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Carolann Hayes

AOL

#1 Aug 25, 2009
If there is anyone who is suffering the effects of the gore-tex dual mesh implant for hernia repair, please reply to me or file a complaint with the FDA. This mesh will not be recalled, unless people complain. You can do this online. My husband has been suffering since 2004 with effects from the gore-tex mesh. He has draining with green, foul smelling infection, with lots of pain. Please help, if you are suffering from this also.
Karla Hogan

Orlando, FL

#2 Mar 28, 2011
Dr. Martin Heslin of UAB Dept. of General Surgery performed surgery on me on 12/16/1998 to remove a 13cm tumor (sarcoma) from my left chest wall. We were told prior to the surgery that the tumor was encapsulated and should be simple to remove. However, during the surgery iy was found that the tumor had "tentacles" invading sections of my chest wall. To remove the tumor completely, they had to remove four left ribs, part of my left lung, part of my sternum, reconstruction of my diaphragm and removal of 22cm of tissue and muscle from my chest cavity. Gore-Tex mesh was packed into my chest wall to protect what was left of my left lung and heart. The skin flaps were pulled over the Gore-Tex mesh and glued together. It had always taken two incomes to support myself, my husband and our three children. I attempted to return to work after the surgery but sitting in an office chair and working on the computer was so painful that I was having to take Lortab every 3 hours to be able to work. Then the Lortab stopped helping the pain and I was referred to a Pain Clinic to be monitored using stronger narcotics and I was no longer to work. Since this surgery, I have never known even one day without pain. There have been times that I have sat and cried, wishing I could reach into my chest and pull the mesh out. I missed important events in my childrens' lives because of the mesh. I am always battling infections because my body is attacking the mesh and weakening my immune system. I have shingles off and on and spent 7 days in the hospital in 11/2009 due to a staph infection. The doctors said if they could not control the infection and it spread into the mesh that I would die. I still require prescribed narcotics just to be able to move around. During cold and damp weather, it feels like someone has a drawstring inside my chest and is pulling it tighter and tighter. During these episodes I cannot breathe when I lay down and have several days frequently sitting in a chair, rocking back and forth, crying and praying the pain will go away. We lost our home due foreclosure because of medical expenses and the loss of my income. There are times when it hurts as bad as it did the day after the surgery (unfortunately, I do not have a morphine pump like I had in the hospital). I still have times when the scar tries to pull apart resulting in blood oozing from the surgical site. I have had to basically alienate myself from the rest of the world and former friends because people think I am a drug addict because I still require narcotics for pain control. I am isolated, have no hope left regarding my health improving and no way to be able to work to help support my family. If I had known that removal of the tumor was going to affect my life as it has with body parts being removed and placement of this mesh in my chest cavity, I think I would have chosen living with the tumor until death instead of living in a world of pain and limitations I have had to live with since 12/1998.
[email protected]
1 post removed
Melissa Herren

