Aspergers and other Special needs (adults and children)

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“Lost my mind”

Since: Apr 07

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#101
Nov 13, 2008
 

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Unbelievable News wrote:
<quoted text>
That middle-of-night snacking & candy hoarding/sneaking is what my mother is dealing with from my youngest brother (13...yeah we're 21 years apart). It almost seems like an addiction he can't help!
Oh I KNOOOOOWWWW about long runs of bad days! My husband keeps saying (about our 6yo ASD son) that he's gonna get kicked out...he's gonna get kicked out!
Lately, their biggest concern is how violent he's been getting. He spits on, kicks, & hits other students & faculty.
I just had PT conferences tonight...some good news, some bad...but more on that later.
It's really effecting him. It's like he's ODing on sugar and his Concerta isn't working.
<sigh>

“Its a Joke People!!!”

Since: Nov 08

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#102
Nov 13, 2008
 

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Well, I could just cry. The stupid Doctors office receptionist called me back to say they dont do that kind of neurological referals. WHAT?????? I am feeling VERY frusterated now. I dont get it. I am going to check my insurance company and see what they cover for neurological/mental health, and call Mary Free Bed up myself and see what I have to do do get my child in there. I dont get it!!!!! How stupid is that. I called to tell the doctor's office that his meds were not doing anything, that obviously they were not working for him, I told her the incident about my child not remembering 10 minutes earlier how I hugged and kissed him and how upset he was. I told her this is not the first time, and this is just and example of his memory issues. I asked that the DOCTOR call me. But no, I get the dipshIt receptionist, and then she says they dont do those referals. Well then who the heck does?????? GRRRRRR I feel like I am going in circles.
Good news though, is my child's teacher was thrilled that I had a nice neat typed request for learning disability testing and was thrilled to make sure it was turned in. We had conferences tonight, and she is SOOOOOO in our corner.
I get we just keep chugging along and see where we get.
neecer wrote:
MichChic,
I called Mary Freebed today. The specialize in Sensory disorders and do OT, psychotherapy and a few other things. I'm going to talk to his doctor and let her know what's going on and see if she thinks it would be good to refer us there. Or if she has other ideas on where to go.

“Its a Joke People!!!”

Since: Nov 08

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#103
Nov 13, 2008
 
Oh Neecer,
So what do you do? I wonder what is happening to cause him to do the late night candy and food raids?
Its so frustering :(
neecer wrote:
<quoted text>
It's really effecting him. It's like he's ODing on sugar and his Concerta isn't working.
<sigh>

“Its a Joke People!!!”

Since: Nov 08

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#104
Nov 13, 2008
 
Oh, I did have a really good conference for my 12 year old. Wow, what a relief. He is TOP HONORS at school. I am tickled to death. I am so proud of him. His teachers love him apparently. ALL I heard tonight was how smart, funny, charasmatic, what a sense of humor, how polite and well behaved he is. They were gushing over my boy. You cannot imagine how GREAT it felt. I just thanked them so much, and said I was so happy that he was doing so good. I could have cried for JOY!!! I guess next FRiday there is to be an awards ceremony during the day at school. I am so happy and proud of him for coming so far.

“I'll think about it!”

Since: Nov 08

Lakeview

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#105
Nov 14, 2008
 
MichChic wrote:
Oh, I did have a really good conference for my 12 year old. Wow, what a relief. He is TOP HONORS at school. I am tickled to death. I am so proud of him. His teachers love him apparently. ALL I heard tonight was how smart, funny, charasmatic, what a sense of humor, how polite and well behaved he is. They were gushing over my boy. You cannot imagine how GREAT it felt. I just thanked them so much, and said I was so happy that he was doing so good. I could have cried for JOY!!! I guess next FRiday there is to be an awards ceremony during the day at school. I am so happy and proud of him for coming so far.
I'm SO hoping for such a day!(sigh) Congratulations on the success of you & your son!

Where do you go for a doctor's office? We go to one in Candian Lakes. Our doc listens to me & takes a mother's word when it comes to concerns & opinions about the child. She even stayed late one night to get ahold of a specialist after-hours for us.

