANY PEOPLE are abusing drugs if that PREVENTS people who REALLY NEED THEM FROM BEING ABLE TO GET THEM!!!!!!!
We PAY POLICE OFFICERS Salaries to DO THEIR JOBS; which CONSISTS of Investigating, Locating, and Arresting Those People Suspected of Abusing, Illegally obtaining and Selling Drugs.
It IS NOT the GOVERNMENTS JOB to "POLICE" practicing physicians by THREATENING them with LOSNG their Lisence for prescribing patients pain medications. THIS has what's been going on in the state of KY for several years now!!!
As long as the Doctors/Pain Management Facilites are doing THEIR JOBS, which Consists of Attempting to WEED OUT those people who Do Not Need Treatment or are Doctor Shopping by: Running KASPER/Pharmacy Reports, Requiring a Pain Contract, Requiring 1 Pharmacy, Periodic Urine Screens, Random Medication Counts (if deemed necessary), and records from their primary care physician documenting their NEED for Long-Term Pain Management, THEY SHOULD BE ABLE TO PRESCRIBE ANY MEDICATION THEY FEEL APPROPRIATE, WITHOUT BEING HARRASSED BY LAW ENFORCEMENT OR LABELED A "PILL-MILL!"
To ask or require ANYTHING else from these clinics is UN-REALISTIC!!!!!
This is the main reason I get so ANGRY whenever people get on topix and give people a hard time and call them drug addicts and WORSE if they ask a question about finding a pain management doctor OR when they tell them that "TOPIX ISN'T the PLACE to ask for MEDICAL ADVICE."
Customer/Patient REVIEWS & Questions about doctors, dentists, pharmacies, contractors, plumbers etc...is EXACTLY WHAT THIS FORUM WAS CREATED FOR!!!!! In fact, it's essentially the exact same thing as you mentioned, ANGIE'S LIST, with ONE MAJOR DIFFERENCE, HERE IT'S FREE!!!!