United States

#4 Jun 21, 2012
Karla Hogan wrote:
Dr. Martin Heslin of UAB Dept. of General Surgery performed surgery on me on 12/16/1998 to remove a 13cm tumor (sarcoma) from my left chest wall. We were told prior to the surgery that the tumor was encapsulated and should be simple to remove. However, during the surgery iy was found that the tumor had "tentacles" invading sections of my chest wall. To remove the tumor completely, they had to remove four left ribs, part of my left lung, part of my sternum, reconstruction of my diaphragm and removal of 22cm of tissue and muscle from my chest cavity. Gore-Tex mesh was packed into my chest wall to protect what was left of my left lung and heart. The skin flaps were pulled over the Gore-Tex mesh and glued together. It had always taken two incomes to support myself, my husband and our three children. I attempted to return to work after the surgery but sitting in an office chair and working on the computer was so painful that I was having to take Lortab every 3 hours to be able to work. Then the Lortab stopped helping the pain and I was referred to a Pain Clinic to be monitored using stronger narcotics and I was no longer to work. Since this surgery, I have never known even one day without pain. There have been times that I have sat and cried, wishing I could reach into my chest and pull the mesh out. I missed important events in my childrens' lives because of the mesh. I am always battling infections because my body is attacking the mesh and weakening my immune system. I have shingles off and on and spent 7 days in the hospital in 11/2009 due to a staph infection. The doctors said if they could not control the infection and it spread into the mesh that I would die. I still require prescribed narcotics just to be able to move around. During cold and damp weather, it feels like someone has a drawstring inside my chest and is pulling it tighter and tighter. During these episodes I cannot breathe when I lay down and have several days frequently sitting in a chair, rocking back and forth, crying and praying the pain will go away. We lost our home due foreclosure because of medical expenses and the loss of my income. There are times when it hurts as bad as it did the day after the surgery (unfortunately, I do not have a morphine pump like I had in the hospital). I still have times when the scar tries to pull apart resulting in blood oozing from the surgical site. I have had to basically alienate myself from the rest of the world and former friends because people think I am a drug addict because I still require narcotics for pain control. I am isolated, have no hope left regarding my health improving and no way to be able to work to help support my family. If I had known that removal of the tumor was going to affect my life as it has with body parts being removed and placement of this mesh in my chest cavity, I think I would have chosen living with the tumor until death instead of living in a world of pain and limitations I have had to live with since 12/1998.
[email protected]
When I read this I thought it was about me. I had same surgery in 2009, had mesh removed in 2010. Still have staph infection and pain. I know how you feel, don't know whats worse cancer or infection.
Jeannie

Jacksonville, FL

#5 Sep 8, 2012
Hi, Karla since 2002 I have been experiencing pain in my abdomen from a Gore-Tex Mesh implant to hold in the weak muscle wall at an abdominal hernia site. The Gore-Tex Mesh was attached to my abdominal muscle wall with very tiny elaborate stitches. The surgeon explained to me that the stitches he used would never break. Well instead, over the years I experienced massive adhesions and scar tissue damage of nerves in my abdomen and numbness in certain areas of my stomach. It took me about 10 months and Lortab type drugs to feel better from the Gore Tex Mesh Hernia Repair Patch Surgery. Believe me I was not looking forward to having a surgeon cut or touch around this mesh in my abdomen. Last month in August, I was hospitalized since July 10 to August 3, 2012 because this mesh entangled, blocked, and caused Mechanical Small Bowel Obstruction. I lost part of my lower intestines and luckily, the surgeon was skilled enough to avoid leaving me with a colostomy bag. The operative report stated it took 25 to 30 minutes to cut off some of the Gore-Tex mesh. Since the operation, I feel the pain everyday just like that mesh was first inserted. Even though, some of the adhesions and scar tissue was removed now I have to brace myself to endure the new ones that are developing. I feel tearing and burning and pain just like when the mesh was first sewn to my muscles. My surgical incision called for 17 staples after using disposable stitches inside me and I feel new scar tissue and adhesions painfully developing as I move around using my temporary walker. I too was on the morphine pump but refused all narcotics before discharge. I attend the Wound Care Clinic once a week because my wound care nurse that came to my house could not get the surgical incision to respond to healing. So, now I go once a week to an excellent Wound Care Clinic who sent a biopsy of the flesh that was poking from the incision in a couple of spots to a lab in another state for analyzing specifically the origin of the bacteria interfering in the healing of the surgical site. The doctor explained when the biopsy comes back from the lab he will know what is causing the bacteria and if the Gore Text Mesh is causing the bacteria issues resistant to healing. I met at this Would Clinic a veteran who has a Gore-Tex Mesh Patch implant in his abdominal as well. I could not believe what he showed my husband and me. His mesh was plainly visible and very hard to the touch, which covered an injury he received in Viet Nam. I just want this Gore-Tex Mesh removed but with what technology is available to replace it with that would not cause havoc to the body area involved.
Sheena

