Fibromyalgia
NOT SURE

Huntington, IN

#1 Jun 20, 2013
Do you or anyone you know have fibromyalgia and what are the symptoms?
Fibro and other stuff

Mayfield, KY

#2 Jun 20, 2013
Pain! Can be on both sides at the same time. Lately I've been hurting at night so bad I have to sit up... my hips, front of my thighs. That's not the only places, just what's bothering me right now.
Tired! Sometimes it just feels like a chore to raise my arms. And want to sleep or just lay here with my eyes closed.
Depression! I guess with the above symptoms this would be expected. Most of the time I can hide it. When I can't I hide "ME" in my bedroom to cry it out or at the very least, just lay there and stay away from everyone.
This is some of my symptoms. Definitely not a medical statement!!! I hope you go to a doctor who understands it. That's a major thing!
Good luck
Fibro Pain

Paris, KY

#3 Jun 20, 2013
I have fibromyalgia and I do have a little pain at times. I stay active and exercise and it seems to help some. If you don't do anything it will just get worse and give you problems and you will be in pain or at least that is what I have been told, so I just try to stay active. I am sure that its not the same with everyone that has it, so I would say just use your on judgment.
fibro sufferer

United States

#4 Jun 21, 2013
Does anyone have fibromyalgia and in pain almost 24/7 whos family is mad because you do not feel like go out with them anymore? Noone understands except my best friend who basically takes care of me the lady who helps me with a bath and my drs truly understand.
Fibro is a B

Corbin, KY

#5 Jun 21, 2013
I've been diagnosed with it for several years now. I have "tender points" on insides of my knees, wrists, elbows, & feet. They feel like bruises when pressed. My flare ups come mostly when the weather changes, particularly when it's getting ready to rain. Sometimes, they come a day or two after a stressful event. At the very least, the "tender points" are just tender. However, the worst flare ups are an achy feeling from head to toe that basically feels like the flu & will last a day or two. Exercise & eating right definitely helps but it's hard to do, especially during a flare up. Definitely, stay away from aspartame or anything labeled "diet" like Diet Pepsi, Diet Coke, etc. Artificial sweeteners aggravate fibromyalgia symptoms. Most times, no one understands this condition because there doesn't seem to be a root cause for it. It is very depressing to feel like you have the flu all the time & no one seems to believe you. Your quality of life goes in the toilet. You just have to find what works for you as far as coping skills & fight it.
NOT SURE

Huntington, IN

#6 Jun 21, 2013
Thank you, Fibro is a B. Its not good to hear but it is good to know that someone at least understands though it comes through your own suffering. I showed my best friend all of the comments and it did make her feel somewhat better just knowing she is not alone. I have chronic lower back pain due to surgery with titanium rods and screws and spinal stenosis but I STILL cannot imagine the type of pain associated with nerve endings. I pray daily for everyone with chronic pain of any kind. Thank you.

Since: Apr 13

Location hidden

#7 Jun 23, 2013
Also, one more thought. It is not uncommon for people with MS to be diagnosed with fibro first. MS is very hard to diagnose, can take years. Many women are told they have fibro when in actuality it is MS and the doctor doesn't recognize it yet or the MS is in the very early stages.
NOT SURE

Huntington, IN

#8 Jun 24, 2013
Honey, thank you. That is most definitely food for thought. Good luck to all of you.
Oh come on

Corbin, KY

#9 Jun 24, 2013
I suffer from it as well. Don't forget the brain fog, irrability, headaches, the feeling of someone stabbing you with a knife, unable to lift things, unable to walk, not able to hug someone from being so sore, loud sounds can make your ears sensitive, muscle spasms, sleepless nights, throwing up because the pain is so bad, crying because no matter what you take it does not help, and being told that you're faking it from family members. Yeah it's just like that and I've had it since I was a child.
Oh come on

Corbin, KY

#10 Jun 24, 2013
Also wanted to add that you stay so tired that you don't want to get out of bed.
smarter than some

Whitley City, KY

#11 Jun 25, 2013
Actually, read up on it, the more active you are, the worse the pain is, when you feel good and overdo it, the pain is a lot worse, the best thing you can do is lie down, become completely motionless, wrap upin a blanket and rest, that is about onlys thing that helps, the stiller and less you move helps, not exercise and being active.
Fibro Sufferer

London, KY

#12 Jun 26, 2013
I have had Fibro for many years and it has gotten worse with the passage of time [aging] and the worst part is that no matter how terrible I feel, my partner doesn't seem to give a sh!t and still expects me to do all the housework, laundry, cooking etc. plus keeps the TV going full force pretty much around the clock.

Music would relax me but I don't get to listen to it very often. It seems that anything I can do to help myself feel better, he puts the brakes on it. I have very sensitive hearing and a lot of ear pain with the Fibro and loud noises run all over me.

Also, he seems to think it's funny to smack my thigh or to poke my ribs when he wants my attention. Sometimes, it's all I can do to not haul off and knock the crap out of him. Telling him to not do these and other things seems to have no bearing on him.

If any of you know a way to teach an old dog some new tricks, please let me know. I am sick and in misery with this illness and I need a way to get him to turn off the TV and to stop doing things that add to my misery, as well as a way to get him to clean up after himself.
NOT SURE

Huntington, IN

#13 Jun 26, 2013
Fibro Suffer, his behavior is insensitive and inexcusable. im sorry but if I were in your position, he would either straighten up and get the picture or he would be told to KICK ROCKS! That is no way to treat someone you love and ignorance to the fact is no excuse. Bless Your Heart!
NOT SURE

Huntington, IN

#14 Jun 26, 2013
ALL FIBRO SUFFERERS, if any of you are on cholesterol-lowering drugs STOP! My best friends' doctor just took her off of them because they were aggrevating her fibro pain. He,instead, put her on 2 fish oil capsules a day. Thought this might help someone.
NOT SURE

Huntington, IN

#15 Jun 26, 2013
Oh Come On, Smarter Than Some, God bless your hearts. So many of the things you talk about sound so much like my friend. I dont suffer from fibro but I do understand chronic pain. Hopefully, soon researchers will either find a cure or a better way of treating it. I am fortunate in the fact that painkillers help my problem.
Ridgeway Boy

United States

#16 Jun 26, 2013
Fibro Sufferer wrote:
I have had Fibro for many years and it has gotten worse with the passage of time [aging] and the worst part is that no matter how terrible I feel, my partner doesn't seem to give a sh!t and still expects me to do all the housework, laundry, cooking etc. plus keeps the TV going full force pretty much around the clock.
Music would relax me but I don't get to listen to it very often. It seems that anything I can do to help myself feel better, he puts the brakes on it. I have very sensitive hearing and a lot of ear pain with the Fibro and loud noises run all over me.
Also, he seems to think it's funny to smack my thigh or to poke my ribs when he wants my attention. Sometimes, it's all I can do to not haul off and knock the crap out of him. Telling him to not do these and other things seems to have no bearing on him.
If any of you know a way to teach an old dog some new tricks, please let me know. I am sick and in misery with this illness and I need a way to get him to turn off the TV and to stop doing things that add to my misery, as well as a way to get him to clean up after himself.
The bigger the stick used on him the faster he will learn!!! He doesn't respect or care for how you feel, or else he would be kinder and more considerate of how you are feeling!! Stop doing things for him and suggest that he do a little for himself, you will be amazed at how he changes his attitude!! Good luck and take care of yourself, if you don't he sure won't!!

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