“Lost my mind”

Since: Apr 07

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#106
Nov 14, 2008
 

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MichChic wrote:
Well, I could just cry. The stupid Doctors office receptionist called me back to say they dont do that kind of neurological referals. WHAT?????? I am feeling VERY frusterated now. I dont get it. I am going to check my insurance company and see what they cover for neurological/mental health, and call Mary Free Bed up myself and see what I have to do do get my child in there. I dont get it!!!!! How stupid is that. I called to tell the doctor's office that his meds were not doing anything, that obviously they were not working for him, I told her the incident about my child not remembering 10 minutes earlier how I hugged and kissed him and how upset he was. I told her this is not the first time, and this is just and example of his memory issues. I asked that the DOCTOR call me. But no, I get the dipshIt receptionist, and then she says they dont do those referals. Well then who the heck does?????? GRRRRRR I feel like I am going in circles.
Good news though, is my child's teacher was thrilled that I had a nice neat typed request for learning disability testing and was thrilled to make sure it was turned in. We had conferences tonight, and she is SOOOOOO in our corner.
I get we just keep chugging along and see where we get.
<quoted text>
Yes they do. She was just too damn lazy to actually do it! That's just really bad. Since when doesn't a primary care doctor make a referral when it's something a patient needs?!?!?

I think you need to set an appointment with his doctor and actually go talk face to face. That way you don't have the receptionist interference in the issue. And then you can ask the doctor yourself why you were told they don't make those kinds of referrals! If they really don't , then I think you need to start looking for a doctor who is more suited for your son's needs! If a doctor isn't willing to do what would be best for the patient, then it's time the patient (or in this case the parents) step in and do something about it.

I love our doctor to death. I have been with her for 12 years now, and the boys since birth. She's in Wyoming/Grandville and I had her when we lived in Rockford and still while in MIddleville. The only way I would switch was if she were taking good care of my kids (or myself). BUT, I would switch if she was no longer suiting our needs. And believe me, she is impossible to get in to see... part time hours.. and one of the busiest doc's in the practice, but she's good at what she does.

“Lost my mind”

Since: Apr 07

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#107
Nov 14, 2008
 

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And MichChic,

AWESOME on the 12 year old! Give him lots of praise for doing his best!!

And our issues continue..

Got our biweekly progress report. He's now failing science and is missing three assignments. We're not sure when these were dated or handed out, so it might have been last week with the late night snacking that was going on. If that's not the case.. then we might need to find out if it's his meds not working. There are a couple out there we haven't tried, so will have to talk to the insurance company and find out what is covered or not. Another avenue is to test to see if he's bipolar. His dad was, and there is a good chance his ADHD is actually bipolar. They mentioned that to me when he was diagnosed at 7, but I wasn't going to put my 7 year old on an antidepressant. I didn't want to put him on the Concerta as it was! But if it's already manifesting, then we really need to get this handled.

It breaks my heart to watch this internal struggle. And I will do what I have to do to help our son. To me, it's neglectful NOT to.
Mamacares

Grand Rapids, MI

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#108
Nov 14, 2008
 
Ialso have a family with special needs.My son is a downsydrome and my husband is a parapledgic.Yes time can be trying but the good Lord always is there.Boy have the schools improved over the years for education and medical.My son was one of the first to be main streamed thur the public school districts I fought for his rights to be just like any one else.He has been the joy of my life as well as his sister,who is a special ed. teacher and his older brother that lives out of state with his family. My husband also was a Skill person that taught special needs people jobs at Steelcase.What seems like a challange now will fade away in time and life challanges will be ok. I have experienced that for years and now things don't both us like before.Just keep the love and prayers in your life and GOD will always be there for you all..Where never alone... God Bless.

“Have a nice day!”

Since: Apr 08

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#109
Nov 15, 2008
 
I just sent a letter to my school board letting them know that I have contacted an attorney regarding my son. I asked them to set up at least a 504 program for him(after he told the math teacher the other day that he didn't know what the f##@ a function was) and they said we have to have a meeting to "determine whether he is eligible for a 504" .
Geez. The kid spent 8 days at Forest View this summer, has been diagnosed with Asperger's, major depression, ADHD, and ODD. hmm...
I feel all of you parents' pain on dealing with schools.
If all else fails, I might just call the media to stir up some crap. Our school system doesn't need any more bad press right now.

“Have a nice day!”

