Doctors Think Lyme Disease Can Be Cau...

Doctors Think Lyme Disease Can Be Caught in N.C.

There are 43 comments on the Fox 8 WGHP story from Oct 1, 2009, titled Doctors Think Lyme Disease Can Be Caught in N.C.. In it, Fox 8 WGHP reports that:

For years, doctors have said that people were unlikely to get Lyme disease in North Carolina.

Join the discussion below, or Read more at Fox 8 WGHP.

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Cassie

Pinehurst, NC

#1 Oct 1, 2009
lol are you serious. My Mom has had it twice and had the tests to prove it.
NC lyme patient

Fletcher, NC

#2 Oct 1, 2009
Finally! Now, will the NC Medical Board stop harassing practitioners who treat lyme patients? They have already driven out of the state one of the most knowledgable Infectious Disease experts on lyme in the world. Will they own up to their ignorance?

Will NC universitiy's Dept. of Infectious Diseases stop refusing to see patients with lyme? Will it take another couple of decades for NC physicians to realize the many people who have had untreated lyme for months or years will now need months and years of antibiotic treatment?
Karen

Clemmons, NC

#3 Oct 1, 2009
YA THINK! Doctors think? No, they don't think! My 16 year old son has been suffering with chronic Lyme disease for over six years. He went undiagnosed all those years! It wasn't until last spring that I took matters into my own hands and did some research and discovered that he has chronic Lyme. My son has been diagnosed with a laundry list of ailments including depression, anxiety disorder, bipolar disorder, chronic fatigue, fibromyalgia, etc..... As if the disease wasn't brutal enough, the medical community in Greensboro denies that Lyme exists in NC. How many times did I hear-- your son needs psychiatric help! Thank God for our Lyme literate doctor in South Carolina! Unfortunately, he was booted out of NC for treating patients who are suffering with this debilitating illness.
My son is in the midst of treatment. He is in chronic pain. He is too sick to attend school. Instead of worrying about finding a date for the prom, he has to worry if his next infusion will be more painful than the last. He has to wonder if he will be given pain medications for his severe headaches, joint and all over body aches. Imagine having the worst case of the flu for six years! The mental anguish that goes with this disease is unimaginable! Lyme disease caused by the spirochete bacteria is stealthy and can evade the immune system. In many cases, ticks carry co-infections such as Babesia and Bartonella. These diseases tend to go to the brain, attacking the red blood cells and wreaking emotional and cognitive havoc.
Since beginning treatment in June, we have seen amazing results! His depression, anxiety, and mood swings are basically eradicated. His memories of childhood are coming back and his sense of smell has returned. He says his "brain fog" has lifted, and he feels like he is crossing a bridge back to his body. Although his body pain is still intense, the emotional pain was the worst, and he is thankful for the healing that has taken place in his brain.
Lyme disease as a chronic infection needs to be embraced by the medical community! It is real! Visit underourskin.com for more eye opening information. You will be amazed at how many people are suffering from this disease.
Veny W Musum

Millington, NJ

#5 Oct 2, 2009
The IDSA is a corrupt organization! The AG of CT proved it. Let the shocking TRUTH finally come out to the nation. Chronic Lyme disease is an underground pandemic. Let us bring justice and help for the sick and suffering! Contact the media AND all your elected officials and demand action now.
Dottie

Keller, TX

#6 Oct 4, 2009
How many more people will have to be infected before the government admits LYME DISEASE IS EPIDEMIC IN THE UNITED STATES -
Rick

Darien, IL

#7 Oct 4, 2009
This almost laughable, if it wasn't for the people that are suffering there. NC already ran off the best Lyme doctor in the state. Now SC has done the same thing. If that's not enough Insurance companies are turning Lyme doctors in to the medical examing boards. Who is treating us anyway? Lyme is everywhere and it should be much longer until the they blow the top right off this thing called Lyme.
Karen

AOL

#8 Oct 5, 2009
NC lyme patient wrote:
Finally! Now, will the NC Medical Board stop harassing practitioners who treat lyme patients? They have already driven out of the state one of the most knowledgable Infectious Disease experts on lyme in the world. Will they own up to their ignorance?
Will NC universitiy's Dept. of Infectious Diseases stop refusing to see patients with lyme? Will it take another couple of decades for NC physicians to realize the many people who have had untreated lyme for months or years will now need months and years of antibiotic treatment?
Are you talking about Dr Jemsek? He is now going to be practicing in Washington DC
juliem1

Elizabethtown, NC

#9 Oct 26, 2009
I am suffering from LYME DISEASE now for almost 3 yrs.I was in the E.R last week ,and was told that it is impossible to get or have LYME IN N.C.What is happening to our health care system,to our government??I just discovered information about Dr.Joseph Jemsek,one of the top experts on Lyme,only to discover that he has been pushed out of N.C.and S.C.I believe his new clinic will open next month in Washington,D.C.
I now know that I am not the only one in N.C. who is suffering.What can we do???I just wrote a letter to Oprah asking her to do a show on this debilitating disease .
Karen