San Jose, CA

#6 Jan 4, 2013
Meshes or bladder slings have been reported to bring more detrimental effects than benefits to recipients. Despite the increasing number of adverse-event reports received by the FDA, there is no telling if there may be any bladder sling or mesh device recall anytime soon. We can only hope that those who may have filed legal claims against mesh makers get the compensation they rightfully deserve. Trials against major mesh manufacturers are set to begin this year. People concerned and interested may want to follow these closely to see how they may turn out. Visit http://www.bladderslingrecall.us to be regulary updated about issues surrounding vaginal mesh or sling devices.
1 post removed
Dyanna Moore

Effingham, IL

#8 Jan 21, 2013
I too had an abdominal mesh implant for massive abdominal hernia that I was left with due to a doctor negligence. This is my story. In 2002,June, I had a colon resection done. I got severe staph that left me incision open and draining a rotten hamburg smelling fluid. I was packed with sterile gauze for three months before my incision finally closed.I was bedridden during this time. What was supposed to be three weeks turned into 13 months of my life. After I was finally allowed to return to work I started having pain and swelling in my abdomen. Being on my feet for a few hours a day left me looking six months pregnant. It was three months later in September 2002 when I am being admitted back into the hospital for massive abdominal hernia because the colon surgeon FORGOT to sew the rectus fascia muscles back beforing closing me up. The mesh was sewn into my muscles after the surgeon sewed back together my rectus fascia muscles that were now eroding away. It is now 2013 and I have had years of pain and discomfort because of this mesh. I cannot get comfortable to sleep...no matter how I lay it feels like I am being ripped apart inside, sexual intercourse is painful at times, my bladder has drop so badly that incontinence is terrible..a few months after the implant my thyroid went haywire..I say from my body trying to push out or fight off this foreign object inside..so now weight gain is uncontrollable no matter what I try...making the implant pain worse from overstretching..I am now having constant severe muscle spasms in my sides the kind that drop u to your knees and cause begging and crying from the pain...and I know its from the mesh being overstretched. My implant is six inches wide by twelve inches long
Shelly

White House, TN

#9 Feb 2, 2013
I had emergency hernia surgery about four years ago, and my surgeon used the Gore Tex mesh (attached to my ribs to keep it in place). I had an open wound for over three years that kept getting staph infection. The surgeon performed three other surgeries to clean the area and leave it open--after the third surgery, he said to me 'I'll see you again, you'll be back for more cleaning.' I was trying to find another surgeon who would help me get healing. Noone would touch me. I ended up in the hospital with a terrible staph infection, and again, the surgeon was just going to clean it out. Well, the infection control physician came by my room before the surgery, and when the surgeon came in, he told him that he had to take the mesh out--now. So, I had an even bigger open area on my stomach-We took very good care of it, and within a month, it was completely healed--no more pain, no more infections, no more cleaning it, no more smelling it. I have been fine every since. In fact, the surgeon said I shouldn't get a hernia again, due to all the scar tissue from the infection I had for over three years!
Mika R

Los Angeles, CA

#10 Mar 22, 2013
I have been reading several related posts and judging from most people's complaints, it seems as though mesh implants may be associated with more problems than benefits. I also came across this article at bladdermeshlawsuit.us/ transvaginal-mesh-recalls/ and found that some of these mesh implants have already been pulled out from the market due to serious safety problems.
danny kidd

Saint Albans, WV

#11 Mar 23, 2013
plese god just let me live another day i had 27 hearnnas if you have this in you; you have just siged your death wish god be with you me to late god help me danny lee kidd chespeake wva
Farmington_New Mexico

