New stem cell treatment holds promise...

New stem cell treatment holds promise for cerebral palsy patients

There are 32 comments on the Fox 31 KDVR story from Dec 29, 2009, titled New stem cell treatment holds promise for cerebral palsy patients. In it, Fox 31 KDVR reports that:

ENGLEWOOD, Colo. - Dominic King and Harrison Spiers have so much in common. Best friends for seven years, they are both in the 5th grade at Cottonwood Creek Elementary School.

Join the discussion below, or Read more at Fox 31 KDVR.

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Jaydee

Denver, CO

#1 Dec 29, 2009
I would like to know how to find out mmore about this Stem Cell Procedure. My granddaughter has CP. Thank you
department of hard labor

Denver, CO

#2 Dec 29, 2009
All we got to do is kill more babies.
Ruby

Clinton, MO

#3 Dec 29, 2009
I would love to get some info also, Our Granddaughter has CP and we would love to find a way to help her with her life. I have read a lot about this but do not have the funds to do it on our own.
Jeff Spiers

Salt Lake City, UT

#4 Dec 30, 2009
department of hard labor wrote:
All we got to do is kill more babies.
I am the father of Harrison, one of the boys featured in the story. Embryonic stem cells were not used in this treatment. Thus, no human embryos were harvested. This procedure uses the patient's own adult stem cells (adult autologous stem cell therapy).

We went to the XCell Center in Dusseldorf, Germany to have the procedure done. Here is the link to their website http://www.xcell-center.com/ .

Since: Sep 07

Golden

#5 Dec 30, 2009
I'm pleased to hear this! I am also not at all surprised that it is once again adult stem cells that are being found most useful. We knew this before, but so many politicians love a bandwagon. My hopes and prayers for a great ending to this story.
Jonathan from Canada

Jerusalem, Israel

#6 Dec 30, 2009
Mr. Spiers. Was your child speaking prior to receiving treatment? My sister also suffers from Cerebral Palsy.
Jeff Spiers wrote:
<quoted text>
I am the father of Harrison, one of the boys featured in the story. Embryonic stem cells were not used in this treatment. Thus, no human embryos were harvested. This procedure uses the patient's own adult stem cells (adult autologous stem cell therapy).
We went to the XCell Center in Dusseldorf, Germany to have the procedure done. Here is the link to their website http://www.xcell-center.com/ .
Helen

Saint Charles, MO

#7 Dec 30, 2009
I'm so glad to hear of your success in Germany. Now I'd like to suggest that you look at my website: www.helen3.stemtechbiz.com The Stem enhance capsule causes the release of 25% more adult stem cells from your bone marrow which can go anywhere in the body and become any cell of the body. This is all the FDA will allow us to say. I can say what happened to me. I have bronchitis and my breating is better now. My phone number is opn the website. Please call me.
department of hard labor

Denver, CO

#8 Dec 30, 2009
I am dam glad to hear it was adult cells. Kind of debunks the crap and lies put out by michael j fox and claire mccaskill in the missouri senate race a few years ago.
marcela

United States

#9 Dec 30, 2009
i would like to know more about the families and the resultS.
I have a baby with cerebral palsy and I want more information.
Jeff Spiers

Salt Lake City, UT

#10 Dec 31, 2009
Jonathan from Canada wrote:
Mr. Spiers. Was your child speaking prior to receiving treatment? My sister also suffers from Cerebral Palsy.
<quoted text>
Yes, he has always been able to speak. After the treatment though, his verbal response time has greatly reduced. Harrison and I can discuss things now. What used to be a short exchange of very short sentences has become more intricate.

In October Harrison and I were grilling on the deck outside. He had a lot to say but because it was his brother's birthday, I had to focus elsewhere. A bit frustrated, he pressed me for more time and said, "After dinner, can we talk 'man to man'?" I am learning that my boy has been cooped up inside a body that refuses to cooperate and now is being let out bit by bit.
Sheryl James

AOL

#11 Jan 2, 2010
While on the Internet looking for any information to learn about Stem Cell Therapy in Germany I stopped to read about the boys. Beautiful Miracles. I am an Auntie of a little girl named Kayle who is 5 years old and has Cerebral Palsy. I am wanting to learn do I need a Web Site and Donation Tracker to get the ball rolling. Also, I read of a health Coach who works with the Doctors and Patients in taking Stem Enhance that will help 25-30% prior to going to Germany. ANY INFOrmation you can PROVIDE us with would be SO HELPFUL!. Thank You! GOD BLESS YOU ALL! Sheryl A. James E-Mail [email protected]
Mary 214

