Steven Johnson Syndrome
Adding Awareness

Saint Louis, MO

#1 Aug 6, 2013
People know this disease. It can happen to all ages. Read this and pay attention to medicine you give your children, parents, etc.

Since: Aug 13

Brooklyn, NY

#2 Aug 20, 2013
This is a serious disease! My dermatologist insisted that I continue taking the antibiotic Doxycycline Hyclate even though it caused me Stevens Johnson Syndrome. He doesn't think these symptoms are associate with the antibiotics. I took them for only 2 days and it caused the edge of my ears to blister, ooze, and slough off. Really painful! It also caused my eyes to be infected. My eyes are very red, swollen, oozing with yellow mucous. My derm thinks it's an allergic reaction to a new hair product, but I'm not using any. I'm off the antibiotics for two days and I'm not seeing much improvement. I know mine is a mild case of SJS. People have gone blind from it, some have died. Doctors mean well but they aren't always right. Trust your gut feeling.
SJS supporter

Saint Louis, MO

#3 Aug 21, 2013
I am only hoping this brings awareness to SJS. A friend of mine lost her son in 2011 from this horrible disease. It can happen to anyone at anytime. We need to continue to spread the word. Missouri needs to be August SJS month, which we are working on for next year.

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