'Hundreds' more claim thyroid drug side-effects

Jun 15, 2008 | Posted by: roboblogger | Full story: Southland Times On Line.

A Gore woman, who sounded alarm bells over changes to the Government-funded thyroid drug Eltroxin, has been overwhelmed by calls from people throughout the country who have also suffered side-effects. Lyn said ...

Comments
1 - 20 of 20 Comments Last updated Sep 16, 2013
Liza - Wellington

New Zealand

#1 Jun 24, 2008
I too have been having side effects and thought that maybe it was me, until my daughter had told me about the news report. Having looked further into this I am glad to see that it is not just myself. I cannot believe that a company can change a formula without consulting or informing its consumers of the complications this medication will have. I have been on this medication for 6-7 years now with absolutly no problems until the last 4 - 8 weeks and my life has been hell.
Kahu - Opotiki

Auckland, New Zealand

#2 Jul 4, 2008
I have been trying to get my doctor, chemist, manufacturer & anyone who keeps wanting to give me Eltroxin, to listen to me when I have told them how sick I have been on this drug. I have had abdo pain, diarhhoea, vomitting, daily palpatations ( have kept records of this), & just generally feeling like crap & guess what... NO ONE IS LISTENING.. I have ended up in hospital in cardiac care unit, I am waiting to go into hospital for ablation & I'm positive it is cos of this drug. I had been on thyroxine for many years with no problems. I went off the drug for 2 weeks after being on it for 3 days. During that fortnight I felt so much better., then I had a blood test & my thyroid functions tests were out of whck & I was told to get back onto the eltroxin pronto.After that I felt yuk again. I have started taking a fantastic fruit juice called "Mona Vie" & have felt a little better than I was. When I was first put onto Eltroxin, I was told by my chemist that it was exactly the same as what I was on, just under a different name. However, the thyroxine I was on prior did not have to be taken on an empty stomach like eltroxin is. As you can see, I am not a happy camper & I am filling in an "adverse reaction to drug" form.
Rose Barlow

Auckland, New Zealand

#3 Aug 15, 2008
Since June last year I have had numerous strange health issues which the gp can find no cause for - I have been on thryoxin for at least 3 years with no problems. The recent problems include severely itching eyes, abdominal pain and bloating, sluggish system, chronic tiredness, depression,, etc. I have tried increasing my thyroxin dosage, thinking that my normal dosage was inadequate, but this made no difference. i saw last night's tv programme/interview and was horrified.
Karen Gorton

Wellington, New Zealand

#4 Aug 17, 2008
I have been on thyroxine for about three years with no side effrects, after having a full throidectomy, until about 9 months ago. I have sever insonmia,and tiredness cramps and blowting, not good bladder control, very fuzzy memory and severl shaking of the head, achey muscles, weight gain So much so that I did question the pharmasist as I noticed that the naming of my medication had changed to Levothyroxine. I was told that nothing had changed only the manufactuer because of subsidies. It all makes sense know. I have has blood tests, MRI scans visted specialists as I though possibly I have Alzheimers or something. all tests come back negative, my GP is at a loss. The problem is, I cant work all day or make decisions or negotiate contracts which is part of my job, I feel isolated and since seeing the news article I am convicnced that the Levothryroxine may be palying a part in the symptoms. What is to be done about it, as we totally depend on this drug.
Alice C Small

Auckland, New Zealand

#5 Sep 10, 2008
I guess we are all in the same boat - headaches - feeling crap, blurry eyes etc - but the Doc says "NO" everything is justy the same - can we all be wrong? Let's hope that someone is listening in.
Amanda-UK

UK

#6 Sep 15, 2008
For my mother, Jackie, having Thyroid problems have been the bane of her life. I'm not 100% on the mixture of Thyroxin she is on but I'm gonna have a look at her tablets later.
For some time she was suffering from back pains, side pains which may well have been IBS, other symptons she's had neck pain and I think the most blighting has been the severe itching. Itching to her face/nose and eyes (Her eyes sometimes are that red and puffed) with the feeling of grittiness. Her doctor hadn't even heard of itching as a side effect. She often uses antihystermines that slightly help. I have printed this info for her to take to her doctor and prove other people have the misfortune of major problems with thyroid. I feel for you aswell as I feel completely useless as I can't help my mum.
David

