Thyroid disease may create a life of ...

Thyroid disease may create a life of ups and downs

There are 19 comments on the LA Daily News story from Mar 11, 2010, titled Thyroid disease may create a life of ups and downs. In it, LA Daily News reports that:

Torrance based Dr. Kent Holtorf, with his therapy dog Sparky, is a nationally recognized expert on thyroid disease.

Join the discussion below, or Read more at LA Daily News.

Bystander

Los Angeles, CA

#1 Mar 11, 2010
What a GREAT article! I suffer from a thyroid imbalance and have taken medication for more years than I can remember. And, I went in with exactly these same symptoms: weight gain, fatigue, hair falling out, and I was only 40 years old at the time. If you have any of these symptoms, all it takes is a simple blood test from you doctor. Get it done!
Oil Patch Kid

Vermilion, OH

#2 Mar 11, 2010
I, too, thought this was an excellent article. However, even the basic thyroid blood test is not always conclusive and may require additional testing as some people's test results may fall within, what appears to be the normal range, but is not normal for them.

I liked the article because it seemed to encourage people to go beyond the basic test results if their doctor just seemed to want to believe there was no thyroid problem based solely upon the basic test results. More people need to be their own health care advocates and demand either a second opinion or additional testing when a doctor says they are just fine and the person knows the problems they are having are real and not imaginary.
patricia

Stockton-on-tees, UK

#3 Mar 12, 2010
i was diagnosed with under active thyroid in 2000 i have had carple tunnel
in both hands which where operated on ,but with the artherits and i had lived with it a long time the surgon said there was alot of damage to the sunus so it has not helped much. i have had kidney stones removed ,hyistrectomy galbladder removed
i suffer with depression very bad on a daily bases, i hve been graduly lossing my hair to now it is so thin i just hate going out , my wieght is up for all my dieting
some days is so hard my hands swell i suffer from realy bad head aches on my left side to a point i can not think staight and my hair and skin is just so dry .
Streets

Long Beach, CA

#4 Mar 12, 2010
I am a male, and was diagnosed with hypotyroid when I was 40. The symptoms that I encountered were weight gain, fatigue, and severe depression. It is a very scary thing to go thru, I thought I was suffering from mental illness, when it was my thyroid all along.

Great Article!
Ed Arnold

Boulder, CO

#5 Mar 12, 2010
This is why so many of us who weren't diagnosed and/or treated correctly for decades, are now treating ourselves. We're just tired of surrendering the quality of our lives to the bumbling and incompetence of US allopathic medicine.
penny

Bundoora, Australia

#6 Mar 12, 2010
Fantastic article as the drs are not listening to us as i have spent hundreds of dollars on seeing different drs now i go on how i feel and temp in the mornings with the thyroxine
Thyroid

Oxnard, CA

#7 Mar 12, 2010
I was 23 and barely weighed 100pds. Then almost overnight I gained 40 pounds. I was diagnosed immediately. I had hyperthyroid- tremors, hairloss, temperature sensitivity, diarrhea, and bulging eyes... i tried medicatio for a year. I didn't respond. One pill slowed me down, the other amped me up. Finally, I had my thyroid removed by Dr Kutas in Long Beach. Its been 16 years. I know when my body is off, when my meds need to be adjusted. I took the generic for so long that I still had some symptoms. So now, I am on brand. I get checked 2x a year. life is good.
caroline

Simi Valley, CA

#8 Mar 12, 2010
Forget doctors or insurance- you can order a thyroid test online and pay for it yourself. Then you know what your test results are and don't need to worry about all the red tape.

I had Graves Disease for years and it was never diagnosed. It took an ER visit and a near heart attack for me to find out what was really going on. Even then, I had stupid shrinks telling me my racing heart and insomnia was caused by anxiety and not my thyroid, even though my TSH was .005 and FT3 was 35 and had a goiter that my Endo said should have been obvious to any doctor.

After being treated w/ radiation, I'm permanently hypothyroid. I don't believe in all of the Armour/natural stuff, but I do pay for my own thyroid test once a month- twice if I feel bad. It costs around $85 a test and it's well worth the price to know what my thyroid levels are. I only see my Endo every six months, and between then, I adjust my medication accordingly. After all, I'm the one who knows how I feel, and I prefer to be slightly hypothyroid. I hate being hyper.
Shirley Turner

Van Nuys, CA

#9 Mar 13, 2010
I am 70 years of age and have been on thyroid treatment for many years. Every bloodtest reflects that all is OK, however, I experience severe sweating when the weather is hot ie working in the yard, walking etc. Could this be caused by my thyroid?
Mari

Paramount, CA

#10 Mar 13, 2010
I was 56 when U felt tompletely tired all the time, my legs would not respond to even lift them to reach the sidewald and had difficulty breathing. went to urgent care at Kaiser they ordered a test and my tyroid was super extra low, my cholesterol was not responding to medication. After hormone therapy my cholesterol level went to 160. However no one is paying attention to my complain regarding my eyes, my eyelids are swollen and dry. I tell them is related to the low tyrod, they are treating it apart. I' see the doctor next week. How can make them understand my low thyroid has to do everything to do with my eyes. Docs don't talk to each other and think patients are dumb.
Dee

