morgellons disease
Steve

United States

#46 Jul 4, 2012
get a lifr wrote:
<quoted text>
There's s a new disease every week. Because people eat meat.
According to anthropologists, it is because of meat eating that we were able to advance. Granted, the meat eaten a million years ago wasn't filled with steroids and other unnatural substances.
Richard Kuhns

Middletown, NJ

#47 Sep 14, 2012
There are dozens of approaches to Morgellons and other skin parasites. The web is full of them. And there are a lot of theories.
I contracted skin parasites back in the mid 90's before the word Morgellons was coined in 2002. I discovered what I call the King Diet that literally has saved my life and hundreds of others.
For many years many of us tried to figure out what we had and what was causing our itching and biting symptoms that were ruining our lives. Word and phrases like Morgellons, collembola, spring tails, and strongyloides were being thrown about.
Through my newsletters and emails from subscribers and my own personal experiences I realized that there were three distinct skin parasites:
Morgellons
Collembola or they are also called spring tails
Strongyloides (a nematode)
I published my first book in 2006 titled Soothing the Itch Within and the Diet to Control it.
More recently in 2012 I've rewritten and updated it and changed the title to How to Get Your Life Back from Morgellons and Other Skin Parasites.
From the contributions of hundreds of subscribers and their experiences, we now know how to do exactly what the title says--Get Your Life Back as I have personally done and helped hundreds and hundreds do likewise. Although the King Diet is effective for all three parasites, there are a few other fundamental things you do to truly get your life back.
And you don't have to have your mercury filings removed. You can google the title or go to http://www.SkinParasitesEbook.com
sharon e

United States

#48 Sep 14, 2012
comfort1660 - The only physician who has given me any tools or insights is, unfortunately, on the East Coast. I don't know how he handles the long distance treatments. Since I've seen him and been under his care, he will allow me to Skype. Wayne Bonlie, MD in Timonium, MD. Ginger Savely is in San Francisco at the pricey clinic that takes no insurance. Bonlie doesn't take insurance, but he's reasonable.

A side note from my recent visit to OHSU. First, the physician I was supposed to see suddenly had to go out of the country. He specializes in psoriasis and is heavily involved in research (so the Morgellon's was a fit). I was called to reschedule about two weeks before my appointment, but I prepaid my hotel at a great rate and had made arrangements. So, they set me up with a very elderly dermatologist. The two residents were receptive, but he just labeled my lesions as neurotic excoriations. Then I inquired if skin samples or blood work would be done, and he dismissed me. Not that the man was rude; he just took no further interest. Eurax cream was prescribed for the lesions, and it has improved some of the sores. It can't be used on any open wounds however.

I think I'll look up the information by the respondent that followed you to see if the dietary approach is worthy. Also, to note: Last July/August, I started a major episode that peaked in November. I almost was hospitalized. I was scheduled to go to Hawaii for a healers' workshop. With emergency meds and a seroquel rx packed, I just went. Amazingly, the lesions cleared significantly; the crawling and biting sensations improved but to a lesser extent.[This was without resorting to the meds. Interestingly, the diet was primarily vegetarian while at the retreat.]

Also, to the individual that was treated for scabies, I had that diagnosis when I returned from a reflexology training in upstate New York. Later, I had open sores that cat fleas entered. That put me in the psych ward. Pretty much, when I give my history, I get written off as neurotic and having DOP. I would like to know what type of physician to see for such a diverse set of symptoms. Each type of specialist is rather myopic or in denial about the disease and its complexity. I'm certain my frustration is shared.

Are any of you noticing seasonal peaks or improvements? My knee replacement is scheduled in about 6 weeks, and I'm praying for a respite so no infections occur.

Take care of yourselves. I personally get a bit isolated and depleted after each attempt to get help. Then, I often get depressed. This is no cakewalk we're on, but at least we are not alone.
Frustrated

Charleston, WV

#50 Oct 10, 2012
DLS wrote:
I live in Portland Oregon and I believe that I have Morgellons. I have had symptoms for six months now and recently I noticed strange fibers in my open wounds. I originally thought I had a serious problem with slivers after building a shed with particle board. After pulling out what looked like egg sacks, I got out my 20x lense and that is when I discovered the fibers. Last night to my shock and horror, I saw one of the fibers moving! I am freaking out and would like to hear back from anybody that has it or can direct me toward getting help. I called OHSU infectious disease department and they warned me that their standpoint is it parasotosis. Please get back to me, sincerely, D.
I have found several of mine moving. They look like translucent thin wormlike things. I put one on a slide to keep. It did move and I made my husband look too to make sure I'm not seeing things. Glad to knowing I'm not alone!
Frustrated