Albuquerque, NM

#12 Nov 1, 2013
Carolann Hayes wrote:
If there is anyone who is suffering the effects of the gore-tex dual mesh implant for hernia repair, please reply to me or file a complaint with the FDA. This mesh will not be recalled, unless people complain. You can do this online. My husband has been suffering since 2004 with effects from the gore-tex mesh. He has draining with green, foul smelling infection, with lots of pain. Please help, if you are suffering from this also.
My husband has problems with a Gore-Tex Dual Mesh implant from a Hernia Repair. He had also experienced continuous infection in abdomen. He also had green drainage, with a foul smell from the infection. He has had four surgery do to this mesh. We have complained to the company and they are believe its not their product is in fault.
susan zappo

Westport, CT

#13 Jan 23, 2014
Carolann Hayes wrote:
If there is anyone who is suffering the effects of the gore-tex dual mesh implant for hernia repair, please reply to me or file a complaint with the FDA. This mesh will not be recalled, unless people complain. You can do this online. My husband has been suffering since 2004 with effects from the gore-tex mesh. He has draining with green, foul smelling infection, with lots of pain. Please help, if you are suffering from this also.
2013: help is on the way. filed an adverse-effect report with fda. there is an fda watch on gore-tex dual mesh. gore, manufacturer, contacted me. they are required by law to investigate. sorry your husband has been suffering since 2004. hope he is doing better. i, too, had gore-tex dual mesh implanted for hernia repair. have had four hospitalizations and three surgeries in eight months as a result with another surgery awaiting. had mesh removed.
susan zappo

Westport, CT

#14 Jan 23, 2014
Farmington_New Mexico wrote:
<quoted text>
My husband has problems with a Gore-Tex Dual Mesh implant from a Hernia Repair. He had also experienced continuous infection in abdomen. He also had green drainage, with a foul smell from the infection. He has had four surgery do to this mesh. We have complained to the company and they are believe its not their product is in fault.
sorry you husband has had such a tough time of it. his story sounds like mine. of course, company does not believe their product is at fault. i filed an adverse-effect report with fda. there is an fda watch on gore-tex dual mesh. gore, manufacturer, contacted me. they are required by law to investigate. you might want to file an adverse-effect report with fda. might not benefit us but get product recalled. hope recall happens and your husband is doing better. good luck.
info

Stafford, VA

#15 Jan 25, 2014
susan zappo wrote:
<quoted text>2013: help is on the way. filed an adverse-effect report with fda. there is an fda watch on gore-tex dual mesh. gore, manufacturer, contacted me. they are required by law to investigate. sorry your husband has been suffering since 2004. hope he is doing better. i, too, had gore-tex dual mesh implanted for hernia repair. have had four hospitalizations and three surgeries in eight months as a result with another surgery awaiting. had mesh removed.
I had never heard of that. Thanks for the info
Red

Darlington, SC

#16 Jan 29, 2014
Carolann Hayes wrote:
If there is anyone who is suffering the effects of the gore-tex dual mesh implant for hernia repair, please reply to me or file a complaint with the FDA. This mesh will not be recalled, unless people complain. You can do this online. My husband has been suffering since 2004 with effects from the gore-tex mesh. He has draining with green, foul smelling infection, with lots of pain. Please help, if you are suffering from this also.
I have been suffering for the past several years with hernia gore-tex mesh. I was told back in 2004 that I would never have this problem again. However, I am faced with yet another hernia even though I have gore-tex mesh. This is the second time I've had this same mesh. I hurt everyday. I even went to the hospital to talk with the Administrator and his secretary to see if gore-tex mesh had been recalled and they said No! I suffer everyday and I don't know who to talk to, or what to do. I lost approximately 4" off my small intestine back in 2003 during the removal of the second Hernia. I'm just disgushed, disapointed, and sick.
cindy taylor

Andover, KS

#17 Apr 17, 2014
i had gore tex mesh put in me in 2012 i have had 7 surgery sence than spent 21 days in ICU was on a feeding tube for 42 days after they took out the mesh i hurt every day. now they going to put me back on the feeding tube because of the hole in my colan that the mesh caused they only gave me 48 hours to live when they took the mesh out cause it was so infected and was wraped around my colan. I to like your husbun have a holr that keeps opening up and smells and drains. i really thinks someone needs to pay for all the suffering we all in dure because of this gore tex mesh
1 post removed
dian dunn