Somerset, NJ

#12 Jan 3, 2010
I would like to know more about this procedure. I have a son who had a traumatic brain injury and he is now diagnosed as epileptic. his seizures are untracable -- coming from different focal points in his brain.
Pls let me know who I can contact about getting more information on this procedure. My email address is [email protected] Thank you and I hope the boys continue to get better.
Regards,
Mary J.
Sharol

AOL

#13 Jan 3, 2010
Jeff Spiers wrote:
<quoted text>
I am the father of Harrison, one of the boys featured in the story. Embryonic stem cells were not used in this treatment. Thus, no human embryos were harvested. This procedure uses the patient's own adult stem cells (adult autologous stem cell therapy).
We went to the XCell Center in Dusseldorf, Germany to have the procedure done. Here is the link to their website http://www.xcell-center.com/ .
Jeff - Please tell me about your experiences at XCell. Did you know at the time that they are running a clinical trial through the US Gov't in Mexico for what appears to be the same stem cell treatment? I just found this out. I have been in the process of submitting info to XCell in Germany. We live in CT and my little guy is 3 and has CP. I would appreciate hearing all you have to say about your experience. Thank you.
Chris

Greensboro, NC

#14 Jan 3, 2010
Jeff,
What have your local doctors had to say since your return? What other improvements have you seen (please provide as much details as you are comfortable providing)? What were your concerns/risk about this procedue? Will you go back? What other procedures/options did you research & consider?
Kate

Sydney, Australia

#15 Jan 4, 2010
Hi Jeff - Congratulatons on your success. We have also had huge assistance from our community in Australia to raise the funds to take our daughter (2 yo) to the XCell center next month. Our dilema is which proceedure to choose? Did your boys have the Stem cells administered via Lumbar puncture or via the neuroendoscopic proceedure?
Jack Splitt

Pleasanton, CA

#16 Jan 4, 2010
Hi Dominic and Harrison! Jack Splitt from adaptive baseball here! I'm so excited for you guys. My mom says she is going to start trying to raise the money for me to go to Germany too. Way to go guys see you at baseball!
Jeff Spiers

Salt Lake City, UT

#18 Jan 5, 2010
Kate wrote:
Hi Jeff - Congratulatons on your success. We have also had huge assistance from our community in Australia to raise the funds to take our daughter (2 yo) to the XCell center next month. Our dilema is which proceedure to choose? Did your boys have the Stem cells administered via Lumbar puncture or via the neuroendoscopic proceedure?
We had the lumbar puncture done.
Jeff Spiers

Salt Lake City, UT

#19 Jan 5, 2010
Jack Splitt wrote:
Hi Dominic and Harrison! Jack Splitt from adaptive baseball here! I'm so excited for you guys. My mom says she is going to start trying to raise the money for me to go to Germany too. Way to go guys see you at baseball!
Spring training has begun in the Spiers' household. We can't wait!
Jeff Spiers

Salt Lake City, UT

#20 Jan 5, 2010
Chris wrote:
Jeff,
What have your local doctors had to say since your return? What other improvements have you seen (please provide as much details as you are comfortable providing)? What were your concerns/risk about this procedue? Will you go back? What other procedures/options did you research & consider?
Our physician is pleased with the improvement. Speech, physical, and occupational therapists all agree he continues to progress. The news story really set out the details of Harrison's improvement. In light of the miracle we have received, we are anxious to share all detail with any willing party.

Our concerns were mostly abated when a neuroradiologist friend reviewed the three possibilities we were considering this time last year. At that time we were considering a cord blood transplant, autologous stem cells via lumbar puncture, and autologous stem cells through other means (intracranial, etc.). After much deliberation and consultation, we landed on autologous stem cell via lumbar puncture.

The concerns we had related to any possible side effects of the procedure. Harrison experienced a spinal headache (common with lumbar punctures)for almost 8 days following. Other than that, we have not witnessed any adverse side effects. Quite literally, the procedure consists of two common outpatient treatments. No stitches. Just bandaids.

We are not planning to return. Our expectation is that any future procedure would be available in the states. Raising the money and traveling was quite a burden. We also feel the technology will rapidly improve over the next few years. In short, we are in no hurry to do it again, but are open to the idea at some point.
Jeff Spiers

Salt Lake City, UT

#21 Jan 5, 2010
Kate wrote:
Hi Jeff - Congratulatons on your success. We have also had huge assistance from our community in Australia to raise the funds to take our daughter (2 yo) to the XCell center next month. Our dilema is which proceedure to choose? Did your boys have the Stem cells administered via Lumbar puncture or via the neuroendoscopic proceedure?
We chose lumbar puncture.

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