Since: Apr 08

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#110
Nov 15, 2008
 
neecer wrote:
And MichChic,
AWESOME on the 12 year old! Give him lots of praise for doing his best!!
And our issues continue..
Got our biweekly progress report. He's now failing science and is missing three assignments. We're not sure when these were dated or handed out, so it might have been last week with the late night snacking that was going on. If that's not the case.. then we might need to find out if it's his meds not working. There are a couple out there we haven't tried, so will have to talk to the insurance company and find out what is covered or not. Another avenue is to test to see if he's bipolar. His dad was, and there is a good chance his ADHD is actually bipolar. They mentioned that to me when he was diagnosed at 7, but I wasn't going to put my 7 year old on an antidepressant. I didn't want to put him on the Concerta as it was! But if it's already manifesting, then we really need to get this handled.
It breaks my heart to watch this internal struggle. And I will do what I have to do to help our son. To me, it's neglectful NOT to.
I hear ya. I just got an e-mail from my son's keyboarding teacher that he is falling behind. That was his only "A" class. Bummer! I hate watching the struggle too. My motto has been "one day at a time" because that's all I can handle, and that's all we're given, anyway. Hang in there!

“Have a nice day!”

Since: Apr 08

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#111
Nov 15, 2008
 
Mamacares wrote:
Ialso have a family with special needs.My son is a downsydrome and my husband is a parapledgic.Yes time can be trying but the good Lord always is there.Boy have the schools improved over the years for education and medical.My son was one of the first to be main streamed thur the public school districts I fought for his rights to be just like any one else.He has been the joy of my life as well as his sister,who is a special ed. teacher and his older brother that lives out of state with his family. My husband also was a Skill person that taught special needs people jobs at Steelcase.What seems like a challange now will fade away in time and life challanges will be ok. I have experienced that for years and now things don't both us like before.Just keep the love and prayers in your life and GOD will always be there for you all..Where never alone... God Bless.
God is good, but the world is not sometimes! You are an inspiration! Attitude can help tremendously, and it sounds like yours is wonderful. Have a great day!

“think for yourself”

Since: Aug 08

GR

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#112
Nov 16, 2008
 
So, seeing my child with Asperger's is now 15, and we have been through many of these trying times people here are talking of, I thought it may be a good idea for my son to write a little something of his experiences. And this is what he wrote, in his own words.

Living with Asperger's is not hard, but it is also not easy. For, although it is a curse, it is also a blessing. Asperger's is tricky, though, and it is never exactly the same for two people. Mainly because it makes your brain develop abnormally. For instance, my academic skills developed much faster than normal, but I was never very good at making friends. Not only that, but my academic skills developed to a level that I stopped caring about doing schoolwork because it failed to challenge me.(except history, which I was never good at) In fact, the only way I was able to stay afloat after that, was that I have an unexplainable talent for taking tests. However, I was able to get out of the rut eventually, and now it is hard for me to believe I was ever that arrogant. But to be honest, that wasn't what what bothered me at the time, because my ADHD was destroying my social life at the time, and my anxiety disorder tortured me relentlessly every night until I was, for some reason, I can't remember why anymore, actually afraid of falling asleep. And it made me completely exhausted by morning. However, I was able to overcome all those conditions, so now it is nearly impossible to notice that I had those conditions in the first place.

All in all, I would have to say that, Asperger's, although not the worst thing you can have, is hard to get around. However, when you get it to work for you instead of against you, it ceases to be a curse, and becomes a blessing.
Jesse

United States

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#113
Nov 16, 2008
 

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Amazarak wrote:
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My son has also had troubles with the fighting issue. The last time he had a fist fight, was in 8th grade in the boys locker room. Some kid was picking on him, and my son clocked him a good one in front of everyone. Now, people think twice before picking on him. He hasn't had anything like that happen since.
You should be teaching your child that violence is never acceptable. If he cannot stop himself from attacking other students he should be removed from school.

“Lost my mind”

Since: Apr 07

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#114
Nov 16, 2008
 

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Jesse wrote:
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You should be teaching your child that violence is never acceptable. If he cannot stop himself from attacking other students he should be removed from school.
Jesse,

Let me guess. You're the type of person who believes that the kids that fight back against bullies should be in trouble but the bullies get the free pass, correct?