Christchurch, New Zealand

#7 Sep 16, 2008
At last the NZ sufferers are uniting, so take heart Kiwis........ http://keenkiwi.orconhosting.net.nz/index.htm...
Jill Scott

New Zealand

#8 Oct 12, 2008
I have been on Thyroxin for almost all my life and i am now 44. Up until about 6 months ago when there was a sudden name change to my medication(reassured nothing untoward by pharmacists)i have had little or no probs with ne side effects. Now tired, shaky, depressed, headaches, blurred vision, nausea afta taking tablets,and just generally feeling crap. I really want to change medications if only to see if i can feel like myself again as i have five kids, a home to run and full-time employment. So dont need this ay!
J Wynyard- Whangarie

Auckland, New Zealand

#9 Oct 13, 2008
iv had the same from my doctor was sent to a councilor and came close to go on antidepressants.my symptoms hav been racing heart beat,pulpatations, anxiety to the max,blurry vision,tiedness, aching joints, felt like i was guna hav a stroke or heart attack and generaly felt crap and very scared felf like i was going nuts. iv got myself on synthroid but is costing me bout $40 for 60 tabs which isnt going to last me even a month and times are hard so.... but im feeling much better but im still tied as my dosage needs to be monitored as iv only been on it for 4 weeks. i just not sure our doctors are all that informed on this
willem Auckland

Auckland, New Zealand

#10 Oct 20, 2008
I started levothyroxin in october 2007. A month later i ended up in hospital.
Had a very bad reaction on the new formule. had a seizure so heavy that i dislocated both shoulders. Than was given eltroxin. All side effects from the above I have had every day headaches till I found out about the sideeffects of this poision. went on to old stock i had and was a different person within 48 hours doctors say it is between the ears YEH RIGHT.
Now my old stock is coming to a end so what now?
Sherria Ease

North Richland Hills, TX

#11 Jan 28, 2009
Hi Karen and to all I know its been awhile since comments but my brother was on this medication and has some serious side effects that I believe took his life. I am not trying to alarm those on this medication but there are serious side effects that are very life threatning. I am going to do whatever it take to have this drug removed or warned more and more people of the seriousness of this drug. His doctor did not listen to his complaints he only up his medication. Pay close attention to the side effects and seek medical attention everytime because this could save your life!
Karen Gorton wrote:
I have been on thyroxine for about three years with no side effrects, after having a full throidectomy, until about 9 months ago. I have sever insonmia,and tiredness cramps and blowting, not good bladder control, very fuzzy memory and severl shaking of the head, achey muscles, weight gain So much so that I did question the pharmasist as I noticed that the naming of my medication had changed to Levothyroxine. I was told that nothing had changed only the manufactuer because of subsidies. It all makes sense know. I have has blood tests, MRI scans visted specialists as I though possibly I have Alzheimers or something. all tests come back negative, my GP is at a loss. The problem is, I cant work all day or make decisions or negotiate contracts which is part of my job, I feel isolated and since seeing the news article I am convicnced that the Levothryroxine may be palying a part in the symptoms. What is to be done about it, as we totally depend on this drug.
Nice Nancy

Alameda, CA

#12 May 14, 2009
I was on Thyroxine for about five years. No side effects but no weight loss either.(my fault) So I started the Eat Clean Diet by Tosca Reno and lost ten pouns in two weeks. THEN I refilled my prescription and the New Pharmacy CVS switched my Thyroxine with Levoxothal and now I am gaining weight again! Huh???? I continue to eat nothing but fruits, vegis, protein.No snacks I exercise every day. I heard CVS does this to save money should I call them on it?
Me Too

Minot, ND

#13 Feb 28, 2010
I have been taking Synthroid for 3 years and since moving to another state, the CVS here has switched my Synthroid to Levothyroxine. Since they have done this my skin has become so dry that nothing helps, my hairs on my head and my eye lashes are falling out, and I have stopped losing weight when I had lost 50 pounds recently after having my second son. It has to be the switch in medcation.
LISA MANN