Clemmons, NC

#10 Oct 26, 2009
We do need to join together in NC and get the word out that Lyme is everywhere and has been for a long time. My son is almost finished with his IV treatment with Dr. Jemsek. He is an amazing and dedicated doctor! I just joined a group on FB with people from all over the country who want to show their support for Dr. J. If you are interested in joining, let me know.
juliem1

Wilmington, NC

#11 Oct 26, 2009
Karen wrote:
We do need to join together in NC and get the word out that Lyme is everywhere and has been for a long time. My son is almost finished with his IV treatment with Dr. Jemsek. He is an amazing and dedicated doctor! I just joined a group on FB with people from all over the country who want to show their support for Dr. J. If you are interested in joining, let me know.
Iam definely interested in joining.I am thrilled to know more aboutr what your son experienced,and what treatments you found that helped him.I am really tired of "living" in my bed for the past 2 1/2 years.Thanks for responding.
Karen

Greensboro, NC

#12 Oct 27, 2009
juliem1 wrote:
<quoted text>Iam definely interested in joining.I am thrilled to know more aboutr what your son experienced,and what treatments you found that helped him.I am really tired of "living" in my bed for the past 2 1/2 years.Thanks for responding.
Email me at [email protected]
Caile76

Leesburg, VA

#13 Oct 28, 2009
This article is wrong at best, and incorrect at least on one thing - not all Lyme disease can be corrected with a 1 month course of antibiotics (ABX). IF it is caught early - within a month of a tickbite - THEN it can checked within six weeks. Why six weeks? Because the Lyme disease bacteria - Borrelia Burgdorferi - has a life cycle of 45 days, and three distinct forms within those 45 days. You do the math - 45 days vs. 30. Does that add up? No. And you cannot 'get' every life cycle form of Lyme with the same ABX, either. Why do they keep printing and reprinting these things that just arent' true? The research is out there to back this up - why isn't the truth being made known? Why does our government have blinders on regarding Lyme? Do we really have to have the Federal government step in to tell each state or commonwealth we live in to simply open their eyes and tell the truth?!
jill

Willingboro, NJ

#14 Nov 3, 2009
Karen
I live in Burlington and I have been sick since the first of May.Finally after practically diagnosing myself I am being treated by Dr Jemsek.Thank God for him!!!Let me know any info you have on getting the word out in NC.
Melissa

United States

#15 Nov 5, 2009
I was diagnosed last fall with Lyme Disease after months of searching for answers for symptoms I had experienced for over 3 years. I tested positive, by CDC standards, and was still told by an infectious disease "specialist" in Hickory that it wasn't really Lyme, it was a false positive, because I had never been in an endemic area. This despite the fact that I had listed on his questionairre that I was an avid gardener and our family often went camping. I continue, one year later, to test positive for active infection and am beginning to develop the bands for chronic infection. I am now 7 weeks into treatment with Dr. J and even though the treatment is rough, I will follow him to DC or wherever else he gets ran off to.
Lyme Positive in NC

AOL

#16 Nov 5, 2009
Yes we have Lyme infected ticks. Heads up people, if you test positive in Greensboro you will have to go out of town for treatment because our doctors refuse Lyme positive patients. So much for ethics.
Lyme in Raleigh

Durham, NC

#17 Nov 10, 2009
I was told by my pcp 2 1/2 yrs ago when I first presented (with a rash and classic symptoms btw) that I had a better chance of winning the lottery than getting lyme in NC (huh?). I then was misdiagnosed for over a year and went down hill fast. Since I've had a cdc positive test for Bb (have to go out of state to treat) but it has got me back to about 90% of the shell I was a year ago.
THANK GOD for those doctors out there that treat patients as individuals and are willing to help people like myself, those are the true heros.
NC and IDSA, shame on you for letting us down....
carolinalyme

AOL

#18 Nov 13, 2009
jill wrote:
Karen
I live in Burlington and I have been sick since the first of May.Finally after practically diagnosing myself I am being treated by Dr Jemsek.Thank God for him!!!Let me know any info you have on getting the word out in NC.
Anyone who wants to be more active in getting the word out and in changing the way our state views LD here contact us at www.carolinalyme.org We need residents to speak up!
Rosario

Far Rockaway, NY

#19 Mar 13, 2010
I'm laughing hysterically! I live in Brooklyn and was bitten when I visited Westchester. Yup, serves me right for leaving Brooklyn. Anyway, had the tick - got the tick tested - had been engorged and feeding for 3 to 4 days!- and told to watch for lyme. Well, I went to 5 doctors who said I "definitely didn't have lyme" (even brought the tick with me for the show and tell program and nobody even looked at it or the report I had from the national testing lab!!!) and I ended up in the ER and hospital for 5 days because they said - BROOKLYN DOESN'T HAVE LYME! I said, hey IDIOT DOCTORS let me draw you a picture of a bridge (remember I'm from Brooklyn so I take liberties)- anyway they ran the ELISA and WESTERN BLOT and everything was POSITIVE. So the doctor who prescribed an aggressive treatment regimen suddenly "went on vacation" and an idiot IDSA doc replaced him and said 21 days of doxy and you're cured. He said after 21 days you have fibromyalgia. WHAT?! I found one doctor now that is finally helping me. Hey, IDIOT insurance companies - you think the antibiotic INITIALLY would have been cheaper than the ER & hospital, etc.?!