“Lost my mind”

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#115
Nov 16, 2008
 

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Amazarak wrote:
So, seeing my child with Asperger's is now 15, and we have been through many of these trying times people here are talking of, I thought it may be a good idea for my son to write a little something of his experiences. And this is what he wrote, in his own words.
Living with Asperger's is not hard, but it is also not easy. For, although it is a curse, it is also a blessing. Asperger's is tricky, though, and it is never exactly the same for two people. Mainly because it makes your brain develop abnormally. For instance, my academic skills developed much faster than normal, but I was never very good at making friends. Not only that, but my academic skills developed to a level that I stopped caring about doing schoolwork because it failed to challenge me.(except history, which I was never good at) In fact, the only way I was able to stay afloat after that, was that I have an unexplainable talent for taking tests. However, I was able to get out of the rut eventually, and now it is hard for me to believe I was ever that arrogant. But to be honest, that wasn't what what bothered me at the time, because my ADHD was destroying my social life at the time, and my anxiety disorder tortured me relentlessly every night until I was, for some reason, I can't remember why anymore, actually afraid of falling asleep. And it made me completely exhausted by morning. However, I was able to overcome all those conditions, so now it is nearly impossible to notice that I had those conditions in the first place.
All in all, I would have to say that, Asperger's, although not the worst thing you can have, is hard to get around. However, when you get it to work for you instead of against you, it ceases to be a curse, and becomes a blessing.
WOW! This is our oldest almost to a T!!!

Please thank your son for me, that was wonderful hearing it from the young adult who has to deal with this day in and day out!

“Have a nice day!”

Since: Apr 08

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#116
Nov 16, 2008
 
neecer wrote:
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Jesse,
Let me guess. You're the type of person who believes that the kids that fight back against bullies should be in trouble but the bullies get the free pass, correct?
What amazarak wrote could have been me! My son had exactly the same thing happen, in the locker room, and clocked the kid, and everything. And you're right, bullies do get a free pass. We've dealt with that for years. Other people don't get it. Especially when the school doesn't catch the bully, just the retaliation from the victim.

“Lost my mind”

Since: Apr 07

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#117
Nov 16, 2008
 

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mama knows wrote:
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What amazarak wrote could have been me! My son had exactly the same thing happen, in the locker room, and clocked the kid, and everything. And you're right, bullies do get a free pass. We've dealt with that for years. Other people don't get it. Especially when the school doesn't catch the bully, just the retaliation from the victim.
And then we sit and scratch our heads when their is shootings at schools.

I am NOT excusing the shootings in any way shape or form. I think they are just as WRONG as the bullying. But when you have kids that feel there is no other way out because the administration does NOTHING for the bullying that goes on right under their noses, things can and WILL happen!

And honey, it could have been our oldest too. I know he's no angel, believe me. BUT he WILL defend himself, his brother, and his friends. He WILL finish it, or do what he can to finish it.

I have been fighting for YEARS against this. The bullies need to be held accountable just like the ones that are fighting do.

“Taz say Hi”

Since: Jan 08

Holland,MI

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#118
Nov 16, 2008
 

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mama knows wrote:
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What amazarak wrote could have been me! My son had exactly the same thing happen, in the locker room, and clocked the kid, and everything. And you're right, bullies do get a free pass. We've dealt with that for years. Other people don't get it. Especially when the school doesn't catch the bully, just the retaliation from the victim.
Back in prehistoric times (LOL), I did that in school myself. The kid had been relentless with his verbal attacks and reporting him to school authorities did no good. Me laying into him stopped it. Then, for a little while I waited for the other shoe to drop from my father, but it never did. He never said anything about it, but he apparently chose to support me silently and not punish me for getting into trouble.

“Taz say Hi”

Since: Jan 08

Holland,MI

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#119
Nov 16, 2008
 

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mama knows wrote:
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What amazarak wrote could have been me! My son had exactly the same thing happen, in the locker room, and clocked the kid, and everything. And you're right, bullies do get a free pass. We've dealt with that for years. Other people don't get it. Especially when the school doesn't catch the bully, just the retaliation from the victim.
In the fairly recent past one of the comic strips in the newspaper hit the nail on the head. There were three kids (siblings). One hit one of his siblings and the victim was going to retaliate. The third one told him not to as "the second one always gets caught". I roared when I read that one! So true!

“Lost my mind”

Since: Apr 07

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#120
Nov 16, 2008
 

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Gentle Taz wrote:
<quoted text>
In the fairly recent past one of the comic strips in the newspaper hit the nail on the head. There were three kids (siblings). One hit one of his siblings and the victim was going to retaliate. The third one told him not to as "the second one always gets caught". I roared when I read that one! So true!
Very much so! That's why it's always so frustrating! The bullies hardly get into trouble for being bullies, and the ones who retaliate and defend themselves are labeled a trouble child or a trouble maker!

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