Charleston, WV

#51 Oct 10, 2012
Steve wrote:
<quoted text>According to anthropologists, it is because of meat eating that we were able to advance. Granted, the meat eaten a million years ago wasn't filled with steroids and other unnatural substances.
It's all in who you base your beliefs in. If you look at historical biblical references, mans life was cut by less than half when meat was introduced. Many believe also a plant based diet was Gods original plan for man. Recently, study published that followed 7day Adventist showed that its with less animal foods contribute to less cardio metabolic health risk over all.
sharon e

United States

#52 Oct 13, 2012
Frustrated -

I had no luck with Doctor Parker at OHSU Dermatology. Doctor Ehst was supposed to see me and unexpectedly had to leave the country (not as in deported, just as in travel). With my plans in place and reservations made, I came anyhow to be disappointed. However, the prescription for Eurax cream has helped my lesions a lot.

Very importantly, be careful about your lesions and getting sleep. When I was at your stage, I obsessed with my skin and slept very little. It makes you very vulnerable to infection, and eventually, you can get to the point when your skin crawls (like in D.T.s) and sleep is impossible. Then, you may need to be on something like seroquel and/or end up in the hospital to get stabilized and start sleeping. Unfortunately, you will probably be checked by someone in infectious diseases but assigned to the psych ward. I know from direct experience. It is not fun.

Look back over my previous posts to see if there's anything there to help you. I wish you the very best, and I hope your husband is a supportive as mine was (at that time). Sharon

Since: Dec 11

Location hidden

#53 Nov 14, 2012
Sorry, gotta post this

Since: Dec 11

Location hidden

#54 Nov 14, 2012
Patti Jo Edwards

Cottage Grove, OR

#55 Nov 20, 2012
DLS wrote:
I live in Portland Oregon and I believe that I have Morgellons. I have had symptoms for six months now and recently I noticed strange fibers in my open wounds. I originally thought I had a serious problem with slivers after building a shed with particle board. After pulling out what looked like egg sacks, I got out my 20x lense and that is when I discovered the fibers. Last night to my shock and horror, I saw one of the fibers moving! I am freaking out and would like to hear back from anybody that has it or can direct me toward getting help. I called OHSU infectious disease department and they warned me that their standpoint is it parasotosis. Please get back to me, sincerely, D.
I did find articles on line and some YouTube videos on this. Look up Bt Cotton Fiber Disease. I have read that it is a fungus/bacterium, that Agrabacterium is found in all sufferers tested and that the fibers are unlike anything in the FBI database. it is contagious. You can get it from soils, compost, insects that have feasted on an infected host and from dust that carry the contagion. You can get it from others who are infected. Dogs, horses and humans get this disease. The reason it is not more widely know is it would work against the powerful interest of the biotech industry. When I attempted to warn people about this, they were extemely resistant. My husband spent the extra money to by organic cotton and hemp clothing. we also shop at thrift stores. We vote with our dollars and experience organic cloth to feel soothing and comforting.
Patti Jo Edwards

Cottage Grove, OR

#56 Nov 20, 2012
Frustrated wrote:
<quoted text>
I have found several of mine moving. They look like translucent thin wormlike things. I put one on a slide to keep. It did move and I made my husband look too to make sure I'm not seeing things. Glad to knowing I'm not alone!
The other name for this disease is Bt Cotton Disease as the soils of Genetically modified crops contain Agrabacterium which is found in all of the sufferers tested. The fibers have been tested in an FBI lab and are unlike anything in the FBI database. It is a fungus and contagious. You are not alone, or crazy.
Patti Jo Edwards

Cottage Grove, OR

#57 Nov 20, 2012
Check out Facebook to find information and community. there are more than one. I found this one. http://www.facebook.com/pages/Morgellons-Dise...