I think we should break out the pitchforks and torches and go after IDSA, YALE UNIVERSITY (who writes the IDSA guidelines) and all those IDSA experts who say 21 days and doxy and you're cured. Let's start a MILLION MEMBER LYME MARCH ON WASHINGTON DC.. I THINK IT'S TIME. I'm disgusted with the IDSA and their corrupt patent practices. It's all about GREED people - doctors in bed with pharmaceutical companies and their patent rights. No separation between research and the public interest. SCARY.
eli

United States

#20 May 17, 2010
will somebody please tell me the best place to get treatment for lyme. my 11 y/o niece is so sick she was misdiagnosed for 2 years and now she has terrible seizures, she is in a wheel chair, she cant walk at all, is in constant pain, her mental status as regressed to the point that she cant even remember the alphabet and she was always had straight a's, she is so sick, we live in louisiana and nobody will help us here, they think she is crazy and trying to get attention. we finally took her to a doctor in ct and he was so nice and she did get a little better, but it seems like out of sight out of mind because we cant get her any help since we have come home. we will go anywhere, her lyme has progressed so far that we are afraid she is either going to die or never be the wonderful little girl she once was. we really dont know what to do, can anyone offer any advice, please.
ashevilleNCperso n

Hendersonville, NC

#21 May 24, 2010
I know this is an old old thread, but I have a friend who lives in Hickory & she's told me her doggie, who's not very old, almost DIED from Lyme Disease last year!
Lincolnton is NOT far from Hickory, I know that, but even worse, we have TONS of deer in our area, and the darn NC Wildlife Commission has told us it's perfectly legal to FEED wild deer, or ANY wild animal!
What are they thinking anyway? There is NO Lyme Disease shot for humans anymore.. Not sure WHY that would be, but they claimed at the CDC that there was not enough NEED for it!
Are you kidding me? Did you know there are now 25 million deer in the US! Yeah.. sure, advise people to FEED wild deer when they can easily carry the infected deer tick that carries Lyme Disease and ALL the doctors in the southeast will SWEAR that it's extremely RARE (that's what the doctor at the public health clinic in Asheville has just told me!
And would she even THINK to prescribe antibiotics to me??? Nope! She refused and I'm going for the test soon.
Funny thing, is though, they wanted to know ALL your personal info, but yet, REFUSED to give out medication to someone who's seen that bulls' eye rash, months & months ago.. so that means that Lyme Disease, if the test comes out positive (and lots of times they do NOT come out positive even if you ARE infected) has been in my system for MONTHS and is debilatiting me.
I'm exhausted lately, have been developing bad heachaches and I NEVER get head aches, bad bad joint pain, almost constantly and just TONS of other symptoms which are indicative of Lyme Disease.
Where in the WNC can one find a doctor? I wonder if there's NOT a doctor out in TN. We cannot afford to drive to DC to get treated, but I know there's LOTS of deer out in middle TN, so I'm guessing there's Lyme Disease too out there in the middle of the state of TN, if not everywhere!
I'm also an avid gardener and walk every day, as that was my doctor's orders after I hurt my back, years ago..... I have people nearby who deliberately leave out piles of apples this fall and have had a salt block in their backyard to attract the bucks (another danger I don't even WANT to start in on, as there was a half dozen full antled bucks in our yard, I SAW this past year alone) since last December!
The darn animal control refused to tell the people to take the salt block out of their yard, even though they got a ball park for kids right in back of their yard!
Oh, those poor kids! I want desperately to go down there and tell the parents to watch out for symptoms of Lyme Disease in their kids, but I'm afraid no one will listen to me!
I've written a letter to Dr. Oz. Funny thing is.. I saw just a week or so ago, he HAD a show on Lyme Disease!
Hmmmm. I wish he'd contact the CDC for us, and tell the parks & recreation people of these people who purposely lure wild deer to their yard, so they could get them to stop, and stop putting people's lives and health in danger!
Melissa wrote:
I was diagnosed last fall with Lyme Disease after months of searching for answers for symptoms I had experienced for over 3 years. I tested positive, by CDC standards, and was still told by an infectious disease "specialist" in Hickory that it wasn't really Lyme, it was a false positive, because I had never been in an endemic area. This despite the fact that I had listed on his questionairre that I was an avid gardener and our family often went camping. I continue, one year later, to test positive for active infection and am beginning to develop the bands for chronic infection. I am now 7 weeks into treatment with Dr. J and even though the treatment is rough, I will follow him to DC or wherever else he gets ran off to.

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