Rare and mysterious disorder strikes ...

Rare and mysterious disorder strikes brains of young girls

There are 11 comments on the El Paso Times story from Jul 4, 2010, titled Rare and mysterious disorder strikes brains of young girls. In it, El Paso Times reports that:

Joe Bejarano and Roger Brooks don't know each other. Bejarano lives in East El Paso, while Brooks lives in Irving, Texas, near Dallas.

Join the discussion below, or Read more at El Paso Times.

Rosie

Pea Ridge, AR

#1 Jul 4, 2010
God bless those girls.
Josh

United States

#2 Jul 5, 2010
My heart and prays go out to these families.

“Tardy For The Party ”

Since: May 10

United States

#3 Jul 5, 2010
Bless those girls.
pink rose

South Pasadena, CA

#4 Jul 5, 2010
Hopefully lots of money will be donated to the Rett Syndrome Resource Trust.Rich people,it's a good cause,so Please give you might save someones Life.
Lupe

El Paso, TX

#5 Jul 5, 2010
I think it's wonderful that you are raising awareness for Rett Syndrome. Most people don't understand the full extent of this disorder, nor the challenges (especially apraxia) these girls must overcome to communicate, eat, walk, learn, etc. I tend to think that because of the high level of care these girls need, it is difficult for most parents to take their daughters (RS) out frequently, and not because they believe they should hide them in the closet. As my daughter (w/RS)grows, loses skills, & develops skeletal deformities, it has become more difficult to transport her so our outings are fewer, but still not non-existent. My daughter has taught me the true meaning of unconditional love and the strength and courage that come from it.
"Challenges are gifts that force us to search for a new center of gravity. Don't fight them. Just find a different way to stand" Oprah Winfrey

“Up close and personal!”

Since: Jun 08

El Paso, TX

#6 Jul 5, 2010
My heart goes out to the parents of these children. May the Lord give you the strength to care for these kids. Hopefully a cure or at least something to slow down this disorder will be discovered soon. If it wasn't for this article, I would have probably never have heard of this disorder. God bless you all!
Nancy

United States

#7 Jul 6, 2010
Excellent, informative article
Becky

El Paso, TX

#8 Jul 6, 2010
I'm the auntie to Jazzy one of the girls featured in this story. I can't begin to tell what my niece and my sister go through every day. Lupe, I know my sister understands everything you are going through. She is with Jazzy 24/7. She sees her pains everyday. My niece communicates with those big beautiful eyes telling my sister what she needs.
We love her so dearly. We know her as our Angel.
Becky

El Paso, TX

#9 Jul 6, 2010
I am attaching a website for PEPSI. Pepsi is currently running a Challenge. People submit their ideas and a grandmother of one of our RETT Girls has submitted a request for funding for RETT syndrome. If you all want to help us with the cause, please cast your votes at the link below. The top 2 ideas will receive $250,000 in research funding.

http://www.facebook.com/l.php...
Becky

El Paso, TX

#10 Jul 6, 2010
Try this link...Thank you for your prayers and thoughts.

http://pep.si/cbmVjI
Chip

El Paso, TX

#11 Jul 6, 2010
.

May God Bless these young children.

Prayers & thoughts to these children.

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