Since: Dec 11

Location hidden

#58 Nov 20, 2012
Richard Kuhns wrote:
There are dozens of approaches to Morgellons and other skin parasites. The web is full of them. And there are a lot of theories.
I contracted skin parasites back in the mid 90's before the word Morgellons was coined in 2002. I discovered what I call the King Diet that literally has saved my life and hundreds of others.
For many years many of us tried to figure out what we had and what was causing our itching and biting symptoms that were ruining our lives. Word and phrases like Morgellons, collembola, spring tails, and strongyloides were being thrown about.
Through my newsletters and emails from subscribers and my own personal experiences I realized that there were three distinct skin parasites:
Morgellons
Collembola or they are also called spring tails
Strongyloides (a nematode)
I published my first book in 2006 titled Soothing the Itch Within and the Diet to Control it.
More recently in 2012 I've rewritten and updated it and changed the title to How to Get Your Life Back from Morgellons and Other Skin Parasites.
From the contributions of hundreds of subscribers and their experiences, we now know how to do exactly what the title says--Get Your Life Back as I have personally done and helped hundreds and hundreds do likewise. Although the King Diet is effective for all three parasites, there are a few other fundamental things you do to truly get your life back.
And you don't have to have your mercury filings removed. You can google the title or go to http://www.SkinParasitesEbook.com
horrible website. looks like a really professional product.
Sheila

Portland, OR

#59 Dec 28, 2012
Groupmonster wrote:
Hi, I live in Portland as well.. Thought I just had a collembola infestation (not to downplay the severity of that in itself) but now I'm seeing fibers.. And I'm growing strange hairs.. My feet are swelling, mental acuity is effed... I'm Starting to lose it, I haven't worked in about a month and all of my money has gone to selective treatment, I can't pay rent and I'm on the brink of being homeless... On top of all that I have absolutely no familial support... This sucks. So now that you've heard my sob story.... Has anyone in Portland found a doctor who treats for morgellon's? Does the city recognize it.. Or do I have to move to Oklahoma and sign up to be a university labrat...:/ haha, let me know! Oh, and If you live in Portland, and you have this thing I also wouldn't be opposed to meeting up/sharing info etc. This sh*t is lonely, yo!:( thanks.
Hi,

I know you posted this note a while ago, but wonder if you've found medical help in Portland, OR. I also live in Portland, OR., have Morgellons Disease and I am looking for someone who could treat me here. Any suggestions?
HORRIBLE

Chicago, IL

#61 Apr 19, 2013
CareMan wrote:
Morgellons Comes From the Beef You Eat! Here is Scientific Proof!
Austin, TX (PRWEB) May 16, 2012
The controversial illness known as Morgellons disease has a physiological basis, according to a new research report, "Morgellons Disease: A Chemical and Light Microscopic Study,” published in the Journal of Clinical and Experimental Dermatology Research.
Recently, veterinary microbiologist Marianne J. Middelveen from Calgary, Alberta, Canada and internist Raphael B. Stricker, MD published a study documenting similarities between Morgellons disease and a veterinary illness known as bovine digital dermatitis (BDD) that causes lameness, decreased milk production, weight loss, and skin lesions near the hooves of affected cattle. That study revealed that the unusual fibers seen in the animal disease were similar to those seen in and under the skin of people worldwide who suffer from Morgellons disease. A new study confirms that Morgellons disease is not a delusional illness, as some in the medical community maintain.
The latest findings confirmed that fibers from both bovine and human samples were similar in formation at the cellular level and had the chemical and physical properties of keratin. The keratin composition of filaments from humans was confirmed by immunohistological staining with antibodies specific for human keratins. Fibers from human patients were found to be biological in origin and are produced by keratinocytes in epithelial and follicular tissues. The findings are consistent with the 2012 Center for Disease Control publication stating that over 80% of non-biopsy material taken from patients had a protein composition.
“This study puts the final nail in the coffin of delusional disease that these patients have been labeled with,” stated Dr. Stricker.“It proves that Morgellons disease is a physiologic illness. From here on, scientists will be able to move forward in finding a cause and a cure.”
Co-author Stricker, a renowned Morgellons expert, has treated hundreds of people with this disease at his San Francisco, CA-based practice. Principal author, Middelveen, is credited with finding the connection between the two diseases. After noticing that the filaments found on cattle showed striking similarities to those found on Morgellons patients, Middelveen contacted Dr. Stricker. Their joint research identified many common features concerning clinical and epidemiological similarities.
The Charles E. Holman Foundation is a 501(c)(3) nonprofit organization committed to advocacy and philanthropy in the fight against Morgellons Disease. The foundation was named for Charles E. Holman, a pioneer in the fight against Morgellons disease. The Charles E. Holman Foundation is based in Austin, Texas and is lead by Executive Director, Cindy Casey Holman.
For further information or to read the study, visit the website at www.thecehf.org . www.nutrasilver.com
that is very upsetting to some people!
Caroline Carter