United States

#14 Apr 5, 2010
I HAD TONS OF PROBLEMS TAKING THYROXINE, SO NOW I AM NOT TAKING IT ANY MORE AND FEEL A LOT BETTER.
wayne

Napier, New Zealand

#15 Jun 6, 2012
i had my thyroid removed in 1986 and went on replacement that was fine for many years,then sometime in the 90,s they changed the make of the pill,i was told it is in the glue that they mix it with.i got really sick with dizziness and headaches.I went to my chemist and had to pay for the old pills and came right but in the last two months i seem to have all the symtoms back and dont really know if the pill has changed again.i have had a ct scan and all kinds of tests because i am not bad until mid afternoon and then it sets in,very dizzy and nausia been on other pills but i stopped them all for a while to no avail the only one i have not and cannot stop is the thyroid pill,i know the levothyroxine is no good.am i right.
seratonia

London, UK

#16 Jun 10, 2012
Amanda-UK wrote:
For my mother, Jackie, having Thyroid problems have been the bane of her life. I'm not 100% on the mixture of Thyroxin she is on but I'm gonna have a look at her tablets later.
For some time she was suffering from back pains, side pains which may well have been IBS, other symptons she's had neck pain and I think the most blighting has been the severe itching. Itching to her face/nose and eyes (Her eyes sometimes are that red and puffed) with the feeling of grittiness. Her doctor hadn't even heard of itching as a side effect. She often uses antihystermines that slightly help. I have printed this info for her to take to her doctor and prove other people have the misfortune of major problems with thyroid. I feel for you aswell as I feel completely useless as I can't help my mum.
She is lucky to have you.....I feel for your mum..it is the feeling of ""O God what else can I do ??? " I am looking in to diet at the moment,what keeps coming up is we must make sure our Iodine is right...and to avoid some green veg Brassica family...which is cabbage..brussel sprouts..kale ect which we are all great if you dont have a thyroid problem....dont quote me,but it seems to come up alot and I am serious about changing my diet to see if it helps...but we are all different..as long as it does not harm...
wayne

Napier, New Zealand

#17 Jun 10, 2012
an up date of my problem is that i have been on eltroxine now for a few days but i have this dizziness and when i tell my dr all of this,because i have had all these tests he kind of thinks all these things are in my head and i can assure you that they are not.i really am grasping at straws by changing brands because i dont know what is going on or what is going to fix my problem.to much going on in my health life when i should be getting on with my life,i am open to any ideas.wayne
Edward Michaelson

France

#22 Feb 5, 2013
I have ordered prescription drugs (without a prescription) online from http://inhousegeneric.info about two years ago, and was pleased with the speed and quality of service.
I'm thinking of doing the same thing with my medication. The meds is expensive, but there is a generic version available overseas.
I love the idea of taking responsibility for my own health (or lack of health) and skipping the bureaucracy... to say nothing of having to drive to the doctor, wait in line, yet again, to get a prescription refilled.
Taft

Sweden

#23 Apr 20, 2013
i wrote:
I have ordered prescription drugs (without a prescription) online from http://inhousegeneric.info about two years ago, and was pleased with the speed and quality of service.
I'm thinking of doing the same thing with my medication. The meds is expensive, but there is a generic version available overseas.
I love the idea of taking responsibility for my own health (or lack of health) and skipping the bureaucracy... to say nothing of having to drive to the doctor, wait in line, yet again, to get a prescription refilled.
http://inhousegeneric.info very clear and informative site, simple ordering process and very fast delivery. All round excellent service - will use again.
Corie

Germany

#25 Sep 16, 2013
have been researching for months and reading reviews for each pharmacy and finally decided to take the plunge and order from one. After coming to the conclusion http://goo.gl/bLFWQG seemed the most safest and had the best feedback I ordered my pills. Was very apprehensive at first due to cc fraud, ell and they are good i would definetely recommend and purchase againspam and being generally ripped off (have not received one spam email and no cc fraud) order process and checkout was simple.
placed my order on my debit card and was charged straight away and received confirmation email immediately. choose the speedy del trackable and was advised del would be 7-9 days and order was placed on the 08/01. was just about to email them today to chase up as now 15 days but behold package had been posted through my door. packaging seems as shown on webiste. apart from small delay on advertised shipping time i have been generally please with the pharmacy.
wont be taking the pills for another few weeks yet but all going well and they are good i would definetely recommend and purchase again from them.

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