Seaford, DE

#19 May 6, 2014
Red wrote:
<quoted text> I have been suffering for the past several years with hernia gore-tex mesh. I was told back in 2004 that I would never have this problem again. However, I am faced with yet another hernia even though I have gore-tex mesh. This is the second time I've had this same mesh. I hurt everyday. I even went to the hospital to talk with the Administrator and his secretary to see if gore-tex mesh had been recalled and they said No! I suffer everyday and I don't know who to talk to, or what to do. I lost approximately 4" off my small intestine back in 2003 during the removal of the second Hernia. I'm just disgushed, disapointed, and sick.
can you start a cast action and this way who ever had this done and has problems can go with this. I also am suffering since I had this done. Diana
Regina Starr

Humble, TX

#20 Jun 11, 2014
In January 2001 I had the Gore-Tex sling put in and by July 2001 my OBGYN was cutting a piece of it out because it protruded through the vaginal wall causing major problems. I still have the majority of this sling in which I continue to be in severe pain every day. I was 26 at the time I received this as the doctor told me I would have to eventually have this surgery just to find out that I didn't need the surgery at all. My life has changed drastically due to the Gore-Tex sling and I can't get any help to try and fix some of the problems. I filed with different lawyers to see if something could be done as I was just hoping to get help with revision and didn't care about the compensation and all of them told me that Gore-Tex isn't one that is involved in any litigation cases. Does anyone know of where I might could go for help or even a lawyer that would be willing to actually take this case to at least help me get medical relief?
Debra Noland

Waycross, GA

#21 Jun 22, 2014
In 1993,1995,1998,2001 I had hernia repairs with various meshes. The last one was the Gortex mesh. All of the other surgeries were because the meshes caused lesions and attached to my organs I lost one ovary due to lesions in 1998 and the other ovary in 2001. Both had lesions on them and my sides had to be scraped from the lesions the meshes caused. I was put out on disability in 2001 due to the amount of abdominal surgery these meshes caused. NONE of these meshes are safe. NONE. Pain has been a large part of my life. I was 29 when I had the first surgery and on SSD by 38. I was in a rear end collision and due to the weakness of my insides, my bowel came out the other side of this patch. I have always been able to tell that there is a foreign object in my stomach and these meshes do not help prevent another hernia. They CAUSE more tissue to build up and grow. FDA needs to ban all of them.
Mary Sparks

Dieterich, IL

#22 Jul 11, 2014
I had mesh put in for a full pelvic prolapse in 2011. The pain I'm in is unbelievable. My body rejected it and caused a infection that lasted two years. My pelvic floor ripped either by the doctor or infection. Nobody knows.I have had colon surgery in Jan.2013. The mesh i was told can't come out. I just have to live with it. How can I live if the only thing I can do is lay in bed.I can't sit,stand or walk any distance at all.Forget lifting.I can't carry a gallon milk from the car.Why don't anyone want to talk about this?Why can't I get any help for what was done to me? I know I was not the only one to have this mesh put in. Talk to me anyone!
Daniel Ochoa

Victorville, CA

#23 Jul 21, 2014
Carolann Hayes wrote:
If there is anyone who is suffering the effects of the gore-tex dual mesh implant for hernia repair, please reply to me or file a complaint with the FDA. This mesh will not be recalled, unless people complain. You can do this online. My husband has been suffering since 2004 with effects from the gore-tex mesh. He has draining with green, foul smelling infection, with lots of pain. Please help, if you are suffering from this also.
I just have Lung diaphragm repair, and I have a lot of tendon pain I can't lift nothing I'm on some words disable doctor told me that the mesh was need there, but left side tendons were mess up, the pain is big, I have to sleep on my right side only one or two hours per night/

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