Cyprus

#64 Jun 8, 2013
There is a very easy test if doctors/microbiologists could be bothered. The hair of everyone suffering morgellons will produce long fibers when a strand of hair is placed in a slightly diluted solution of food grade H202. The fibers are approximately 1/10 the width of the hair and needS to be viewed with a microscope. I have never tried using a magnifying glass, but possibly a good one would suffice in plac of a microscope.
Caroline Carter

Cyprus
Susan Dassow

Marshfield, WI

#65 Jul 9, 2013
kimmy wrote:
I have had this dreaded affliction for 4 years now. It has changed my life, and affected me in every way. Aside from the obvious, physical changes that have occurred with my skin,and the constant pain, combined with the disturbing neurological effects; perhaps the most damaging effect of this disease has been the loss of credibility, with almost everyone I know. The self-doubt that I've let this pattern bestow on me, coupled with the pain and exhaustion, has all but crippled me. And lastly, the skepticism and ignorance of the medical community, which is clearly what fuels the loss of credibility with family and friends, employers,ect...then undoubtedly this has instilled one the ugliest of all traits...bitterness. My question is...How could it not! When we all have physical proof that absolutely no one will look at! I'm thinking what on earth was I thinking...when I thought the dermatologist would take a look at my pictures...even just a couple?? Sorry...I mean they don't even look at my skin, or anything I'm trying to show them...patterns, similarities,changes; nothing!!! They look at nothing!!! Now maybe it would be possible to live life as normal if it were only skin deep...But it's not, and I am not that shallow. It's downright frightening, and inhumane, is what it is...So, yeah dammit, I'm mad as Hell!
I have had this for 4 years and I know where I got it my doctors think I am crazy I figured this out myself I cant believe there is no cure, I live in WI please someone help!!!
Susan Dassow

Marshfield, WI

#66 Jul 9, 2013
I cant believe there is no cure for this morgellons disease what happens when kids get this it will be horrible.
sharonearth

United States

#67 Jul 12, 2013
Susan - First, children have gotten this disease. It has been reported to me from a physician that within a household, one parent and one child (of the four family members) have Morgellon's. I do not know the state of the child's health, but it begs the question of heredity versus environment. It also makes me feel that some level of susceptibility and/or contagion could exist. That scares me a lot, as the most comforting knowledge I've had about this disease is that it's not contagious. Thinking about the possibility of spreading Morgellon's makes me quite alarmed (and thinking of Leper's colonies). Nothing is pretty about that scenario. Also, if it is conceivably contagious, where did I get this disease?

To address your point on credibility, I concur with your observations about treatment being nonexistent or negligible. The experts in medicine are novices about this disease. Thirteen thousand diagnosed cases seems like a fly on the windscreen to pharmaceutical companies, and it's easier to blame this on delusional parasitosis or an internet illness. My PCP recently prescribed risperdal to me, as I was in a major breakout and having issues with sleep and hypersensitivity. It is an antipsychotic, and for the three whole days (of four) I took it, I slept excessively and was totally out of it even when I was awake. What seems to have arrested the outbreak and started to heal some of the lesions is four trips to the mineral springs in just over a month. I drank about four cups of the waters as well as bathed in hot mineral water. I used the sauna and jumped in the 57-degree creek. I also had a lymph massage in between the first and second times I visited the springs.

So, while this disease is much more than skin deep, I agree the professionals are less than supportive and unwilling to listen, take blood work, or collect skin samples. It is maddening and cruel to treat people suffering this way. If you get agitated or excited, they feel it's more psychological than physical. Stress definitely exacerbates the symptoms, too. Dermatologists have not come around to even accept the diagnosis. I am sorry I am unable to do or say anything to help you, but please know you are heard and you are not suffering alone.
Susan Dassow

Marshfield, WI

#68 Jul 12, 2013
I figured out that I have morgellons when I typed in eggs and worms under my skin and I found this. My Doctors think I am crazy, but I know how I got it I got bit my something one my behind and ever since then It is terrible the lesions are on going and I feel like I am crawling out of my skin. I have had this 4 years and I don't know what to do.

Since: Jul 13

Location hidden

#69 Jul 13, 2013
The info is all very interesting

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