Pensacola, FL

#11 Mar 13, 2010
Mari wrote:
I was 56 when U felt tompletely tired all the time, my legs would not respond to even lift them to reach the sidewald and had difficulty breathing. went to urgent care at Kaiser they ordered a test and my tyroid was super extra low, my cholesterol was not responding to medication. After hormone therapy my cholesterol level went to 160. However no one is paying attention to my complain regarding my eyes, my eyelids are swollen and dry. I tell them is related to the low tyrod, they are treating it apart. I' see the doctor next week. How can make them understand my low thyroid has to do everything to do with my eyes. Docs don't talk to each other and think patients are dumb.
You most likely have Graves Disease. That is why your eyes are dry and swollen along with being hypothyroid. I can't believe your doctor can't/won't diagnose correctly! I was diagnosed with Graves Disease about 8 years ago and believe me, it is a very unpleasant rollercoaster ride that NEVER ends. Let me know if you would like to correspond and I will be happy to help in whatever way I can. By the way, I am female and a few years older than you.
anonymouse

United States

#12 Mar 14, 2010
It's so easy to check your own thyroid function at home using a mercury thermometer. Shake it down before you go to bed, then immediatly when you wake up, before you get out of bed, put it in your armpit next to your skin. It should be above 96.8. If you don't have a mercury thermo, use the basel digital kind used for family planning.

I thought I would have to fight to get Armour Thyroid, but my doc at Kaiser gave it to me no problems.

And the article doesn't get into why there are so many thyroid problems in people. Flouride and plastics, that's why. It's a national disgrace that is only just beginning to get any attention.
Caroline

United States

#13 Mar 14, 2010
Temp won't diagnose a thyroid problem! I had such severe hyperthyroidism my resting heart rate was 150 and I'd lost so much muscle I couldn't walk upstairs. My temp was fine - my TSH was .005

I went severely hypo after my second dose of RAI- temp was fine TSH went upto 65.

Get a blood test for thyroid w Free T3 & T4. And don't believe all the websites that say everyone who's overweight or depressed have a thyroid problem. Real thyroid problems can kill you, especially untreated Graves Disease.
Bryan

Coronado, CA

#14 Mar 14, 2010
I got diagnosed at 14. 200 beats a min. rapid weight loss. School and shrinks saying it was anxiety and having a SED label slapped on me (which stuck even after the figured out it was the thyroid). All from Graves. took 16 (yes SIXTEEN!) pills a day for 5 years to bring it under control (12 PTU and 4 inderals). Then in my mid 20s it swung low into Hashimotos. TERRIFIC! Now I am in my 40s and the Graves kicked back in last year (the 70 pound weight loss in 9 months tipped me off something was up) but it has calmed down last few months and my weight has stabilized.

The long and short of it is that the docs say that it'll continue to swing back and forth like this (very, very slowly swing) between hyper and hypo and they want me to take the i-131 to kill the thing off once and for all and take the pills for the rest of my life. I am actually undecided about it as I really HATE taking any pills now. However I MUCH prefer being hyper than hypo.
CSJ

AOL

#15 Mar 15, 2010
Having a bad day today - see physician tomorrow. Has anyone ever dipped lower after being on Armour?
Carola

Inglewood, CA

#16 Mar 15, 2010
I"m utterly confused. I have gone thru hell lately with health probs. I have uterine fibroids to which I had a uteral embolizm almost 2 yrs ago. I felt horrible before bouncing between birth control and depo lupron for several yrs. I'd had a myomectomy several yrs ago. Since my procedure I've just not felt like myself anymore. Going thru hell and begging Kaiser Permanente for what I figured were female hormone issues it came out that I am now diabetic (who knows how long, last test 5 yrs ago despite 2 surgeries and heavy family history) but NOW I'm also diag with hyperthyroid. I'm taking med but my blood sugar is worse then before. I've gained alot of weight before and after surgery. Depression just as bad. Lots of other symptoms. All I want to do is lose the weight so I can improve all my numbers but I'm not at all sure anymore if I'm taking the right meds. All tests point to hyper but I feel my symptoms point to hypo. I stopped taking the diabetic meds because they add weight (I was told would help lower weight). Thyroid med was supposed to help with losing some weight. Initially I lost 5 pounds the first week but was told that was just bloat. I'm completely frustrated. What do I do ?????
bette

Dublin, Ireland

#17 Mar 19, 2010
this is sad because it starts out on a positive note, to promise hypothyroid patients that there is a definite diagnosis and treatment, but, then diverges to single cases which have nothing to do with national investigation or treatment of their disease
Dear Thyroid

Bonn, Germany

#19 Apr 15, 2010
This is a great article.Finally someone points out what so many patients witha thyroid disease are thinking. DonĀ“t treat us only according to our lab results.Pay attention to the symptoms.
So many doctors are just taking a look at the numbers and adjust the dosage. They never even seem to care how the patient feels.
We need doctors that listen to us and are willing to spent more than just a couple of minutes with their patients.
Laura

Los Angeles, CA

#20 Jun 28, 2011
anonymouse wrote:
It's so easy to check your own thyroid function at home using a mercury thermometer. Shake it down before you go to bed, then immediatly when you wake up, before you get out of bed, put it in your armpit next to your skin. It should be above 96.8. If you don't have a mercury thermo, use the basel digital kind used for family planning.
I thought I would have to fight to get Armour Thyroid, but my doc at Kaiser gave it to me no problems.
And the article doesn't get into why there are so many thyroid problems in people. Flouride and plastics, that's why. It's a national disgrace that is only just beginning to get any attention.
I just started going to Kaiser and the doctor there was a jerk - kept telling me that he didn't like Armour and he was going to get me off it whether I liked it or not - Umm. NOT.

Can you tell me which medical facility and doctor you go to so I can switch? This is the SAME exact reason I left my last doctor (with a diff healthplan).

Thanks :-)

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