Promising quest for cure

Promising quest for cure

There are 8 comments on the Baltimore Sun story from Mar 30, 2008, titled Promising quest for cure. In it, Baltimore Sun reports that:

Fifteen months ago, the pain from Pamela Newton's sickle cell disease was excruciating.

Join the discussion below, or Read more at Baltimore Sun.

Ade Sanusi

United States

#1 Apr 30, 2008
I am writing because my younger sister who currently lives in Nigeria might be needing a hip replacement. She has sickle cell Anemia and I am in the process of saving money or borrowing money to fly her to the US for this operation. I was informed that the X-Ray shows the ball joint to be almost gone. I am a US citizen, i live and work at St. Mary's County here in Maryland. Is there any way I can find out how much this bone marrow transplant will cost? I know very well that this affects so many people around the world and I know anyone would ask, what makes my sister's case special? I don't have an answer but I wish everyone else with SS will at some point get the treatment. I would like to know more about the procedure and what someone has to do in order to have the operation? Please, my email is [email protected] Thanks and have a wonderful time.
Doc

Nassau, Bahamas

#2 May 3, 2008
This is a very helpful article which offers cautious hope to people dealing with sickle cell anemia themselves or who have loved ones with this disease. Although the risks are real, I trust that many will focus on the possibilities for a cure.

I applaud these physicians who work untiringly along with their staff and colleagues to develop such life-saving therapies. It takes courage and commitment to devote one's energies and time to this work.

My prayer is that these doctors and others like them will redouble their efforts to reduce the risks, and give even more hope to people literally hurting from this disease. Gene therapy holds promise - let's do everything we can to conquer sickle cell anemia . Keep hope alive!
David Johnson

Foothill Ranch, CA

#3 May 4, 2008
My mom is 63 years of age and one of the oldest individuals in this country living with Sickle Cell and Beta Thalassemia. the Physicians credit her tenured life to frequent blood transfusions. She had Ferritin and Fe TIBC levels that were off the chart. However,thanks to Exjade and the Desferol infusion after each blood transfusion her serum Ferritin and Fe levels are under control. I am curios to know if something like a Bone Marrow transplant would help someone her age. She was laways told by her MD that she was too old for somethng like this. So I ask you, is she too old or can something be done to cure her. Is anyone looking to the continent of Africa for solutions and treatment. I often times do not feel that Kaiser has her best interest at heart when it comes to solutions for a possible cure because they only treat the symptoms. She has been taking the Procrit shots and they seem to help for a while, however, it seems as if her body goes through a cycle every 4-7 mos when her Hgb & Hct levels drop. I feel it is the Beta Thal that causes this but I am not a Physician. I f you could supply me with some more info on helping my mom, it would be greatly appreciated. By the way, there is another woman in California who is in her 70's living with Sickle Cell Disease. God Bless you and keep safe and look forward to your response.

David
Los Angeles, CA
[email protected]
Charmaine Hubbard

Tangier, VA

#4 May 13, 2008
She was the first cured by the experimental bone marrow transplant. Well I am first cured by God!!!!!!!!!!

[email protected]
olusola idowu

Ukraine

#5 May 21, 2008
i think that's good news for all sickle cell sufferers.I'm 25 and i know how living with sickle cell has being so i think anything to get rid of the disease is welcomed.thanks
2blessed

Cincinnati, OH

#6 May 28, 2008
This story was informative, and the ray of hope I have been praying for. My son is 13 years old and has sickle cell anemia. My son was not diagnosed until he was four years old an wound up in the hospital for dehydration. Four many years since he did not have many complication I guess I lived in denial, never facing the fact that he has sickle cell. Several years ago reality struck when he was hospitalized for his first pain crisis and discovered that he is allergic to morphine and dilaudid two of the strongest and most often used pain medications for sickle cell crisis. It was at that point that I made a conscious decision to be his personal advocate and decided to switch careers and go to nursing school. Even as a registered nurse there is somethings you can only learn from stories like this.
cbillups00

Kansas City, MO

#7 Jun 3, 2008
To help the person that asked about hip replacement. There is a wonderful doctor at KU Medical Center in Kansas City, Kansas, his name is Dr. Hendricks, he's great. He has replaced one of my daughter's hip and will replace the other one, June 10, 2008. Hope this helps. Keep us in your prays.
Christina Ninson

Hightstown, NJ

#8 Jun 3, 2008
This article is inspring for someone like me. my dauther was diagonsed with Sickle Cell SS at birth. she has been in and out of the hospital since she was 10 months.I have a very strong support system (my family) behind me and my daugther. however it's not enough from preventing her crisises. she recently had to have her first blood transplant at 2yrs old and hopefully that would be her last. I always thank God and i will continue to pray that he will bless those effected with a cure without effect and for all those who suffer you must remember with God all things are possible.I also that God for working through the Doctors and i Pray that he continues to increase their knowledge.GOD BLESS.GOOD FAITH.

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